Mestinon and Shortness Of Breath: What Users Say

• Mam...
• June 29, 2014

For Dysautonomia "I've been on 30 mg of Mestinon two times a day for about three months. I had diarrhea the first few days, more shortness of breath, and some drowsiness. After that, I started noticing improvement in my cognition (the worst part of my dysautonomia and fibromyalgia, to me), and I am able to keep 'doing' things longer than I could before. I do notice when it begins to wear off, and I may go up to three times a day on it. I'm very pleased. The only negative I have is a big increase in eyelid twitching and awful muscle spasms in my feet. My neurologist has had me start B-6 for this, and it helps a lot."

• POT...
• Taken for less than 1 month
• February 17, 2017

For Dysautonomia "I started on 30 mg 2x daily. I had initial loose stools, but have gone back to constipation. I didn't get much relief from my tachycardia, and also noticed an increase in body twitches (not tremors). I'm now trying 60 mg 2x daily and I still have the increase in twitches and, most notably, headaches (worse than the normal everyday ones), and breathing issues (I already have asthma and laryngospasms). Not sure any benefit is worth these side effects, but it's only been a couple of days, so I'll give it a little more time."

• POT...
• Taken for less than 1 month
• February 17, 2017

For Dysautonomia "I started on 30 mg 2x daily. I had initial loose stools, but have gone back to constipation. I didn't get much relief from my tachycardia, and also noticed an increase in body twitches (not tremors). I'm now trying 60 mg 2x daily and I still have the increase in twitches and, most notably, headaches (worse than the normal everyday ones), and breathing issues (I already have asthma and laryngospasms). Not sure any benefit is worth these side effects, but it's only been a couple of days, so I'll give it a little more time."

• Anonymous
• March 31, 2012

For Dysautonomia "Started taking this a few months ago for dysautonomia and the POTS secondary to it. It helps the low blood pressure, low body temperature, and the gut transit issues. It does not help the nerve pain or cognitive impairment. Sometimes, when I take it a tad too soon (or even sometimes when I take a normal amount at a normal time), it will help my guts, but I will have a lot of difficulty breathing."

• Nay...
• Taken for 1 to 6 months
• June 11, 2019

For Dysautonomia "It actually made my breathing problems worse. Was started on 30 mg once a day and increased to 30 mg three times a day."