User Reviews for Ticagrelor to treat Acute Coronary Syndrome
Brand names: Brilinta
Ticagrelor has an average rating of 4.2 out of 10 from a total of 34 reviews for the treatment of Acute Coronary Syndrome. 15% of reviewers reported a positive experience, while 47% reported a negative experience.
Reviews for Ticagrelor
Brilinta (ticagrelor) "After a stent started Brilianta 2X90mg and 81mg aspirin. Shortness of breath, fatigue and palpitations was overwhelming, after 6 weeks finally my Dr agree to change to Plavix slowly recovered and feeling much better now."
Brilinta (ticagrelor) "On Brilinta 10 months and then switched to Plavix. I was paying $400 per month for Brilinta and my Cardiologist had me in a study as they all make money using us as test rats. Plavix costs $7.50 for a 90 day supply folks so don't be BULLIED into using Brilanta."
Frequently asked questions
- How long do I have to take Brilinta after a stent or heart attack?
- Brilinta vs Plavix: what's the difference?
- What pain medication can I take with Brilinta?
- Is ticagrelor better than clopidogrel?
Brilinta (ticagrelor) "My Mom was placed on Brillenta on 1/4/16 and was in the hospital. As soon as she was placed on the medication she complained of a funny feeling in her stomach. Was discharged 4 days later and still had a funny feeling in her stomach...which was blamed on anxiety. She continued to complain to doctors about this funny feeling up until taken back to the ER on 1-26-16 for the funny feeling...ultimately my Mom passed away on 1/27/16 with a GI bleed...I'm very concerned it was caused by this drug!"
Brilinta (ticagrelor) "I started having shakiness and hyperactivity the day after angioplasty. The doctors emphasized Brilinta is key to keeping the stents open. I am very sensitive to pharmaceuticals...I thought it might be one of the drugs but the doctors thought otherwise - attributing it to all the stress of the procedure and one small artery they could not stent. Then angina came back with shortness of breath. Started Imdur to counteract chest pain but shortness of breath (SOB) continued. The chest pain and shortness of breath continued to get worse so went to ER with angina, SOB, racing heart, coughing and impending sense of doom. Ended up staying overnight. Heart checked out ok and doctors finally attributed issues of angina, SOB and GERD to the side effects of Brilinta. Now I am on Plavix and no side effects so far. I was really regretting getting the stents and thought the alternative might have been better. Brilinta might be preferred drug for PCI but the side effects are horrible."
Are you taking this medicine?
Brilinta (ticagrelor) "This medication was worse than the heart attack Long story short I could not breathe. I finally was able to discontinue after 1 year..symptoms improved within 3 days..none now. For me it was horrible and I would never recommend to anyone."
Brilinta (ticagrelor) "Have been on Brilinta for almost 2 months after 1 stent. The shortness of breath is terrible. Sleep is spotty, so I'm doubly exhausted. I wake up multiple times needing to sit up and breathe. My gout has flared up continually since I started this drug, which used to hit every 3 months. All in all, I hate it."
- Is there a generic for Brilinta?
- Is Brilinta a blood thinner or antiplatelet?
- How long should Brilinta be held/stopped before surgery?
- Is ticagrelor a prodrug?
Brilinta (ticagrelor) "Why on earth would Brlinita be approved for heart patients when shortness of breathe is a side affect. A pretty sick joke. I was not amused and told the doctor I would not continue taking it, regardless what the drug rep said of the side affect potentially leaving in a few days."
Brilinta (ticagrelor) "I advice you not to take Brilinta. My husband woke up every 10 minutes scared of dying because he couldn't breath. He coughed and had blurred vision too. This medication should be off market. We had 2 sleepless weeks while he was in Brilinta"
Brilinta (ticagrelor) "Had heart attack 12/15/2016 and put on Brilinta 90mg twice a day, plus 81mg Aspirin once a day. I experienced shortness of breath, and a cough. Went to see my Cardiologist, he says the shortness of breath will get better, and the cough is not related to the Brilinta. Recently I started feeling soreness on the tops of my hands I press on the veins, and soreness increases. I have now developed large bruises on the top of both hands, with slight swelling. My vision also has changed, bluryness in my left eye, I see no documentation that this is a side effect. Anyone else have this?"
Brilinta (ticagrelor) "BrIlinta all but put me in the grave. It stopped my breathing...over 100 times in one day. Given to me after catheterization. And no sleep. Was sent home with a change in my meds...Brilinta. Got in the house and started to take a nap as I was crashing... My breathing stopped. I had to try several times before breathing restarted...horrible This went on through out the day. Could not get the doctors to call me. Called Walgreen...that helped. Was told no antidote and was told to flush system with lots of water Not to take any more Berlinta...but use Privosate... At nine pm in the evening I went out side and walked to try to establish breathing pattern...about 11:00 PM was able to breath well enough to sleep. Horrible experience. HORRIBLE BEWARE YOU LIFE"
Brilinta (ticagrelor) "I have been taking Brilinta for almost two years and am just finally able to get off of it. I feel like I have been tired for months. I feel like the med did it's job overall and am thankful it. Just tired all of the time."
Brilinta (ticagrelor) "Brilinta 90mg 2x daily with 81mg aspirin. Dull aches all over body since starting this after a mild MI event, especially lower back (both sides). Mild, tolerable headaches as well but they are less frequent than body aches. Will be switching to Plavix, at least if the side effects are the same and the end result is the same, why am I buying Brilinta? Just doesn't feel safe."
Brilinta (ticagrelor) "this drug caused incredible severe nosebleeds that landed me in the hospital, to the point where my bathroom looked like a crime scene. Had to miss work because of the side effect of the drug. I had to use two inhalers, one was daily and one was a rescue inhaler due to severe shortness of breath. This drug should not be on the market, it is dangerous!"
Brilinta (ticagrelor) "I've been reading other people's experiences and I wonder if I'm on the same medication. I am 74 years old, and I've been on Brilinta with 81 aspirin since 2/29/16, when I had 92% blockage in the widow maker, the descending major heart artery. Thankful that I was in the doctor's office when I had my heart attack, I ended up with two stents and Brilinta. I have had no noticeable side effects. I exercise three days a week in our local life center, with both aerobic and resistance exercises, and I have never experienced anything like the excessive fatigue I read others complaining of. Other than cuts or scrapes taking a little longer to coagulate I have had no bleeding to complain about. Maybe the Brilinta I'm receiving is just better."
Brilinta (ticagrelor) "I was on this med for a year after having angioplasty with the placements of two stents I was on 90mg twice a day and such bruising that after a year my doctor lowered it to 60 mg twice a day Four weeks later I had a heart attack because a clot formed in the stent I had to have another angioplasty and have lost significant heart tissue I feel backed into a corner because my doc won't change the med"
Brilinta (ticagrelor) "While sleeping I experience night-time shortness of breath bad enough to wake me up gasping for air. Now I know why; Brilinta. Very fatigued also. Takes All morning to get going. Some rear-thigh cramps at night also. Other than that I suppose it's working to keep me from having a clot form. My Surgeon says he'll take me off Brilinta on my first anniversary date of heart attack; Yeah!"
Brilinta (ticagrelor) "Had bypass 20 years ago. August 2016 had to have 2 stents and was put on Brilinta. Short of breath most of time. But fatigue is huge problem. MD says if caused by Brilinta maybe time to try Plavix. Not sure if that will be any better. All these meds have such horrible side effects!"
Brilinta (ticagrelor) "My son was put on this drug after 2 stents and a mild heart attack. At that time (2 1/2 months ago) he also experienced urinary problems and further testing reveals he also has a mass in/on his bladder and needs surgery. The cardiologist has refused to change the Brilinta and says he must wait at least 4 months to have the surgery. Every one in our family is most concerned."
Brilinta (ticagrelor) "I had been taking Coumadin and Plavix for years with no problem. Since Brilinta, the bleeding, bruising, nausea, and joint pain have been horrible. And yes, my PT/INR levels are within the therapeutic level between 2 and 3."
Brilinta (ticagrelor) "Had a heart attack four years ago & for the first three years afterward, Plavix was my prescribed medication as a blood thinner. I kept complaining to my physician that I was experiencing something weird; what I called a "roving arthritis". I was usually waking in the mornings with one or both hands so swollen in the joints that I couldn't hold a coffee cup. Or, I'd get out of bed & could only limp around due to swollen, painful ankles. I was miserable, so I finally did my own research online & found Brilinta. About one month after switching to Brilinta, my joint pain has totally stopped! On Brilinta for almost a year; a very positive experience. Only 1 negative: my insurance doesn't cover near as much as Plavix. Very spendy."
Brilinta (ticagrelor) "Have only been on Brilinta 3 days after 2 stents put in because of blockages, but was concerned enough to start looking for reviews. I have pains over my body, diarrhea and have had some shortness of breath. will be asking my doctor when I go to see him this week as advised after my procedure."
Brilinta (ticagrelor) "Started Brilinta Nov 6 2016 after a heart attack and Stent. Three days later I had a major anxiety attack because I could not breathe. The shortness of breath got better after one month. I am constantly tired and frequently napping. The worst side effect has been 4 months of constant gout. I am now at the maximum dose of allopurinol to control my gout. I cannot wait to change over to Plavix even though it will mean frequent blood testing."
Brilinta (ticagrelor) "Given Brilinta (90mg twice a day) after angioplasty and 1 stent in my left anterior descending artery. On the second day, as I was retrieving my medication prior to discharge, I felt an almost surreal feeling of suffocation I never had before - I just couldn't breathe in enough air for 1 hour. Moreover, I could speak much without being out of breath. I persevered for a week and these symptoms were replaced by stomach aches plus a sensation of a lump in my throat. I agree (based on scientific evidence) that this could potentially a life saving drug. However, the side effects can be horrible, especially for someone who has had a heart attack (in fear if another could occur, though it could all be drug related),"
Brilinta (ticagrelor) "Had a heart attack on Nov 2016 was put on Brilinta x2 a day. I too have experience fatigue, bruising, blurred vision and shortness of breathe. Takes me a long time to get started of the morning then about 3:00 pm... I'm ready to nap but can't bc I work."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Brilinta (ticagrelor) "I received Brilinta during procedure when I had 1 stent placed during angiogram I had acute coronary syndrome . In recovery, I had extreme shortness of breath, chest tightness, breast tissue ache, & extreme upper back pain. I told a nurse. Was this a heart attack? 3 cardiologists arrived. They agreed these were known side effects, told me why Brilinta was chosen, but agreed Plavix worked just as good & much better for me. Brilinta was stopped and my side effect symptoms resolved within hours. I'm lucky I have (3) responsive doctors. It's a cruel joke when a drug given to treat CV issues has side effects that mirror a CV event. Regardless of how good the drug is, IMO this can damage health/mental state of patients taking this drug to avoid CV problems. Shaken confidence can contribute to less optimal recovery. Doctors should pay attention to experiences & discuss side effects if they choose this drug. Then Brilinta can be used with confidence, or replaced quickly for those who have adverse reactions."