User Reviews for Kesimpta
Kesimpta has an average rating of 5.9 out of 10 from a total of 38 reviews on Drugs.com. 44% of reviewers reported a positive experience, while 35% reported a negative experience.
|Multiple Sclerosis||38 reviews||100 medications|
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Reviews for Kesimpta
For Multiple Sclerosis "I was included in the clinical trials for this med, I was on it for a little over 2 years. My experience wasn't great, although I didn't develop any new lesions. Despite that my MS still progressed to me needing a cane to assist with walking most of the time. My immune system was completely gone but I didn't develop common illnesses, instead I developed shingles 4 times in less than two years, cellulitis on my face/ear, meningitis and I was hospitalized twice (once for three days and the second for almost two weeks). I was unable to stand up quickly for most of the two years due to dizziness/fainting upon doing so. I suffered with throat issues and loss of voice several times as well."
For Multiple Sclerosis "I was on Tysabri for 13 years and became JCV+ therefore meds had to change. I started Kesimpta 1 a month shot you do yourself, but I have felt awful since the first injection. I am now 9 months in. I have been having muscle spasms galore, migraines for 9 days straight after taking shot, my legs are so heavy, drop foot has gotten a lot worse, overall I feel like crap. I am in touch with the Dr and all I keep being told is wait for the MRI in November to see if it is working. I don't think it's working I feel like I am progressing rapidly. I did great on Tysabri I want to go back to that but don't think dr will allow that. At this point I'm ready to go all off everything, but I know I will progress even faster. I am lost."
Frequently asked questions
- Is Kesimpta better than Ocrevus?
- Who is the actress in the Kesimpta commercial?
- How is Arzerra administered and how long to work?
For Multiple Sclerosis "I took my first dose last Friday and really don't want to take the 2nd dose tomorrow. I took Kesimpta around 2pm and by 6pm I was having chills and shaking that got worse, what really bothered me was the fever, I didn't have a thermometer, but it was so bad that my vision was very blurry, had a severe headache, was throwing up, my right leg went numb, I peed myself, my heartbeat was pounding and super-fast, couldn't get off the floor for hours. I'm 55 and live by myself so I was scared. Don't like this medicine!"
For Multiple Sclerosis "I took the shot yesterday for the first time. Taking the shot was painless. I took the shot in my right thigh at 11:30am. I did house work afterwards. At 1pm I decided to take a nap. At 3:30 I woke up to use the bathroom. My legs were so stiff that I took too long and urinated on the floor. Then I took a hard fall to the floor. I spent 3 hours trying to get up. My legs felt heavy and stiff. I finally made it onto my bed. I could not roll over. It is the next day at 4am my legs feel better. I was able to walk downstairs. I am feeling better. I hope that I see improvement in my health."
Are you taking this medicine?
For Multiple Sclerosis "This medicine is the worse. I had side effects I ever had I had a sore throat, itching, legs tighting please guys don't take this med. Cause before I had this medicine I look at all the bad comments and I just didn't think it would happen to me wow! But it did"
For Multiple Sclerosis "Just some advice for the first injection: if and when fever spikes use ice packs under your arms and a cooling vest. I didn’t do this till my other half called the nurse in the family. The first injection is the only one I have had any issues with. And I have had well over 2 years' worth of injections. Still good days and bad days. Pretty stable and improved MRI activity. Best of luck to those beginning Kesimpta and continuing treatment."
For Multiple Sclerosis "I love Kesimpta. Not having to worry about veins being blown out by infusion treatment. I did run a 104 fever from first injection, but the second and third were fine. I began to feel my feet again after the first injection. Mixed emotions about that. For the time being I can't really say if I'm slowly getting worse or better. Good and bad days. I did have a icy hot sensation in my leg for a month after taking the first 5 doses which vanished after steroid treatment."
For Multiple Sclerosis "First injection a few days ago. Felt fine for the first few hours but then got headache/chills. I wasn't too bothered, it was all pretty mild. But about six hours in, things got worse. Flu-like symptoms, but severe: fever, aches, chills worsened. I tried to go to bed and just stayed there until I had to get up for the toilet. This would've been about 8 hours in. I couldn't stand on my own, and struggled (with my partner's help) to get to/from the toilet. Managed to get back to the bed, but had to pull my legs on as I just couldn't lift them. At that point, the chills/headache had gone but I was very hot. Finally, after about 10-11 hours, things started to get better and I was even able to sleep. Got up once more (around 12 hours) and was able to do everything unaided. Completely fine in the morning. Very uncertain about doing any more as, frankly, it was frightening."
For Multiple Sclerosis "Just taken my first shot of Kesimpta, I got the explained chills and headache but I woke up in the middle of the night to use the toilet and couldn't feel my legs I couldn't walk nor crawl. With assistance I did what I had to do and checked my heart rate which was over 140 BPM, I'm in a dilemma to take my second shot. But will seek advice from the MS team"
For Multiple Sclerosis "Felt awful after my initial dose and had signs of an allergic reaction so I was given antihistamines and an EpiPen for my second injection but it was absolutely fine. No side effects. Was on Tysabri for the past 7 years which I loved but my JC virus score was increasing too much."
For Multiple Sclerosis "The first three doses gave me flu-like symptoms and migraines. I felt like I was improving…at first. Less falls, and better balance. However, after taking August’s monthly injection around the 1st, I developed a kidney infection. Because I was in so much pain, extremely weak, with week-long diarrhea, the ER gave me IV antibiotics, and a bag of fluids. I’ve been through two rounds of oral antibiotics, yet it’s 9/20 and I can’t seem to shake this infection. I’m drinking plenty of fluids, like 4 full Yeti cups of water mixed with cranberry juice, but my urine output is low, I’m swollen all over, and I have flank pain with extreme fatigue. My neurologist visit is this Thursday…9/20. Honestly, I’m uneasy about what’s happening to me. None of these issues before Kesimpta. September’s injection is still in the fridge. Ask lots of questions if you’re offered this treatment…wish I had!"
For Multiple Sclerosis "Migraines. Intense nightly migraines. I think this is more an issue if you suffer from any way but I hadn’t gotten them in over two years so when they returned so aggressively I was shocked. Then my neurologist expressed that another patient of her also has been getting them since she started on Kesimpta. I love the ease of use but not worth literal hours in bed from migraines."
For Multiple Sclerosis "1st dose was November 9th, no issues! I had a mild headache the next day but I always get headaches. I already deal with chronic fatigue, pain, and numbness, so no noticeable changes to that! I actually got a burst of energy for about 4-5 days so that was awesome! I was on Ocrevus for 3.5 years and was sick of the 6 hour infusions so I asked to switch! The next dose is December 9th! I'm extremely happy that I switched! I'm so sorry for everyone that has had horrible reactions! Take care to all you MS'ers out there!"
For Multiple Sclerosis "It’s not working I have got worse. Since I was taking Tysabri but got the JCV virus from that I had been on that for 13 years. The Kesimpta my legs are feeling like they are on fire. Once I stand in the morning after a few minutes my legs go numb!! Right now my toes on both feet feel like they are on fire can’t stand this!!"
For Multiple Sclerosis "I have taken my first dose two days ago. Due to Covid, insurance and medication shortage I was without any medication for 7 months. Begged for a steroid treatment, which I hate and my neurologist wouldn’t do it. I have been nauseous, mild headache, very tired and HOT! It’s humid here (SC) and the night sweats were so bad. The reviews have been helpful. I will know more when I get to my second and third dose. Not given up yet. Keep your fingers crossed!"
For Multiple Sclerosis "I have finished the 3 week shots. Each time it did get better. I still get tired on the 5th or 6th day after the shot. I was taken off Ocervus cause getting an infusion all at once was shocking my body and I have a weak stomach, to begin with. In the beginning, I know there will be some side effects until your body gets used to it and trying to work with it. I am hoping this will keep my MS steady. Good luck everyone. Think positive"
For Multiple Sclerosis "I was diagnosed with MS in 2001 I was immediately put on Rebif I couldn’t tolerate it! So I struggled with episodes! When my father died then I started going downhill. Within 2 years I can’t walk without a walker! I can’t work anymore and I struggle every day to function! I tried Ocvervus & I couldn’t get through the first infusion cycle but then my doctor suggested Kesimpta & after the first dose I had immediate improvement! I’m in physical therapy & never felt stronger! I have 13 mm oval-shaped lesion that was found over two years ago & has been stable & no new lesions since taking the Kesimpta so if it worked for me they’re still hope for you! Don’t give up!"
For Multiple Sclerosis "I was diagnosed with RRMS in March 2021 and went with Kesimpta as my first treatment. The loading doses were rough: flu-like symptoms, incontinence, extreme fatigue. I did have a flare in between in the 2nd and 3rd loading doses. I almost fell while on the treadmill and had trouble walking around my house. Also had other new symptoms, which prompted an emergency brain MRI. Neuro said my body may have been adjusting to the med change, so I continued on the monthly injections to this day. Annual brain and spine MRIs this year showed no new lesions, atrophy, or black holes. The main symptom was extreme fatigue, usually the week before my next shot. It used to be a lot worse in that I would have to take that week off from working out, which is a big deal for me, as exercise is very important to me. Now I am able to workout 5-6 days per week and I love it. Of course I still have the usual daily fatigue and other symptoms that come with MS, but I am able to still work, exercise, drive, etc."
For Multiple Sclerosis "Have been taking for 14 months. Periodic stints of feeling a little better and able to get around pretty good without my cane. Yesterday I got bold and raked leaves in my yard. Today can hardly walk. Back to my cane again. Last couple of months my sinuses have been excessively, constantly draining. My PCP started me on an antihistamine and Mucinex. Had no positive results. Then I researched for potential side effects of Kesimpta finding nothing listed for Kesimpta and sinusitis. Then researched Ofatumumab extensively. Did find that Azerra was the name of the Ofatumumab given for CLL (Chronic Lymphatic Leukemia). Found several sites indicating Sinusitis was a common side effect of Azerra. One listing indicating Saline Nasal Spray may be beneficial. I did try the saline nasal spray with extremely positive results. Finally am able to sleep without choking on the continuous nasal drainage from choking me awake frequently at night. Now able to do things around my house."
For Multiple Sclerosis "About to take second dose. I don’t like how I feel on this drug. Migraines are worse. I’m more fatigued. I began the drug because of its ease of taking once a month via self injection. I wanted to go back to work full time. However, I’m too tired to do the job. Can’t think clearly because I’m too fatigue. Going back to Tysabri."
For Multiple Sclerosis "Started in late Jan- got sick (fever, flu-like symptoms) only after 1st dose and have had no problems since then. I do take ibuprofen and benadryl 1 hour before injection, and I inject at night right before bed. Too soon to know if it's working, but very easy to take."
For Multiple Sclerosis "The 1st dose was rough for loading dose. 1st one, I experienced chills and shakes that were uncontrollable. The absolute worst headache I have ever experienced and I felt like I needed to vomit but couldn't. Taken at 1900, awoke at 2300 and I wasn't able to fall asleep again until 0400. Did not want to take the next dose, but did. Minor headache, no chills taken at 1900, headache woke me at 0300 but I was able to get up and take acetaminophen and back to bed. 3rd dose, I had read about taking Benadryl 1 hour prior to dosing with acetaminophen. Taken meds at 1800, dosed at 1900. Woke about 0330 but was able to drink some water and went back to bed. By the 3rd dosing I believe I was acclimated to the drug, but I am worried about a repeat of 1st experience now that it is going to go to monthly. I do not see improvements in symptoms, e.g. fatigue, room spinning, tingling in arms and legs. I will update after about 6 months of injection."
For Multiple Sclerosis "First time taking my Kesimpta injection last night, it was painless, was fine for the first hour. After 1 hour I had chills/back pain. After 4 hours I had fever, got to 101.09 went to bed used ice pack. That helps and took the fever down. Next morning felt 100% but I have itching on my face. Going to call Dr to see if this is serious. Hope everyone is doing well and good luck"
For Multiple Sclerosis "I completed Kesimpta’s three loading doses in November of 2022. For each injection, I took one Tylenol, one Benadryl, and a Pepcid later on - I think this definitely helped with the fever, body aches, and nausea. I was previously on Ocrevus but was unable to walk out of the facility after my last infusion (I had switched from the 6/7 hour infusion to the 4 hour one). I didn’t take any disease-modifying drugs for the next year, until Kesimpta in November 2022 at the suggestion of a neuro. My lymph nodes in my neck/jaw have been swollen since November 8 (date of first injection) and I have had different infections since (a double ear infection, recurring upper respiratory infections). I feel like I always have a mild fever and am kind of miserable now, haha. I’ve also lost my voice several times which is the first time that’s happened in my life! My lymph nodes are swollen to the point that it is also making it painful to speak. 0/10"
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For Multiple Sclerosis "My brother took one injection each in December, Jan. and Feb. He died September 10, 2022 after four 1/2 months in three hospitals and 11 weeks in rehab/nursing homes. After the third injection he felt worse than before. ICU doctors said he had a reaction to Kesimpta. He had a heart attack at home; in the hospital, he had recurrent UTI's, pneumonia 6 times, caught COVID after being vaccinated, stroke, mini-stroke, hematoma from his knee to thigh, clotting problems, drop foot, MRSA pneumonia, collapsed lung, aspiration pneumonia, and other problems, He couldn't walk after going to the hospital. He stopped carrying on conversations in the hospital. He was tortured by a medication that he thought would help. PLEASE DO NOT take Kesimpta."