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User Reviews for Asacol

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

Condition Avg. Ratings Reviews Compare
Inflammatory Bowel Disease
1 review 69 medications
Crohn's Disease, Maintenance
7 reviews 21 medications
Ulcerative Colitis, Maintenance
20 reviews 19 medications
Ulcerative Colitis, Active
9 reviews 30 medications
Ulcerative Colitis
9 reviews 68 medications
Summary of Asacol reviews 7.0 46 reviews

Reviews for Asacol

Bonny · Taken for 1 to 6 months February 23, 2019

For Ulcerative Colitis "Sadly I was one of the 8% of users who are allergic to Asacol, and I got very ill before the nurses suggested it may be the drug making my condition worse. Within a week of using Asacol my C-reactive protein (CRP) blood test readings started to rise steadily from an already high score of 16 until at six weeks of still taking the drug they reached 100 , I was using the bathroom 5 times in an hour some nights and dropped weight rapidly. As soon they thought I may have an allergy I was told to stop taking them and went onto a decreasing dosage of steroids instead. By the time I finished the steroids my CRP tests were normal."

CureUC February 22, 2019

For Ulcerative Colitis "This medicine didn’t even help me find remission. It’s not a good choice in my opinion for anyone with colitis that extends throughout the entire colon and rectum. Might be good for people with sigmoid but not pancolotis"

Joseph December 29, 2018

For Ulcerative Colitis, Active "It seems that asacol is not effective when colitis is active because the coating is too tick. I took 2 tablets, after 6 hours on my body , 2 tablet came out in my diapher and the coating it still intact. I hope Manufacturer will make thinner coating because the mathematical computation of delayed release is not match to realty."

Kat August 9, 2018

For Ulcerative Colitis, Maintenance "I have had UC since I was 14 and now 64. Have had numerous flare ups through this period but have been very well looked after by consultants and have regular check ups. Been well for years now but am now experiencing a bout of I think proctitis, mucus and wind and running to toilet. Not due to consultant for a few months. Started taking Asacol foam enema and am obviously intolerant as it does not stay in and causes even more mucus. Need to change enemas. Had this now for a few months, need to change to Prednisolone enema. Or has anyone else found something that works well? A call to the consultant is required I think."

Ttra · Taken for 10 years or more February 17, 2018

For Crohn's Disease "Been taking this for 23 years - was doing quite well for a long time 4-6 x 400mg daily. No longer working - had bowel perforation and Chronic pains in large bowel and caecum. I've been on and off steriods for a year so trying azathioprine next week. Bloods returned anaemic low b12 so having injections also low TPMT - heterozygous ( Patients with low activity of TPMT are at a heightened risk of drug-induced bone marrow toxicity due to accumulation of the unmetabolised drug) so can only take low dose of aza. It is important to get checked for this before you start azathioprine. Let’s hope it works !! Sick of being sick and struggling to work."

Jeanie UK · Taken for 10 years or more December 31, 2017

For Ulcerative Colitis, Maintenance "Previously taking Sulphazalazine from the age of 20 which was awful for me. I was admitted to hospital on several occasions and the dose was combined with high steroid treatment. I become paranoid so the steroids were slowly reduced then stopped. I found out about Asacol from a medical journal (I was a nurse.) I asked if I could start taking it as I'd given up on the Sulphazalazine. Within weeks I had no symptoms. I stayed on it for 2 years. I was lucky as I had 18 years with no problems. In 2004 it came back - but it was mild. I saw my GP who prescribed Pentasa and my gut went wild. I went back onto Asacol and once again, within weeks I was symptom free. I'm on a low dose at 70 years of age. Not bad as I was told I'd not make 25!"

Luebby · Taken for 1 to 6 months December 17, 2017

For Ulcerative Colitis, Active "I was put on Asacol to start when first diagnosed with ulcerative colitis. I was on it for at least three or four months, and things didn't seem to be getting better. It was only when--on vacation--I forgot to take it for a few days and realized that I immediately felt much better. For me, Asacol caused symptoms that were nearly identical to a flare up of ulcerative colitis."

AnonymusUK August 9, 2017

For Ulcerative Colitis, Maintenance "I was diagnosed with indeterminate UC in February 2017. Since then I am taking Asacol 800mg 3 tablets a day. I am not sure, but I think that the flaking rashes on my face are due to the this medicine's side effect. And they hardly ever to disappear. And when they do, I have them back after a few days. I was prescribed different products, none of them worked. Never had this issue before, only after I have started taking Asacol."

JerryDee · Taken for 10 years or more May 1, 2017

For Ulcerative Colitis, Maintenance "I was diagnosed with UC when I was 20 years old. I am now 64 so 44 years with this annoying condition. Over the years I have been put on various medications but Asacol tablets along with occasional Asacol foam enemas have kept me well. I take 8 x 400mg tablets a day (4 first thing in the morning and 4 last thing at night), no side effects whatsoever. I only need the foam enemas if I get a bit of mucous or that 'colitis feeling' and the enemas work within two or three days. I use the enemas for a week though, to be on the safe side."

Juniper6543 November 18, 2015

For Crohn's Disease "Helped with crohns but gave me acne and increased tinnitus"

Roy360 July 26, 2015

For Ulcerative Colitis, Maintenance "Over the last 6 months since I was diagnosed with UC, I've tried as much as 4.8g/day of asacol: alone, with prednisone, with imuran, IV steroids and enema cortisol. So far, I've only had luck with the prednisone. This stuff does not work at all for me"

Rick B July 6, 2015

For Crohn's Disease "I was diagnosed with crohn's disease when I was 27yrs old. I'm now 54. Ive been through 2 fistula removal's and many nights awaken with extreme rectal spasams. no fun! Extreme weight loss and fatigue. My Dr. put me on Asacol 400mg (2 in the morning, and 2 at night). turned my life around. Dr. told me I needed to stay on the medicine for rest of my life. I felt great, put weight back on and then I did a stupid thing. I decided to stop taking it. was doing fine for past 5yrs but its back. weight loss and all other symptoms, cramping, loss of appetite, etc.. If Asacol is working for you, stay on it."

American 1 July 24, 2014

For Ulcerative Colitis "First placed on this medication in 2012 with no improvement in condition."

Beauteeful · Taken for 2 to 5 years May 28, 2014

For Ulcerative Colitis "Worked really well at the beginning."

JodanA · Taken for 1 to 2 years February 6, 2014

For Ulcerative Colitis "Had severe bloody diarrhea for a couple months, went away for two years then came back worse. I was then diagnosed with ulcerative colitis. My Dr started me on 6 pills a day of Asacol. Within two weeks I was having completely normal bowel movements again with no pain. I then began decreasing my dosage (doctors orders) and now I am currently on 2 pills a day of 800g. My life is completely back to normal. The only side effect I have is slight dizziness during more stressful times. I have had a couple minor minor flares. I do miss my dosage once in a while but it never seems to affect me as long as I take my next dose. Would recommend Asacol in a heart beat!"

Artsytamara · Taken for 1 to 6 months October 16, 2013

For Ulcerative Colitis "Hair loss, bloating, headache, night sweats, stretch marks on inner thighs and increased frequency on bowel motion."

Anonymous · Taken for less than 1 month July 30, 2013

For Ulcerative Colitis, Active "Diagnosed with Ulcerative Colitis 10 days ago. Started 800MG 2 tablets, 3 times/day plus suppository at night. Diarrhea quickly went down to once a day instead of eight times. Experiencing fatigue, slight nausea and seem to be developing acne."

pmd53 · Taken for 10 years or more May 12, 2013

For Ulcerative Colitis "Great, the only medicine that got me under control, no more bathroom mapping while leaving the house."

Nano also · Taken for 6 months to 1 year April 28, 2013

For Crohn's Disease "Has been very effective for maintaining remission of symptoms. Note: had to decrease dose to 400 mg 3 times daily. Passed pills whole at higher dose."

nic niv · Taken for 1 to 6 months April 27, 2013

For Crohn's Disease "So far this medicine had slowed down multiple diarrhea problems"

Anonymous · Taken for 10 years or more April 13, 2013

For Ulcerative Colitis, Maintenance "I have had Ulcerative Colitis for 30 years, on Asacol for 17. Took it during 2 pregnancies with no ill effects. This medicine has helped me stay in remission for the past 17 years, at a low dose (would like 4 400mg/day, but too expensive, so making due with 2). A lifesaver."

Pauling · Taken for 5 to 10 years February 26, 2013

For Crohn's Disease "I have been on Asacol for 7 years and have only minor flare ups. I have had 3 "flares" in 7 years so I am a fan of Asacol. I take the max dose of 12 per day. I also have colitis. Thanks to insurance my cost is ONLY $200 a month."

TREEman 1966 · Taken for 2 to 5 years February 18, 2013

For Crohn's Disease "I have been taking Asacol HD since I was diagnosed with Crohn's disease almost 3 years ago and have had only one flare-up. This works great for me!"

angie1049 January 19, 2013

For Ulcerative Colitis "I was diagnosed 6 months ago with Colitis. I started taking Asacol 400mg 3x a day. I felt great immediately after the 3rd pill. No diarrhea for 2 whole days! Last night my stomach started that weird rumbling noise. About an hour later, I had a severe headache! One of the worst I have ever had! I was on my 10th pill. One of the side effects of this medication. Be careful, always call your Dr. if you have any side effects with this medication. I stopped taking this medicine, did not work for me."

Jerbons · Taken for 2 to 5 years September 16, 2012

For Ulcerative Colitis, Maintenance "I have been on Asacol, two 400mg pills three times a day. It has done wonders for me. I have no side effects at all and it has kept my ulcerative colitis in remission with to symptoms at all. While my doctor has told me to stay on the full dosage, the bottle says that after 6 weeks one should go on maintenance of only 4 pills per day. Due to the expense of these pills, I am already down to 5 pills per day and still doing great."