Cyclosporine for Eczema User Reviews

• ano
• Taken for 1 to 2 years
• July 19, 2019

"Cyclosporine gave me my life back. After years of struggling with severe eczema and allergies, which affected my social life, family life and even my career .Once finding the right dose I felt like a 'normal person' and my quality of life increased massively. Although the fact that this is a harsh drug and the side effects do scare me, I can now live a normal life.I have a lot to owe my dermatologist for prescribing me this drug.(UK)"

• Anonymous
• Taken for 2 to 5 years
• November 12, 2020

"Been on cyclosporine for 2 1/2 years now, it’s literally saved my life from severe eczema from Jelly fish sting reactions to my body, started at 300mg a day then 350mg now at 200mg and hopefully in 6 more months I get weaned off slowly. I know the side effects but to have my life back is worth it. Eczema is pure hell mentally and physically."

• Bronny
• August 23, 2019

"After suffering for years with eczema I started I’ve light therapy 3 times a week as well as 200mg cyclosporine . All was getting better for about 4 months then it came back with a vengeance. My dermatologist thought was to up the dose to 300mg. No better. So then he started me on Mycophenolate 200mg in the morning and the same at night as well as 100 mg cyclosporine in the morning and 200 mg at night. Still no better , so he added another 200 mg Mycophenolate at lunchtime. Then, oh boy did I flare up. All my legs and arms were covered. Oh did I mention I was using tubes and tubes of elephrat ointment as well. After 6 months of this I ended up in the ER with superficial blood clots and cellulitis in the arms. 12 days in hospital as the IV antibiotics were not working . Home again. Then 3 months later back again for a deep infection in the inner thigh that they had to operate on. Another week in hospital. I have stopped all meds now"

• Zoe
• December 28, 2016

"I have suffered with eczema since being 17 and it was manageable. Since having my second child 14 months ago it's started a a 50 pence peace size on the back of my neck and has now spread all over my neck ears face flares up. I was put on steroids for 10 every two months before I seen the dermatologist and she put on neoral 200mg a day it clears for the first 6 weeks and. Then it's back with a venagnce big time and am still taking he medication. It it no longer works for me now. I have gone back to steroids today because the flare up is so bad I can't even leave the house."

• MILLY
• Taken for 6 months to 1 year
• May 14, 2022

"I have been taking ciclosporin for 6 months , it has been increased to 150 twice a day . My skin is very good only one small patch on my face now . No more itching, no more feeling embarrassed and no more feeling like I have no life . Although I have had 2 bad chest infections in the last 3 months . Don't think they will let me stay on it much longer though ."

• Guinn...
• Taken for 6 months to 1 year
• March 2, 2022

"Works a dream. Was on it for 1 year and I had my life back. pros - cleared eczema - zero itching - I could swim in water without flares - barely had to use moisturisers - minor eczema flares cons - caused high blood pressure (gradual over time) - dark urine (caused by constrictions of vessels in kidneys) - hand tremor and headaches (tremor got worst in last couple weeks of the drug) - tiredness (still able to go to the gym etc) - Bloods monthly to make sure liver and kidneys are ok - Gave me gallstones - ended in A&E and require surgery - Raised liver stats. Related to gallstones NOT A LONG TERM SOLUTION -Had to stop abruptly which caused a serious rebound of eczema for about two months. I had to try this before I was prescribed Dupixent. From what I read Dupixent looks to be safer but it is expensive. This is great for the short term but long term it's mentally hard when you are told to stop it. It works so well."