Efgartigimod alfa User Reviews & Ratings

• Inl...
• Taken for 1 to 6 months
• December 22, 2022

Efgartigimod alfa for Myasthenia Gravis "I have had 4 Vyvgart treatments. After the first treatment, the next day had no slurring, no drooping eye, and I could eat without food falling out of my mouth. Each treatment felt better. Been 7 weeks and starting to have issues with speech. It sure was great till now."

• Gre...
• Taken for 1 to 6 months
• January 21, 2024

Efgartigimod alfa for Myasthenia Gravis "Over the last ten years of coping with this disease, I’ve had IVIG, prednisone, mestinon, rituxan, ultomiris, and Soliris. Most gave me some relief. After my second injection of Vyvgart, there was a noticeable difference in MG symptoms. After my fourth injection, I feel free of MG symptoms completely. I’m almost 3 weeks since my last injection and still doing great - speech, weakness, droopy eye, and breathing are great. I had mild headache and backache for a few days after the injection. I am now waiting to see how long it lasts me."

• wal...
• Taken for 1 to 2 years
• June 5, 2023

Efgartigimod alfa for Myasthenia Gravis "The first 2 cycles made the MG symptoms worse. One month after the second full cycle, I saw improvement, and improvement has continued with each cycle. I believe I am as close to being in pre-MG condition as possible. I am currently on 4 weeks on, 8 weeks off, and could possibly have a longer off duration."

• Sco...
• January 24, 2025

Efgartigimod alfa for Myasthenia Gravis "I was diagnosed with MG 23 years ago. I pretty much tried most everything out there without much success, except Prednisone. Side note: I was on Prednisone for about three years and had to quit work for the most part after stopping. Brain fog is the primary reason. I had a tumor removed from my thymus gland after the diagnosis. That helped but still had bouts. I managed with nothing for years and most days droopy eyelid, decreased energy, runny nose, breathing and oxygen levels lower. Then I had a potassium shortage. My urologist prescribed potassium tablets. After a few days, my MG got way worse than it ever had been. I kept thinking what am I doing now that may be causing this. I looked up potassium, and it can cause major problems with MG. I was close to going into the ER for breathing difficulty. Stopped the potassium, improved quite a bit in three days, but still not as good as I had been. 80% less symptoms after 4 infusions!"

• Ano...
• Taken for 1 to 2 years
• June 5, 2025

Efgartigimod alfa for Myasthenia Gravis "Life-changing! I've had MG quite severely for 15 years … though immunoglobulin treatment, etc. worked reasonably well following two years of rituximab (had to stop due to very serious side effects) … shortage of Kiovig during COVID lockdown … half dose was given as a result of shortage, leading to a serious MG crisis situation. Led to the use of efgartigimod, which in my case was completely incredible. It is like I’m in full remission during the intervals between the efgartigimod infusions. The people that are behind its development should be recognized for the excellence of their work. I cannot state how grateful I am, I’ve lost 15 years, but I’m back!"

• Bre...
• Taken for less than 1 month
• May 18, 2023

Efgartigimod alfa for Myasthenia Gravis "As of Tuesday, I received my third infusion. However, this is my first cycle. After the second infusion, I had an adverse effect. I usually experience droopy eyelids, but after the infusion, it totally shut my eye, where I was unable to open it. After calling my neurologist, he had to prescribe 20 mg of prednisone. This opened my eyelids back up to its normal droopy eyelids. As of today, I have not experienced improvement. I’m keeping hope alive that I will see improvement after I complete a full cycle."

• Nat...
• Taken for 1 to 2 years
• April 30, 2024

Efgartigimod alfa for Myasthenia Gravis "First of all, I was diagnosed 30 years ago, and it took me 3 years to get the right diagnosis. Over all these years, I have tried many medications, but the only medication that made me feel like I never had MG is Vyvgart. I know it's not easy to be a slave to a medication because I'm going to be honest, nobody tells you that you are going to be on that treatment forever! Every 50 days, counting from the first dose, you only have like 15 days to rest and then start all over again. I have to say that I asked my doctor to change from the infusion to the injection, and in the meantime, it took about 3 months for approval. It didn't get approved, so I was without the medication for more than 3 months. Without Vyvgart medication, I noticed something very weird, and it was that I started to feel like I got this condition for the first time all over again. It was horrible! I appreciate Vyvgart because it really works for me, but I have to get it every 50 days, if not, I'm going downhill even with Mestinon and Cellcept."

• Squ...
• Taken for 1 to 6 months
• January 9, 2025

Efgartigimod alfa for Myasthenia Gravis "The infusion has helped with my swallowing and chewing that were difficult prior to taking the drug. My eye drooping has gotten better but not totally normal. Also, I don’t slur my words anymore, so that’s positive. My biggest issue is that by midday or late afternoon I’m tired. I know that that’s one of the side effects, but I guess being 80 also has something to do with it. Overall, it has definitely helped me, and I just have to adjust to it."

• Bob...
• Taken for 6 months to 1 year
• December 24, 2023

Efgartigimod alfa for Myasthenia Gravis "I have been on Vyvanse since Feb 2023. I started with the IV treatment, and now I am getting the Hytruloo treatment. Both forms have helped me get my strength and life back to somewhat normal. I am only at, I would say, 80% of where I used to be before I got MG, but before this medicine, I was probably at 50%. I had problems with the IVs, it took an average of 3 sticks for my veins to hold, so getting the Hytruloo treatment was a blessing for me. Although this shot only lasts for 2 minutes, it does burn quite a bit. We have found that icing the injection site for about 20 minutes is very helpful and greatly reduces the burning pain."

• den...
• Taken for 2 to 5 years
• December 20, 2025

Efgartigimod alfa for Myasthenia Gravis "I was diagnosed several years ago with myasthenia gravis. I was prescribed prednisone for several, but that did not work. I then was given IV Ig infusion every other month with no positive result. Three years ago, I started infusions of Vyvgart once per week for four weeks, one month off, and repeat the four-week schedule. I have noticed muscular weakness during the break period, with loss of balance and an increase in being tired. Granted, I am 81, which may have some influence, but without Vyvgart, I would be in trouble. I am in the process of application for in-home injection."

• lor...
• Taken for less than 1 month
• June 30, 2024

Efgartigimod alfa for Myasthenia Gravis "Just finished my fourth infusion. This is my first series. On day three after my first infusion, all my facial muscles returned to normal. No more slurring and I could actually completely open both eyes, chew, and smile correctly lol. Every day gets better. I am getting stronger every day. My vision is much better. No more light sensitivity and no droopy eyelids. I feel very encouraged and very hopeful that I will continue to improve. We will now see how long it will last until my next infusion. I'm very satisfied. I am not 100%, but I would say I am 80% back to normal. I still have some weakness in my body but hopefully that will get better too. I dropped four points on my mg score. I do have to say, I was really bad. I ended up in the hospital in April in crisis so this infusion was very important to me. I never thought I would feel this good. I am very grateful for the medication. I would highly recommend it."

• Joe...
• Taken for less than 1 month
• March 12, 2026

Efgartigimod alfa for Myasthenia Gravis "I've had the infusions once a week for 4 weeks. It worked great, and I had no side effects. But now it's been 5 plus weeks after my last infusion, and I feel the MG symptoms starting to return. I have consulted with my doctor, and I will continue with the once-a-month treatment to see if it helps."

• Ano...
• Taken for 1 to 2 years
• February 19, 2026

Efgartigimod alfa for Myasthenia Gravis "I've been on Vyvgart for over a year, 4 weeks on, 4 weeks off. When I started, I was bed bound and had been bed bound for a year. I could tell it started working in the first cycle, but it's been a really slow process. I had a major flare maybe 3 months after starting Vyvgart, and it really scared me. My doctor is switching me to 4 weeks on, 3 weeks off to see if I can see more improvement. Currently, on good days, I can leave the house for about 2 hours of a well-planned outing. On bad days, I still can't leave the house, but I'm no longer bed bound."

• MGa...
• Taken for 1 to 6 months
• May 2, 2024

Efgartigimod alfa for Myasthenia Gravis "This Sunday will be my 8th Vyvgart infusion. I’m 4 weeks off, 4 weeks on (receiving it on Sundays). I jumped through so many hoops to get Vyvgart, that I had it in my head I would be up and moving immediately. But my shortness of breath when ambulating was becoming worse. However, thanks to the lab draws done at each treatment, it showed my hemoglobin being critically low. So relieved it wasn’t the myasthenia gravis. Once my hemoglobin returns to normal, I will follow up here with my Vyvgart progress."

• Dee...
• Taken for 6 months to 1 year
• October 13, 2026

Efgartigimod alfa for Myasthenia Gravis "Medication has worked to relieve the double vision and eye drooping. After 6 months it has decreased the frequency of the muscle spasms and contractions. Side effects for me have included cold hands and feet, headache, muscle aches, tiredness/fatigue."

• Ano...
• Taken for 1 to 6 months
• May 29, 2026

Efgartigimod alfa for Myasthenia Gravis "I had no immediate reaction to the infusion. I had more energy and less muscle weakness the day after the infusion, but the weakness came back two days after the infusion. By my third infusion, I experienced more energy, stamina, and less muscle weakness. I was able to spend 2 hours on three consecutive days working in my garden pulling weeds, a lot of weeds. I am post-4th infusion, and I have an itchy throat and appear to have bloating in my face and ankles. I have contacted my neurologist to see if this is a concern."

• Mon...
• Taken for less than 1 month
• April 20, 2025

Efgartigimod alfa for Myasthenia Gravis "Excellent medication. The medication has stopped almost all my problems with MG."

• Ano...
• Taken for less than 1 month
• January 19, 2026

Efgartigimod alfa for Myasthenia Gravis "Headache, mild lower back pain, high blood pressure, elevated glucose, blurry vision."

• Ric...
• Taken for less than 1 month
• July 10, 2024

Efgartigimod alfa for Myasthenia Gravis "I have had three infusions so far, and my swallowing has improved almost back to normal, and my double vision disappeared. I'm very hopeful for the future. No side effects, at least not so far."

• Doc...
• Taken for 1 to 6 months
• March 29, 2024

Efgartigimod alfa for Myasthenia Gravis "On second cycle and see some steady improvement. Lost a little bit of taste, but my appetite is good. Balance has improved, and distance walking has picked up."

• Gle...
• Taken for 1 to 6 months
• October 25, 2023

Efgartigimod alfa for Myasthenia Gravis "I started Vyvanse on 10/02/2023 and so far, so good. No side effects, well tolerated."

• Ano...
• Taken for 6 months to 1 year
• November 26, 2025

Efgartigimod alfa for Myasthenia Gravis "It has stopped all my symptoms after three 4-week cycles of taking the medication."

• Anonymous
• Taken for 1 to 6 months
• June 15, 2024

Efgartigimod alfa for Myasthenia Gravis "I won't know the full effects of Vyvgart until I have finally stopped the prednisone, but it looks good."

• Rus...
• Taken for 1 to 6 months
• March 15, 2025

"Muscle spasms and weakness are better, maybe a lot better; burning hands and feet are worse compared to IVIG."

• Bri...
• Taken for 6 months to 1 year
• May 26, 2026

Efgartigimod alfa for Myasthenia Gravis "Lessened some symptoms, namely muscle fatigue and ocular symptoms. Resulted in a change of 2 to 3 on the MGL-ADL scale."