User Reviews for Copaxone
Reviews may be edited to correct grammar/spelling, or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published.
For Multiple Sclerosis: “I was diagnosed with MS about 7 years ago and started on Avonex. The side affects were pretty severe for me, but I stuck to it for 18 months. I also formed new lesions and had brain atrophy. I switched to Copaxone over 5 years ago and I have had a much better experience. Copaxone has slowed the progression of the disease and in some areas the myelin has shown repair and regrowth! I have more energy and my balance has come back - I am able to ride my bike with ease again. I was able to stay on Copaxone through out my pregnancy and while I was breast feeding. I did this under the watchful eye of a high risk OB specialist and my neurologist. I was able to remain stable after my son was born with out any relapse. And he is perfect.”
For Multiple Sclerosis: “I have been on Copaxone now for 6 weeks. Started on Tecfidera and that was just a horrible experience so switched to Copaxone three times a week. I also encountered an Autoject problem and after one week switched to doing the injection manually. The site reactions are pretty much gone but I do use heat prior and ice post injection to keep whatever reaction occurs to a minimum. I have only been diagnosed for 3 months now but I have so much more energy than I have had for a very long time so my experience has definitely been positive!”
For Multiple Sclerosis: “I've been on Copaxone since January 2012. I was diagnosed Dec. 2011. Copaxone has give me energy to do my daily duties. I still have a day or 2 in bed from time to time. The key to Copaxone working is to keep those D3 vitamin levels up. I go to pain management for combination of degeneration & Multiple Sclerosis pain. Family is a comfort & very needed for the emotional comfort of the disease. You have to balance medicine, family, God, love & friends. All of the above is a prescription to help manage MS more comfortably. Hope this will help others. Copaxone has been a real winner for me.”
For Multiple Sclerosis: “Copaxone 40mg, 3x a week: Shared Solutions is a helpline for Copaxone- they are AMAZING. They deal with Insurance (FYI: Anthem Blue Cross covers Copaxone;), pay copay!, send free supplies, send out a nurse to your HOME to teach you about using the auto inject making it super easy, and they have a 24/7 nurse hotline for questions. Its wonderful. Side effects: I really have none. Been using it 3 weeks, I get some little welts sometimes , but use a cold pack after for 15 minutes and that helps a lot. Also, Copaxone 40mg has ONLY a 2% chance of getting an immediate post injection reaction. Odds are, that will NEVER happen. After the first week of taking Copaxone, my foot felt less numb! Let taking injections EMPOWER you! You're taking control!”
For Multiple Sclerosis: “I got diagnosed after numerous tests. I researched it and new I had Multiple Sclerosis, but Neuro just had to keep doing tests for months. I would get double vision about once a month and my stomach and left leg would go numb a lot. Finally was diagnosed and got on Copaxone and zero flare ups for 4 years. I also take multivitamin and 8000 IU of vitamin D per day. Get on Copaxone and take vitamin D if you get diagnosed.”
For Multiple Sclerosis: “I had tried Copaxone after Avonex (which had caused horrific headaches 5 out of 7 days of the week) and after 2 months on the medication I had two horrible reactions 2 out of 3 days. Same symptoms, second time sent me to the Emergency Room. I really thought I was having a heart attack. Freezing/Chills for hours, severe shaking, heart palpitations, - I thought I was the end of me. Neurologist said those symptoms are rare, but twice in 3 days was a bit much. Not to mention the daily injections and the pain after the injections in my legs and stomach. Switched to Rebif. Was on that for 7 years and have been off all medications for over a year. MS symptoms getting worse but the side effects of all the newer medications make me question whether it is worse to take them or just naturally worsen. I know that is sad, but I have young children and don't want to develop PML. I wish they would come out with medications that don't have a laundry list of side effects.”
For Multiple Sclerosis: “I had injection site reactions, shortness of breath and mild chest pains. Was told these were normal reactions that would pass. Well. They in fact never passed. Instead this drug caused me to go into anaphylactic shock. I'm lucky I'm here to write this review. I checked and cannot find anywhere on this drugs page where my experience was indicated. Shows similar reactions but yrs ago. My experience was within the last few years. It is important that people comment with anapylactic shock reactions so more people are aware. So I felt compelled to share my story”
Frequently asked questions
- What happens if an MS patient stops taking Copaxone?
- How long does it take for Copaxone to be effective?
- Where and how should Copaxone be injected?
- How long can you take Copaxone?
For Multiple Sclerosis: “Please, anyone with MS, look into Dr. Terry Wahls and her protocol for MS. Most MS symptoms can be controlled through diet. Please take a few minutes to look into this, it could save you a lot of suffering and money.”
For Multiple Sclerosis: “I was diagnosed with MS at 41 in 1998..I was relieved when my doctor recommended the once a week shot Avonex thinking it would be the easiest. Not so...bad side effects. I went from cane to walker to wheel chair to hospital all in the few years I was on it. Just before I went into the hospital I went on 20 mg seven days a week of copaxone. It gave me my life back. I then went from wheel chair to walker to cane and then nothing in about two years time.. I've now been on it for 17 years with no major relapses. Not a day goes by that I don't feel the effects of MS but nothing compared to what it was before copaxone..”
For Multiple Sclerosis: “I experienced 2 attacks within 2 years. The Last was August 2014. On November 1st 2014, I was diagnosed with MS. I started Copaxone 40, 3x a week. Fast Forward to now, 4-25-16. I have had no new attacks since and no permanent damage. Sure the injections are a pain sometimes, and I was nervous at first. Plain and simple - If I mess up an injection. It Hurts! If I take my time and do it right I feel nothing. I have never dieted in my life, but now 38, I need to change my diet and exercise again. The medicine has worked for me. Aside from my weight gain, I am 100% grateful for the drug and will keep it going. Stay Positive ! Good Luck everyone. "It is what we make of it"”
For Multiple Sclerosis: “I am 24 with RRMS. My right eye developed optic neuritis Nov of 2011. Officially diagnosed Sept of 2012. Started taking Copaxone a few weeks after diagnoses. Site reaction areas were bad at first but started to diminish after some time. Only other issues I had was around the one year mark but that was due to playing favourites with sites and not rotating properly. After almost 2 years of being on Copaxone I have had no other relapses.”
For Multiple Sclerosis: “I started Copaxone about six months ago. I had been diagnosed with MS 10 years ago but didn't take anything for it but a giant dose of B vitamins daily. Last December, I had my first real flare up and it was awful. The nuero told me I had no choice now, but to take something. So after researching with my husband, I decided on Copaxone. Do not give up if you just started and are having itchy bumps and stinging when injecting. It really did get better for me. I did have one incident of the chest tightness and anxiety which lasted about three minutes but only once. When I read the side effects from other drugs (Flu like symptoms and hallucinations!) I picked this drug. So far, so good. Neuro thinks I am not progressing at this point.”
For Multiple Sclerosis: “Been on Copaxone 6 months. Injections really do get easy they are almost always pain free and rarely get injection site reactions. I know it's early but I do feel like I have more energy then I have had in the past 4 years since being diagnosed with multiple sclerosis. Don't let people's horror stories scare you it's really not bad very few people actually have IPIR.”
For Multiple Sclerosis: “Dx w/ MS 9/26/2006 at age 43. I started using Copaxone on 10/11/2006. At the time I started using Copaxone, it was a daily injection. I now use the 40mg / 3x a week injection. I am proud to report I have never missed an injection ***100% compliance *** ! I work 60hrs a week and as long Copaxone is available I will never change. No pills or infusion. I hate needles so the auto-inject is a life saver. MS sucks but I feel I am on the right path.”
For Multiple Sclerosis: “I had Multiple Sclerosis since I was 19. I'm 28 now I got on Copaxone, about 4 years, it took about 8 months seeing results only side effects was palpitations and a little panic attack, it was 2 minutes long but it felt like 20 minutes. That only happened once other then that I get redness around injection site. I like this Medicine because I feel that it has slowed my MS down And I haven't got sick since I feel like I got my life back.”
For Multiple Sclerosis: “I was on Copaxone 40 mg for 2 months before I quit. It was my 1st MS drug; I hope I won't react so poorly to the next. For me each injection just really hurt. It *burned* starting 15 - 30 sec in, even with an ice pack. The burn was intense for ~15 min, then in ~1 hour it lessened enough I could limp off to bed. Welts ~2" in diameter formed on my arms and thighs, and lumps formed in my stomach or the back of my hips. The welts were painful and hot for 3-7 days (thigh injections were the worst; I cried after those). The lumps itched for ~5 days after stopping hurting (~1 day). Not to say they weren't bad too; just less so. The burning was bad enough that by the 2nd month I had my husband do the injections; I just couldn't bring myself to put the needle in anymore. Does everyone who uses Copaxone feel like this and just suck it up? Am I being a wimp here? I hope not.”
For Multiple Sclerosis: “I stopped copaxone due to bad reactions. I haven't eat red meat, milk, cheese, yogurt and white bread. I only drink almond milk and try to eat heathy. I am also taking vitamin d 5000 mg, cranberry pills 3600 mg, turmeric pills, fish oil, b12. I been heathy even without injections. Also praying a lot ”
For Multiple Sclerosis: “Diagnosed in '08, been on Copaxone since then. Took me about six months to realize my injection site problems were caused by the auto-injection contraception. I found it not precise enough, needle can go at an odd angle, or too deep and into muscle (those were the worst). Learned to self inject. I go in at a 45 degree angle and inject slowly. Haven't had any injection site problems since. Knick a muscle once in a while, but that's it. It's a different experience for everyone, as you all know. Cut out the salt, take cold showers, and avoid the heat. Haven't tried vitamin D supplements, but sounds like a good idea. Last MRI showed no significant changes (good thing, I'm told.)”
For Multiple Sclerosis: “My mother has been diagnosed with Multiple Sclerosis for the past 12 years. She started out using Avonex and her symptoms got worse. The doctors discovered new lesions and my mother spells got more intense. She was finally put on Copaxone and has no regrets. She has no new lesions and Myelin sheath has been repairing. She has used Copaxone for 10 years, and would recommend it to anyone suffering with MS.”
For Multiple Sclerosis: “I was just diagnosed Nov. 2014. Started on Copaxone 40 mg just a couple of weeks later. I have had all of the typical site reactions with every injection. The worst has been the itching. That of which I have been unable to control with ANYTHING until this last injection. I researched and have used every over the counter remedy. Started looking at the natural remedies for itching. Could not bare to invest any more money. Came across the use of oatmeal for itching (forgot all about that). I had steal cut oats on hand. Ground them into a flour-like texture. Put the ground oatmeal in a cheap knee high stocking, dipped it in hot water, allowed the concoction to drain so that it was not messy but still wet. Apply. AMAZING RELIEF.”
For Multiple Sclerosis: “I think Copaxone has been great for me, no serious relapses. I went to 40mg, because 3x a week sounded better than 7, right!? I wish I had just stayed with the 20mg, been doing it for years, never had any issues. Getting a lot more site reactions now with the 40mg, lumps, itching, painful, etc. Talked to my Doctor about going back to 20mg, he said there is a generic available and most insurance companies are gonna try to push people toward the generic now. I might be stuck with the 40mg. My advice would be, just stick with the daily shots.”
For Multiple Sclerosis: “I have been on Copaxone for almost 10 years. I am very pleased with the results. Its the only medicine I have been on so I can tell you it works for me. Like some of the other reviews I have had a few issues but nothing I can't handle. One episode was after the shot, I had heart palpitations worse then usual. Only lasted a minute or two but felt like 20, soon after vomiting and headache.. slept it off and fine after. In all the years taking Copaxone the heart palpitations happened maybe 6-7 times. So I'm not going to complain. I grew up with an uncle that battled progress stage of Multiple Sclerosis. I wish Copaxone was around before his got to that stage. Thanks shared solutions for making my life easier.”
For Multiple Sclerosis: “After approx. 1 year of using Copaxone daily injections, my Neurologist is convinced that my Multiple Sclerosis progression has slowed down; if not, stopped progressing all together. My last MRI showed "NO NEW LESIONS", but up until then, my MRI's showed steady progression with "NEW LESIONS" every time. Copaxone has absolutely changed my life and I'm now living instead of just existing, but I'm worried about my recent weight gain (in the last year). ”
For Multiple Sclerosis: “I have been on Copaxone for 14 years. I have been fortunate in not having any more major flare ups and have remained fairly stable. I do have the tiredness and lack of energy at times, but sometimes feel so good I can almost forget I have MS. The first 12 years were the 20 mg daily injections and had the usual problems with site injection lumps and itching. I was changed to the 40 mg 3 times per week approximately two years ago and recently went to two injections per week because the insurance coverage is changing. I am going from my regular insurance to Medicare with a supplemental plan and will not have to pay $4,000 per year out of pocket. In my opinion I felt the best doing the 20 mg daily than taking 40 mg 3 times/week.”
For Multiple Sclerosis: “I only took it for two weeks. I have been told to stop by the nurse at shared solutions. Right from the get go I was getting bad reactions. There was the normal hard swelling 3" rash at the injection sight and the stinging pursued for hours. the next week, after an hour of the injection weakness throughout my entire body, all of my joints hurt especially my spine, horrible cold chills, and extreme nausea. These effects were lasting up to 6 hours. The injection site swelling would continue to get bigger for 3 days. I tried the massaging cold packs and warm packs... Nothing worked. I know this an extreme way to put it, but it felt like chemo....”
This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare professionals.
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