Infliximab User Reviews & Ratings (Page 5)

• J Y...
• August 20, 2016

Infliximab for Crohn's Disease, Maintenance "I first had symptoms when I was 17 years old. Was not diagnosed until I was 25 during an exploratory surgery to find out what was wrong with me. I am now 67, have had three surgeries, two for blockages, and a variety of meds. This last surgery did not go well, and my Crohn's became worse. The doctor recommended I go on Remicade. Have had three treatments with no improvement, extremely exhausted. During my treatments, I developed chest pains, had an angiogram, everything fine. Then became very short of breath, fever, and got water on the heart from the procedure. Will be discussing this with the doctor and requesting I stop the treatments. I have not had a rewarding experience with Remicade. Not sure what my options are going forward."

• Chr...
• October 4, 2009

Infliximab for Rheumatoid Arthritis "It has worked miracles in the past 8 years. I have had no side effects from it when used with Arava. The doctor has me now taking methotrexate, and my body rejected the IV the first time with the new medicines."

• In ...
• Taken for 1 to 2 years
• September 24, 2021

Infliximab for Ulcerative Colitis "UC at 65 years old. Four years of bleeding, pain, and sleeping on the bathroom floor. Tried the usual, including another biologic. Six months of Remicade had no effect. A specialist suggested I try a high dose of Remicade before opting for surgery. I was well after a few weeks and have been symptom-free for two years."

• Anonymous
• September 6, 2016

Infliximab for Crohn's Disease, Maintenance "I was diagnosed in 2013 with IBS. Then in 2014 IBD. Now, in Feb 2016 with Crohn's. Tried a lot of meds, nothing worked. Went to Remicade, well, it has been working but never lasts that long. By 5-6 weeks, I'm starting to flare. This time, after loading doses, they used me to 7.5, and that worked. I got 6 weeks out of it instead of 4 weeks. But this time it's bad, started to flare in my belly 4 days ago. And now I can barely move, feels like I've been hit by a truck. All my joints hurt so bad. This is awful. Hoping to get an infusion. But I read all the same issues."

• Anonymous
• August 9, 2009

Infliximab for Behcet's Disease "I have been taking Remicade for approximately one year now and find it works quite well for my Behçet's symptoms. Things were great during the initial phase of loading doses, but I found once my treatments were scheduled for every eight weeks, I seemed to experience a flare before my next session (around the 5 or 6 week period). My doctor has just increased the treatments to every four weeks, and we are hoping this will get rid of my flares altogether. The only side effect of the Remicade that I have experienced is fatigue following the infusion."

• Mik...
• Taken for 2 to 5 years
• March 30, 2019

For Crohn's Disease, Maintenance "I have been having infliximab infusions for Crohn's for 2 years now, and it has given me my life back. I’m also still taking azathioprine as a precaution so that my body doesn’t build immunity to the infliximab. It took about 3-4 months for it to work. Prior to taking it, I had suffered a particularly bad 2-year flare, lost 35 kg, hospitalization, brought my marriage to the brink, and I was contemplating the unthinkable. I can’t help crying as I write this as I remember what it was like. Reaching that point, it was worth the potential risks with the hope of being normal again. As I enter my third year of infusions, I am aware that the drug's effectiveness can wear off, and I am praying it doesn’t. I am very fortunate to live in a country that covers the cost of the infusions, which would otherwise be financially devastating. Best of luck to you all, and I hope it can work as well for you as it has for me."

• Lin...
• Taken for 5 to 10 years
• February 13, 2017

Infliximab for Ulcerative Colitis "Diagnosed in 2003 with ulcerative colitis. Started Remicade in 2010. Helped my symptoms, but developed discoid lupus in 2015. Doctor thinks it was brought on by the Remicade. Stopped Remicade and now taking Entyvio for colitis and plaquenil for the lupus."

• BIL...
• Taken for 6 months to 1 year
• July 7, 2016

Infliximab for Ulcerative Colitis "Only a few words. Please check your TB test for more than two or three times, especially when you are already on meds like prednisone and Imuran. Don't put your life at risk. I am suffering a lot because of the use of this medicine, Remicade. My personal, social, and financial life is destroyed. Sorry if I am getting emotional. It is true whatever happened to me. I wish that I would have never used this medicine."

• Tat...
• July 6, 2015

Infliximab for Crohn's Disease, Maintenance "I have suffered from Crohn's disease for about 2 years and took Remicade for one now. At first, I had headaches, but now I just take Remicade every 56 days and it keeps me okay. I don't feel the symptoms of the disease, and basically, I eat everything that I wish, but I'm 29, so I'm always on a diet to keep my body shape."

• Sum...
• October 30, 2008

Infliximab for Crohn's Disease, Maintenance "I am 23 years old and have had Crohn's since I was 19. I started Remicade about 6 months ago, and it's the only treatment that's worked so far. It is a bit time-consuming, but it's better than taking 10 pills a day (or more) and more effective. I would recommend trying this after everything else fails. It feels good to be normal again."

• Gra...
• April 9, 2017

Infliximab for Rheumatoid Arthritis "Like some RA people, diagnosed easily back in 1990. Genetically 'gifted' it from the maternal side. Having tried all the old first-line drugs w/o success, I started on the second line of meds, including Enbrel. It was great for 6 months. Then it stopped. Remicade was started, and after one infusion, I had a horrible reaction: 'Serum Sickness.' Paralyzed for 3 days, severe allodynia (pain all over). Would never take this drug. It was the mouse protein in Remicade that I reacted to. Wish you all well!"

• Anonymous
• August 6, 2009

Infliximab for Ankylosing Spondylitis "I have been on Remicade since April after not getting any relief from Enbrel or Humira. The initial relief was wonderful, but the results since then have been very unreliable. I find that the week before my infusion is due, I am in terrible pain all over again. I also have a hard time with the methotrexate, it makes my stomach very upset and wipes me out the day I have to take it."

• Woo...
• Taken for 1 to 6 months
• October 2, 2015

Infliximab for Ulcerative Colitis "Have had UC and Crohn's for about a year now and started off with a serious flare that had me bedridden. I was finally talked into trying Remicade, and a couple of days after the initial dose, I felt great with no pains. A week after the dose, I developed C. diff and was right back to square one. So, I got the C. diff taken care of and did a second dose, and the C. diff came right back. So, I got that taken care of again and did a third dose, and guess what? C. diff again. I told my GI I wasn't going to waste my time or money on it anymore. I went to the Mayo in Minn for a second opinion on my condition, and after days of testing, they said that I had already developed antibodies to the Remicade. I'm not sure the Remicade caused the C. diff, but now to Humira."

• Lul...
• Taken for 1 to 6 months
• September 14, 2018

Infliximab for Psoriatic Arthritis "I feel very tired all the time, am housebound due to fatigue and pain. I also have ankylosing spondylitis. I’m due for my third 8-week treatment next week. It also makes my moods labile in the first week after treatment. I’m 62 years old, unable to work. I’m hoping for things to get better soon."

• Pau...
• November 13, 2019

Infliximab for Crohn's Disease, Maintenance "After being diagnosed with Crohn's, I took two (2) Remicade infusions. I believe it was only two (2). My condition deteriorated quickly. I lost forty pounds (40), the last ten (10) pounds I lost took only ten (10) days. I had a Prometheus study done, and it showed no trace (0) of Remicade in my system. How is that possible? Has anyone else had this happen?"

• Tes...
• October 25, 2019

Infliximab for Crohn's Disease "I was on this for about 3 months, and I felt awful almost every time. After an infusion, I ended up in the hospital. I decided it wasn't for me, even though my Dr. tried to force it on me. I now have rheumatoid arthritis and a constant cough. I don't advise this drug."

• Ind...
• Taken for 1 to 6 months
• October 30, 2021

Infliximab for Crohn's Disease "Terrible side effects approximately 2 weeks after each infusion (2 total). Developed UTI after both infusions and required antibiotics to treat. Sinus infection developed after 2nd infusion. Incredibly tired all the time, joint pain, muscle aches, and return of Crohn's abdominal pain. It’s a complete nightmare. Biosimilar in this instance is a joke. Nothing similar."

• tkg...
• March 12, 2013

Infliximab for Ulcerative Colitis "I was diagnosed with Ulcerative Colitis 3 years ago after being on several different meds for it. My doc and I decided to try Remicade. It works fine, I think, but the side effect for me was diarrhea. Plus, the cost I just couldn't afford it any longer. I am back on Asacol."

• Pen...
• April 23, 2020

Infliximab for Crohn's Disease "I have Crohn's. Had symptoms when I was 2 years old, but was misdiagnosed for 5 years. I was officially diagnosed at age 7. I tried a lot of medicines as a child, but when I got a blockage located where the small and large intestines meet, it was time for Remicade or surgery. At that time, Remicade was new. My parents made the best choice and chose Remicade. I was 12 when I started and have been on it for 11 years. Yes, it's longer than I should be on it, but I was finally given a life. My intestines look like I've never had Crohn's. There were side effects, and over the years they increased. Now my body has gotten used to the Remicade. At age 23, it has spread to 3 of the 4 saliva glands in my mouth, blisters in my mouth/throat, and facial swelling. Other than these beauty flaws, my gut looks great! Long story short, my antibodies are fighting the Remicade, and I must face my fear and try something new."

• cry...
• June 12, 2017

Infliximab for Rheumatoid Arthritis "I started Remicade in 2010 and stopped Remicade in 2016, almost seven years it worked absolute wonders for me. Amazing for my juvenile idiopathic arthritis (JIA), my arthritis started when I was a baby, and I am now a 25-year-old female. Within the first year, I developed psoriasis, who cares, right? I can walk, I can actually bend my knees, zero pain. I started doing UVB light therapy, and my psoriasis has not been back. In 2016, I developed what I first thought was heat rash. Turned out, after months and months of pain, swelling, and a terrible rash all over my legs, that I had developed hypersensitivity leukocytoclastic vasculitis. A listed rare, severe side effect, which immediately had my doctor taking me off of Remicade. Giving Remicade a 5 because it worked for me but I couldn't continue."

• Not...
• May 16, 2016

Infliximab for Psoriatic Arthritis "Remicade just isn't working for me, or not yet. When I did my 1 and 2 infusions, I could tell a difference. I had my 3rd one and have to wait 8 weeks. After 3 weeks, I had a flare-up, and I am in week 6, and I still feel awful. Maybe I need them more frequently or a higher dose. I am feeling so darn frustrated. I was hoping for a miracle drug to make me feel better, and so far, it's not. I read how it helps everyone, but I want that for me too! Can't wait to see my doctor so we can get together and discuss the pain."

• Sk8...
• Taken for 6 months to 1 year
• April 23, 2024

Infliximab for Ulcerative Colitis "I was diagnosed with UC (pancolitis) in early 2023. Took budesonide and it did help some, then went on Mesalamine and had a horrible spiral of symptoms. Started prednisone and struggled a lot to taper it. Tried Entyvio and was told that I was a primary nonresponder, switched to Remicade. Was finally able to taper the prednisone and felt so much better after completing the loading doses. I'm about 8 months in now and am either in or very close to remission (didn't get scoped to confirm yet). My only real side effect is bad headaches, which I will take any day over the UC being out of control. My dose is 10mg/kg every 8 weeks and I am very happy with the medicine. I can leave the house without worry, no longer wake up every night with urgency to use the restroom, urgency overall is so much better, and I have gone from 15 BM/day to about 3-4 which is amazing. I can eat whatever I want except spicy or fried food and my gut does fine."

• Goo...
• Taken for 1 to 6 months
• August 17, 2020

Infliximab for Ankylosing Spondylitis "I went on Remicade after Humira not working for my Ankylosing Spondylitis (AS). I am 60 years old. I was diagnosed with AS in 2017. I had the symptoms for many years before getting diagnosed correctly. Many women are misdiagnosed with fibromyalgia. I had the Remicade infusions due to Medicare not covering any of the other biologics. I had 4 infusions of the drug. Each time I felt unwell 3-4 days after getting the infusion. After the last infusion, the bottoms of my feet became seriously red, sore, painful, and peeling. The doctor said it was a reaction from the Remicade. Then I started to have eczema on both of my arms and feet. I am still struggling with side effects from this drug. Now I have the AS symptoms along with not feeling well at all. I would not recommend taking this drug. It's a biological med and my elderly body obviously could not handle it. Never would I take this drug again!"

• Don...
• Taken for 6 months to 1 year
• December 29, 2021

Infliximab for Ulcerative Colitis, Maintenance "I was on Remicade for 2 years and was able to have my pouchitis under control after the second infusion. No pain or inflammation. Was using the restroom 2 to 4 times a day. I have been on Inflectra for 8 months, 4 infusions, and it has been downhill after about 30 days from the first infusion of Inflectra. I have felt like rubbish for the past 8 months: loose stools, using the restroom 10 to 12 times a day, cramping, no energy, and my inflammation is back. Do not switch to Inflectra from Remicade. It does not work the same."

• New...
• Taken for 5 to 10 years
• May 17, 2020

Infliximab for Ankylosing Spondylitis "After using Remicade for years, I switched to Renflexis because it had better insurance coverage. Renflexis has worked remarkably well for me. The Remicade kept my AS under control, but I would get random temporary swelling in my hands and knees, which is not happening with Renflexis."