Nucala for Asthma User Reviews (Page 2)

• 500...
• Taken for less than 1 month
• January 9, 2018

"I have been a severe asthmatic for about 45 years. I have been on a steady dose of prednisone and put on tons of weight. I worked for a while, then, when reducing the dosage, I was again in trouble. My specialist finally said, let's try Nucala, what a game changer. The second day, I felt like a new person. I could go up and down stairs without being winded. I could actually go out and enjoy myself. Our recent weather with sub-zero temps was a real test, as I usually wheeze terribly. No wheezing. The company that makes the medication is a lifesaver. Thank you so much for giving me my life back."

• bar...
• Taken for 1 to 6 months
• September 18, 2018

"Severe asthma since 14 years old and slowly increasing regular use of steroids, struggling to keep my peak flow over 200. Now I'm 52 and seriously thought I had just months to live. Affecting my family life every day. My eosinophil levels not very high, but doctors thought the steroids masked the true level, so they put me on Nucala. I felt a massive difference within 48 hours. Managed to reduce my steroids down to 7 mg by the 2nd shot. PF at 400 and stable. It's made a massive difference to our lives, and so I write this hoping it will help others. No side effects!"

• sev...
• Taken for less than 1 month
• October 27, 2017

"I have severe asthma. Prednisone made me feel better for a little while. I had a severe allergic reaction (anaphylaxis) immediately after receiving Nucala in an infusion center in a hospital. I was transferred to the ER. I was treated and released on high doses of prednisone and Benadryl. I had anaphylaxis again (4 days later). An ambulance took me to the ER again. I was treated and given an epi pen. I continued to have an allergic reaction for weeks (high doses of prednisone and Benadryl). I wish that I hadn't been allergic to this medication."

• Anonymous
• Taken for 6 months to 1 year
• December 26, 2020

"I have been taking Nucala for 9 months. I have severe persistent eosinophilic asthma. My asthma had a rapid onset and began about 2 years ago. I was completely healthy prior. I was using a nebulizer every 2-3 hours around the clock and on 02 at 3-5L because my airways were so tight. 10 days after the first injection, I was no longer requiring oxygen or neb treatments. Over the course of treatment, I've had a few minor setbacks, but they've been small in comparison to what I was living prior. The first couple of months, I had bad headaches and some backaches, but both resolved with ibuprofen. I get tired and flu-like at times, but a short rest usually takes care of that. I have minor skin issues, and my hair has thinned a bit, but those are things that I'm willing to deal with to have my life back. I can take my grandbaby on walks in her stroller and not be gasping for air. Nucala has been life-changing for me."

• Ver...
• Taken for 6 months to 1 year
• July 25, 2018

"Nucala has turned my life around. I did not expect the immediate relief I experienced after the first injection. I used to get such a buildup of mucus in my lungs that I'd have to stop halfway to the bathroom and sit down to cough up a lung. I used to choke on the mucus so badly that sometimes I'd almost blackout. I effortlessly walked the half-mile home after my last injection! I went from going to the ER every 4 to 6 weeks, with 5 hospital stays in a 7-month period, to forgetting to use my nebulizer! I had to get special permission from my employer's insurance to cover this med, and it's currently up for review, so I've got my fingers crossed right now. I'm optimistic because it has been so successful. It's not currently approved by the province, but I'm hoping it will be by the time I retire, because I couldn't go back to living without it."

• Gma...
• Taken for 1 to 2 years
• October 8, 2018

"Nucala was a life changer for me. My eosinophils were out of control, requiring three hospital stays in three months. My doctor prescribed Nucala, and for me, it was a miracle drug that gave me back my normal, active lifestyle. Unfortunately, I am not currently getting Nucala injections due to billing errors by a provider, resulting in huge co-pay amounts due from me. I am now in a post-Nucala phase until I pay the balance due. Age 70+"

• Dar...
• Taken for 1 to 6 months
• August 14, 2018

"Within 2 hours of my first dose, the congestion in my lungs was gone. I still have some minor asthma symptoms, but I only have attacks the last week before an injection, and those are mild compared to before."

• Ron...
• Taken for 1 to 6 months
• January 4, 2020

"Started off okay, but noticed the first dose caused a very bad pain in my left leg, going down to my foot, getting more and more pain as the trial goes on. Lots of other side effects coming off the trial."

• Ast...
• March 11, 2021

"My daughter was prednisone-dependent for the past few years due to severe asthma. She was on 8 puffs of Ventolin Q2 at one point for weeks, even after a course of prednisone. That in itself should tell you how out of control it was. She has been on Nucala for 4 months now, and it has been an absolute miracle. She does not need any inhaled steroids or even Ventolin anymore. I mean ZERO. She has felt this level of relief about 2 weeks after her first injection. I cannot rave about this medication enough. But note that this is targeted for a very small subset of asthma patients. This will not help the majority of people suffering from asthma."

• Wee...
• Taken for 2 to 5 years
• February 5, 2021

"I had an allergic reaction to Xolair and have been on Nucala for about 3 years now. I always got headaches, felt tired a day or two after I received the injection, but today was different. I got the injection Wednesday, today is Thursday, and when I got home, I wasn't feeling good, real tired, short of breath, my heart was racing, itchy throat, pain in my shoulder and up my neck where I received the shot, which I usually feel, chest is sore and my oxygen was 92-93. I went to the ER, and the doctor told me not to get the injection anymore. He did a chest x-ray and gave me breathing treatments. The injection really gave me a better quality of life, but I am scared to get it again, unsure what to do. My pulmonologist is supposed to call me back Saturday and we're supposed to talk about getting the injection again or not. With Xolair, he said I could die if I get it again, so of course, I said no, I don't want it. Has anyone else experienced this, getting Nucala?"

• Vet...
• Taken for 1 to 6 months
• August 13, 2020

"I just had my 4th Nucala shot. I am not impressed. My severe asthma is still horrible. The shots seem to not help me. My pulmonologist said that I needed to try it through the 4th shot. I got it this morning and had 3 bad asthma attacks since then. I am going to contact my pulmonologist as soon as possible. I am not going to get any more Nucala shots. Every one of the shots did absolutely nothing for my severe asthma."

• n4n...
• Taken for 1 to 2 years
• October 26, 2020

"Until I started taking Nucala, my asthma was mostly out of control. Now, in combination with daily high-dose corticosteroids, I feel like I have a new set of lungs and have gotten rid of the elephant that used to feel like it was standing on my chest."

• Bus...
• Taken for 1 to 2 years
• July 21, 2021

"I have a history of asthma. In 2017, I was exposed to black mold. My asthma went into overdrive. I coughed nonstop for 2 years. No medications helped stop the cough. I started Nucala in June 2020. My cough was gone in about 2 months. It has been wonderful to have my life back. But since I started using Nucala, I have developed inflammatory arthritis. It's horrible and very painful. I did not associate it with Nucala until I read the reviews. I am worried that if I stop Nucala, will my asthma symptoms come back? Is it actually causing my arthritis to go into overdrive? I plan to ask my doctor about stopping Nucala to see if it might stop increasing arthritis."

• EDa...
• June 3, 2019

"Nucala works as intended, keeping me from very bad exacerbations. Side effects are a bit tough for me, as I feel tired and experience flu-like symptoms. I tend to get more chest infections, like 6 a year vs. 1 a year. Maybe it's the medicine interaction in my lungs causing more sensitivity to the cold. I guess that's better than the alternative emergency room visit due to severe asthma."

• Sca...
• August 23, 2020

"I have just started Nucala after being on Fasenra for a year (to which I suffered severe side effects), just like what is mentioned in other reviews about Nucala. After reading many reviews, I'm not sure about this drug. I had some fatigue and body aches after the first injection, but not really bad. So I will wait until the next injection to see how it affects me. Hopefully better than the Fasenra."

• Joh...
• Taken for 6 months to 1 year
• October 18, 2021

"I have adult eosinophilic asthma. Never had asthma as a kid. After receiving my first injection of Nucala, 2 weeks later I had an anaphylactic shock, but I was told it wasn't the Nucala. Had injection #2, and 1 week later, and again a little over two weeks, had 2 anaphylactic shocks, but according to the doctors it wasn't the Nucala. After my third injection, I was fine, no side effects. 4 weeks later I received my 4th shot, I had an anaphylactic shock 7 hours later and was hospitalized and intubated. After I pulled through, I quit taking Nucala. I was eventually charged 11 thousand dollars for refusing to take the 6th dose. Gotta love the VA health care system. Nucala works for some, and I'm glad it can give those who respond well the relief they deserve. Just didn't work for me."

• DEE...
• Taken for 1 to 6 months
• August 9, 2021

"I started with Nucala, and it worked for 2 months. I'm on my 6th month and I've noticed it stopped working. Also, 2 weeks before I'm due for another injection, my body feels it. It will work for like a week, and then I'm back to steroids and breathing treatments. Kinda feel like giving up. I don't know if I have to be on it longer or not. No one answers me."

• sue...
• Taken for less than 1 month
• April 1, 2018

"I have found it great for breathing, but I developed huge blisters on my feet, and now I have an ear problem for over 4 weeks. No one can help me, as we don't know if it is due to this drug, which I believe it is, as nothing has cured it."

• JBa...
• Taken for less than 1 month
• November 21, 2020

"Took Nucala, had nausea the first day, and diarrhea every day since, and my throat is very dry. I didn't feel like that the first time I took this, but now I am taking the auto injector. The symptoms didn't start right away, took about two hours. After, I am going to the bathroom like I have a virus. This is weird."

• Sil...
• Taken for 1 to 6 months
• July 1, 2021

"Did my fourth monthly injection, and about 12 hours afterward, developed a burning, itching rash with raised welts at the injection site. This never happened before, so I took Benadryl and have been icing it. Nucala worked amazingly the first month, and I felt like I got my life back, but it has not been controlling my severe eosinophilic asthma since. It's been a slow decline from day one. This injection site reaction is very concerning."

• Anonymous
• January 21, 2021

"I have been on Nucala for 1 year. It has helped my asthma. I am having pain all over my body, mostly upper back, and I am losing my hair. Not sure I can stay on this med. My Dr. has suggested going off Nucala and see what happens. I can't take the pain."

• sub...
• Taken for 1 to 2 years
• October 11, 2022

"I have been using Nucala for 18 months now, and it has genuinely been transformational for me. My asthma was gradually getting worse, and I was using four different inhalers, plus Montelukast and an antihistamine to control the grip that asthma had on me. I had big improvements within weeks of taking Nucala, and my asthma scores each month are now usually all zeros. Where I used to struggle to get to the top floor of my townhouse, I’m now able to regularly visit the gym and have got my running up to 3k without rest, aiming for 5k, and it’s my tired legs holding me back, not my breathing. I don’t think this automatically works for everyone, I was lucky it worked for me, but there are other biologics if this one fails for you."

• Ter...
• Taken for 1 to 6 months
• March 5, 2024

"I have had 5 injections for asthma. I think it helped, but the back pain, chest pain, itchy torso, itching scalp are unbearable at times. In addition, I developed a urinary tract infection and diverticulitis. GI doctor says the chest pain may be esophageal. I have had chest x-ray, chest scan, heart CT scan - all show nothing unusual. But I don't know what I will do when asthma symptoms recur because the pain is hard to live with every day."

• Web...
• Taken for 1 to 6 months
• January 27, 2024

"No issues in the injection area. Nothing immediate or that day of the shot. Headaches, but not until the next day or two. It may not be related to Nucala. I've had the 3rd shot now, and I feel a little nausea, but it's been two days."

• Sar...
• Taken for less than 1 month
• October 21, 2021

"I got asthma from COVID. Never had asthma before COVID. I just started Nucala. I noticed after my first injection I could breathe a lot better and no shortness of breath. I don’t have to use my inhalers as much. I did notice some hair loss."