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Secukinumab for Psoriatic Arthritis User Reviews (Page 3)

Brand names: Cosentyx

Reviews for Secukinumab

Commonly mentioned side effects
  • Cam...
  • Taken for 1 to 6 months
  • January 30, 2022

"I was on 25 mg of prednisolone and 20 mg of Arava, and sulfasalazine, for PSA. My rheumatologist put me on Cosentyx after a fecal test for IBD, which was negative. Two days after my first loading dose, I noticed pain in my rectum and fissures. I then couldn’t go to the toilet and couldn’t sleep, waking in anxiety in the middle of the night, absolutely excruciating pain. I rang my GP and rheumatologist, and they told me it would go away and to keep going. I injected the next dose, only to be worse, so was sent for a colonoscopy, which came back clear. So, they diagnosed me with IBS. I refused to keep taking Cosentyx, as my Cosentyx nurse also said this raised red flags. My rheumatologist switched me to Humira, which is absolutely my miracle drug. I am off all other drugs, just Humira-no pain in joints and skin fully clear. I am back to a normal life, swimming and working physically. Love Humira."

1 / 10
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  • Izz...
  • Taken for less than 1 month
  • February 21, 2025

"Started with a runny and dry cough. About 12 hours later, my legs hurt, a little later, my back hurt so bad I didn't feel like I could stand up or walk, and I felt really dizzy, followed by chest tightness that made me think I was having a heart attack."

3 / 10
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  • PA ...
  • Taken for 1 to 6 months
  • November 17, 2021

"I was diagnosed 3 years ago with psoriasis. I'm pretty sure I've had it for a long time. Red spots appeared on my legs, so the dermatologist biopsied them. The arthritis aspect hit about 2 years ago. I started Cosentyx in July after 3 years on methotrexate (apparently it was affecting my liver enzymes). It worked on my PA pretty quickly, but in September I noticed I was extremely aggravated, easily irritated, could not think straight. My thoughts raced so fast that I could not think straight. I could not make decisions. After a lot of research and being told by my adult daughter that I was not myself, I did a lot of digging and research, only to find out that Cosentyx can cause manic episodes. That was exactly what happened to me. I've been off it for a month, and now I realize that my psoriasis is 100 times worse. I have bumps literally covering my body. I had pustular psoriasis on my toes, and now I have several patches of plaque psoriasis, which is something I did not have before. This sucks."

1 / 10
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Frequently asked questions

  • itc...
  • Taken for 2 to 5 years
  • January 27, 2025

"Worked brilliantly from psoriatic arthritis. However, I have recently had a painful outbreak of pyoderma gangrenosum on my hands and have suffered near-total hair loss from my scalp in three weeks! So, my rheumatology doctor has halted Cosentyx treatment in case I'm suddenly suffering from an adverse reaction to it."

9 / 10
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  • ken...
  • Taken for 5 to 10 years
  • March 7, 2025

"I have been on Cosentyx for 6.5 years. At the beginning, I just about quit because the side effects were very intense. I am so glad I continued, my psoriasis is 99.9 percent gone, and it keeps the psoriatic arthritis 80 percent controlled. I can't say thanks enough to the doctors, nurses, and Cosentyx. Honestly, not sure if I would still be here without it. Thanks again."

9 / 10
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  • Bat...
  • Taken for 2 to 5 years
  • November 28, 2024

"It's been 5 years since I started Cosentyx, and my skin is slowly starting to break out again, and it still hasn't been as effective as I wished it was on my PSA. Major issue is Cosentyx seems to have contributed to my weight gain, and I can't seem to shift the weight no matter how much I try to exercise, which is difficult most of the time, and I even changed my diet to 75% vegetarian, and still my weight won't budge. I'm also thyroid-less and menopausal, which doesn't help, but my weight started to climb when I started Cosentyx. It's so disappointing, and my rheumy sees nothing wrong. Not surprised."

6 / 10
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  • Daw...
  • Taken for 2 to 5 years
  • March 30, 2021

"The company that makes this should be ashamed of themselves. I have called several times to report my medicine did not get delivered, each time I was on hold 48 minutes to an hour and a half before I hung up."

8 / 10
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More FAQ

  • Old...
  • Taken for 2 to 5 years
  • August 5, 2018

"This drug changed my life. Arthritis is gone. I am back on the field competing against guys half my age. Thank you, Cosentyx!"

10 / 10
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  • gai...
  • Taken for 1 to 2 years
  • October 31, 2018

"Cosentyx started working for me almost from the first injection. After a year of taking it, I am almost symptom-free."

9 / 10
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  • Red...
  • Taken for 6 months to 1 year
  • February 9, 2019

"Have had great results on the psoriasis and arthritis, but am having some problems with side effects. Anybody else?"

8 / 10
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  • Chr...
  • Taken for 1 to 6 months
  • March 12, 2018

"I have plaque psoriasis and psoriatic arthritis. I have been on Cosentyx for 5 months, it has been a blessing. My psoriasis is gone, and my arthritis feels 85% better."

10 / 10
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  • Sun...
  • March 3, 2019

"I've been receiving injections for 3 weeks. My psoriasis has stopped spreading, as well as there is no more flaking of my skin. I'm very excited to reach my goal of clear skin of psoriasis."

10 / 10
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  • BAL...
  • Taken for 1 to 2 years
  • September 26, 2018

"I have only had two injections so far, and I can't wait to take the 5 weeks of Cosentyx. My joint pain is tremendous. Psoriasis is the same, I'm very hopeful. I will let you folks know after my weeks."

5 / 10
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  • Dan...
  • August 2, 2017

"Had much more pain in joints than any other treatment, including methotrexate, Humira, and for a couple of years, nothing but Tylenol and Advil. Week 8, going back to Humira."

1 / 10
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  • Goo...
  • November 20, 2017

"Cleared about 80% of plaques, mild help on arthritis pain. Major hair loss."

8 / 10
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  • Anonymous
  • Taken for 1 to 2 years
  • August 19, 2023

"It worked well with psoriatic arthritis. But constantly had chest pressure, breathing difficulties"

8 / 10
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  • Mam...
  • Taken for 1 to 6 months
  • December 10, 2022

"Four months in using Cosentyx and there are no changes to my arthritis. Really stiff getting up from a sitting position. Sore muscles, especially after injections."

2 / 10
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  • Geo...
  • Taken for 2 to 5 years
  • November 4, 2021

"Cosentyx has been a Godsend!!! It has been a huge blessing. It has helped my pain tremendously. I highly, highly recommend it."

10 / 10
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  • JLS...
  • Taken for 2 to 5 years
  • April 21, 2023

"Pretty good results for my skin. Some softening of stools. Results reduced over time, but still much better than before taking it."

9 / 10
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  • Cha...
  • Taken for 1 to 2 years
  • July 25, 2023

"Cosentyx has been wonderful for clearing up my psoriasis. It's not as helpful with the arthritis pain though. It does provide some pain relief, which is always welcomed."

7 / 10
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  • Tri...
  • Taken for 1 to 2 years
  • June 21, 2023

"It helps with joint pain. I do get side effects, but the benefits of the medication outweigh those side effects."

9 / 10
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  • Hel...
  • Taken for 2 to 5 years
  • January 14, 2025

"Marked improvement with PsA pain and psoriasis in the scalp. However, a significant increase in severe chest infections that are difficult to treat."

5 / 10
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  • DWF...
  • Taken for 6 months to 1 year
  • January 2, 2025

"Has noticeably reduced my inflammation. Hoping to increase dose from one injection per month to two in order to gain further improvement."

8 / 10
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  • Dst...
  • Taken for 6 months to 1 year
  • June 21, 2023

"Hard to get insurance to cover. Had gaps in medicine because of this. It works but slowly and wears off before the next dose. I’ve had a lot of small infections because of taking this medication."

5 / 10
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  • Jay...
  • Taken for less than 1 month
  • July 1, 2019

"Had a terrible reaction to this within 5 minutes of the first loading dose. Terrible drug, should be taken off the market given how few people report any benefits, but most report negatives."

1 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Psoriatic Arthritis

Symptoms and treatments