Topiramate and Tingling: What Users Say (Page 5)

• LOV...
• March 3, 2008

Topiramate for Migraine Prevention "I love Topamax! I can finally sit through school without getting a migraine. It might make concentrating a little more difficult, but no harder than trying to concentrate with a migraine! The only side effect I can complain about is the tingling in my hands and feet, but that usually only lasts about 15 min. I haven't experienced any hair loss (thank God), and I also can't complain about the appetite loss."

• Anonymous
• Taken for less than 1 month
• May 11, 2013

Topiramate for Migraine Prevention "Female. 19. I had sinus surgery then started getting headaches after surgery because of nerve damage. I was taking 25 mg once every night for a week and every next week would up the dose. My experience was awful! I had the usual side effects people had: tingling in lips/hands and weight loss. The main one for me was that I was so extremely fatigued and weak. I'm a young healthy girl who eats healthy, is a healthy weight, and before my surgery, worked out 4 times a week. I would have to physically force myself out of bed. And as far as the headaches, it reduced the intensity of the migraines but did nothing for the frequency."

• Dri...
• Taken for 1 to 6 months
• December 22, 2019

For Borderline Personality Disorder "My doctor told me there’s no actual pill for BPD, so it was a long shot to try this drug. I wanted to love it like everyone else, but I had the most god-awful side effects. My hands and feet become painfully numb and tingly, like I sat on them and they fell asleep, and it also gave me a weird, phlegmy, deep cough. I’ve heard such good things, and everybody’s body chemistry is different, and my body did not get along with this drug at all. Nope, nope, I’ll never take this drug again!"

• Bea...
• Taken for 2 to 5 years
• December 28, 2015

For Bipolar Disorder "I was put on it plus Wellbutrin to stabilize my mood. For 3 months, I was extremely nauseous, unable to eat a thing. I lost 12 kg. The side effects were tingling in my hands and feet, a feeling that my head was being pulled to one side, metallic taste, extreme brain fog, loss of vocab (I sounded like an idiot, I could hardly string a sentence together), attention span diminished, and extreme muscle weakness. I became socially anxious/awkward and still am. I developed a strange curry-like smell to me. I stopped when I fell pregnant and put on 24 kg, still holding on to 9 kg. It seems to have ruined my metabolism. I loved the appetite suppression (why I stayed on it) but won't go back on it, the side effects are too severe and expensive."

• Fre...
• April 19, 2008

Topiramate for Migraine Prevention "I have been using Topamax for 7 months now, and it has nearly eliminated my headaches. I read about the side effects prior to taking the drug, and I was committed to taking the medication for at least a month to see what would happen. I had the typical side effects of tingling and change of taste, but over the course of time, all of these have pretty much gone away along with my headaches. The drug is expensive, but it is well worth it for me."

• Tay...
• Taken for 1 to 6 months
• August 29, 2024

Topiramate "Gave me extreme shortness of breath where I was gasping for air mid-sentence constantly. I was on this for weight loss, and it definitely worked, fully suppressed my appetite, but it made me feel insane, gave me anger issues, I couldn’t sleep, and felt super wired and had tingling in hands and feet. Also had FLASHING in my eyeballs!!! And no one, including an eye doctor, could figure out what the hell was going on. Have been off it for 4 days after being on it for 40, and god, what an absolute relief. Still feel spaced out and can’t remember words sometimes."

• Wrd...
• Taken for 1 to 6 months
• November 16, 2021

Topiramate for Migraine Prevention "Started topiramate 25 mg 20.9.2021 for hemiplegic migraines. Initially extremely anxious as I'm not keen on any new medication due to a bad experience with ecstasy as an experimenting teenager. I mean, I was seriously anxious, not just nervous, I was expecting to potentially die after taking this medicine. Anyway, I haven't died, and unbelievably, my migraines, which I have had since 2010, have VANISHED. It's truly unbelievable. The first few weeks, food and fizzy juice tasted different, BUT it's all back to normal now! I'm totally normal as I was before. VERY rarely do my hands and feet tingle, and sometimes I feel slightly out of body, as if I'm watching myself from above (morbid, eh?). But in all seriousness, I can't believe how well this medicine has worked. I haven't even gotten onto the condition for which I was prescribed this medicine! Hemiplegic migraines developed for me about a month before I started topiramate, what an absolutely awful experience that was! This medicine works!"

• eob...
• November 17, 2007

Topiramate for Migraine Prevention "I have been taking Topamax for about 10 months now for migraine prevention. I have had several undesirable side effects, including irregular heartbeat, shallow breathing, tingling extremities, memory loss, and even hair loss. It helped only during the first few months, but now I get just as many migraines as before."

• jen...
• November 14, 2014

For Migraine Prevention "Topamax worked great to relieve my daily headaches and migraines. Taking it twice daily, it didn't take long to start enjoying life again without headaches, but as time went on, the side effects just kept getting more and more intense. I could deal with the tingling in my fingers, hands, and feet, but waking up completely disoriented, not being able to think straight or concentrate, not being able to form sentences or find the right words finally got to me after about a year or a year and a half, and I weaned off of it. It's unfortunate because it felt amazing not to have headaches every day. I am also small to begin with and I lost about 15 pounds on it, I usually had to force myself to eat due to having absolutely no appetite."

• Des...
• Taken for less than 1 month
• April 19, 2017

Topiramate for Migraine Prevention "ONLY 25 mg/day, 2nd try. Lasted 3 days. Whoa, just whoa! Within 1 hour, my pain lessened, but side effects were already producing. First, my vision got really distorted. I couldn't focus on command at all. Then my bottom lip wouldn't stop tingling with a numb feeling. I got extremely dizzy and felt out of it. So I thought, let me lay down. Fell asleep 15 min. Woke up, thought an hour passed, was completely out of it. The whole left side of my face felt palsy, completely numb. Tingling/numbness in arms, hands, legs, and feet. The next day, visual less, but symptoms still there. Then the suicidal thoughts and worthlessness came. I made it one more day. Missed a day and took it the following day. I can't do anything on it. Comatosed and psychiatric mind games. DONE!! I'm better without it."

• NJj...
• March 6, 2008

Topiramate for Migraine Prevention "I have been taking Topamax 50 mg, 2x daily for over a year now and found that it has helped me a lot with a few exceptions. They are weight loss, kidney stones, tingling in hands and feet, and frequent urination. I found that other medications didn't help (Depakote). I also take this with Inderal (B/P med) and Catapres TTS Patch (B/P med) because I also suffer from high blood pressure, and these two medications also are good migraine-fighting meds. I do recommend Topamax."

• Anonymous
• October 28, 2015

Topiramate for Migraine Prevention "I take 50 mg at night because of drowsiness. The medication did help me with my migraines, I've only had a few since I started the medication. My side effects include tingling in hands and feet, red eyes, but the worst is the brain fog, trying to remember the simplest things is tough. I have also noticed that I get angry about stuff more than I used to."

• Emm...
• Taken for 1 to 6 months
• August 13, 2021

For Weight Loss (Obesity/Overweight) "I started taking it on 8/23/21 at 25 mg. I was supposed to increase my dose to 100 mg but stopped at 75 mg because I began having the tingling sensation in my feet. I then actually dropped down to 50 mg because I realized I had no different reaction to appetite suppression from 50 mg to 75 mg. I have had no symptoms while being under 100 mg. I definitely have a massive decrease in appetite while on 50 mg. I wake up wanting to eat but can go from breakfast until around 6 pm without eating anything. I might think about food (I know some people mentioned they forget about eating-I don’t) but I don’t feel the NEED to eat. By 6-7 pm, I start feeling hungry. I’ll eat dinner but don’t tend to overeat. I don’t have a crazy craving for sweets like I used to. I used to be 110. I had babies, went to over 170, now back down to 127!!! I also did not get the soda tasting flat or tasting horrible side effect, which I was hoping for. Wanted to help kick the habit. I can’t drink it plain anymore because it almost burns. But it tastes great still with food, especially Pepsi Zero. Oh well! I know everyone gets different side effects. I also love that I don’t get tension headaches, which I used to get often in the afternoons."

• Mar...
• Taken for less than 1 month
• August 4, 2017

Topiramate for Migraine Prevention "Reluctantly started due to reviews to prevent migraines and clear up severe blurry vision...50 mg...caused facial tightness, made headaches worse, tiredness, slowness, about to think, ok, bouts of tingling, vision somewhat cleared, will be reducing the dose to 25 mg...we will see how this works out."

• tsj...
• Taken for 1 to 6 months
• April 26, 2016

For Migraine Prevention "Besides the tingling in the feet and hands or weight loss, I can't think of any other side effects I've had. This was an absolute miracle drug for me for the first two months I was on it before a string of horrible tension headaches started to ruin its effectiveness. My neurologist just increased my dosage. I was taking 100 mg once a day. I'm now at 150 mg. I'm in a size of jeans I haven't thought about for almost 20 yrs. I did find that drinking more water cuts down on the tingling, too."

• Dan...
• October 6, 2013

Topiramate for Migraine Prevention "I began taking Topamax about a year ago after suffering from weekly migraines since age 15. I increased the dose to 200 mg a day before it seemed to be a therapeutic dose for me. My migraines reduced a lot for a long time, but I also do not drink alcohol, caffeine, or eat chocolate, cheese. The last few weeks, my migraines are back with great intensity. One lasted 4 days. So I will be going back to my doctor. Topamax did not affect my appetite at all. I get occasional tingling."

• mrs...
• Taken for 2 to 5 years
• May 4, 2014

Topiramate for Migraine Prevention "I've been taking Topamax for about 2 years now, 100 mg a day. I have severe chronic migraines due to my spinal cord. So my doctor put me on this medication. The only side effect I've had was the tingling, but I get that anyway even before this medication, so who knows if it was a side effect. But it works okay for me when I take it regularly, but I also have focal seizures, so this medication is for both of my problems. But I always take it with my hydrocodone, so my migraines are fine."

• Anonymous
• Taken for 1 to 6 months
• April 29, 2012

Topiramate for Migraine Prevention "Used to get 2-3 weekly migraines before Topamax and would run out of Fioricet and Imitrex. I tapered up to the 100 mg dose, and while I do get the occasional tingling in my fingers and toes, it's nothing compared to a full-fledged migraine. I also dropped 8 or 9 lbs, which is a lot for me since I'm 5'2 and was 129, now I'm 121 lbs. I have almost no appetite, but almost no migraines."

• Anonymous
• November 8, 2022

For Borderline Personality Disorder "The side effects are awful. The first three months had major insomnia, unable to eat, and overall major brain fog. The side effects went away for me with time. I still get tingling fingers. This drug has been amazing for my mood swings despite the side effects. Nothing worked to stabilize me like topiramate."

• Anonymous
• July 19, 2008

Topiramate for Migraine Prevention "I've been using Topamax for about 4 months after suffering for about 20 years. The migraines had started to come every week, and I couldn't function for days. This medicine allowed me to function again without having to worry about when the next big headache was going to come. Side effects haven't been too bad, some tingling, and I can no longer drink anything carbonated, but well worth it."

• Anonymous
• April 8, 2012

Topiramate for Migraine Prevention "Topamax worked great to prevent migraines, however, the side effects that I experienced were not worth the prevention. I experienced numbness and tingling in my extremities, severe problems with word retrieval, a complete inability to focus or concentrate, anxiety, agitation, and severe mood issues (I became very angry and upset at the smallest of things). But what finally did me in was severe epigastric pain, nausea, dizziness, and disorientation that came about suddenly and was persistent until I titrated myself off the medication after a visit to the urgent care. As soon as I got off Topamax, the migraines were back every day, and I question which was worse - the migraines or the side effects."

• Jde...
• Taken for 1 to 6 months
• August 18, 2021

Topiramate for Migraine Prevention "I have been on Topamax for over a month. Migraines are almost gone. Not even taking pain meds that much. Weight loss is starting finally, and it is happening quick. I am driving again and living the life I couldn't beforehand. I do have tingling in my feet and sometimes lack feeling in a few toes, but for the lack of pain, I'll take it!"

• Chi...
• February 9, 2017

For Migraine Prevention "I take Topamax for my hemiplegic migraines, suppressed appetite is just an added bonus. I have noticed a tingle in my fingertips and cheeks on and off, but it doesn't bother me enough to stop taking it. My headaches are down from waking up with one every day to maybe one once a week and one migraine a month. I'm taking 100 mg at night, I was tired for the first few weeks but built a tolerance to it. Carbonated beverages do taste flat to me now, I'm glad to read this has happened to others as well, I thought I was going crazy. Hoping now that I'm up to 100 mg that I will begin to lose more weight. I have noticed a suppressed appetite, eating much less of my meals, and have less of a 'sweet tooth,' which is a big deal for me."

• Rob...
• July 27, 2013

For Migraine Prevention "This medication has been a lifesaver for me. After the initial side effects of tingling hands and feet, funny-tasting carbonated drinks, loss of words, which lasted only a couple of weeks and a massive weight loss of 30 kg (60 lb approximately), everything settled down nicely. I have been taking Topamax for over two years now with no problems whatsoever, and in those two years have only had one migraine that was not nearly as bad as what I used to experience. For me, this is the best medicine I've ever been prescribed."

• Sol...
• October 9, 2015

For Weight Loss (Obesity/Overweight) "I have not lost any weight on this medication. It has been about six weeks. I started at 25 mg and am now at 100 mg. I am very discouraged. But at least I know now why my feet tingle. Does anyone else have leg pain?"