Copaxone for Multiple Sclerosis User Reviews (Page 5)

• Stu...
• Taken for 5 to 10 years
• November 18, 2017

"I was diagnosed with relapsing remitting multiple sclerosis (RRMS) in 2009. Started Copaxone 20 mg. Used auto inject. Had injection site lumps, itching, bee sting-like reaction always. The skin began to atrophy. Had the immediate post-injection reaction (IPIR) too many times to count. Can't breathe, flushing, back spasms, terrible headache, chest pain. Was switched to 40 mg because of lack of injection sites a few years later. IPIR was THE WORST I've ever experienced. Stopped taking it for about 6 weeks. No exacerbations since my diagnosis. While off the meds, I started having more nerve pain. My MS doctor said to switch back to 20 mg. I had a bad reaction last night with freezing, shaking, and joint/muscle pain for an hour. I have 4 injection sites left to use: hips and flanks. Don't want liver trouble from other meds. Stuck."

• jer...
• July 31, 2009

"I have been on 3 different MS medications. Avonex was the first, and I loved it. My husband gave me the shots. I had to stop because of insurance reasons. I later went on Betaseron, and I loved it too, no problems with my MS on either one of them. I had to stop it because I got a blood clot in my left leg in January of '09, and my doctor said it could be from the Betaseron based on side effects, so she put me on Copaxone. It is the most painful of them all, where I take my shots from one week till the next. I am still in pain."

• Anonymous
• January 22, 2012

"I was on Rebif for three years. I felt tired and dizzy all the time. My liver was greatly affected by the Rebif. I was afraid of liver problems, and after checking out other medications, I chose Copaxone. No liver problems. There is site soreness, but as time goes by, it is not so bad anymore."

• MS1...
• November 8, 2009

"I have used Copaxone off and on for about 5 years. I don't like the injection site reactions, but they are small compared to some of the other treatments I have used. I was on Tysabri, and it was great. I felt normal as before MS for about 2 weeks every month and 2 weeks waiting for the next infusion. Due to liver problems, my doctor recommended I go back on Copaxone, but with injections every other day. I have done this for 2 years and no relapse."

• All...
• Taken for 1 to 6 months
• May 12, 2019

"Copaxone didn't work for me. I had severe shaking episodes after administering the medication, and my doctor suggested that I might be having allergic reactions to the treatment. I'm in the process of selecting another one."

• dkp...
• January 22, 2012

"I've been using Copaxone since Nov 2011. At first, the skin reactions were painful, and sometimes the sites on my legs are more sore than other sites. However, overall, it's better than Avonex, which I'd been on since 2006 (5 yrs). I don't feel as tired and don't have the flu-like symptoms. I use the autoject device, which works well. My only challenge is to remember to take the medicine in case I get out of my normal routine, such as after a dinner out, etc."

• msr...
• August 9, 2008

"My doctor gave me my choices for what medicine I wanted to be on, and I chose Copaxone. I've been on it for 6 months now with little side effects. The biggest side effect I have is a skin reaction, and that goes away in about 20 minutes, and I haven't had another attack since I started it."

• Mem...
• Taken for 2 to 5 years
• December 12, 2017

"I've been on Copaxone since 2015. Tried Amryia brand, it was terrible, side effects. Copaxone was slightly annoying but not bad. Recently, I've experienced a relapse and had one 3-day intravenous therapy. Tried to take my Copaxone, and the nausea was unbearable with gagging and pain in my back. My doctor told me to take a break. I'll do that. Also, the flushing and itching seem to have heightened. I'm going to try in a week and see if the symptoms decrease, if not, I'm going to have to try something else. I'm taking turmeric and multi 5000 mg vitamins. My only recourse at this time... any suggestions?"

• cia...
• Taken for 1 to 2 years
• August 25, 2017

"Started taking Copaxone 16 months ago - no major side effects until last two months. On two occasions, the MS nurse thinks I may have injected into the bloodstream - uncontrollable shaking and chills - my husband almost called an ambulance. The neuro wants me to start Aubagio, but I would like to trial the MS diet first on a 3-month trial. I don't know what to do!"

• Anonymous
• January 18, 2012

"Was on Copaxone for about a year with little to no changes. Still had progressions and got 8 new lesions during that time. My neuro changed me over to Cytoxan IV for once a month along with the Copaxone. Have had no new lesions since being on this combination. She only uses Cytoxan for a year and then have to choose a new treatment option."

• Gil...
• August 20, 2017

"Doctor and I, together, decided to begin Copaxone 40 mg after having been on Copaxone 20 mg for 6 years, Gilenya for 6 years (survived viral encephalitis after this drug). Almost immediately, my joints began to stiffen and became painful... so much so that lifting and using my hands is very difficult. It feels like I have arthritis in my joints. The nurse and the MS clinic informed me this is a 2.7% reported side effect. Now trying to detox my body."

• JaR...
• November 28, 2015

"You're supposed to inject this under the skin, not in the muscle. I have Transverse Myelitis and was just diagnosed with relapsing MS. Been getting shots, but for some reason, they stopped today, and it's only been 7 days!!"

• Anonymous
• August 7, 2015

"Have been on Copaxone for almost 10 years, not one problem with the medication. Copaxone has improved my day-to-day life."

• sad...
• Taken for 10 years or more
• September 24, 2013

"I have been on this medicine for about 15 years now with very few flare-ups. The downside to this medicine is the injection site, but with that aside, it has worked well for me."

• Pat...
• Taken for 10 years or more
• April 5, 2021

"I have been on Copaxone since it started in 1990. I’m patient 323, now going on 61 and still playing golf and tennis. If you have been recently diagnosed with RRMS, I highly recommend Copaxone."

• isp...
• Taken for 1 to 6 months
• June 25, 2014

"This medication has greatly reduced my multiple sclerosis attacks. It has really helped me in that respect."

• Sti...
• Taken for 5 to 10 years
• August 17, 2019

"Have been using 9 years. Had mild injection reactions initially that lasted a few minutes. Have had very mild progression overall."

• kat...
• May 12, 2008

"My neurologist let me choose my MS drug, and I chose Copaxone. I haven't missed an injection for almost five years, and I'm doing great."

• Ros...
• July 4, 2015

"I have been on Copaxone for 14 years, very stable, no problems. I tried Tecfidera, so many problems. I want to try Copaxone 3 x per week medication. I need more info."

• Anonymous
• June 25, 2008

"Copaxone is the best - no side effects."

• sjf...
• Taken for 6 months to 1 year
• January 1, 2014

"Copaxone, for me, was very harsh. Before switching, I ended up with almost all side effects."

• Mat...
• May 8, 2009

"I have been using Copaxone for over a year and have had no side effects and no problems with multiple sclerosis."

• Gar...
• Taken for 1 to 6 months
• December 18, 2015

"I'm getting 1-3 inch welts at the injection sites that are very itchy and uncomfortable. Dr. says men more often have trouble with arms and legs due to more muscle than women. No other side effects."

• Anonymous
• June 20, 2010

"I have been taking Copaxone for 15 months. I have not had any side effects I could not live with. I have gained 20 lbs, though."

• Jam...
• November 5, 2008

"I have been taking Copaxone for about 3 months now. Copaxone controls my MS better."