Pyridostigmine User Reviews & Ratings (Page 2)

• Anonymous
• June 22, 2010

Pyridostigmine for Myasthenia Gravis "This medicine gave me great relief within a few hours of taking it. However, I get really painful cramps in my stomach. I realized I get hungry more often. I have been on it for about three years. Within these three years, I have taken about six doses. I think it is great."

• Maz...
• Taken for 6 months to 1 year
• October 25, 2021

Pyridostigmine for Myasthenia Gravis "Mestinon helped ease my symptoms but did not completely relieve the pain. Neck and shoulder cramps and pain still persist, especially in the evenings and at night. I have been on Mestinon since I was diagnosed about 6 months ago. Hoping with long-term use, it will improve my symptoms."

• WWo...
• May 3, 2017

For Myasthenia Gravis "I am a 52-year-old female. I was diagnosed about 6 months ago. After the first dose of pyridostigmine, 60 mg, I thought I had found the answer I had been searching for. Yes, I had, and no, I have not. It works, but I have to take it 6 times a day, morning and night. The time release is really a great thing, only slightly too much. So, I have to stop taking the long acting every so often and let a bit of it wear off. I don't really have any side effects except for getting shaky if I exercise too hard, and the 60 mg tab now gives me indigestion no matter what I take it with. Small price to pay for feeling good!"

• Cha...
• July 24, 2022

Pyridostigmine for Myasthenia Gravis "Diagnosed with MG four months ago after having weakness in chewing and swallowing. I had been waiting for symptoms to come before taking 30 mg of Mestinon, which seemed to help pretty quickly. My Dr. suggests taking 30 mg twice a day and not waiting for symptoms to occur. I will do that even though I don’t want to do it that way."

• Anonymous
• March 31, 2012

Pyridostigmine for Dysautonomia "Started taking this a few months ago for dysautonomia and the POTS secondary to it. It helps the low blood pressure, low body temperature, and the gut transit issues. It does not help the nerve pain or cognitive impairment. Sometimes, when I take it a tad too soon (or even sometimes when I take a normal amount at a normal time), it will help my guts, but I will have a lot of difficulty breathing."

• Ano...
• August 6, 2016

For Myasthenia Gravis "I just started this as a trial to see if it works. Double seroneg ocular MG, though EMG showed problems in other muscles. Mild had for a while. Have liver disease, so started on a quarter of a sixty. On taking it, I began to feel better, like relief through my body. I noticed my cheek felt normal, not like full of lidocaine. I could smile evenly, easier, less diplopia, better able to read, and happier. My ptosis is maybe a tiny bit better. I'm on such a little amount it wore off in a couple of hours, and I wanted to take more. I get to take more tomorrow. I think if you need it, it could provide good relief. If it works, time release sounds like the way to go."

• Mar...
• Taken for 10 years or more
• July 1, 2022

For Myasthenia Gravis "I am a 67-year-old woman and was diagnosed with ocular MG (double vision was my first symptom), and I tested positive for muscle and nerve damage in my neck. I started taking pyridostigmine, and within a month, the double vision stopped. That was about 10 years ago. I was taking pyridostigmine 60 mg 3 to 4 times a day, but now I just take one in the morning and whenever I need more - which is rarely. My symptoms are under control (remission), but I occasionally overwork and/or get too hot and tired, and difficulty swallowing, breathing, fatigue, etc., occur. I have a good supply of pyridostigmine on hand always, and it works wonders. I forget I have anything wrong with me. I have few limitations due to MG and am grateful for that."

• MRO...
• Taken for less than 1 month
• March 29, 2023

Pyridostigmine for Myasthenia Gravis "I started Mestinon 30 mg a few weeks ago and increased it to 60 mg three times a day. The first several days, it worked well, but it seems to only help sporadically now. If I don't get 7 hours of sleep or overdo things, it doesn't help me the next day. I am looking forward to getting put on an immunosuppressive med. The side effects are some abdominal cramping, and it seems to make me hungry."

• Lin...
• Taken for 2 to 5 years
• September 3, 2023

Pyridostigmine for Myasthenia Gravis "I was diagnosed in Nov/Dec of 2019. I had weakness in legs/arms/chewing and double vision. I take 60 mg at approximately 8-hour intervals every day. I have diarrhea, which is made worse by having had bypass surgery for weight loss/control. I take 4 Imodium-type pills a day as well as some fiber and an iron tablet. This has helped me to walk and do activities again, although I normally will use a cane for short distances and a rollator or walker for longer distances. It has helped me lead a more normal life again."

• Anonymous
• March 27, 2010

For Myasthenia Gravis "I was taking 3 pills a day, and it was okay for the first few weeks. Then I started with leg and hand cramps, where I couldn't lay down at night. I am now on 3 1/2 tablets a day, and the cramping has decreased, but the neurologist is concerned that the ocular symptoms will come back."

• Dav...
• Taken for 1 to 2 years
• January 7, 2024

Pyridostigmine for Myasthenia Gravis "Upon MG diagnosis, the Mestinon dosage was increased from 5mg x 4 daily by an additional 5mg every 2 weeks. A trial with adjusting the dosage interval timing resulted in a dosage every 3 1/2 hours x 4 daily of 180 mg (rapid release) and one 60mg dose during the night, for a total daily dosage of 780mg. This was all completed prior to going on Prednisone as a secondary medication."

• Mag...
• Taken for less than 1 month
• December 19, 2021

For Myasthenia Gravis "I currently have ocular myasthenia gravis. For the most part, you all are fairly fortunate. I tried really hard but just can’t tolerate the drug. After 3 weeks of being sick, bloated, and being crampy most of the time, I had to go off. I lost 12 pounds (I could afford to lose it) the hard way with no end in sight. Dr. said the drug was doing more harm than good. I am sad. I wonder what the future holds. I am new to this. Nov. 1, 2021."

• Lad...
• Taken for 1 to 6 months
• October 27, 2024

For Myasthenia Gravis "MG symptoms started with mild double vision/blurriness (particularly after grocery shopping and/or driving). At first, I thought it was time for new eyeglasses, but more likely scanning shelves and the road was aggravating the condition. A few months later, I began having trouble chewing and swallowing and an alarming incident of slurring speech while on the phone. A trip to the ER for an MRI ruled out a stroke but didn't really reveal anything else. Fortunately, my doctor picked up on clues like symptoms increasing later in the day, ordered bloodwork, and referred me to a neurologist who gave me 60 mg of pyridostigmine in the office. Within a half hour, my speech and eyelids were nearly normal. I am on 60 mg of pyridostigmine 3x a day and 20 mg of prednisone for 5 months, which I always take with some food. Sometimes I get leg cramps, but stretching my toes downward usually stops them. I also have to void my bladder frequently, but all in all, I can't complain!"

• Kat...
• Taken for 1 to 2 years
• October 29, 2020

Pyridostigmine "I have some symptoms of POTS but not most, so my Dr. put me on 60 mg 5x a day! It helped at first (been taking 1.5 yr), but then I was researching and noticed it was making my hair thin and falling out! I used to have the best hair, and now it is thin, breaking like crazy. At least the balding is under in back of my head, and I had thick hair to start with, but be aware of that side effect!"

• Sbk...
• Taken for 1 to 6 months
• February 4, 2021

For Myasthenia Gravis "I had a good effect, and the first tab in the morning had partial relief. Then, one in the morning and evening still sometimes I had problems. Then I started the 3rd tablet after two to three months, now one and a half tabs is okay with no driving, but with driving for 5 hours, the effect reduces drastically of the medicine."

• oce...
• December 18, 2010

"I have cervical dystonia on the right side of my face, and my eye and mouth droop. I have only been on this medication for 4 days and can already see small changes. If it works like this, I'll take it forever. I used to have such a pretty smile, and now it only smiles on the left... it's awful. My neurologist was giving me Myobloc, so now we'll try this!! No side effects so far."

• Den...
• Taken for 1 to 6 months
• September 9, 2023

For Dysautonomia "I started on 30 mg, 3x daily. Taking the middle of the day dose has been a struggle to remember. I have felt more energy, less brain fog, little less pain. We increased the dose to 60mg after 2 weeks. I feel antsy/restless still after a month with increased dose. I'm finding sleep is difficult (falling, staying, early waking) even with taking 5mg of Ambien. I like having more energy, but now have to manage rest times as I have small crashes, less intense and amount of time is shorter."

• Liv...
• Taken for 6 months to 1 year
• January 5, 2025

For Dysautonomia "I have POTS and VVS. Pyridostigmine has helped decrease dizziness and brain fog as long as I don't overdo it, improved my ability to stand even while I still cannot stand very long. I have more stamina during the day. Basically, I'm unable to do more because of Pyridostigmine, though I feel better doing what I do. I also have Sjögren's, and Pyridostigmine helps produce more saliva. I was reading reviews on here because I've seen some on four pills per day. I currently take three 60 mg tablets."

• Kim...
• Taken for 1 to 6 months
• November 17, 2021

Pyridostigmine for Reversal of Nondepolarizing Muscle Relaxants "I was prescribed tizanidine and got this tablet M180. I have had zero relief. I’d been taking tizanidine with much success. When I picked up this RX, the number on the tablet was different; the pharmacy said it was a different supplier. They didn’t say it was a different medication. This is debilitating; I couldn’t understand what changed; that’s when I found the different tablet #."

• gum...
• July 16, 2014

Pyridostigmine for Myasthenia Gravis "I have been able to swallow within 2 hours of taking my first pill."

• Joh...
• Taken for 6 months to 1 year
• July 22, 2017

Pyridostigmine for Myasthenia Gravis "Medicine works well. I do experience muscle cramps, stomach aches, and muscle twitching at times. Blurred vision occasionally. Overall, satisfied with results."

• Joh...
• Taken for 2 to 5 years
• September 13, 2020

Pyridostigmine for Myasthenia Gravis "Mestinon seems to be effective for me in treating symptoms."

• Nay...
• Taken for 1 to 6 months
• June 11, 2019

Pyridostigmine for Dysautonomia "It actually made my breathing problems worse. Was started on 30 mg once a day and increased to 30 mg three times a day."

• Anonymous
• June 13, 2009

Pyridostigmine for Dysautonomia "I take 30 mg (half tablet) 4 times daily. Works great for dysautonomia."

• Anonymous
• March 21, 2009

Pyridostigmine for Myasthenia Gravis "I tried taking Mestinon when I was first diagnosed, and it caused bad diarrhea."