Zenzedi for Narcolepsy User Reviews
- Narco...
- Taken for 2 to 5 years
- August 8, 2021
"I’ve tried sooooo many medications for my narcolepsy with cataplexy and extreme EDS! Nuvigil and Provigil do not work for me. Focalin made me extremely angry and anxious. Ritalin just quit working. Vyvanse did nothing. Sunosi did even less. Adderall worked great but I have a wheat intolerance and the generic I was using caused a major flare up for me. And the list could continue… I discovered Zenzedi and asked my sleep doc about it. She hadn’t heard of it but we gave it a try. After almost two years, I’ve only had to increase my dose once (from 20mg twice daily to 25mg twice daily). This stuff is magical for me. It keeps me awake with very few side effects and no crash. I take my doses about 5-6 hours apart. I’ve always been a runner but this medication and a pandemic have allowed me to run virtually everyday which I believe also helps my EDS. I cannot take the generic version."
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"I have Narcolepsy without Cataplexy with extreme EDS and ADHD--the double whammy. Modafinil helped but not enough--very unpredictable-- and, of course, did nothing for the ADHD. Vyvanse gave me GI trouble and I still had sleep attacks plus a terrible "crash". Adderall was the worst, as it gave me a paradoxical effect: I was even more lethargic on Adderall, also irritable! I wasn't expecting much better when I tried Zenzedi but it has helped my narcolepsy greatly and also helps my ADHD with no side effects or crash like Vyvanse. Great medication, I just wish it was easier to find. CVS and Walgreen's couldn't even order it for me, said their wholesaler didn't carry it (???)."