Leuprolide and Insomnia: What Users Say (Page 2)

• EC4...
• Taken for 6 months to 1 year
• May 29, 2018

For Endometriosis "I am 25 and received 9 months of injections with Lupron for endometriosis and had a terrible experience with it. First was the symptom flare the first month, which made my pain even worse, and I missed 3 weeks of work out of 4 weeks. Then, even with add-back therapy, I had hot flashes, trouble sleeping, severe pain with sex, and bad acne. And it did nothing to help the pain I was having. I stopped this medication after 9 months, and even now, one year after stopping, I have residual digestive issues and continued vulvodynia, which started when I was on Lupron. Many doctors seem to use this drug as a first-line treatment against endo, but it is brutal and is only a temporary treatment."

• Tri...
• Taken for less than 1 month
• April 21, 2018

For Endometriosis "I just started the Lupron shot, and so far it's helping, but it's also come along with hot flashes, dizziness, prolonged QT heart interval (I already have the heart problem, but it is amplifying it), body pain which is slowly going down, brain fog, insomnia, fatigue, inability to breathe, and is making some of my connective tissue symptoms worse. I'm hoping at least some of these symptoms go away. If they do, I will continue the monthly shots since the endo symptoms are getting better (headache, bowel issues, insane amount of bleeding every month, and debilitating pain)."

• kai...
• Taken for 2 to 5 years
• September 26, 2017

For Endometriosis "I've been on the Lupron shot for almost 2 years now. The first six months were the hardest. I woke up tired, icky feeling, and puked. I lost my appetite, lost a lot of weight, and it made my insomnia worse and my urge to pee worse, especially at night. Once the nausea settled and my appetite came back, the other side effects were easy to cope with on top of the side effects from the Implanon. I haven't bled at all and had no pain. I got off it for 3 months, and some of my shooting pain came back, but no bleeding, so I got put back on it. I just decided to take a break, and I'm crampy and starting to spot. My OB/GYN said I shouldn't have pain like I was before, so we shall wait and see. Since the Lupron is working, my Medicaid won't let me have a lap to see what stage my endometriosis is."

• Nat...
• Taken for 1 to 6 months
• July 7, 2022

For Uterine Fibroids "I have had many years of heavy, painful periods. Diagnosed with a bulky uterus (size 16 weeks) with endometriosis and fibroids. My gynecologist recommended Lupron Depot to shrink my uterus before going for laparoscopic hysterectomy. I'm 53 years old. I have had 2 shots now and am going for my 3rd next week. I have had a lot of side effects from this medication: night sweats (not every night, mild), insomnia, no energy, restless legs/muscle spasms, depression (cry every day at least once), and mood swings (my poor family). So next week when I get shot #3, I am hoping that he will have my surgical date booked as I cannot live with the pain and constant bleeding. The shot plus add-back therapy has only given me hope that I will eventually get back to normal and a better quality of life."

• Sul...
• November 20, 2015

For Uterine Fibroids "This medicine has given me horrible headaches. Lost a lot of hair, gained weight, insomnia."