Mestinon and Muscle Aches: What Users Say

• svh...
• Taken for 1 to 2 years
• October 29, 2022

For Dysautonomia "It took me quite a while to tolerate Mestinon, mostly nausea and headache and twitchiness, but after being on it for about two years, I have almost no side effects. It wears off after several hours, and I take it 3 times a day. It is difficult for me to take it at night, but it would probably help even more if I could. I also take magnesium, which stopped my ectopic heartbeats and muscle rigidity, cramps, and spasms. I was pretty lucky to be prescribed this so soon after having COVID."

• D1a...
• September 1, 2018

For Dysautonomia "I have been on this a week and it seems to be significantly helping breathing issues at night, overall dryness everywhere, constipation, nausea, and urinary retention. Side effects, though, are very unpleasant-very blurry vision (especially at night or in darker lighting), headaches, pelvic pain, muscle cramps, and overall fatigue. I am currently taking a dose of 40 mg three times a day."

• Hil...
• Taken for 2 to 5 years
• February 27, 2023

For Myasthenia Gravis "I have been taking Mestinon for 2 years for generalized myasthenia gravis. I take 30 mg three times a day. Unfortunately, I have severe diarrhea, stomach cramping, and other side effects including muscle cramping. I take Imodium, but sometimes it doesn’t work. I eat only rice, toast, and tea. I wish there was a better medication for MG with less side effects."

• Joh...
• Taken for 6 months to 1 year
• July 22, 2017

For Myasthenia Gravis "Medicine works well. I do experience muscle cramps, stomach aches, and muscle twitching at times. Blurred vision occasionally. Overall, satisfied with results."