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Stelara for Psoriasis User Reviews (Page 4)

Reviews for Stelara

Commonly mentioned side effects
  • Tob...
  • Taken for 6 months to 1 year
  • December 28, 2019

"After the load Stelara shots and before the first maintenance dose, my psoriasis cleared up almost completely. Then it stopped working. I now also feel lethargic and am depressed, crying for no reason. I will be trying something else more targeted for psoriasis. There have been a lot of new products coming out now, some of them are just for psoriasis. I am glad I gave it a try, though."

1 / 10
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  • MCa...
  • Taken for 1 to 6 months
  • August 28, 2018

"I took Stelara shots in June and July 2018. I am 64 years old and have had psoriasis for 13 years. In the hospital at the end of July with pulmonary embolisms in both lungs and blockage. They thought I was going to die. It was not worth trying, and I believe that physicians should evaluate better the age and shape the patient is in before prescribing. I take full responsibility for taking the drug, but I am not a physician."

1 / 10
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  • gle...
  • Taken for 6 months to 1 year
  • September 15, 2018

"Unbelievable that this can be true! My last escalations were particularly ugly and all over my body. I was getting very depressed as the other treatments did nothing to help. Winter was ending, and you can't cover up forever. I have had this heinous disease for 35 years. I am now on this for 9 months (1st shot, booster shot, then 2 more). I am 100% cleared!!!! Beaches, swimming pools, short sleeves!!! I pray it keeps working :)"

10 / 10
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Frequently asked questions

  • Anonymous
  • February 7, 2011

"Best medicine around. I have been in a trial study for 5 years with Stelara, it has been wonderful. I have been 100% clear for the 5 years. No real side effects. I had my last study dose in September 2010, I broke out in January 2011 just a little. I go to get my shot again in February 2011. I cannot wait."

10 / 10
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  • Fre...
  • Taken for 1 to 2 years
  • October 25, 2018

"I've had moderate psoriasis for the last 50 years! I'm a 60-year-old male, and the first red patch of psoriasis appeared on my chest when I was around 10. Since then, I have used mainly topical ointments and creams for patches on my legs, back, elbows, and scalp with little relief. In fact, as I got older, my psoriasis became rather worse. In 2012, I started using Humira, which helped with about a maximum 75% success rate in clearing the plaques. It never totally cleared my psoriasis. But it stopped its effectiveness around 2016. I have now been on Stelara for the past 2 years and am about 99.5% clear! I really like it as I have not been this psoriasis-free... well, ever! Unfortunately, the psoriasis has also taken its toll on my joints, and I suffer from arthritis pretty much everywhere. So far, I am not sure if Stelara has helped with that, but I'm happy it has helped with the plaque psoriasis. Hey, life is only hard the first 100 years... so let's move it along."

9 / 10
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  • wat...
  • Taken for 2 to 5 years
  • September 2, 2020

"Suffered throughout my entire childhood with severe scalp and guttate psoriasis, with even the strongest topical steroids having little to no effect. Stelara cleared my skin in a month, and I've had zero side effects and only minor flare-ups when I get stressed out with college."

10 / 10
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  • Anonymous
  • Taken for 2 to 5 years
  • July 31, 2017

"I'm a 65-year-old male. Psoriasis since I was 30. Tried every RX and treatment there was with little help. Now into my 4th year on Stelara, and it's been a blessing. No issues with my skin. Completely clear and no side effects for me other than tiredness. Otherwise, in great health and take no other meds. It's the best. I'm thankful."

10 / 10
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More FAQ

  • Itc...
  • Taken for 1 to 6 months
  • February 9, 2016

"I received my second Stelara injection about one month ago and phased out the cyclosporine one week ago. The skin is incredibly clear of spots (since 25 years it has not been this good), but as a change, an almost intolerable itching started. a) Would anyone have experience how to calm down the itching? Taking sodium bicarbonate with water seems to help a bit, but I am still scratching in my sleep. I have allergies and thought that maybe antihistamine could work. Thanks in advance for any hints you may have!"

9 / 10
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  • Bat...
  • Taken for 6 months to 1 year
  • April 10, 2017

"I was placed on Stelara in Jan 2016 after suffering moderate to severe psoriasis for 43 yrs (I'm 47). Yup, my whole life with this hideous curse. Stelara, for me, was great. I had no side effects. I went from 80% covered to less than 10% after the 4th injection. Severe pain forced me to seek biologics, not vanity. In Oct 2016, I was diagnosed with thyroid cancer and was removed from Stelara for the next 2 yrs. 'Sigh.' Stelara did not cause my thyroid cancer. I was sick with thyroid issues a couple of years prior to using Stelara, even after repeated visits to my doctor and many specialists who all told me for 3 years my issues were in my head, and after all this, it ended up being all in my throat. Psoriasis sufferers are treated like complainers by most doctors."

8 / 10
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  • Dav...
  • Taken for 1 to 6 months
  • July 6, 2018

"Tried Humira over 9 months, bad reactions, nausea, weakness. No positive results. Then tried Otezla, again no positive results, bad headaches a side effect. On Stelara, I have very positive results; scaling gone, itching gone, red patches gone, all in less than 4 months."

10 / 10
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  • mis...
  • August 10, 2016

"I was given Stelara for my severe psoriasis, and it completely went away. I was able to conceive a baby, which at that point I decided to stop the injections until after the baby. While I was pregnant, I had maybe a few spots show up. Now the baby is 6 months old, and my psoriasis is back, not as bad, but enough to make me want to restart my prescription. While on it, I noticed that I was extra tired the day of and the day after receiving the injection, as well as it's not likely I could afford the $5000 per needle if I didn't have coverage."

9 / 10
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  • Gun...
  • January 20, 2018

"Started on Stelara 11/7/2012. Have been 98% clear ever since. 1/19/2018. I have been on them all. 32 years of psoriasis. Enbrel worked great but quit after 4 years. Stelara has been doing wonders for about 6 years. All blood work in order."

10 / 10
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  • Hat...
  • Taken for 1 to 6 months
  • December 27, 2018

"So I did the 4-week injections, and my third injection will be happening in February (it is December now). My scalp psoriasis is back like nobody's business-itching and leaving horrid scarring on my scalp. I officially had two injections, and after all the bruising on the first one, I guess I thought it would be helpful, but it’s back, and I’m so depressed about it. How long has it taken others to work?"

2 / 10
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  • NoM...
  • Taken for less than 1 month
  • February 20, 2017

"I am 27 years old and have had psoriasis since 15. I have tried all ointments, sunbeds, and every tablet... Yes, every tablet. I have just been put on Stelara and had my first injection on Friday. The injection was pain-free and very quick. I can honestly say I have had no reductions in the psoriasis, but it seems that my itching has completely stopped. I find myself scratching out of habit, and I don't need to. Fingers crossed for this because if this doesn't work, I don't know what is next :-("

7 / 10
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  • Mar...
  • Taken for 10 years or more
  • June 12, 2024

"I had psoriasis since I was 17 years old. I am now 65 years old. When I was first diagnosed with psoriasis, at that time, there was not much that could be done other than topical treatments and taking Benadryl to control the itching. I was on this until 2004. I was at one doctor that would only do PUVA treatments, this treatment did nothing for me. I searched for a new doctor and found one that was very concerned that my psoriasis was so bad. She put me on Raptiva until it was pulled off the market, but I was doing well on Remicade. From there, I was placed on Humira but was not under good control with it. The doctor then put me on Remicade infusion, which worked well but still had breakouts. The doctor still was not happy with my response on Remicade, so we talked about going on Stelara. We sat and talked about the side effects of the drug, and I came to the conclusion to try Stelara. After the two starting injections, I was 75% clear. I am now 100% clear. This is my 14th year on Stelara."

10 / 10
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  • Man...
  • June 10, 2013

"I started on Stelara in December 2012 after trying everything from creams to methotrexate to Enbrel. While Enbrel mostly worked after about 4 months everywhere on my body except my elbows, it started losing its effectiveness after about 6 months, with psoriasis cropping up on my scalp and other places. My doctor put me on 25 mg Stelara, and I noticed results almost immediately. My elbows are still my problem area, while the area fades nicely, it flares up again after about a month, so waiting 2 months for another injection is awful. My nurse is going to ask if we can increase my dosage to hopefully keep the results for a full 3 months. I have a great benefit plan that covers me 100%."

9 / 10
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  • Van...
  • May 17, 2017

"I highly recommend Stelara. After getting my first shot, I immediately felt my skin clearing up, and by the next day, about 60% was gone. That week, 80% was gone (btw, I have guttate psoriasis), and I was super stoked because I've tried metho, cyclo, and Enbrel (Enbrel only made my skin worse), but nothing really worked 100%. After my second shot, which was a month after my first one, I noticed it started coming back, even on my scalp, and I hadn't had it there in years. About 60% has come back. Luckily, I had no side effects, though. I think this could be the answer for a lot of psoriasis sufferers! My skin is just stubborn and hard to treat, but not as bad as most people :)"

5 / 10
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  • Itc...
  • January 12, 2018

"It's been 3 weeks today since my 1st shot, and I am seeing a little bit of clearing on my arms. My back, stomach, and legs are still the same, but I am itching more now than before the shot. I still feel that Stelara will work for me, but my body has to adjust to it. I never did want to use injections, but my psoriasis is so bad that as much as I do not want the next shot, I can't wait to get it..."

9 / 10
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  • Lep...
  • Taken for 1 to 6 months
  • January 11, 2018

"Have had severe psoriasis for over five years. I have tried all the creams and lotions, had light therapy, and various drugs, etc. I was delighted when the medics finally said I was eligible for biologics, as I had heard such good things about them. Had my first Stelara injection in October, the second at the end of November, and nothing whatsoever had happened! It has had no effect! My skin is now ablaze, and I feel I am worse off than when I started this treatment. I am due to see the consultant again at the end of January. I hope he has a second 'wonder drug' up his sleeve because this one has, for me, been totally useless!"

1 / 10
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  • squ...
  • September 12, 2016

"Almost amazing results in 2 months, then started getting patches all over my trunk. My professor put me on to 90 mgs, and it's almost all gone again. Someone said they still itch a lot, so I would suggest (Phenergan 25 mgs tablets) take 1 an hour before bed, and you'll sleep like a log. The only thing that it hasn't helped is the mental health side of the psoriasis, so I'm looking at getting help from my Dr. Good luck, guys, and stay psoriasis-free."

9 / 10
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  • Pdx...
  • Taken for 10 years or more
  • June 27, 2018

"I was the first person in Oregon to try Stelara as soon as it was available. I had tried everything - creams, light treatments, infusions, shots - you name it. I have been the poster child for this drug. It cleared up right away, and I've been psoriasis-free for years. I don't know how long it's supposed to work for, so I hope it's forever. At first, I was on the assistance program plus insurance, but once I got Medicare, I was kicked off. However, I am lucky enough to have great secondary insurance now that covers all but $50."

10 / 10
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  • pin...
  • February 28, 2013

"I too have been suffering from psoriasis all my life. I'm 34 and was on Stelara for a while last year. Then a month ago, I became hard-headed and drank alcohol. What happened next was my psoriasis flared up. Where it's the worst ever. My joints were bothering me like crazy. Flaking everywhere. Now I'm back on Stelara. Can't wait to be better again."

7 / 10
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  • spo...
  • February 27, 2020

"Stelara works great for my psoriasis. No side effects, clears up after the shot, great med... Unfortunately, now that I have Medicare, I cannot get it as I have Medicare Part D, and with that, I cannot belong to the Stelara support group, which covered a portion of the unpaid fees. My share is over $2,000.00, which would take my retirement plus part of my SS."

10 / 10
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  • Bak...
  • Taken for 1 to 6 months
  • April 11, 2016

"I have been on Stelara for almost 3 months. Had the 3rd shot even 1 month earlier than planned. I have psoriasis on my fingers and nails. I think this drug is just overrated. Nothing really happened. Plus, the psoriasis is coming back on my elbows again after a long recession. I am supposed to take the last 3 shots, but I don't think there will be any improvement."

1 / 10
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  • Mr...
  • April 19, 2016

"I came down with psoriasis at age 54 and am now 57. It devastated me within 2 months. I lost my fingernails and toenails. I couldn't walk without help. My hands were useless. I just started with the injections on 2/2/16. Had my 2nd injection on 3/2/16. I've noticed some improvement on my left shin area of my leg and my left elbow. Other areas are now pink. My feet are somewhat better, but my hands are still bad as I wear examination gloves constantly. I've still had flakes, dryness, itching, and bumps as the Stelara hasn't helped 'yet' with that. I'm due for my 1st 90-day shot after these 2 booster shots. I'll see what my Dr. thinks then on 5/25/16..."

3 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

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