User Reviews for Prednisone to treat Fibromyalgia
Also known as: Rayos
Prednisone has an average rating of 8.1 out of 10 from a total of 50 ratings for the treatment of Fibromyalgia. 74% of users who reviewed this medication reported a positive effect, while 10% reported a negative effect.
“I have been on prednisolone for many years. I was bedridden and friends had to do everything for me. After trying a low dose , the improvement was very quick. However over the years I have gradually had to increase the dose to be able to function after being diagnosed with fibromyalgia and Hashimotos. I am presently on 10 mg per day and sometimes ( when I've got a virus or have overdone things) I increase to 12 or 15, but try and return to 10mg ASAP . My rheumatologist has said to try and reduce to 7 and a half mg. I am not overweight. And as far as I can tell I have not " suffered" from taking prednisolone. I do have osteoporosis. ) but I've had that for many years and I believe that started because I had undiagnosed Coeliac disease and thyroid issues which can cause that. I eat a very healthy low sugar/ carb diet I still struggle with energy and pain but try to pace myself so as to cope with life. I hope this helps someone.”
“I've had fibromyalgia for 26 years it started when a chiropractor damaged my spine and perhaps an important nerve.I got laughed at dismissed and ridiculed by doctors. Which ironed in the problem so it has been a living hell. I begged my doctor to let me try steroid she said no, then a year later she said she would give me a trial. She offered me10 mg per day I said no 5 mg prednisolone will do! I now have 9 pain free hours per day, a lot less pain in the rest of the hours its miraculous. I'm relaxed less bothered about stuff I take it early morning no problem sleeping, I have got my life back. No misery just pain free ability. I'm cross I wasn't offered this before as fibromyalgia has robbed me of half my life. I was living in absolute agony all over my body. Now so far so good, even if my doctor won't let me continue on the trial I will find them somewhere else. Take care”
“Every time I take it I feel like the me before Fibro. I was doagnosed 3 years ago. I have had prednisone maybe 5 times now but only for a few week my primary doctor wont give it to me long term to may risks. So in Dec. When I see my RA dr I am asking for it long term. The benifits out weight the benefits. I have three kids and a "possible" early death and bad side effect are minor compared to my kids not having a full functioning mommy now. They are to little for me to be bed ridden or a having these horrible flares and missing their T ball games. I want them to have good memories of me not memories of me being sick.”
“I suffer from chronic persistent fibromyalgia. My life has been consumed with pain for 3 yrs. My Drs and I have tried Cymbalta, Lyrica, Savella, many pain medicines at many different mgs, muscle relaxers, Valium, I could go on and on with the list of medicines we've tried just to give me some quality of life. Well last week my Dr wrote me a script for prednisone for an upper respiratory infection I've been battling. I am here to tell you that I am on a treadmill now, I feel pain at maybe a 3, which for me a normal day was 6-10. I can handle a silly little 3. I'm not saying this may be a permanent answer, I guess when I go back in a month I will discuss it. But even for a respite I highly advice it!”
“Been fighting fibromyalgia since 1990. EVERYTIME I take prednisone for either asthma, bronchitis or pneumonia I find I am pain free!! Its awesome!! I have no negative side effects. Advisable to take long term to remain pain free?? What do the experts say??”
“Same as many here. Put on 12 day prednisone pack for an allergic rash. 18 years with fibromyalgia and nothing has really helped. After the first day my fibro pain was gone! and during the 12 days I was on it I lost 8 pounds (same diet and same activity level), how can that be? of course all you hear it how bad it is. Tears that there is something that can take away this every day unrelenting pain and I can't have it!”
“I was diagnosed fibromyalgia about 20 years ago. Three years ago I started to get swollen joints, painful feet plantar faciitis enthesitis in my ankles and knees I also have scalp psoriasis. I was put on 15mg prednisolone by my gp for 2 weeks then I had to take 2 then 1 to wean me off. As soon as I got on to 1 a day all my symptoms came back with an a vengence, now my rheumatologist has gone back down the road of it's just fibro and she refuses to prescribe me prednisalone. I am in the most horrendous pain and I feel so I'll I am back to constant pain and swelling of my joints I just don't know what to do”
Frequently asked questions
- Prednisone - if my prescription says take 6 pills on the first day do I take all 6 at once?
- How long does prednisone stay in your system?
- Prednisone vs Prednisolone - What's the difference?
- Methylprednisolone vs Prednisone - What's the difference between them?
“I was diagnosed with fibro about 10 years ago. The symptoms have gradually gotten worse in that time, mental fog, joint pain, muscle pain, lack of energy. I am on a good diet of more natural foods and find that the energy side isn't too bad normally. I was prescribed prednisolone for gout, and low and behold ALL my symptoms improved. Pain, energy, clarity all were markedly improved. When I ceased treatment the symptoms returned and I have been on and off the pred for about 2 months. When I take it, I can (and want to) do stuff it is wonderful. On my first return to the docs I told her she had cured me. Imagine my disappointment when I was told I could stay on it. Well the fibro is not getting any better so the doc has re-prescribed pred for my symptoms to get a read of where I am at. Will keep you posted.”
“I was given prednisone for 7 yrs, I was told to get off or die. It took me 1 full yr to get off of them as we has to do it mg by mg each month. I got completely off for last 2 months, I cried every day, could hardly walk, started using a cane and wheel chair when I did get up the strength to go out. Two days ago I said SCREW this! I started on just 5mg, today I'm up and walking, no cane, I walked freely!!!! So I die earlier,? At least I'm going out able to hang out with family for as long as I can ! I've told them all my decision, they don't like , but they have their mom back, and can see how much better I am compared to 3 days ago. Yes u can gain weight, I've gained a lot in those 7 yrs,60 pounds. I'm gonna fix that!”
“I have had fibro for 19 yrs, now on butran opioid patch 15 mcg, Norco 7.5 tree times a day, Nabutome 500mg three times a day, plus Effexor and Lexapro. Pain gradually worsened to pain constant and fatigue. Started falling and now being tested for MS or myasthenia gravis due to neck lesion and inflammation. This is my review of the 3 day high dose IVMP (IV methylprednisolone) 1000 MG DAILY, I haven't felt this good in 10 yrs with my fibromyalgia. Pain is so improved, you forget how bad you really do feel until the pain clears. I don't know what the future holds but steroids have to sit in there somewhere. Slight headache and a bit of insomnia so far.”
“Prednisone literally gave me my quality of life back!!! The days I don't take it, I hurt so bad, all I want to do is lay in bed, the days I do take it, I am very productive! I'm in a good mood, I have minimal pain, the only downside is your super hungry, but after a while that tapers off to.... prednisone is not the typical treatment for fibromyalgia that I highly recommend it!!!!! Since prednisone shuts down your own immune system you need to stay away from sick people, because most likely you'll catch it, and as you all know a normal cold is a horrendous ordeal for all of us!!! Keep up the fight ladies!”
“I have had fibromyalgia for about 8 years also develop osteoarthritis in my feet hands neck and back. Just weaning myself out of Prednisone and my pains are returning. Have decided today I will stay on prednisone and keep the dose at ten mg. Quality of life is more important to me. Just to be able to move without stiffness is a relief! I am careful what I eat, very low sugar intake and moderate exercise has helped keep my body weight normal. (Besides other inflammatory drugs are known to contribute to heart attacks). I know someone who have been on cortisone for many years and she is not overweight and has not got osteoporosis. she manages her doses her self carefully she is now 80 years old. if she can do it I can do it too”
“Long story short, tapered down from 7 to O mg of prednisone for PMR. Pain has slowly become unbearable. I don’t walk, I shuffle. Can’t bend down for pain, my place is a mess. I’m 61. Last night on a lark I tried 10 mg of leftover pred. This morning I am newborn! Pain has gone from 6-7 to 2! I’ve had fibro diagnoses for 4 yrs now. All Dr’s try to get me off pred. Hunh?!! What an eye-opener reading this has been!”
“In 1996 I saw a rheumatologist who diagnosed me with fibromyalgia. At that time I had begun to get the nagging aches and pains which were still tolerable. I was prescribed gabapentin. It worked for the most part. I also have asthma and tend to get bronchitis. My Drs prescribe prednisone. Within 24 hours I find I feel pretty good. The pain dissipates, and finally I get some relief. All these years later I have almost unbearable pain. So many medication I can't take, but look forward to a round of Prednisone.”
“Omg I can't believe what I'm reading.. I've been treated for fybro for 3 yrs and all the meds did nothing I continued because I hoped one day it would start to work. I got a problem with my eye and like spiders web and went to hospital who gave me this steroid drop to reduce this. Well within 9hrs I felt like I could run round block. I could bend, lift, bake, cook, clean and pain free. I stopped all meds for fybro and use the drops for a week. The doctor didn't know any connection ?? Anyway 6 months later and in starting to go down hill again the pains are doing my head in..(I still have the black ring in my eye) my eye consultant rang me while I was in lockdown and I told him and that I still have the ring I can see...he prescribed me some more drops.......and whatya know....7 drops later the pains are easing. My doctor wont listen to me at all..they work....”
“When given steroids twice ,for different complaints my fibromyalgia pain and stiffness improved greatly However my GP claims it is of no benefit and will not Prescribe for my pain .it's very upsetting when I know it's the only thing that has helped”
“I have been struggling with fibro and degenerative arthritis in my neck. A few months ago I broke out in a massive, welty rash on my torso, no clue as to the origin. I was given a shot and oral steroids. I felt 16 again! I am now trying low dose intermittent prednisone and my once debilitating symptoms are under control. I have my life back!”
- I just took 800 mg ibuprofen and 30 mg of prednisone. Is that going to be ok?
- How long does it take prednisone to get out of your system?
- What are the side effects of steroids?
- Is it safe to take ibuprofen right after taking prednisone?
“Works so well for me. I have osteoarthritis, too. After 2 days of prednisone, 80 mg, 60 mg, no pain, no spasms, no fatigue, don't have to sleep 9 hours. Have energy . Swelling in hip, shoulder reduced 85 %. Wish I could stay on this miracle drug, but I gain weight, and have other side effects that are not healthy. I can only use short term, 4 days, but sure LOVE those days!!”
“I have had fibromyalgia type pain, stinging, burning and aches in muscles and hips for years. Recently I started getting severe aches and stiffness in my hands hips and feet. I could barely walk in AM, Coincidently I got a steriod shot in my foot for planar fasciatis--and all my pain and stiffness went away. After about 4 months it came back. I got a shot in the other foot for another type of pain, and again all my swollen joints and pain and stiffness went away. My rings would not come off until after the shot. After the second shot wore off, I went on prednisone. After two days 10 mgs for 1, 40mgs for day two, my hands are back to normal, hip pain is gone, and muscle aches too. I can remove my rings again. I can bend easily, walk down stairs in AM easily. Sleep without waking from hip pain. It is working for me. I don't know if this means I may have RA or not.”
“Hi guys I am back again. I have been battling fibro for about 11 years now. Pain is an issue however for me the most debilitating symptom is lethargy and mental fog. Well as you can imagine things pile up around me, tax needs doing, this needs to be done, garage needs cleaning etc. So I decided to go back onto prednisolone to do what needs to be done. I started 25mg for four days and after 2nd day felt great, energy less pain actually got stuff done. Now I am tapering (down to 15 today) and not really feeling great, hmmmm. Book an appointment with the doc today. Not overly hopeful but who knows. I think this will become my life now. Feel like rubbish most of the time, and when I need to get something done I will go onto a short burst or pred to get it done. The main drawbacks for me: insomnia (I don't sleep well most of the time anyway so this really kicks me), ravenous hunger (two breakfasts and three lunches...), and slight agitation.”
“I was diagnosed with fibromyalgia about 15 years ago. Since that time, I have been in constant pain. I have pain in knees, hips, wrists, legs, low back, neck, jaw, hands and fingers. I also suffer from chronic sinusitis, which can usually be controlled by a nasal steroid, antibiotic nasal rinse, allergy medication. During this time, I have been prescribed prednisone to help with the sinus infection. These are the only two times I have had no pain in 15 years. I will be speaking to my Dr about prescribing me a low dose of prednisone. I am off the prednisone and back to pain and no energy again.”
“I have just taken prednisalone for the first time for a moderate exacerbation of asthma. For the first time in 28 years I was pain free. I kept telling my husband that despite how sick I was with pneumonia I felt so relaxed and I realised I had no pain. Now I know how normal people feel I could cry. You can't take it forever due to the effects on your body but gosh I sure wish they could work on something that worked the same without the side effects.meanwhile I am trying to readjust to pain again and feeling heartbroken that I have to live with fibromyalgia.”
“I have stiffness in lower back, pain in neck area, hips for many years but the pain is tolerable. I also get periodic muscle stabs of pain followed by a twitch like when you fall asleep. From time to time the pain would get bad and I would need to take pain medications. Narcotics never worked but Toradol would work good BUT when I had a allergic reaction to the Toradol with hives and itching and went to the ER they gave me prednisone. Within two days of taking the prednisone I had SO MUCH energy and was pain FREE. I felt like I was 20 years old again. I had ambition to get things done. I felt SO good. I felt like I discovered the fountain of youth. Don't know if it is coincidence but I never had the pain until I contracted HSV.”
“I took 5 mg 7 day pack of predisone and a 50 mg Toradol shot /within 2 hrs of the shot was 75 percent pain free and within 2 days on predisone was 100 percent pain free . It works for fibromyalgia pain !”
“I've struggled with fibromyalgia for 15 years. I was prescribed prednisone for bronchitis and in one days time I was pain free and had energy thru the roof! I struggle a lot with daily things and not having strength or energy to do them. It's very depressing. I've considered asking my doctor to give it to me on a daily basis but I'm a little unsure. The bone weakening and weight gain concern me. Especially since I'm a mature women at age 42. Anyone that takes it, I ask do the pros outweigh the cons? Btw I'm a recovering addict. Was addicted to pain pills. All prescribed by pain doctor for the fibromyalgia. I chose to come off them but had to have help. Will prednisone do me the same way?? Any advice would be appreciated. Thanks and God Bless!”
This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.
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