User Reviews for Synthroid
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Synthroid.
Reviews for Synthroid to treat Hypothyroidism, After Thyroid Removal
"After my thyroid surgery, I was put on Synthroid. I continued to get WORSE until I was nearly totally bedridden. I did some research and after several months, found a doctor who prescribed medications other than synthroid. I started taking a Natural desiccated thyroid (NDT) medicine. Within two weeks, I woke up and felt like getting out of bed. I continued to improve, however my strength never came back. I am totally confined to a wheelchair now."
JakeBuddy April 27, 2017
8 users found this comment helpful.
"I was diagnosed with papillary thyroid cancer & had a total thyroidectomy & also lost one parathyroid. The dr used high levels of iodine during my surgery and my endocrinologist had to put me on an iodine free diet for 4 months to clear it from my body. During this time I wasn't allowed to take any thyroid meds at all. I spent that entire time in bed under an electric blanket turned on high during a Vegas summer. Nothing normal there. I was a zombie. I had to have help to use the bathroom, shower & everything I was so weak. After RAI I started Synthroid. A few months later I noticed small improvements but gained 50# within the first year. It's been 7 years now and I'm worse all the time. I've lost my life to this. I'm switching to Armour."
QueenJennifer February 17, 2017
16 users found this comment helpful.
"I ended up with an emergency complete thyroidectomy after an ultrasound revealed the tumors ((2 in each lobe of my thyroid) had grown and were the culprit to me having to turn my head to the left to swallow food or to even drink liquid. After years of taking levithyroxine I was put onto the brand name Synthroid. At worst, my levels were 86.4. Yes, you read that correctly. My my hair falls out in clumps, tired, exhausted, body aches and joint pain, chronic fatigue, etc. now my routine is to take my synthroid at bedtime with vitamin c. I wake up fine, I'm down from 325 to 181 and I feel great! Please remember your thyroid takes weeks/months to change, you won't notice anything three days to a month into taking this"
mizzgigglzyahoo.com December 30, 2016
24 users found this comment helpful.
"This stuff is terrible. I switched to ndt and am doing way better. Please google stop the thyroid madness as synthoids popularity is madness."
Sadie99 October 29, 2016
14 users found this comment helpful.
"Took 1.0 right after surgery for ten years. Then special ist concerned to high. Conservative drop to .95 then dropped to .88 when dropped to .88 was very tired put on 5 lbs in 5 dayswas a weight watchers person has lost 20 pounds took me ten months to lose 20 then change in dosage gain 5 pounds added steps up to 20000 a day and cut portions back more finally ten months later have kept 20 pounds off . I worked hard to do this since the change from .95 to .88 made me very tired. Now they want to drop it to 65? I am still tired constipated and do not understand why if I am borderline? Whatever that means why would you stop it to .65 very disappointed. Have moved to clovis California will have to find new doctor. Change in meds really stressed"
.otherofonyx October 9, 2016
11 users found this comment helpful.
"I was 1st diagnosed w/hyperparathyroidism.The dr. said it wasn't bad to just watch it.After a couple of years it got worse-I saw another dr. & he did 6 biopsy's-found that I had Papillary Cancer-following mo. I had my thyroid & 2 parathyroids removed-surgeon put me on 100mcg of generic Synthroid-seemed to be doing ok until I had the RAI, twice, then everything messed up. I was still having hair loss, ears ringing, teeth getting bad, bathroom habits were never the same, cramps, affected my salivary glands permanently so I'm dry all the time plus I've put on 25 lbs. I eat, I don't eat, it doesn't matter, the weight will not come off.The Endo dr. changed my dosage to 112mcg & I seemed to be doing better.I am back to 100mcg w/previous symptoms."
firephilking (taken for 2 to 5 years) October 2, 2016
12 users found this comment helpful.
"Had my thyroid removed at age 9 (cancer) 38 yrs ago. Been on Synthroid ever since then. My dosage has changed over the years. I am now on 150 mg (blue tablets) I have been getting a all over skin rash and itching for the last 4 months. After numerous tests my doctor told me it may be the dye in the blue 150 mg tablets. Has anyone else experienced this problem? I just switched today to take the 50 mg (white tablets with no dye) three times a day. I am hoping this was the problem."
angela f August 16, 2016
9 users found this comment helpful.
"Thyroid was removed 3 years ago due to hashimoto and nodule hyperplasia. Surgery discovered a substernal thyroid. Prior to surgery and attempts to reduce goiter with synthroid, felt terrible everyday. Multiple diagnosis due to muscle pain,fatigue, insonima, stomach upset, rapid heart beat, irrational blood pressure. Take synthroid every morning 1 hour prior to breakfast. Feel great. No negative side effects. All above symptoms are gone. Age 59!"
Dele August 16, 2016
15 users found this comment helpful.
"I had my thyroid out in Feb. of 2016. I was put on 125mgr of generic Synthroid. My blood sugar was dropping below 50 on a daily basis. I looked the problem up on the internet and found that people had the same problem and advocated that I take the brand name drug to correct the problem. For the past two months I have been on the name brand and I seem to be leveling out in the high 60s with my sugar which is ok. I am stuck paying the extra charge not covered by my insurance. roughly $32 per month for 30 pills. Have had no weight gain yet which I am very happy about. I am going to ask my doctor at the end of this month to increase my dosage to bring my sugar up into the 80s or even 90s where it belongs."
Vinojack (taken for 1 to 6 months) June 6, 2016
20 users found this comment helpful.
"I had my thyroid removed about 2 years ago. I weighed about 190. I was put on 125 mcg Synthroid right after the surgery. I lost about 20 pounds without trying at all. My dosage was increased to 175 mcg. I then started gaining weight. My endocrinologist increased my dosage to 200 mcg. My weight went up to 224 lbs. Never weighed so much before. I've been told by a couple of other doctors that the higher doses of Synthroid should cause weight loss, not gain. I am 72 years old. In general, I have aches and pains, something wrong every day. Don't know if that's Synthroid related or not. But I am very uncomfortable with all this weight, just doing everyday things."
Anonymous April 12, 2016
41 users found this comment helpful.
"I have been on Synthroid 15 years now, two years ago my insurance company would not cover Synthroid any more so they sent me the generic. I broke out in a rash and felt awful. My Dr wrote for synthroid only. I am paying 288.00 a year now out of pocket instead of 16.00. I am not sure what happen but my belly has been bloated every since and I have gained 40 pounds! My new Dr of Internal Medicine does not seem to care and says it's my age bla bla bla. I told her I wanted to be tested for hashimoto and she said there was no doubt in her mind that I have it. My thyroid is totally not working and i am taking 125 Mcg a day. I am not sure what else I can do as she does not seem to want to help. Me gaining 40 pounds is not acceptable."
Gizelle March 24, 2016
27 users found this comment helpful.
"just started taking so not sure yet"
Angel in heaven January 15, 2016
5 users found this comment helpful.
"My thyroid was removed in September 1993 due to Papillary Carcinoma. After removal and treatment, I was put on generic synthroid and could not get my levels regulated. After a time, I was put on brand name Synthroid and levelled out. I am unable to take the generic."
Marykp83 September 23, 2015
38 users found this comment helpful.
"Due to variances in generic medications I kept experiencing thyroid fog until my doctor changed me to synthroid. My stats immediately stabilize and it has worked well. I found I must take it as prescribed and at the same time daily to avoid the fog."
Willmarqz (taken for 6 months to 1 year) July 20, 2015
35 users found this comment helpful.
"I was taking Levothyroid 75mcg. Lost 15 pounds, stomach pain, unable to eat, shaky, unable to think or exercise. Also have dark, stone hard stools. Will see my endocrinologist next week. When in my 30's, took Synthyroid for 16 years with no problems, then all went as above. Took Levothyroid by Forest for 4 years with no problems until it was taken of the market about 2 years ago."
Borega June 20, 2015
30 users found this comment helpful.
"Due to thyroidectomy I am hypo thyroid .While on synthroid I felt awful. High anxiety, quick to anger. Definitely did not like this drug. I like levoxly and naturethroid. Doing better. Keep trying other meds if you feel awful."
l2b (taken for 1 to 6 months) April 28, 2015
54 users found this comment helpful.
"I had a goiter in my teens that was treated with radioactive iodine, I've been on synthroid for almost ten years, having trouble finding the right dose, I was on 125mcg for a few years but my TSH jumped around a lot, last time I checked it was around 30, so not good, I decided to try 150mcg at first I had a bit of insomnia but otherwise I felt great, going to find out on Saturday if it's been working as good as I thought, I ran out 3 days ago... and I've already gained a bit of weight (looks like I'm bloated) and woke up this morning depressed, oh well I get more on Saturday"
tmir554 April 9, 2015
40 users found this comment helpful.
"In a nutshell I had my thyroid removed ten years ago. I had a lot of horrible symptoms that I can only describe myself as feeling like a 100 year severely arthritic woman. My lab results seemed to always came out within range no matter what dosage I was on. I even called the synthroid company to discuss the various doses and learned the only difference between the doses I was trying besides the amount of thyroid hormone as the food coloring. In a quick internet search I learned my symptoms might be related to the food dyes. My endo rewrote my prescription using no dye tablets. With one week I had no pain. I take two 50mcg daily and on Monday and Thursday I add a half tablet. Life is good!"
SaltWaterTaffy March 26, 2015
67 users found this comment helpful.
"I had my thyroid irradiated in 2005 due to Grave's disease caused by Hep C treatment (Ribivirin & Interferon). At first I saw an endocrinologist that prescribed Armour Thyroid but loss of job and insurance forced me to go to a free clinic, where I receive Synthroid. The clinic doesn't seem to understand the difference between experiencing low thyroid levels from naturally occurring hypothyroidism, & complete loss of thyroid. My NP says to me, incredulously, "You take an awful lot of thyroid!", & at that time I was only taking 75mcg a day. Finally after three years of 75 to 100mcg, when I felt absolutely crazy (tired, confused, hair loss, cranky, paranoid, angry, enormous weight gain), she now has me on 150mcg which seems not perfect but better."
DeboraL. January 7, 2014
113 users found this comment helpful.
"My thyroid disease was caught by my determination to find the real cause to my sudden physical & mental change. Long story short I had thyroid cancer twice (2010 & 2012). April 2013 was thyroidectomy, radiation 3 months later. It's taken all my strength not to give up. I'm finally on 175mcg & my endocrinologist is brushing off my complaints of being depressed over nothing, tired, weak, cold, forgetful, wake up to aching feet. She said 2.1 is in range & Synthroid is the solution. It isn't enough! It or my dose isn't jiving with my body. I'm so tired of being tired. Some days it feels like I have cinder blocks tied to my feet."
lost31 November 20, 2013
200 users found this comment helpful.
"I have had thyroid surgery two months ago. I take my daily dosage of levothyroxine every morning before breakfast and I am doing great."
Tulsiebud October 25, 2013
105 users found this comment helpful.
"I have been on synthroid for 20 years. My dosage is 100...To the person whose thyroid was removed and dosage is 250...Sounds a bit high. My tsh level was also 2. 54 the last time I went to the doctor and I feel better than I have in a long time. Anytime I feel a little psycho and mean. I know my levels are off."
noname817 October 11, 2013
103 users found this comment helpful.
"It works great for me"
willseth August 1, 2013
37 users found this comment helpful.
"I had my thyroid removed in 1990 and have been on Synthroid ever since. The dosage has changed over the years. Right now I'm on a dose that requires two pills each morning--the 200mcg plus the 50 mcg. I have to wonder if alot of the symptoms many of us experience isn't due to the Synthroid --but just rather the lack of a thyroid and having to get the hormone from a pill? Maybe it just doesn't ever feel quite the same no matter what brand it is. I am usually tired. I can't get enough sleep. Often am achey too. I have always been prone to anxiety and depression and have been on Effexor for years. That helps with alot of symptoms I had (night sweats, mood issues etc) but still so tired."
CB in TX (taken for 10 years or more) October 25, 2012
152 users found this comment helpful.
"My wife is been taking this medication for about 5 years now. she has terrible paranoia is always in a bad mood also, sleep problems, hair loss and irritation. her doctor test for levels all the time and he tells her she is fine, however I do not agree! She goes out drinking when she gets upset."
I love my wife!! (taken for 2 to 5 years) August 19, 2012
101 users found this comment helpful.
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