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Lamictal for Epilepsy User Reviews

Rating: 5.5

Lamictal has an average rating of 5.5 out of 10 from a total of 19 reviews for the treatment of epilepsy. 42% of reviewers reported a positive experience, while 42% reported a negative experience.

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Reviews for Lamictal

  • Non...
  • Taken for 6 months to 1 year
  • October 9, 2019

"Lamictal did not work for me, 200 mg in the am and 200 mg pm. No changes with seizures in my sleep, but side effects were insomnia, constipation, and hair loss. I had to take a sleep aid to get a decent night's sleep, or else 2 or 3 hours was all I could get."

1 / 10
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41 Report
  • eba...
  • Taken for 1 to 6 months
  • November 3, 2017

"I do not like this drug! It gives me an upset stomach, dry mouth, gaining even more weight, makes me feel like I'm about to barf sometimes, I get double vision, dizziness, and even blurred vision. My doctor thought it was such a wonderful idea, and I have told her about my reactions to this medication, but she still thinks it's a great medication. I wish she were in my shoes!"

1 / 10
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42 Report
  • Anonymous
  • Taken for 2 to 5 years
  • November 15, 2017

"Best medicine out there! I've had seizures for 7 years now and used to have them every other day, and sometimes a couple in a row too. About 2 years ago, I got put on this medication and it has stopped my seizures! I've tried 5 or 6 different medications, and this one is the only one that actually worked great! Anyone reading this, give it a try because it works!!"

10 / 10
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37 Report

Frequently asked questions

  • Anonymous
  • Taken for 2 to 5 years
  • November 12, 2017

"I have taken 150 mg of this drug for 3 and a half years for a condition known as benign epilepsy. In that time, I've continued to have seizures every six months on average, as well as experiencing a number of negative side effects including insomnia, constant sighing, impaired short-term memory, lack of motivation, depressive thoughts, and difficulty completing tasks due to lack of motivation."

1 / 10
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31 Report
  • Anonymous
  • January 27, 2017

"I cannot stop singing its praises. Two years ago I had no idea what was wrong with me; I felt 'fogginess' and tried everything-declared 'headaches' caused by anxiety or depression, had to take a year off of school since I couldn't function. Xanax helped, but I didn't understand why. About 17 other antidepressants or antianxiety medications later, I was put on Lamictal due to a diagnosis of BPD. Almost instantly, from that initial dose of 25 mg, I started being able to focus, and the fogginess lifted. As the dosage increased to 150 mg twice a day, I was given back all waking hours of clarity. I could focus, produce, study, think clearly, remember clearly-everything. As a result of being given power back, the depression vanished."

10 / 10
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37 Report

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  • Anonymous
  • Taken for 2 to 5 years
  • September 30, 2018

"I’m 46 y/o female and started Lamictal after sudden onset of seizures. Unknown cause. I have Crohn’s disease and have had my entire large intestine removed along with most of my small intestines. I’ve noticed my mood has improved, which is a welcome effect! Rather than being a human slug, I’m able to complete some housework and...wait for it.....DO LAUNDRY!!! The only issue I’ve had is cystic acne that got pretty bad when I was taking over 100 mg a day. I now take just 100 mg and no more acne or rash. No seizures except a few when coming out of anesthesia after some procedures or surgery. This has been remedied by getting premeds and IV seizure meds when having surgery. I’m happy again and look forward to the future!!"

7 / 10
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24 Report
  • Kur...
  • Taken for 5 to 10 years
  • December 13, 2019

"Been on Lamictal for about 7 years, it was prescribed to me for myoclonic seizures. My epilepsy improved a bit, but I still have seizures almost every day. When my doctor tried to take me off of it, putting me on Keppra, I started having grand mals, so he immediately put it back. I haven't had a grand mal for years now, thankfully, but myoclonic seizures still happen frequently."

7 / 10
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21 Report
  • Nic...
  • Taken for 1 to 6 months
  • March 9, 2021

"Lamictal did NOT work for me. I have MTS (mesial temporal sclerosis). I had smaller febrile seizures when I was 1-2 years old. It wasn't until starting college that I had huge grand mal seizures, focal seizures, etc. My neurologist began me on Lamictal, and it did absolutely nothing for me. I had breakthrough seizures, confusion, and it was overall not a great match. If you are in the same boat I am in, I would recommend going down the Keppra route/oxcarbazepine (until this recently has caused hyponatremia)."

1 / 10
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14 Report
  • Jan...
  • August 23, 2019

"NEW ZEALANDERS! On Lamictal or Arrow, I'm calling out to you! If you don't know or are against the change to Logem, sign the petition! To find it, Google - NEW ZEALAND petition for Lamictal. I know we are all probably facing the inevitable, but if there is any possibility of keeping our lives stable, I'm going to take every chance I can! PHARMAC in NZ has chosen to no longer fund Arrow and Lamictal medication, creating the change to the generic brand Logem. To sign the petition - there is a big yellow box on the petition page, on the right of the yellow box, there is a 'sign petition' option - click on this, put in your name and email, then there is a box to check to agree with the terms and conditions, and there is also an 'I'm not a robot' to tick."

10 / 10
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18 Report
  • Me-...
  • Taken for 5 to 10 years
  • October 1, 2016

"I started taking Lamictal about 7 years ago, 2 times a day, morning and night, 150 mg, and I love it. With all the other anti-seizure meds, also I have to take other anti-seizure meds 3 times daily. Total by bedtime, it's actually 4 times a day. I can't say enough good things about Lamictal. With it and the combination of the other anti-seizure meds I take daily, it's a great mix for me. Also, I read your information, as it is very dangerous to suddenly quit taking it, and it's not good to run out either. Trust me, I went 2 days once without it on the weekend, and you better believe I couldn't wait until Monday morning came and I could go pick it up. Don't make my mistake, you're never supposed to miss a dose, and I haven't since."

9 / 10
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20 Report
  • Zac...
  • Taken for 5 to 10 years
  • September 15, 2018

"I take 500 mg a day (have 2 separate prescriptions since it's above the maximum). Taking it for the last 5 years. It's been almost a year since I've had a seizure. At first, while I was increasing the dosage, it gave me extremely lucid dreams (like, wake up thinking that it was real kind of thing). After you're on it for a while, it's pretty much just life. Only bad I can think of is how irritable I get when I'm hungry, and I feel crummy when my blood sugar is low. It's made me put on some weight, which I hate. Can't wait to get off this stuff and have no seizures and lose weight!"

5 / 10
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11 Report
  • Lam...
  • October 5, 2021

"This drug has helped me massively throughout the past few years. I was taking regular monthly seizures for about 3 to 4 days a month in my sleep and had several ambulances called for me. Then, when I started this drug, things have reduced, not stopped completely, but reduced drastically. I haven't had a grand mal for three years and have absence seizures, but rare, nowhere near as much as I did. This drug has caused very little side effects, I can't even recall one, to be honest, and if anything, it has given me confidence to stand up for myself for some weird reason, lol. Highly recommend, also can drink alcohol without side effects, never had a side effect from it, so yeah, I'd stick to this."

10 / 10
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  • Anonymous
  • Taken for 2 to 5 years
  • October 10, 2021

"I won't talk about my experience of how it controlled epilepsy because I don't know. When I was on Keppra, I was a terrible person when I was taking it alone, feeling angry and depressed all the time. After another violent seizure, I was prescribed Lamictal on top of Keppra. I tried to refuse to take it but ended up taking it anyway (along with Keppra). Once I reached 100 mg bd, all of the Keppra side effects were gone, and I felt like a different person. But like any anti-epilepsy medicine, there are side effects, and I had two: 1- I couldn't sleep more than 5 hours at night, I never used an alarm to wake up (you wish to need it once you reach this level). 2- Dry mouth, nostrils, and eyes, dry to the point I can't open my eyes when I wake up, and I needed an eye drop to open my eyes. My mouth was dry despite not being thirsty, my eyes and mouth literally felt like sandpaper."

8 / 10
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3 Report
  • Pur...
  • Taken for 1 to 6 months
  • June 6, 2018

"I am currently titrating up to help my day and nocturnal seizures. I am at 50 mg morning and night. So far, it seems to have helped with the nocturnal but increased my seizures during the day. If you are in Scotland and it's the weekend, you can go to a chemist, and they can supply you with a week of medication to tide you over should you run out, so you don't miss any doses. They will sort out the paperwork and inform your GP that they have given you that medication. Take a repeat slip if you have one, and try to stick to a regular chemist, and obviously try to remember to order... easier said than done with multiple medications and memory problems. Your chemist can also order them and deliver if needed."

3 / 10
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2 Report
  • Yuc...
  • Taken for 1 to 6 months
  • January 24, 2022

"Hives, dry mouth, dry eyes, vision change, and dry patches of skin under my eyes. 150 mg for a few weeks. All these symptoms have been with me even a week after stopping this med."

1 / 10
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10 Report
  • Wat...
  • Taken for 1 to 6 months
  • February 1, 2020

"I developed tardive dyskinesia after less than 2 months on Lamictal for depression."

1 / 10
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20 Report
  • Sne...
  • Taken for 2 to 5 years
  • October 22, 2022

"It’s given me my life back. I have a sense of safety if I’ve taken my medicine routinely. I can go about my days almost as normal as everyone else."

10 / 10
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4 Report
  • Jac...
  • Taken for 5 to 10 years
  • October 18, 2021

"Lamictal caused rare, horrendous side effects for me - massive appetite increase, significantly higher blood sugar (hyperglycemia), and muscle loss."

2 / 10
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5 Report
  • Ano...
  • Taken for 2 to 5 years
  • March 25, 2023

"Lamictal 225 mg with Keppra 1750 mg and Topamax 300 mg all twice daily. Still, some breakthrough seizures. I find Lamictal has helped the most."

8 / 10
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1 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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