Prednisone for Fibromyalgia User Reviews (Page 2)

• Anonymous
• Taken for less than 1 month
• April 30, 2020

"I have had fibromyalgia type pain, stinging, burning and aches in muscles and hips for years. Recently I started getting severe aches and stiffness in my hands hips and feet. I could barely walk in AM, Coincidently I got a steriod shot in my foot for planar fasciatis--and all my pain and stiffness went away. After about 4 months it came back. I got a shot in the other foot for another type of pain, and again all my swollen joints and pain and stiffness went away. My rings would not come off until after the shot. After the second shot wore off, I went on prednisone. After two days 10 mgs for 1, 40mgs for day two, my hands are back to normal, hip pain is gone, and muscle aches too. I can remove my rings again. I can bend easily, walk down stairs in AM easily. Sleep without waking from hip pain. It is working for me. I don't know if this means I may have RA or not."

• Emmab...
• February 12, 2018

"After almost 2 months is over sleeping, nausea, pain in all and any random joints, chest, throat, jaw, ear, head aches and pains, vertigo, brain fog affected speech, heavy week limbs, and all the rest.....my first steroid tablet helped me within 30 minutes. It helped all day long. I have had a day off from my cumbersome symptoms with no side effects so far. Can't wait for tomorrow."

• Chirp...
• September 26, 2017

"I'm on day four with two 10 mg tablets twice daily and I feel so good! I have fibromyalgia and a bulging disk. I cannot believe how much better I feel. I am looking so forward to meeting with my doctor in 14 days to see what the next step will be. Side effects are minimal, slight headache, heart pounds a bit but I can move pretty freely. I'll take the bad over the extreme pain any day."

• DunThtB
• March 14, 2018

"I was actually put on short term dose of 50mg prednisone for pneumonia a couple weeks ago. I have been battling a fibro flare up for a couple years now. Started taking Tramadol (reliva) and tramacet which worked well but not enough if I actually moved. I have had prednisone in the past 3 years ago for pneumonia but for whatever reason, it helped my fibro flare this time too. I'm actually in awe because it has been so long since I've felt this good. I've even cut back on my Effexor (originally prescribed for my GAD 10yrs ago), something I have had very little success doing in past. I'm hoping it stays this way for a long time. Amazed my dr didn't suggest a short term dose when everything else wasn't working. I'm allergic to gabapentin so I refuse to take lyrica. And Effexor is same family as Cymbalta so I refused that med as well."

• Karen
• Taken for less than 1 month
• October 4, 2018

"I have had fibro for about 8 years. I am well managed on duloxetine, but do experience occasional flare ups. I have been put on prednisone 4 times in 8 years (for a couple of weeks, a tapered dose). The positive effect comes within three doses, every time. Overall pain eases, the bone deep fatigues lifts and I can think again. Negatives: more trouble sleeping. I get super cranky. Marijuana helps with sleep, but the crankies I just have to wait out."

• Coco
• Taken for less than 1 month
• January 29, 2021

"I was diagnosed fibromyalgia about 20 years ago. Three years ago I started to get swollen joints, painful feet plantar faciitis enthesitis in my ankles and knees I also have scalp psoriasis. I was put on 15mg prednisolone by my gp for 2 weeks then I had to take 2 then 1 to wean me off. As soon as I got on to 1 a day all my symptoms came back with an a vengence, now my rheumatologist has gone back down the road of it's just fibro and she refuses to prescribe me prednisalone. I am in the most horrendous pain and I feel so I'll I am back to constant pain and swelling of my joints I just don't know what to do"

• JJano
• Taken for less than 1 month
• June 17, 2019

"I have been diagnosed with Fibromyalgia for over 6 years. It has gotten bad. I use a cane/walker. I struggle with daily life tasks. I fall and or lose balance a lot. Pain excruciating. Body locks up. Recently after a fall I had a lot of numbness because of inflammation pressing on nerves. Doctor prescribed me Prednisone. I have used it many times. It helps a tremendous amount with Fibromyalgia in general. Unfortunately and this is why I gave a lower rating. I have steroid-induced diabetes. I didn't know a thing about it. It is horrible and making me feel so sick. Now I feel the steroid isn't worth the complications it can give you. I pray that when I am done with the steroids that it will go away but very well can turn to full blown diabetes caused by steriods. I was never told this. After research I have found that this isn't so rare. So make sure you weigh the risk. I will only take steroids after this round as a last option. I have been so sick with this steroid-induced diabetes."

• JesFan
• Taken for less than 1 month
• January 18, 2017

"I had a severe upper respiratory infection that wasn't going away so the doctor prescribed 7 days of 1 mg prednisone and a dose of 7 days two times a day of a antibiotics don't remember the brand name. I have Fibromyalgia and numerous bulging disks going all the way down my spine. By day 4 I felt fantastic... Normal It was a real downer to go back to norm."

• altace
• Taken for 10 years or more
• November 17, 2017

"I was on Prednisone for 13 years gained a lot of weight went on a low fat diet hardly lost any weight. But I will say it is a miracle drug. I had both rheumatoid arthritis and fibro took 20 mg a day for along time finally my doctor said we need to get you off this before you weigh 250 lbs. He said I will cut you down a little at a time I said no, I will stop cold turkey and I did . He put me on Tramadol and Tylenol 3 as needed. It works pretty good. But it don't control the stiffness like the prednisone did. I didn't have any side effect at all from prednisone.."

• Anonymous
• Taken for less than 1 month
• June 8, 2023

"I had a major dose due to my back going out for 10 days. 60 mg a day down to 20 mg by the end of the treatment. My fibro symptoms were practically gone. Let’s start treating the cause and not band-aiding with Cymbalta."

• winni...
• Taken for less than 1 month
• November 13, 2014

"I have had Fibromyalgia for twenty years. When I had a bout of poison ivy, my doctor put me on the prednisone step pack. All my pain was gone. I felt great. When I told the doctor about the results, she told me it was dangerous. My Endo told me the same thing. "

• Frust...
• Taken for less than 1 month
• August 12, 2021

"About 10 years ago I was prescribed prednisone for a pulled muscle in my back. It completely eliminated all my fibromyalgia symptoms, but only at the full dose, so only 2 of 6 days. Due to the severity of my symptoms, I spend all of my time either sleeping or sitting in my recliner. I am extremely disappointed and frustrated that neither my primary care physician nor my pain doctor will prescribe it for me. I could have a normal life with prednisone. Shorter maybe, but I am 76 so I don’t care."

• sugar...
• August 18, 2017

"I was diagnosed with fibromyalgia when I was 22 and I am about to turn 57 on the 27th of August. It really never bothered me until the last 8 years, and it hit me like a ton of knives. I have tried everything and nothing seems to help. I went to a rheumatologist and she diagnosed me with polymyalgia along with the fibromyalgia. Had neck surgery in July of last year and back surgery in December, and I can honestly say the pain is unbearable most of the time. I take effexor,gabapentin,robaxin, and occasionally I will take a tylenol arthritis. Thats it. He wants me to take prednisone and I was a pharmacy technician for 13 years so I know and have seen the side effects. So I am trying to figure out if its really worth it. I hurt 24/7, all over."

• Jules
• Taken for less than 1 month
• February 9, 2024

"I needed to start 10 mg of prednisone when I was diagnosed with Polymyalgia Rheumatica 6 or 7 years ago. The dosage was gradually reduced, and I went off the drug most of the time, except for a small dose (2.5 to 5 mg) for flare-ups. Now I test negative for Polymyalgia, but have terrible, frequent episodes of unremitting sleepiness, along with flu-like aches and pains. I begged my rheumatologist to prescribe a low dosage of prednisone to take just during my episodes, which are rarely more than 3 days long. Today, for the first time, I took 2 mg of prednisone, after feeling like I was too exhausted and achy to function. I am fortunate that so small a dose relieves me of my symptoms and encourage people with fibromyalgia to try just 2 mg for a few days during flare-ups. At this dosage, I experience no side effects, just a renewal of energy and a feeling of good health!"

• Hevs
• Taken for less than 1 month
• September 28, 2021

"I was diagnosed with fibromyalgia 4 years ago and have been in constant pain for 5 years. Despite being on Gabapentin, ibuprofen and cocodamol I had pain daily. I was out on prednisone for an unrelated eye issue and for the last 4 weeks have been pain free. It’s amazing, I feel like me before the fibromyalgia. I wake up in the morning and I feel good, I can walk the dog and ride my horse and go to the gym and hike and climb. I did all these things before but now I do then without the constant accompanying pain that is always there. I have 2 weeks left of the prednisone and I’m dreading being without it. I’ve had no side effects and have lost 6lbs in the last 3 weeks. I’m sleeping better, no increased appetite, nothing. I plan to ask my Dr is I can stay on a low dose and see if I can manage ok with it"

• Always...
• Taken for less than 1 month
• November 7, 2023

"I have been officially diagnosed with fibromyalgia since 2017. I have suffered with TMJ, IBS, chronic migraines, and endometriosis since my teenage years. I was also diagnosed with IC, depression, anxiety, sleep disorder, and hypothyroidism. The only medication to effectively work to break the cycles of my constant fibromyalgia flares has been a steroid. I do not take pain medication, except ibuprofen occasionally. Toradol shots are incredibly helpful as well and should be made available to use for home treatments in a crisis. These have also been very successful when administered at an urgent care clinic during a migraine attack or constant inflammation from fibromyalgia. Gabapentin has also helped take the edge off the pain, but some days are still unbearable, and it’s hard for anyone to understand this invisible disease. The depression and anxiety are from the loss of my successful life, coping with chronic pain, and accepting I will never be the same. Stop the judgement!"

• Alc
• July 20, 2016

"I have a hip injury. I was given a high dose of hip cortisone injection. The next day I was pain free through out my body! I forgot what it felt like to be human. The systemic symptoms slowly returned after about 3-4 wks. I saw a RA doc who R/O RA. Now am waiting to see fibromyalgia doctor but I am hoping to get a mediation I can take permenateoy to get this same relief. Been dealing with this horrible pain since Jan 2016. Which a great deal stress had been thrown on me. Help!!"

• Katwise
• August 1, 2016

"I was diagnosed with PMR in early 2012 after an overnight onset in late 2011. I had back surgery in Dec 2011 and thought that had been my problem when I woke up pain free. Unfortunately it took only 3 days for the steroids in the meds at surgery to wear off and the pain returned with a vengeance. I was diagnosed with the PMR and given 20 mg daily of prednisone and started to immediately taper off. After 4 years and transfer to Mayo clinic I still am fighting to stay off the prednisone. After a week I begin to have hand pain, 10 days begins the arm muscle pain, 14 days and the stiff neck shoulder pain. At 4 weeks all muscles and joints ache but no one has diagnosed it as fibromyalgia. Small relief fro 800 mg advil daily. is this fibromya"

• Alice...
• Taken for 5 to 10 years
• April 15, 2016

"Made me gain 140lbs over 6 years, no one told me about how steroids affect your sugar and insulin. I'm now diabetic. If you use this medicine I would strongly recommend talking to doctor about a carb free sugar free diet to avoid weight gain and diabetes. Did not help with pain at all. Helped me regain control of severe asthma for that I'm grateful."

• Missy
• Taken for less than 1 month
• April 14, 2017

"I just started taking this medicine last Tuesday. If I would have known the bad possible side effects of this I would have never taken it. It was given to me for pain and stiffness I was getting in my joints, hips, back etc. I’m 26. The doctor said maybe they were inflamed from possibly having fibromyalgia and basically told me to try this medicine out to see if it would help and then we would go from there. Well fast forward to a week later.. I took two in the morning 3 days ago and about 30 minutes after I started having a crazy physcotic episode. Heart pounding, heat flashes, severe sweating, shaking, crawling out of my skin feeling, and was pacing on the floor hysterically crying. Ended up in the ER where they did absolutely nothing"

• Katha...
• January 17, 2016

"Put on Solumedrol IV and then take home Prednisone, 60 mg, weaned down to 20 now. Reason for taking was not my Fibro, but Acute Respiratory Failure with Hypoxy, Sepsis, Bilateral Pneumonia, exacerbation of COPD, abnormal CT lungs. This is the WORST medication. I am even more depressed, anxious, hyped up, insomnia worse, no appetite, anxiety attacks, nightmare with terrors, upset stomach, indigestion worse than normal Achalsia and GERD, post op Myotomy, Nissen Fundo. I feel like dying! I still have some pain, even if all pain from severe DDD,FIBRO, CMPS, could not tolerate this med Feel like I am dying. Any suggestions on how to cope? My future will hold many rounds of med with repeated pneumonias,COPD"

• Kpc
• December 4, 2016

"Steroids whether injected or oral caused my fibromyalgia to be more painful. I experienced horrible pain from my hips down to my legs for 2+ days after having prednisone oral or IM/subarachnoid steroids."

• marge...
• May 19, 2015

"This was a re-occurance of my PMR. My Family Practice doctor did an ESR which was elevated. He put me on Prednisone 40mg q d in Nov. He said he'd check my last bone density--if he did he failed to mention it to me. I FELT BETTER! --had tons of energy and appetite. went on to gain 30 lbs. Within a month I developed L knee pain; then R sciatic pain; then R groin (L3-4) pain; then L sciatic pain and inability to ambulate because of the pain, muscle weakness and gen'l disability . The Prednisone was gradually decreased/increased per results of the ESRs. I demanded an MRI, this showed an Insuffuciency Fracture of my Sacrum. This meant 12 weeks of pain, bed rest, visiting nurses,PT/OT, etc. Now, I'm starting Fosamax"

• Hate...
• Taken for less than 1 month
• April 30, 2016

"I have been given prednisone for a bout of poison ivy and another time for bronchitis. Each I am unable to sleep, concentrate, and have insane pain in my legs. I hate this stuff. Makes me feel like I'm flaring. So much joint pain. But my sick gets better so I suck it up."

• ChurchT
• Taken for 2 to 5 years
• November 18, 2022

"I was taking Prednisone years ago for Fibromyalgia. Started at 15mg daily, quickly got down to 5mg and ended up at 2mg. Really helped the fibro pain. I was also taking Fosamax at 15mg daily back then (2003 to about 2005). In the 2005 period I fell off a 10 foot high roof onto concrete. I fractured my wrist area and ankle. The radiologist wrote that my bones were "like Styrofoam" and I should get a doctor's help and a dexa scan now! Yeah, my bones were being eaten up. I HAD to stop the Prednisone immediately. I got dexa scans semi annually for a few years and I was OK but bone density never returned to "normal"."