Cyclosporine User Reviews & Ratings

• kje...
• March 7, 2008

Cyclosporine for Psoriasis "In the UK, after many years in the Middle East, my psoriasis, unnoticeable in the warm climate, returned as heavy scales on my arms, legs, and stomach. Prescribed Neoral, I was completely clear after six weeks with no side effects. After 20 months, my dose was reduced by 25%, and within three months, my psoriasis had returned although not as heavy. My dosage was changed back two weeks ago, and already there is a marked difference in my skin, hopefully, I will be clear again soon!"

• car...
• July 13, 2017

For Psoriasis "I've had psoriasis since I was about 4 years old. I'm now 53 years old. I've tried steroids, tar treatments, UV light treatments. I've taken methotrexate for over a year with no improvement, also acitretin, with no improvement. I have now started on cyclosporine 150 mg twice a day. I'm now into day 8, and the improvement of my psoriasis is mind-blowing. I'm so pleased."

• vdu...
• July 14, 2016

For Psoriasis "I just started taking 200 mg a day for about 3 weeks now, and it has pretty much cleared up. It's still in process, but there was a huge difference. The only side effect I have had was being constipated, which sucks, but I would rather have that than psoriasis, lol. I took methotrexate for about 2 months, but that didn't help at all. I am very happy I switched to cyclosporine (:"

• Ano...
• Taken for 1 to 2 years
• July 19, 2019

For Eczema "Cyclosporine gave me my life back. After years of struggling with severe eczema and allergies, which affected my social life, family life, and even my career. Once finding the right dose, I felt like a 'normal person,' and my quality of life increased massively. Although the fact that this is a harsh drug and the side effects do scare me, I can now live a normal life. I have a lot to owe my dermatologist for prescribing me this drug. (UK)"

• Anonymous
• Taken for 2 to 5 years
• November 12, 2020

For Eczema "Been on cyclosporine for 2 1/2 years now, it’s literally saved my life from severe eczema from jellyfish sting reactions to my body. Started at 300 mg a day, then 350 mg, now at 200 mg, and hopefully in 6 more months I get weaned off slowly. I know the side effects, but to have my life back is worth it. Eczema is pure hell mentally and physically."

• cyc...
• January 4, 2011

For Immune Thrombocytopenia "I'm a 32 y/o male. I've been taking cyclosporine for about a week now, and it's let me keep my own platelets without any transfusions. The only side effects I've had so far are headaches and some abdominal pain. I have an autoimmune disease called ITP, which attacks my platelets."

• Pur...
• July 8, 2013

Cyclosporine for Immune Thrombocytopenia "After years struggling with acute eczema, I was prescribed UVB 3 times a week. It worked for a while, then the effectiveness wore off slowly. Years later, after trying several medicines/creams, I was prescribed Neoral 300 mg/day. Within days, I saw a remarkable recovery, within weeks, I was mostly cured. The side effects I suffer from are minute compared to the suffering I have endured previously with eczema. Most days, my hands/feet are burning, so hot they feel cold. Extreme temperatures, hot/cold seem to make it worse. When I wash my hands, I can't tell whether the water is ice cold or burning hot. Colds, flu, chest, ear, and throat infections make up most of my winters, but I still would prefer to take Neoral than have debilitating eczema."

• Zoe...
• December 28, 2016

For Eczema "I have suffered with eczema since being 17, and it was manageable. Since having my second child 14 months ago, it's started as a 50-pence piece size on the back of my neck and has now spread all over my neck, ears, and face flares up. I was put on steroids for 10 every two months before I saw the dermatologist, and she put me on Neoral 200 mg a day. It clears for the first 6 weeks, and then it's back with a vengeance big time, and I am still taking the medication. It no longer works for me now. I have gone back to steroids today because the flare-up is so bad I can't even leave the house."

• Bro...
• August 23, 2019

For Eczema "After suffering for years with eczema, I started light therapy 3 times a week as well as 200 mg cyclosporine. All was getting better for about 4 months, then it came back with a vengeance. My dermatologist thought it was best to up the dose to 300 mg. No better. So then he started me on mycophenolate 200 mg in the morning and the same at night, as well as 100 mg cyclosporine in the morning and 200 mg at night. Still no better, so he added another 200 mg mycophenolate at lunchtime. Then, oh boy, did I flare up. All my legs and arms were covered. Oh, did I mention I was using tubes and tubes of Elephrat ointment as well? After 6 months of this, I ended up in the ER with superficial blood clots and cellulitis in the arms. 12 days in the hospital as the IV antibiotics were not working. Home again. Then 3 months later, back again for a deep infection in the inner thigh that they had to operate on. Another week in the hospital. I have stopped all meds now."

• Jam...
• November 30, 2011

For Ulcerative Colitis, Active "Had extremely active colitis, was hospitalized and given IV cyclosporine as a last resort. Started feeling better within 2 days. Was in the hospital for 8 days and feel amazing. That was 5 months ago and still feel great. Slight tingling in hands and feet and extra hair growth, but nothing you can't live with to feel better. Best medicine ever."

• Jef...
• September 12, 2010

Cyclosporine for Organ Transplant, Rejection Prophylaxis "I am 7 years post kidney transplant. I have been taking Gengraf and Myfortic for about 4 years. I have had no problems with rejection. I started out taking CellCept and Neoral but had to change because my insurance made it too expensive."

• Anonymous
• June 4, 2008

For Ulcerative Colitis, Active "After using steroids for many years that stopped working, I was put on cyclosporine. My body reacted well to it, and within approximately 3 weeks, my symptoms had nearly disappeared. I unfortunately get some side effects from it, such as tiredness and headaches."

• JSM...
• Taken for 1 to 2 years
• March 25, 2021

For Psoriasis "Astounding. I've had psoriasis since I was a kid, now 35. Been through all the topical as well as methotrexate, acitretin, and a host of other systemics. Cyclosporine, though, it's a wonder drug. I've been on it for about 18 months and would say my skin is 90% better than it was. Literally a couple of stubborn 1cm square patches, but nothing compared to before. Totally changed my life. Yes, it requires blood tests regularly, but that's no big deal for clear skin."

• Gui...
• Taken for 6 months to 1 year
• March 2, 2022

For Eczema "Works a dream. Was on it for 1 year, and I had my life back. Pros - cleared eczema - zero itching - I could swim in water without flares - barely had to use moisturizers - minor eczema flares. Cons - caused high blood pressure (gradual over time) - dark urine (caused by constrictions of vessels in kidneys) - hand tremor and headaches (tremor got worse in the last couple weeks of the drug) - tiredness (still able to go to the gym, etc.) - Bloods monthly to make sure liver and kidneys are okay - Gave me gallstones - ended in A&E and required surgery - Raised liver stats. Related to gallstones, NOT A LONG-TERM SOLUTION - Had to stop abruptly, which caused a serious rebound of eczema for about two months. I had to try this before I was prescribed Dupixent. From what I read, Dupixent looks to be safer, but it is expensive. This is great for the short term, but long term it's mentally hard when you are told to stop it. It works so well."

• MIL...
• Taken for 6 months to 1 year
• May 14, 2022

For Eczema "I have been taking cyclosporine for 6 months, it has been increased to 150 twice a day. My skin is very good, only one small patch on my face now. No more itching, no more feeling embarrassed, and no more feeling like I have no life. Although I have had 2 bad chest infections in the last 3 months. Don't think they will let me stay on it much longer, though."

• Nic...
• Taken for 1 to 2 years
• September 17, 2021

"Was Rx this medication after prednisone failed to resolve subcutaneous panniculitis-like T-cell lymphoma (SPTCL). Had to increase dosage a couple of times, but after a couple of months, all labs returned to normal. At high doses, experienced tremors, hypertension, resolved by beta blockers. Resolved SPTCL."

• Mer...
• Taken for 5 to 10 years
• April 27, 2014

Cyclosporine for Organ Transplant, Rejection Prophylaxis "I had weight gain once I was used to taking this medicine. In talking to other kidney transplant people that are on this medicine, they have a weight gain also. My eating habits have not changed. Taking this medicine with water makes my stomach sick."

• Mel...
• Taken for 1 to 6 months
• July 5, 2024

For Psoriasis "I was prescribed this due to a very severe break out of psoriasis. It started working overnight, to my surprise! I'm on 300mg at night and 200mg for the day. It works! I was at the point of not going to the grocery store because I saw people staring. It took a few days to kick in, where it was making a HUGE difference. My side effects are minimal. I have dry mouth, always carry water. Sometimes I can't find the word I want to say."

• Jaz...
• Taken for 6 months to 1 year
• June 1, 2024

"I take 100 mg of Cyclosporine Modified daily. It has completely knocked out my hives, and after taking it for 7 months, I have had a positive response from the drug. The only side effect I’ve experienced is an increase in acne."

• ITC...
• Taken for 6 months to 1 year
• December 2, 2018

For Psoriasis "I felt and looked better in days. Clear within 2 months. Had to discontinue due to kidney damage."

• Mar...
• Taken for 5 to 10 years
• November 18, 2018

For Immune Thrombocytopenia "I've been taking cyclosporine for over 6 years. My current dose is 200 mg/day. I have an autoimmune disease called TTP, and this med keeps me in remission with no noticeable side effects."

• Anonymous
• Taken for 1 to 6 months
• August 9, 2022

For Psoriasis "I have taken it for 8 weeks now. My psoriasis has gone. I have also reduced my alcohol intake, which also helps. No side effects from the drugs, very happy, and yes, they do smell pretty bad."

• Pso...
• August 5, 2022

For Psoriasis "I have had psoriasis for years, many treatments before. Once I got on the medication, within three months it was almost gone. Then they took me off, and back to normal."