Secukinumab for Ankylosing Spondylitis User Reviews (Page 2)
Brand names: Cosentyx
Secukinumab has an average rating of 4.6 out of 10 from a total of 36 reviews for the treatment of Ankylosing Spondylitis. 31% of reviewers reported a positive experience, while 53% reported a negative experience.
Reviews for Secukinumab
- Mike
- Taken for 2 to 5 years
- December 26, 2023
Cosentyx (secukinumab) "Been on Cosentyx for 2 years now, 300mg every 3 weeks. My mobility has increased tremendously and I live with very few flare-ups. I was on Humira originally but kept having reactions to it, so I was switched to Cosentyx and loving the outcome. I was diagnosed with rheumatoid in 1983 and then diagnosed with AS in 1998. My body is so far gone before biologics that it has definitely helped mobility, but I still live with a ton of pain unfortunately. But I've learned you can't give up, so just keep on going no matter how tough it is."
- Jay
- Taken for 2 to 5 years
- August 29, 2023
Cosentyx (secukinumab) "Switched to Cosentyx in 2017 for plaque psoriasis. Three months later, came the ankylosing diagnosis. To date, 7/22, it has been an absolute lifesaver for me. Psoriasis 100% clear and a tremendous help with low back and hip pain. Hoping for these results to be a lifetime. 2 150 mg/ml pens a month and get on with life."
Frequently asked questions
- Cosentyx vs Humira: How do they compare?
- Is Cosentyx a biologic / immunosuppressant?
- Does Cosentyx have a black box warning?
- What are the new drugs for plaque psoriasis?
- RAtoAS
- Taken for 1 to 2 years
- May 31, 2023
Cosentyx (secukinumab) "I started Cosentyx in April of 2022 at a dose of 150mg every 4 weeks for Ankylosing Spondylitis (or Seronegative Spondylopathy). After about 4 months of no decrease in inflammation, the rheumatologist upped the dose to 300mg every 4 weeks, and at month 7 is when my flare-ups completely went away. I felt great for about 7 ish months. Fast forward to May of 2023 (now), and a flare up popped up in a matter of hours in my lower back. So it took me about 7 months for it to fully work. However, the side effects are extremely minimal and this medication is allegedely the least symptomatic in the long run compared to other TNF inhibitors. Since I had a flare up though, I will talk to the rheumatologist about doing 300mg every 3 weeks as switching these kinds of medications can take up to 6 months (or longer) to actually work. Overall, I would recommend trying it and start out immediately with the 300mg dose (x2 150mg auto injectors every 4 weeks) for arthritis related problems."
- ASer
- Taken for 1 to 6 months
- August 22, 2016
Cosentyx (secukinumab) "I've finished the 5 week loading dose 3 weeks ago. It is not working for Ankylosing Spondylitis. I am very disappointed. My Dr is upping my dose to 300 mg and I hope that will work."
Are you taking this medicine?
- ASer
- November 7, 2016
Cosentyx (secukinumab) "I finished the loading dose with no improvement. My Dr upped me to 300 mg. I'm on month 4, I'm very fatigued and still in pain so I'm not impressed with it. I'm also experiencing mouth sores."
- Mickl...
- Taken for 1 to 6 months
- May 12, 2018
Cosentyx (secukinumab) "Not long after starting this medication I ended up being rushed into hospital with a perforated bowel and sepsis. I nearly died due to complications and spent a few weeks on intensive care."
More FAQ
- How long does Cosentyx take to work?
- How and where do you inject Cosentyx?
- Can I get a flu shot while taking Cosentyx?
- Does Cosentyx treat Rheumatoid Arthritis?
- andrea
- Taken for 6 months to 1 year
- December 8, 2018
Cosentyx (secukinumab) "This is simply horrible ... diarrhea, fatigue more pain. Novartis change this drug."
- Ironk...
- Taken for 6 months to 1 year
- August 14, 2018
Cosentyx (secukinumab) "It worked well a year into taking the drug. I experienced erectile dysfunction (ED) issues while taking this medication. Hence, the 5/10 rating for this medication."
- Diva...
- Taken for 6 months to 1 year
- April 28, 2019
Cosentyx (secukinumab) "Cosentyx did not works at all, and as it has been one of the most expensive biological out there - you think is going to work."
- Redneck
- Taken for less than 1 month
- February 24, 2018
Cosentyx (secukinumab) "Waste of money"
- Hadan...
- Taken for 1 to 6 months
- April 7, 2023
Cosentyx (secukinumab) "Well I’ve had this drug now 16 weeks without any improvements. I had cold like symptoms with it, mainly runny nose. Very easy to use, didn't feel a thing."
- Bill
- Taken for 1 to 6 months
- March 11, 2021
Cosentyx (secukinumab) "No response"
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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"Had Scapho (Secukinumab) injection for 6 months in India @ 1 per month for Ankylosing Spondylitis (AS). While 1st 5 vials gave some relief, my pain restored to original levels after 6th vial. Blood test reports also showed raised inflammation markers. Sent repeated mails to Novartis, to check on their serial number tracking or Blockchain enabled supply chain process. Novartis sent cursory replies upholding their distributors and finally conceded to not having any serial number tracking. Not wanting to waste further money, given this dicey situation, I gave up on Novartis and Scapho injection for good. Since then, my 3 miles jogging + basic stretch exercises every 6 hours along with sulfasalazine tablets have helped."