Kesimpta and Body Aches: What Users Say

• PGM...
• Taken for less than 1 month
• August 19, 2022

For Multiple Sclerosis "First injection a few days ago. Felt fine for the first few hours but then got a headache/chills. I wasn't too bothered, it was all pretty mild. But about six hours in, things got worse. Flu-like symptoms, but severe: fever, aches, chills worsened. I tried to go to bed and just stayed there until I had to get up for the toilet. This would’ve been about eight hours in. I couldn't stand on my own and struggled (with my partner's help) to get to/from the toilet. Managed to get back to the bed but had to pull my legs on as I just couldn't lift them. At that point, the chills/headache had gone but I was very hot. Finally, after about ten to eleven hours, things started to get better and I was even able to sleep. Got up once more (around twelve hours) and was able to do everything unaided. Completely fine in the morning. Very uncertain about doing any more as, frankly, it was frightening."

• Anonymous
• Taken for 1 to 6 months
• January 11, 2023

For Multiple Sclerosis "I completed Kesimpta’s three loading doses in November of 2022. For each injection, I took one Tylenol, one Benadryl, and a Pepcid later on - I think this definitely helped with the fever, body aches, and nausea. I was previously on Ocrevus but was unable to walk out of the facility after my last infusion (I had switched from the 6/7 hour infusion to the 4 hour one). I didn’t take any disease-modifying drugs for the next year until Kesimpta in November 2022 at the suggestion of a neuro. My lymph nodes in my neck/jaw have been swollen since November 8 (date of first injection), and I have had different infections since (a double ear infection, recurring upper respiratory infections). I feel like I always have a mild fever and am kind of miserable now, haha. I’ve also lost my voice several times, which is the first time that’s happened in my life! My lymph nodes are swollen to the point that it is also making it painful to speak. 0/10"

• Anonymous
• Taken for less than 1 month
• October 2, 2022

For Multiple Sclerosis "My experience with Kesimpta was felt that I had the flu, had some body aches, slight headache, and sweating."