Secukinumab for Plaque Psoriasis User Reviews (Page 4)
Brand names: Cosentyx
Reviews for Secukinumab
- Anonymous
- Taken for 6 months to 1 year
- March 20, 2018
Secukinumab "I have Palmoplantar Pustular Psoriatic Arthritis, and since it is severe, I get treated with ones meant for plaque psoriasis. After 7 months of Cosentyx, no change. In fact, flares happened 99% of the time immediately after injection. Disappointing."
- Cos...
- Taken for 2 to 5 years
- February 14, 2024
Secukinumab "I have been using the double dose (2 - 150 mg injections every 4 weeks) for 4 years. Before Cosentyx, I initially started with phototherapy which was time intensive 2 to 3 times per week. I had a great tan and much reduced plaques. But I started feeling the risk vs reward over time might not be worth it. I started a pill, Otezla. Over time, it didn't do much. Because I also experienced arthritic pain all over along with plaques, I decided to try Cosentyx. Let anyone reading this know, I am very pleased. My symptoms are greatly improved. There was a regression after having Covid. The plaques and pain increased about 50%. Now, it's been about 1-1/2 years since and slowly my symptoms again are much improved. If not for really good insurance, I might not be able to afford this medication. In 2 years after full Medicare kicks in, I may not be able to afford Cosentyx any more. I hope I will be able to continue this more 'normal' life."
Frequently asked questions
- Cosentyx vs Humira: How do they compare?
- Is Cosentyx a biologic / immunosuppressant?
- Does Cosentyx have a black box warning?
- What are the new drugs for plaque psoriasis?
- Van...
- Taken for less than 1 month
- August 23, 2023
Secukinumab "My dermatologist recommended Cosentyx 300mg after another oral psoriatic medication stopped working to clear up my plaque psoriasis and relieve psoriatic psoriasis pain. Thus far, little to no side effects from Cosentyx only a mild headache 2-3 days after the self-administered injection. No new plaques and the current ones are getting flatter."
- Yve...
- Taken for 1 to 6 months
- December 20, 2017
Secukinumab "I have just finished the loading phase and feel that I do have less pain, but I feel itchy on my hips, yet have no psoriasis there, though just itchy skin. I am diabetic, and my blood sugar has become very high, and I am having a heck of a time trying to bring it down. I use insulin, I keep taking higher and higher doses of insulin, but I am not there yet. This is a worry, as diabetes is a gateway disease for so many other diseases. Also, having a lot of pain around my ankles, not sure if it is connected. Also having creepy crawlies on my face that are annoying. I don't see my rheumatologist until the end of January to ask him about this stuff."
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Your review helps others make informed decisions.- Isa...
- Taken for 1 to 6 months
- August 4, 2022
Secukinumab "Horrible. This company isn't out to help you. They advertise they will help you with the copay, but what they don’t tell you is they will stop it at any time while you are using it and get you stuck with a co-medical payment. What a disgrace. Patients need to be aware of their malpractice."
- Zaz...
- Taken for 5 to 10 years
- May 21, 2017
"I started this product as a clinical patient and have been very happy with the results. Before starting this program, my legs were red, sore, and flaking so bad that I didn't even like to wear shorts because of the staring I got from people. It has been 6 years now, and I now have one little spot on my shin, but I can live with that."
More FAQ
- How long does Cosentyx take to work?
- How and where do you inject Cosentyx?
- Can I get a flu shot while taking Cosentyx?
- Does Cosentyx treat Rheumatoid Arthritis?
- Ric...
- Taken for 6 months to 1 year
- February 1, 2017
"I went on Cosentyx after a miscommunication with the amount of time I needed to be off Enbrel. I started my 5-week dose and continued for 6 months. In that time, my psoriasis was completely clear, but the side effects were horrendous: hives, hotspots, breakouts of psoriasis on arms and legs, eczema on my hands and feet. The two weeks following my injections, I would itch and break out in hives. The customer support was nonexistent, I managed to find more information from the U.S. support. I finally went off it in October 2015 and still dealt with the side effects: eczema and some itching. I have spoken to the nurse and was not impressed with their knowledge of the drug, Enbrel had a much better support line."
- Ken...
- Taken for less than 1 month
- June 20, 2022
Secukinumab "I had chronic plaque psoriasis for 35 years. Did all the normal treatments, tar cream and wrap yourself in Saran Wrap at night, cortisone, etc., etc. In 2010, I spent 6 months in the Dominican Republic, and my psoriasis has been clear for 21 years. No drugs with numerous possible bad side effects. Sun is the cure."
- Lad...
- Taken for 1 to 6 months
- November 16, 2020
Secukinumab "I was diagnosed with both psoriasis and eczema, so they put me on Cosentyx. So far, I have had 5 injections, but not much change yet, and now I am getting new spots. I go to the dermatologist in a couple of days, so I don't know what she will do next. I have had stomach upset after taking the injection, my nose runs like a faucet on and off. So we will see. I'm not sure what to think of this drug."
- Anonymous
- Taken for 2 to 5 years
- May 20, 2022
Secukinumab "Cosentyx has helped me so much. Before using Cosentyx, I tried so many different topical and medications. Nothing worked! I spent over 200 dollars on different products. Still, nothing worked. I wanted to shave my head because it was on my scalp. I was embarrassed to go out in public because if I turned my head too fast, you could see the skin on my shirt! It was awful. Cosentyx changed my life! I have not had any issues for over 2 years. It is amazing! Thank you so much, Cosentyx, you saved me from shaving my head!"
- Aza...
- Taken for 2 to 5 years
- January 27, 2022
Secukinumab "I used Cosentyx for 2 years and started seeing good improvement on my psoriasis after the first 6 weeks, but unfortunately didn't clear up my psoriasis 100%. In the lapse of the 2 years, I had psoriasis that never went away on my hands, elbows, a big plaque on my back that remains there until today, and a few here and there. After the 2 years of use of Cosentyx, Express Scripts totally denied the approval for another year and Cosentyx lab approved free of charge for 2 years, but I got it only for a few months close to the end of last year. Then they asked for another doctor's request after I was approved for 2 years. For the meantime of approval, my psoriasis went mad and I am still dealing with it and trying to get the best treatment this time, but I am not going to continue with Cosentyx this time. Cosentyx works, but for me it didn't work as expected."
- Ian...
- Taken for 2 to 5 years
- May 18, 2023
Secukinumab "I have been taking it now for just over two years and am free from psoriasis, but I do have the side effect of a cough that goes on forever. I can handle the side effects and be free of the condition. As a child, I got chickenpox very badly, and the professionals believe that triggered it."
- Kim...
- Taken for 1 to 6 months
- February 3, 2022
Secukinumab "For 15 years, my psoriasis has been so bad on my hand, I had fear of losing it. At times, it would smell of infection due to the layers of buildup. Painful and unable to use much of the time. I wore a glove due to unsightliness. I began with weekly injections for 4 weeks and now injections monthly of Cosentyx. I'm in my 8th week of treatment. The benefit has greatly exceeded my wildest expectations. I can see actual skin on my hand for the first time in over 5 years. The pain I have suffered for 15 years is gone. For the first time in 5 years, I can leave the house without a glove. No side effects noted. I feel I owe my hand to this company, which pays most of my treatment cost. From my company representative to my specialty pharmacy, everyone involved keeps check on me to see I'm on the right track. I cannot thank you enough for giving me my hand back after 15 painful, embarrassing years. I would not have believed it had I not experienced it. Injections are packaged to be ease of use."
- All...
- Taken for 2 to 5 years
- May 25, 2022
Secukinumab "This medication was awful to inject and actually painful. It felt like I’d had a thumbtack poked in my leg. My scalp psoriasis came back, it was 100 percent clear prior when I was on Enbrel. By the time I had swapped back to Enbrel two weeks back after persevering with Cosentyx for about three years, my scalp was the worst it’s ever been. Topical medications didn’t touch the huge thick plaques that have reformed. I am missing large patches of hair as well, especially on the back of my head. I don’t know why the dermatologist even changed me to this. I should have changed back sooner. It was not the right medication for me. Super disappointed."
- Tim...
- Taken for 2 to 5 years
- July 8, 2023
Secukinumab "I have used Cosentyx for about four years and it really helps my psoriasis on my scalp. I also have joint pain but it does not help that. My scalp has cleared up, but sometimes my head still itches. My mother used to have psoriasis too. I would give Cosentyx two thumbs up for working when all of the other creams and old school stuff my derm used at the time. I had psoriasis for about 20 years before Cosentyx."
- Mah...
- Taken for 6 months to 1 year
- February 12, 2023
Secukinumab "It's been 6 months, and I am currently on my 10th dose. Very disappointed with the results and currently questioning the massive investment of time and money made, not to talk about the stress caused. Very surprised since I had read so many positive experiences with this one."
- Anonymous
- Taken for 1 to 2 years
- November 18, 2024
Secukinumab "I have plaque psoriasis, although I experience symptoms of psoriatic arthritis but haven’t been officially diagnosed. This eased my joint pain and helped me maintain clear skin. There were not many flare-ups, and when I did flare, it wasn’t severe. However, the side effects added up to be too much for me to deal with, and I decided to stop this treatment after around 18 months."
- Gin...
- Taken for 6 months to 1 year
- January 26, 2022
Secukinumab "I used Cosentyx for 6 months. I was hopeful at the start as I noticed a slight improvement after a couple of weeks. It got a little better after a couple of months, then started slowly coming back. It also gave me a nasty rash that was an absolute nightmare. I could not stop itching, it was that bad I honestly thought I had scabies. I went to the doctor, who said I was having an allergic reaction, so prescribed me antihistamines, which I am still taking 3 to 4 a day, depending on how bad the itching gets. I saw my dermatologist again this week, and I am now going to try Taltz, so I live in hope this one might actually work. I tried methotrexate and etanercept prior to Cosentyx, they proved equally as useless for me."
- Jac...
- Taken for 1 to 6 months
- October 1, 2020
Secukinumab "Was on Humira for psoriasis plaques on elbows, knuckles, knees. That was the first biologic and was wonderful, though never quite cleared it up. Also, I take high doses of Adderall and despite adding Humira, I never had abnormal blood tests. Super annoyed when Corona started as apparently my doc office is getting paid off by Novartis (Cosentyx) because they called me telling me to switch to Cosentyx and stop Humira. Pain in the butt but did it. Was going in the following week for my appointment and strangely the doc asked me why switching? Uh, I said you called me and told me that the tumor suppressant is less broad in Cosentyx than Humira and I needed to change or take nothing because of COVID. He was like hmmm that's interesting as if I'm telling him something when that's what he was telling me via them calling me. Weird but blew it off."
- all...
- Taken for less than 1 month
- May 12, 2018
Secukinumab "I started injections on Friday. I've got psoriasis all over my body at the moment. I took the injection out of the fridge and did not inject it until it reached room temperature, but it still stung and burned. Can anyone help with what to do for a comfortable injection please :)"
- Ann...
- March 17, 2020
Secukinumab "I have mild to moderate psoriasis, mainly on my knees, elbows, and lower legs. I started Cosentyx in May of 2019. Within two weeks, my psoriasis was clear! But I noticed my sinuses were awful, and I’ve never had sinus problems before, and I just generally felt bad. I decided to stop Cosentyx in September of 2019. Since then, I’ve had the worst flare-up ever in my life. My legs are covered, and now my forearms and scalp. I regret getting on Cosentyx and honestly wished I would have just stayed in the tanning beds."
- Bri...
- Taken for 1 to 6 months
- August 25, 2019
Secukinumab "Saw results after 2 days, took the 5 weekly startup doses, and just took my first monthly dose, and I'm better than 80 percent better with no side effects."
- kle...
- Taken for less than 1 month
- June 13, 2019
Secukinumab "After 5 other costly biologics and 35 years of plaques and swollen joints, within 3 days felt better. A blessing from God."
- Aid...
- Taken for 1 to 6 months
- January 2, 2020
Secukinumab "This medication caused me serious bowel complications. My primary care physician took me off the medication immediately. I've been free of bowel issues since that time."
See also:
Humira
Humira is a tumor necrosis factor blocker used to treat many inflammatory conditions in adults ...
Cosentyx
Cosentyx (secukinumab) is used to treat plaque psoriasis, psoriatic arthritis, ankylosing ...
Ilumya
Ilumya (tildrakizumab) is used to treat moderate-to-severe plaque psoriasis to reduce plaques ...
Otezla
Otezla (apremilast) is used to treat plaque psoriasis, psoriatic arthritis, and oral ulcers ...
Skyrizi
Skyrizi (risankizumab) is used to treat plaque psoriasis, psoriatic arthritis, ulcerative colitis ...
Stelara
Stelara (ustekinumab) is used to treat Crohn's disease, ulcerative colitis, plaque psoriasis, and ...
Taltz
Taltz (ixekizumab) is used to treat plaque psoriasis, psoriatic arthritis, and ankylosing ...
Bimzelx
Bimzelx (bimekizumab) treats plaque psoriasis, psoriatic arthritis, ankylosing spondylitis, and ...
Hyrimoz
Hyrimoz is used for ankylosing spondylitis, crohn's disease, crohn's disease, active, crohn's ...
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Secukinumab "Cosentyx does not work for me. I’d be better off injecting saline solution. My psoriasis has more than tripled in coverage area. I was on Taltz before, and within three days of the first injection, I could tell a huge difference. But when COVID came, they couldn’t ship it to me in time, and my psoriasis came back with a double punch. I have an appointment with my doctor today. Hopefully, he can help me out. I look like a leper."