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Cyclosporine for Immune Thrombocytopenia User Reviews

Brand names: Sandimmune, Neoral, Gengraf

Rating: 9.3

Cyclosporine has an average rating of 9.3 out of 10 from a total of 3 reviews for the off-label treatment of immune thrombocytopenia. 100% of reviewers reported a positive experience, while 0% reported a negative experience.

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  • cyc...
  • January 4, 2011

"I'm a 32 y/o male. I've been taking cyclosporine for about a week now, and it's let me keep my own platelets without any transfusions. The only side effects I've had so far are headaches and some abdominal pain. I have an autoimmune disease called ITP, which attacks my platelets."

9 / 10
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19 Report
  • Pur...
  • July 8, 2013

Cyclosporine "After years struggling with acute eczema, I was prescribed UVB 3 times a week. It worked for a while, then the effectiveness wore off slowly. Years later, after trying several medicines/creams, I was prescribed Neoral 300 mg/day. Within days, I saw a remarkable recovery, within weeks, I was mostly cured. The side effects I suffer from are minute compared to the suffering I have endured previously with eczema. Most days, my hands/feet are burning, so hot they feel cold. Extreme temperatures, hot/cold seem to make it worse. When I wash my hands, I can't tell whether the water is ice cold or burning hot. Colds, flu, chest, ear, and throat infections make up most of my winters, but I still would prefer to take Neoral than have debilitating eczema."

9 / 10
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17 Report
  • Mar...
  • Taken for 5 to 10 years
  • November 18, 2018

"I've been taking cyclosporine for over 6 years. My current dose is 200 mg/day. I have an autoimmune disease called TTP, and this med keeps me in remission with no noticeable side effects."

10 / 10
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8 Report

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