Rinvoq for Rheumatoid Arthritis User Reviews (Page 4)
Reviews for Rinvoq
- Mic...
- May 3, 2023
"I have been taking Rinvoq, and I have gained 18 pounds in four months. It’s helped my RA, okay, but I do have big flares once a month. I tapered the drug down to one every other day myself. I am so depressed too. I have never been so big in my life. I am not liking this drug but don’t want to go on steroids again, I was on them for 7 years. I have tried all the RA drugs."
- Rub...
- Taken for 6 months to 1 year
- December 12, 2022
"I had a good start with Rinvoq, but ended up in acute care with double pneumonia six weeks in. Since then, I have had vertigo and constant headaches. It’s now six months into my treatment, my vertigo is getting worse, and I wake up every day with another spot on my face or neck. I had perfect skin before and am way too old for acne."
Frequently asked questions
- What are the most common skin conditions? (with photos)
- What are the new drugs for rheumatoid arthritis (RA)?
- Rinvoq Copay Card: Do I qualify and how much can I save?
- What are JAK inhibitors and how do they work?
- Chl...
- Taken for 1 to 2 years
- May 31, 2023
"Rinvoq was a lifesaver for me, but not without side effects including sinus infections, yeast infections, nausea, and most bizarre tooth rot below the gumline. I experienced such needed symptom relief with Rinvoq, I believe it sent me into remission."
- Bec...
- Taken for 6 months to 1 year
- March 13, 2023
"I was diagnosed 40 years ago and have tried so many different meds. After 3 months on Rinvoq, I started to feel better. More energy and very little swelling. It's now been 9 months, and I feel like before. It's just barely keeping symptoms at bay. How I wish for a medicine that helps me in the long run! I haven't had any side effects like others, so I am thankful for that."
Are you taking this medicine?
Your review helps others make informed decisions.- Anonymous
- Taken for less than 1 month
- January 17, 2023
"I have had rheumatoid arthritis since 2019, and in the last six months, I could not get it fully under control. I was prescribed Rinvoq and have been taking it for 5 days, and I have really felt the difference for the better. The swelling is definitely reducing. I have also found wearing arthritis compression gloves helps me to sleep better at night."
- Jos...
- Taken for 1 to 6 months
- June 13, 2024
"I only started about a month and a half ago. Initially, I felt very well but now am having some side effects. I'm not sure if they are all related to Rinvoq. Since last week, I've developed nausea and feel a bit off and fatigued. I just feel generally unwell. I had some night sweats for a few days but that is gone now."
More FAQ
- Which JAK inhibitors are approved in the U.S?
- What is the MOA and half-life for Rinvoq?
- How long does Rinvoq stay in your system?
- HH ...
- Taken for less than 1 month
- October 4, 2024
"I diagnosed RA almost 7 years back. I went through Methotrexate, Arava, Enbrel, Actemra, and finally Rinvoq. It's a recent start, and initial doses feel amazing, reduction in pain and swelling. However, I am observing disturbance in sleep, very few sleep hours. I don't know if it's normal at the start of the medicine. Please share your experiences on the sleep matter. God bless you and heal you from any pain."
- hit...
- Taken for 2 to 5 years
- December 24, 2023
"Stopped flares in hands. No real problems with managing lifestyle. Taking 15 mg daily for the last 2 years, but have gained 8 kg. Have many of the aforementioned side effects, but that might just be old age."
- Poo...
- Taken for 1 to 2 years
- January 27, 2023
"I have been taking Rinvoq for 16 months and have no pain and very little swelling, and the fatigue has improved tremendously. I have been on at least 12 different meds, and while Remicade worked well, after 3 years I was taken off it due to spikes in liver enzymes. I am hoping Rinvoq continues to work long-term, as it is amazing. It's quite pricey, but I was able to get copay assistance through the pharmaceutical company."
- Dav...
- Taken for 1 to 6 months
- July 17, 2024
"I have been on medication now for over 2 months. It started to work within 3 days. Side effects include nausea and feeling tired all the time. After a month on Rinvoq, I have gotten used to the side effects. I am on week 9 and starting to have other side effects, not sure if it is from the medication. These include sleep problems, my left knee suddenly swelling up and hurting, and my hips starting to hurt again."
- Ms ...
- Taken for 2 to 5 years
- March 18, 2025
"I suffered from severe pain all over my body from my teenage years onward, no one really listened to me about it. A few doctors diagnosed me with tendonitis. Well, finally as an adult, I decided to take control of my own health. After endless years of suffering, in 2015, at the age of 43, I finally went to a rheumatologist and was diagnosed with RA. I tried Methotrexate for some time, it did provide some relief, but not too much. I moved out of state in 2022 and found a great RA doctor. After explaining to me how much at risk I was of damaging my joints and my body if I did not treat this inflammation, I agreed with him to try Rinvoq. I have been on it for 2 years now, and it literally has changed my life. I can walk the mall without having to sit down, I can drive without my toes cramping up in pain. If I feel like I'm getting the sniffles (which is very rare), I will stop the drug for a week. My blood work has never looked better, my RA is finally under control."
- Wil...
- Taken for 1 to 2 years
- October 22, 2023
"I still have flare-ups, however, the day-to-day pain and swelling are greatly reduced! I get very exhausted after several hours, but still much better than without Rinvoq. Thank you Advie for making it affordable… Without the drug, I would be completely disabled."
- Pai...
- Taken for 1 to 6 months
- April 23, 2024
"I have been on Rinvoq for two months and it has been a life-changing medication for me. No longer have flares in my wrists, thumbs, and hands. I can actually use my hands to pick up a full glass of water, cook, and open things. Have more energy and less stiffness. Life is different on Rinvoq and I hope it stays that way. Downside is some acne, dry mouth, and dry eyes - something I can deal with because the upside is so great. So far none of the serious side effects."
- She...
- Taken for 1 to 6 months
- February 20, 2025
"I have RA, Sjögren's, and fibromyalgia. I am almost always in severe pain everywhere, and my hair is falling out. Since I began taking Rinvoq, I am about 75% out of pain. No awful flares anymore! The only thing that isn't getting better is my liver enzymes are extremely high. I hope my doctors can get this under control soon, the numbers are what someone would have with liver disease."
- Lin...
- Taken for 6 months to 1 year
- January 5, 2024
"I find it alleviates my joint pain. I do suffer from muscle cramps on my right arm, pain in my left side (rib area) and stiffness, pain in the left side of my neck and pins and needles in my left arm. I also get very fatigued from time to time. I also suffer from symptoms of a UTI on and off."
- Gra...
- Taken for 2 to 5 years
- February 8, 2025
"This medication has personally been life-changing for me… I tried every other (cheap) “gold standard” RA med over several years and suffered every side effect imaginable. Humira injections worked for about 11 months until it provoked horrible, painful pustular psoriasis blisters on my hands and feet. My rheumatologist switched me to Rinvoq. AbbVie gave it to me for free for the first 2-3 years under their patient assistance program. Now, with the 2025 U.S. Medicare cap of $2k annually, I pay $167 a month. This med continues to work well to keep my symptoms 80-90% controlled with no obvious or debilitating side effects. I’m grateful."
- Aim...
- Taken for 1 to 6 months
- January 12, 2025
"I was on methotrexate for many years, but I was getting tired of the nausea and losing my hair. So I was changed to many other medications that did not work. I was afraid I had to go back to methotrexate, but fortunately, Rinvoq started working within the first week. I have been on it for four months. I have had COVID three times within this period, slight headaches, and a cough every night and morning. I mentioned it to my doctor and said it’s not a common side effect, but that we can change medication. I am getting tired of the cough, but I don’t want to suffer with RA pain. Besides that, I am feeling really good, my hair is back, and I don’t get nauseous."
- mau...
- Taken for 2 to 5 years
- December 28, 2024
"I had severe RA, had tried Methotrexate, Leflunomide, and corticosteroids and thus developed poor liver values. Since 2021, I have been taking Rinvoq, and after a few weeks, I was almost pain-free, can do sports again (just not extreme), work, and can participate in life again. I get a bit tired faster, but that's still okay. The pain I have now is arthritis in the hip. My quality of life has increased enormously."
- Kat...
- Taken for 1 to 6 months
- November 28, 2023
"I too started Rinvoq about 6 months ago and at first it worked wonders. It still works really well, but now I take low dose prednisone when I have a flare-up (maybe twice a month). In the last few months, I've noticed that my scalp has become very sensitive, if not downright painful - it feels just like cystic acne that I had as a young woman. After reading these reviews, I'm realizing acne is a side effect and I 'fortunately' see one other person with this issue on their scalp as well. I realize these reviews aren't an answer, but at least it's a relief that there are others with this issue. On a side note, this Rx was a royal pain to get authorized by my insurance. I was supposed to go on Xeljanz (sp?), but they declined it and made me do this one first. Fortunately, the Rinvoq pharmaceutical offered a discount and I qualified for it."
- Cap...
- Taken for 5 to 10 years
- November 9, 2024
"I have had RA for over 20 years. I have been through all kinds of medications: Enbrel, Humira, Actemra, methotrexate, Arava, etc., until they put me on Rinvoq. At first, it was very good, I never had side effects, it reduced my pain and inflammation. I have been taking 15 mg/day for over four years, but about two years ago I started having middle ear problems that have been increasing. At this point, I can't even get over the urinary tract infection, and I am experiencing very severe vertigo. I was diagnosed with Meniere's syndrome, but I have discovered that if I stop taking Rinvoq, I don't get dizzy. I have already suffered a bad fall due to vertigo, and I think I'm going to have to stop taking it."
- Kch...
- Taken for 1 to 6 months
- July 6, 2023
"I have been on Rinvoq for 1 month. I had my labs drawn today and my results of my CBC are alarming! Low WBC, RBC, Platelets and more. I'm stopping this med and calling my Dr first thing in the morning."
- Ano...
- Taken for 1 to 2 years
- May 21, 2025
"I have taken Rinvoq 15 mg since February 2024. It has turned my life around in terms of rheumatoid arthritis - I am more active, with less fatigue and much less pain. However, I have been sicker in this last year than ever before - pneumonia, RSV, COVID, one bout of cellulitis. Bloodwork is fine. Now, I am flare-free and only have some dull aches in my thumbs when I lift something like a half-gallon carton of milk. Before Rinvoq, I was on the classic triple therapy - methotrexate injections, max dose of sulfasalazine, and max dose of hydroxychloroquine. And while it worked for more than 10 years, those meds stopped being effective - I had almost daily new flares in my hands, wrists, and ankles."
- Dee...
- Taken for 1 to 6 months
- August 5, 2020
"I was on Humira and Rasuva injections, as well as several oral meds. I am off all of them except Rinvoq. And I feel great!"
- Deb...
- Taken for 1 to 6 months
- January 1, 2021
"This was my 10th medication in 2 years, and we finally found one that works for me-hurray! Started feeling better within 2 weeks. Life-changing."
See also:
Xeljanz
Xeljanz (tofacitinib) is an oral Janus kinase (JAK) inhibitor that may be used alone or with other ...
Entyvio
Entyvio (vedolizumab) is used to treat ulcerative colitis (UC) and Crohn's disease, reducing ...
Otezla
Otezla (apremilast) is used to treat plaque psoriasis, psoriatic arthritis, and oral ulcers ...
Skyrizi
Skyrizi (risankizumab) is used to treat plaque psoriasis, psoriatic arthritis, ulcerative colitis ...
Dupixent
Dupixent is used to treat eczema, eosinophilic or oral-corticosteroid-dependent asthma, chronic ...
Omvoh
Omvoh is used to treat moderate to severe ulcerative colitis or Crohn's disease in adults. This ...
Stelara
Stelara (ustekinumab) is used to treat Crohn's disease, ulcerative colitis, plaque psoriasis, and ...
Cosentyx
Cosentyx (secukinumab) is used to treat plaque psoriasis, psoriatic arthritis, ankylosing ...
Humira
Humira is a tumor necrosis factor blocker used to treat many inflammatory conditions in adults ...
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"My lab results are good. My level of fatigue did not change, but seems to work as good as Enbrel, Humira, and Actemra. They all worked well up until 3 years, and then they stopped. Coming up on the 3-year mark with Rinvoq."