User Reviews for Mestinon
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Mestinon.
|Dysautonomia||5 reviews||53 medications|
|Myasthenia Gravis||12 reviews||8 medications|
|Reversal of Nondepol...Muscle Relaxants||1 review||8 medications|
|Summary of Mestinon reviews||4.8||18 reviews|
Reviews for Mestinon
For Myasthenia Gravis "Medicine works well . I do experience muscle cramps, stomach aches and muscle twitching at times. Blurred vision occasionally. Over all. Satisfied with results."
John Va. (taken for 6 months to 1 year) July 22, 2017
0 users found this comment helpful.
For Myasthenia Gravis "Thymus tumor caused Myasthenia Gravis. Tumor was removed (thymectomy) but still have severe muscle problems, treated with pyridostigmine 60mgx5 and 5 mg prednisone x2. Which gives me about a 1-2 hour window of better muscle control per dosage. Often times causes severe cramping in neck, head, face, hands, legs.., I take magnesium to relax the muscle cramping. Also have less control of bowels and urinary. Not sure if meds help or hinder in that area. Food has less taste too."
EdwinaJW (taken for 6 months to 1 year) June 21, 2017
3 users found this comment helpful.
For Dysautonomia "I started on 30mg 2x/daily. I had initial loose stools, but have gone back to constipation. I didn't get much relief from my tachycardia, and also noticed an increase in body twitches (not tremors). I'm now trying 60mg 2x/daily and I still have the increase in twitches and most notably, headaches (worse than the normal every day ones), and breathing issues (I already have asthma and laryngospams). Not sure any benefit is worth these side effects, but it's only been a couple of days, so I'll give it a little more time."
POTSylady (taken for less than 1 month) February 17, 2017
1 users found this comment helpful.
For Myasthenia Gravis "I am a 44yr old male recently diagnosed with MG since Nov 2015. I take 90mg 4 times a day. My medication generally last 5hrs. My MG inolves slurred speech, difficulty swallowing, teary eyes, difficulty pushing food around with my tongue, a very weak bite. My medication usually kicks in after 45m-1hr. My speech improves although there is still a hint of a slur but much improved. Swallowing improves but still not confident. I always have water just in case. No diarrhea at all and only once I had severe cramps but that was while I was adjusting my dosage. Taking 2 60mg tablets will probably do that. Have vomited once but I function much better while on Mestinon."
JJ71 January 25, 2016
28 users found this comment helpful.
For Myasthenia Gravis "I had lost the use of my arms and hands, couldn't swallow nor chew....had double vision and often lost the ability for speech. Doctors believe it had progressed nearly 4 years before diagnosed. Within a couple of hours of starting the medication, functioning began to return. I take 3 60mg. tablets per day and am able to function quite well now."
zenarcher (taken for 6 months to 1 year) October 11, 2015
33 users found this comment helpful.
For Dysautonomia "The good: less dizziness and blood pooling in legs due to POTS. The bad: I have all of the negative common side effects: I sweat horribly, I have a regular cough with mucous, I drool a lot and not just at night, I have frequent loose stool, my eyes are super blurry sometimes AND my tongue cramps so sometimes I sound like I've had a stroke or a severe speech impediment. Dose: 30-60 mg with dinner and 180 mg time span before bed. (I can't handle the side effects during the day) I have been on this for over a year. I take this and accept the side effects because without it I would not be able to work due to my brand of POTS. The side effects aren't consistent and my body metabolizes things differently every day."
Super POTSY July 31, 2015
6 users found this comment helpful.
For Myasthenia Gravis "I have been able to swallow within 2 hours of taking my first pill"
gumbo z July 16, 2014
27 users found this comment helpful.
For Dysautonomia "I've been on 30mg of Mestinon two times a day for about three months, I had diarrhea the first few days, more shortness of breath, and some drowsiness, after that I started noticing improvement in my cognition (the worst part of my dysautonomia & Fibromyalgia, to me), and I am able to keep 'doing' things longer than I could before. I do notice when it begins to wear off and I may go up to three times a day on it. I'm very pleased. The only negative I have is big increase in eyelid twitching, and awful muscle spasms in my feet. My neurologist has had me start B-6 for this and it helps a lot."
Mammy59 June 29, 2014
9 users found this comment helpful.
For Myasthenia Gravis "Double seronegative MG with only ocular symptoms for going on three years -- slight ptosis and (typically torsional) diplopia during flare ups. Edrophonium test was very positive; EMG negative. Mestinon induces absolutely no detectable change for me -- which seems odd if the edrophonium test was positive. Stress levels and possibly pollen levels tend to exacerbate symptoms. Symptoms can be held at bay with 5mg prednisone every third to fourth day heavy exercise regimen (35-45 miles running per week) diet low in wheat but high veggies and protein. Asymptomatic periods have stretched up to 9 months."
neuroguy (taken for less than 1 month) June 10, 2014
21 users found this comment helpful.
For Reversal of Nondepolarizing Muscle Relaxants "I found this medicine very hard to withstand. Side effects were bad. I hope others will benefit."
Distressed NCS PT (taken for 1 to 6 months) February 2, 2013
10 users found this comment helpful.
For Myasthenia Gravis "I am a 33 yr old female who was diagnosed with level 4 Myasthenia Gravis about 4 1/2 yes ago. I've taken Mestinon everyday along with a large assortment of other medicines for my condition. I have found it greatly increases my mobility and function, compared to not taking it. The side effects wore off after about 6 months of use, and I really don't have any now."
Anonymous (taken for 2 to 5 years) June 13, 2012
67 users found this comment helpful.
For Dysautonomia "Starting taking this a few months ago for dysautonomia and the POTS secondary to it. It helps the low blood pressure, low body temperature, and the gut-transit issues. It does not help the nerve pain or cognitive impairment. Sometimes when I take it a tad too soon (or even sometimes when I take a normal amount at a normal time) it will help my guts, but I will have a lot of difficulty breathing. "
Anonymous March 31, 2012
9 users found this comment helpful.
For Myasthenia Gravis "I am a 49 year old white male that was diagnosed with Myasthenia Gravis just after my 47th birthday. It took 7 years of various tests before I was finally diagnosed. Mestinon side effects for me was hot flashes, diarrhea so bad that I often wondered which was worse; MG Symptoms or the Mesinon Side Effects. I did however tolerate it and learn to adjust dosage so I could go hiking."
rob37620yahoo.com November 10, 2011
44 users found this comment helpful.
For Myasthenia Gravis "This medicine gave me great relief within few hours of taking it. However, I get really painful cramps in my stomach. I realized I get hungry more often. I have been on it for about three years. Within these three years I have taken about six doses. I think it is great."
Anonymous June 22, 2010
32 users found this comment helpful.
For Myasthenia Gravis "Mestinon helps everyone differently. I started out with ocular MG. Apparently, this drug helps most people with their ocular MG, but it doesn't do anything at all to improve my eye. My case of MG rapidly generalized, and difficulty breathing was my 2nd symptom to manifest. Mestinon improves my breathing issues somewhat, but doesn't take the shortness of breath away completely. Same with my arms and thighs; it helps, but doesn't make the weakness disappear altogether. Mestinon can cause diarrhea, but most likely won't if taken alongside a meal or with a small snack. It must be taken every 3-4 hours. Mestinon is one of the only drugs out there for MG with the least amount of unpleasant side effects."
Anonymous March 31, 2010
86 users found this comment helpful.
For Dysautonomia "I take 30mg (half tablet) 4 x daily. Works great for dysautonomia. "
Anonymous June 13, 2009
20 users found this comment helpful.
For Myasthenia Gravis "I tried taking Mestinon when I was first diagnosed and it caused bad diarrhea."
Anonymous March 21, 2009
33 users found this comment helpful.
For Myasthenia Gravis "I've taken Mestinon for 3 years, since I was first diagnosed with Generalized MG/Optical MG. There has been a great improvement in my weakness. I'm able to keep my eyes open, I don't lose my balance nearly as much, fall less often. I take it every 3 hours and if I miss a dose, the weakness increases. It's quite like taking a pain reliever for a severe headache in that it lessens the symptoms, but they will return as it wears off."
mar020980 November 16, 2008
91 users found this comment helpful.
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- Drug class: cholinergic muscle stimulants
- Mestinon (Pyridostigmine Extended-Release Tablets)
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Other brands: Regonol