Votrient and Pain: What Users Say

• eki...
• Taken for 2 to 5 years
• November 20, 2013

For Renal Cell Carcinoma "Have been on Votrient now for over three years and am in remission. Side effects have included hand and foot pain (very slight now) and have experienced weight loss (from 180 lbs to around 130 lbs) over the last three years. As of this year, there have been no signs of liver problems but have had minor digestion issues. It appears that Votrient has been successful - unlike my experience with Sutent, Avastin, Xeloda and Affinitor. I had been diagnosed with stage IV renal cell carcinoma-sarcomatoid in 2008, and had the left kidney removed (and spleen due to a fall in the hospital). I have been on Votrient now for the better of three years, am still employed and fully functional."

• jan...
• March 1, 2016

For Soft Tissue Sarcoma "I'm a 39-year-old guy from Sweden. I have soft tissue sarcoma in my stomach wall, and it spread to the bones (legs, both femoral head and sternum, and my skull that was removed). I have started Votrient 2015.08, 800 mg/day. The first 2 weeks, I had a fever and felt really sick, stomach problems, pain, and diarrhea. It took about 1-2 months before I felt normal with this medication. The pain from my bone mets disappeared pretty fast (1 month). I have had new scans after 3 months, and the results were pretty good, sternum and right leg had nothing left :) In the left leg, there is only about 30% left. I'm going to have new scans this month, so let's see, hoping for more good news.... The stomach tumor was the same."

• Gra...
• March 10, 2017

For Renal Cell Carcinoma "I am 70, female. 19 years ago, had the right kidney removed due to renal cell cancer. In the spring of 2016, my shoulder began to bother me, and it got worse until my upper arm broke just below the shoulder, due to renal cell cancer which had metastasized to my upper arm bone, my pancreas tail, and two spots on my liver. I first had two weeks of IL-2 which gave me awful side effects and no changes to the cancer tumors. Have been on Votrient since September 2015. November scan shows tumors shrinking. February 2017 shows tumors are still shrinking. Side effects are diarrhea every day, body and muscle pain, scaly sores on my bottom, fatigue, and just recently pain in my hands. I take 800 mg daily, late in the day. I take Tramadol for the body pain."

• Gra...
• March 10, 2017

For Renal Cell Carcinoma "I am 70, female. 19 years ago, had the right kidney removed due to renal cell cancer. In the spring of 2016, my shoulder began to bother me, and it got worse until my upper arm broke just below the shoulder, due to renal cell cancer which had metastasized to my upper arm bone, my pancreas tail, and two spots on my liver. I first had two weeks of IL-2 which gave me awful side effects and no changes to the cancer tumors. Have been on Votrient since September 2015. November scan shows tumors shrinking. February 2017 shows tumors are still shrinking. Side effects are diarrhea every day, body and muscle pain, scaly sores on my bottom, fatigue, and just recently pain in my hands. I take 800 mg daily, late in the day. I take Tramadol for the body pain."

• Anonymous
• May 8, 2016

For Renal Cell Carcinoma "My husband has renal cancer. He did a partial nephrectomy on his right kidney in 9/2010. Many tumors appeared later in small sizes in both kidneys. Now he is on Votrient 800 mg 35 days ago. He has high blood pressure treated. Rare weakness and bad taste. A little bit of problems in the stomach. Pain in leg. His hair started to be white. We are looking for a positive result. Hope this treatment can shrink or remove the total tumors."

• Deb...
• Taken for 1 to 6 months
• May 24, 2017

For Renal Cell Carcinoma "Out of the blue, diagnosed after CT scan, stage 4 renal cell carcinoma, spots on liver also, spot on lung, adrenal glands involved, was told should expect to live 1-5 years. Started Votrient 800 mg on April 13th and have not had a repeat scan yet. Side effects are horrendous to me. Scalp sore like a sunburn type feel, tender, have noticed hair thinning on top of scalp. Mouth is on fire to where I can eat few foods - puddings, water, ice cream mostly melted, soups. Some days mouth hurts so badly I cannot eat. Cannot taste salt. A few days did not take Votrient because I did not eat all day. Burning with urination, scalded. Burns with diarrhea also. Cracking of lips on each side of mouth. Keep telling myself it could be worse. God bless."