User Reviews for Copaxone
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Copaxone.
Reviews for Copaxone to treat Multiple Sclerosis
"Hey all! I was diagnosed with MS 25 years ago. I was on no meds for 15 yrs, Copaxone 20mg for 5 yrs then switched to Gilenya for 6 yrs. Then 2 weeks hospitalized with viral encephalitis!! Do not go on immune suppressing MS drugs!! I agree with others about the Wahl protocol... eat to feed your brain. Also include cardo, strength training and stretching weekly. I am starting Copaxone 40 mg. Should be no problem. "
FiftySue July 15, 2017
4 users found this comment helpful.
"Took about 20 injections no effect yet"
Adge (taken for less than 1 month) June 25, 2017
0 users found this comment helpful.
"I was diagnosed with MS at 41 in 1998..I was relieved when my doctor recommended the once a week shot Avonex thinking it would be the easiest. Not so...bad side effects. I went from cane to walker to wheel chair to hospital all in the few years I was on it. Just before I went into the hospital I went on 20 mg seven days a week of copaxone. It gave me my life back. I then went from wheel chair to walker to cane and then nothing in about two years time.. I've now been on it for 17 years with no major relapses. Not a day goes by that I don't feel the effects of MS but nothing compared to what it was before copaxone.."
Fdriver May 29, 2017
13 users found this comment helpful.
"I was on the 20 mg of Copaxone for more than 10 years and took a break for about a year. Felt that I was stable, I felt great, and MRIs were showing no new progression. Recently starting trying to get back on it using the 40 mg for the last three weeks and am getting rashes, hives, headaches and in general feeling worn out and "MS-ey." Just not sure whether to be on it or not at this point."
Lindsey 333 (taken for 10 years or more) April 12, 2017
6 users found this comment helpful.
"I was diagnosed relapsing-remitting Multiple Sclerosis MS April 2016. August 2016 and February 2017 the MRI showed minimal activity. My neurologist advised me to start using Copaxone, 3 times a week - 40 mg. I've been injecting myself without the auto injector and so far so good. I only inject in my belly and legs (in the evening). When injecting in my belly I experience a burning/itchy feeling. This fades away after an hour. It's an awkward feeling but not a big deal. When injecting my legs I experience stiffness of my leg muscle. After a few hours it is gone. The stiffness is a nuisance but not a big deal. Next morning, no more itchy sensations or muscle stiffness. All gone. Because I am only using it for 2 weeks I don't know if it helps but so far I am very happy"
Dreads March 17, 2017
7 users found this comment helpful.
"I started taking copaxone in 2001, after trying avonex for 3 weeks with bad flu like symptoms. I began copaxone 20 mg once a day, it's been 16 yrs now with minimal side effects, compared to the exacerbations. I miss aprox 1 injection a week, on average due to it not injecting. I have not had a major attack in 16 yrs. I rarely ever use my cane. Once last year I caught the flu and had bad MS related symptoms. When I was 21 I had optic neuritis, @ 28 I became at least 90 percent paralyzed from my waist down and was told I would be in a wheel chair by 50. After this l quit smoking, drinking and any non medicinal drug, I began working out etc.The answer to me is the opposite to burning the candle at both ends & a positive outlook."
Lion heart March 1, 2017
16 users found this comment helpful.
"I was diagnosed with RRMS in 1993. Tried Avonex, worst side effects body pain, pounding headache instantly. Stopped drug after 6 wks. In 1999 had relapse. Double vision, numb on left side, slurred speech, dizziness, fatigue, unable to walk without falling, my mind felt odd. Doctor at DUKE university suggested Copaxone 20mg. Started in 1999. Now on 40mg 3 times a week. Had relapse may 2016. I have itching, welts, injection pain, lumps and permanent indentations."
PJams (taken for 10 years or more) February 5, 2017
8 users found this comment helpful.
"I started taking Copaxone in mid-August 2016. The first 3-4 months, I didn't notice any real difference. After the first few weeks, I didn't have any more site reactions. For the last two months, I'm experiencing terrible joint pain. Leg cramps in the middle of the night, my hips are stiff; my shoulders hurt. just a little while ago, my hand was shaking sooo bad. It's scared me. So here's the thing - I'm not experiencing any of the other MS symptoms that I had before taking Copaxone. Gone are those electrical shock sensations, I'm not really more numb, the weird feeling that runs down my spine. It seems like I've traded one set of symptoms for another. Before copaxone, I enjoyed exercising. Now not so much. :("
Linny60 January 24, 2017
12 users found this comment helpful.
"I stopped copaxone due to bad reactions. I haven't eat red meat, milk, cheese, yogurt and white bread. I only drink almond milk and try to eat heathy. I am also taking vitamin d 5000 mg, cranberry pills 3600 mg, turmeric pills, fish oil, b12. I been heathy even without injections. Also praying a lot "
Menymom September 13, 2016
36 users found this comment helpful.
"Have been on Copaxone 20mg everyday for 14 yrs. Only one major flare up in 2011 that left me numb from waist down, had to learn to walk again. But only missed 5 days not taking Copaxone. Am okay with a shot everyday. Am now walking with a walker, no flare ups since 2012."
Ms Owl 53 (taken for 10 years or more) September 10, 2016
15 users found this comment helpful.
"After dealing with the horrific side effects of Avonex, and being admitted into a hospital for four days after I was suspected of having PML due to my worsening of symptoms and low white blood count (thanks to Tecfidera), I finally found the right treatment for me. I couldn't be any more happier with Copaxone."
AnttiKokko (taken for less than 1 month) August 19, 2016
29 users found this comment helpful.
"i have been taking copaxen for 5 years now for ms i started the 1 a days shot but a year ago went to 3 a day this stuff kept me ms in check if you get this drug i suggest you get a auto injector with it makes things easer"
spinningblades July 7, 2016
33 users found this comment helpful.
"Was on Copaxone for 3 years. Horrid reaction after many injections as it seemed I was often hitting a vein. Huge welts from injections that took weeks to subside. Last straw was the killing of flesh on left arm. Surgeon said damage looked like a chemical burn from the inside out. Two surgeries to repair and have 8 inch scar as permanent reminder. This was back in 2003."
Spool (taken for 2 to 5 years) June 23, 2016
16 users found this comment helpful.
"I wrote a review on 12/2015 unfortunately I had to stop using copaxone because I got bad reactions. The last one was body shaking like if I had a machine connected to my body for one hour my buttocks muscle shaking so much. I got very scared and stopped medication. It's been 2 months and I don't think I will go back to it. I am just trying to eat healthy I cut all lacteos and red meat. "
Monicdmompho May 21, 2016
24 users found this comment helpful.
"Please, anyone with MS, look into Dr. Terry Wahls and her protocol for MS. Most MS symptoms can be controlled through diet. Please take a few minutes to look into this, it could save you a lot of suffering and money."
NaturalHelper May 16, 2016
45 users found this comment helpful.
"Have been on copaxone 20, avonex, and tysabri.Avonex caused bigiminy, tysabri was stopped because I had the virus and could have a brain infection. Copaxone has kept me free of relapses for 12yrs. I recently started copaxone 40 and have had 2 massive injection site reactions and am currently off treatment. I hope I can start back on copaxone 20, in 6wks. I am a lucky person, I am weak and tired, at 67 doing ok. I do not recommend copaxone 40,but do not want geneticists."
Glenn alex3 May 9, 2016
20 users found this comment helpful.
"I had two pretty worrying initial exacerbations in July 2011 and February 2012; since then I use Copaxone and I've had no relapses nor new lesions (I write this May 2016). Injections are of course a nuisance, but what can we do."
Diego's May 8, 2016
30 users found this comment helpful.
"I have been on Copaxone for 14 years. I have been fortunate in not having any more major flare ups and have remained fairly stable. I do have the tiredness and lack of energy at times, but sometimes feel so good I can almost forget I have MS. The first 12 years were the 20 mg daily injections and had the usual problems with site injection lumps and itching. I was changed to the 40 mg 3 times per week approximately two years ago and recently went to two injections per week because the insurance coverage is changing. I am going from my regular insurance to Medicare with a supplemental plan and will not have to pay $4,000 per year out of pocket. In my opinion I felt the best doing the 20 mg daily than taking 40 mg 3 times/week."
repool April 26, 2016
32 users found this comment helpful.
"I experienced 2 attacks within 2 years. The Last was August 2014. On November 1st 2014, I was diagnosed with MS. I started Copaxone 40, 3x a week. Fast Forward to now, 4-25-16. I have had no new attacks since and no permanent damage. Sure the injections are a pain sometimes, and I was nervous at first. Plain and simple - If I mess up an injection. It Hurts! If I take my time and do it right I feel nothing. I have never dieted in my life, but now 38, I need to change my diet and exercise again. The medicine has worked for me. Aside from my weight gain, I am 100% grateful for the drug and will keep it going. Stay Positive ! Good Luck everyone. "It is what we make of it""
Anthony7707 (taken for 1 to 2 years) April 25, 2016
52 users found this comment helpful.
"I was diagnosed in 2004 and I've been off and on Copaxone since then. I take the 3x a week 40-count shot now, and there is a study ongoing now that is trying to see if taking an 80-count injection once a month works just as well. I always feel better on Copaxone, and I will try to remain compliant. In the past I've had muscle stiffness, anxiety w/ it, but not now. I find I have less site reaction if I inject it chilled, and stomach is best. Multiple studies have show it's the best chance to avoid a relapse. I do wonder, if I had remained compliant, whether I would be able to walk without a cane, or avoid the burning legs that make it hard to wear most pants. (I find medical cannabis hugely helpful, but I would prefer the no-high variety.)"
still walking (taken for 10 years or more) April 24, 2016
31 users found this comment helpful.
"so far doing good. Got a diagnosis of MS 2016, Jan. I was numb from the waist down. Took for a month for the numbness to recede. I am very unbalance. I am hoping as months pass that will disappear. My energy has not return for me yet. Maybe it will. I am praying so. No reactions except itching on the back of my arms. that is all. I do all 7 sites."
deetrust (taken for less than 1 month) March 16, 2016
28 users found this comment helpful.
"Updating my 3 mri's and xray I'm stable nothing new just dealing with old damages . I've been in copaxone 8 years on Feb 8 . The 40 mg hurts more but if I'm stable with nothing new I'm sticking with my copaxone."
Bourg70343 January 26, 2016
37 users found this comment helpful.
"I think Copaxone has been great for me, no serious relapses. I went to 40mg, because 3x a week sounded better than 7, right!? I wish I had just stayed with the 20mg, been doing it for years, never had any issues. Getting a lot more site reactions now with the 40mg, lumps, itching, painful, etc. Talked to my Doctor about going back to 20mg, he said there is a generic available and most insurance companies are gonna try to push people toward the generic now. I might be stuck with the 40mg. My advice would be, just stick with the daily shots."
Nehemiah1 (taken for 5 to 10 years) January 4, 2016
49 users found this comment helpful.
"I've had MS for almost 8 years and been on copaxone the whole time. I'm still on copaxone and will continue to use copaxone as long as I can . Going tomorrow to get 3 MRI's and, an xray . The MRI's are with and, without contrast . Cause without contrast they wouldn't see new lesions. MS gets my right side numb face, nose, tongue, throat right side only . Two weeks ago I experienced my first MS hug . Horrible feeling. I get spasms all over and it affects my bladder as well . I hope it goes well for me tomorrow. The MRI's don't bother me - its waiting on the results ."
Bourg70343 December 28, 2015
30 users found this comment helpful.
"I'm getting 1-3 inch welts at the injection sites that are very itchy and uncomfortable. Dr says men more often have trouble with arms and legs due to more muscle than women. No other side effects."
GarpofNY (taken for 1 to 6 months) December 18, 2015
17 users found this comment helpful.
More about Copaxone (glatiramer)
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- Drug class: other immunostimulants
Other brands: Glatopa