Soliris User Reviews & Ratings

Soliris has an average rating of 7.3 out of 10 from a total of 4 reviews on Drugs.com. 33% of reviewers reported a positive experience, while 0% reported a negative experience.

Condition	Avg. Rating	Reviews	Compare
Myasthenia Gravis	7.0	2 reviews for Myasthenia Gravis	14 medications
Paroxysmal Nocturnal Hemoglobinuria	7.5	2 reviews for Paroxysmal Nocturnal Hemoglobinuria	8 medications

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Anonymous
Taken for 1 to 2 years
September 2, 2020

For Paroxysmal Nocturnal Hemoglobinuria "This drug is for Paroxysmal Nocturnal Hemoglobinuria (PNH) but disease is heterogeneous. I feel worse being on it. Doctors push it-patients just do it. It is too much work. I never should have started."

5 / 10

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rwm...
Taken for 1 to 6 months
December 31, 2024

For Paroxysmal Nocturnal Hemoglobinuria "Immediate improvement after 2 infusions, with an increase in hemoglobin / hematocrit. After vaccines for HepA and HepB 2 weeks prior to receiving treatment, I was given 4 weekly infusions, then 4 bi-weekly infusions which brought all my numbers into normal range. I was moved to treatments every 8 weeks, which continue. First 4 infusions were 600 mg. Infusions following have been 900 mg. I have experienced face flushing and increased energy with some agitation for 1 to 2 days following each infusion. I am retired and treatments are covered by Medicare and my supplemental Blue Cross / Blue Shield policy."

10 / 10

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Anonymous
Taken for 2 to 5 years
May 23, 2024

For Myasthenia Gravis "I have been taking Soliris for about 5 years. It has been great. I have only had to have pheresis and IVIGs a couple of times since I started it. I have the side effects though. I have a new symptom, which is burning feet. I don't know if it's from the drug or not?"

7 / 10

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Frequently asked questions

Nic...
Taken for 1 to 6 months
July 10, 2019

For Myasthenia Gravis "I started taking Soliris in January 2019, and by July 2019, I had throat cancer, which was undetectable by CT scan but was confirmed by tissue biopsy."

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18 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.