Secukinumab for Ankylosing Spondylitis User Reviews (Page 2)

• Ruf...
• Taken for 1 to 2 years
• July 18, 2019

"Found out I had ankylosing spondylitis from a blood test after lots of pain and no appetite. Inflammation at 70, sed rate bad. I started on Remicade, 2nd bag almost died, then tried Humira, nothing. Started the loading dose for Cosentyx, could feel it working immediately. My blood came back into shape, inflammation 5, sed rate good. Still have some joint pain, but nothing like before. I hope I can just ride this one out for a while."

• jan...
• Taken for 1 to 6 months
• April 22, 2021

Secukinumab "I was on Simponi for 5 years and it worked great till it started to wear off and I got psoriasis. So my doctor tells me about Cosentyx and how it will help the AS and psoriasis at the same time. Got me on 150 mg, 5 doses then 1 monthly. Psoriasis worsened, now I am at the 9th dose and back pain is like when I was taking nothing at all. I see 300 mg doses are recommended, so that is my only hope if they increase the dose. P.S. psoriasis and itchy rash almost gone after treating it with corticosteroid cream. Before that, it was just getting worse."

• Tod...
• Taken for 2 to 5 years
• August 3, 2022

Secukinumab "Oh boy, where to begin? Ok, so I was born with juvenile arthritis. Then, at the age of 19, doctors finally found out I had ankylosing spondylitis (AS). Been on Remicade since I was 8 years old, worked amazing until I turned 18. Started Enbrel, worked good for 4 years, then it stopped. Switched to Humira, stopped for 4 years, switched to now Cosentyx. 5 years in, I’m 31 now, on the 5th year, it hit me like a wrecking ball just out of the blue, it stopped working. I have been waking up feeling like a 90-year-old man with all the stiffness. Can’t sit for more than 10 minutes without feeling the painful stiffness. I love to work out, have my own gym and everything. Now I feel incredibly painful when I squat, bench, curl, do pull-ups, push-ups, and just lift in general. Even carrying the 40-pack of water is a challenge from all the pain. I wish I could understand why this happens all the time, seems like these drugs have a term limit to when it stops working."

• RD ...
• Taken for 1 to 6 months
• May 11, 2024

"I have ankylosing spondylitis detected since 16 years of age, and now I am 45 years old. Going to physio and ortho docs only resulted in burning money until I met a rheumatologist and took secukinumab doses. On the 3rd monthly dose, pain and stiffness have massively improved. I have stiffness in my neck that I am yet to get relief on. Waiting for a miracle to get my neck flexibility back."

• Pau...
• Taken for 1 to 2 years
• February 19, 2021

Secukinumab "I have been using COSENTYX for 12 months. It was scary. Constant fatigue, stomach problems, terrible stagnation. I couldn’t go normally or roll over in bed. My spine and knees became completely flexed. Convulsions in the legs began."

• Vic...
• Taken for 1 to 6 months
• November 11, 2020

"Had Scapho (Secukinumab) injection for 6 months in India @ 1 per month for Ankylosing Spondylitis (AS). While the 1st 5 vials gave some relief, my pain restored to original levels after the 6th vial. Blood test reports also showed raised inflammation markers. Sent repeated emails to Novartis to check on their serial number tracking or Blockchain-enabled supply chain process. Novartis sent cursory replies upholding their distributors and finally conceded to not having any serial number tracking. Not wanting to waste further money, given this dicey situation, I gave up on Novartis and Scapho injection for good. Since then, my 3 miles jogging + basic stretch exercises every 6 hours along with sulfasalazine tablets have helped."

• ASe...
• Taken for 1 to 6 months
• August 22, 2016

Secukinumab "I've finished the 5-week loading dose 3 weeks ago. It is not working for ankylosing spondylitis. I am very disappointed. My doctor is upping my dose to 300 mg, and I hope that will work."

• ASe...
• November 7, 2016

Secukinumab "I finished the loading dose with no improvement. My doctor upped me to 300 mg. I'm on month 4, I'm very fatigued and still in pain, so I'm not impressed with it. I'm also experiencing mouth sores."

• Mic...
• Taken for 1 to 6 months
• May 12, 2018

Secukinumab "Not long after starting this medication, I ended up being rushed into the hospital with a perforated bowel and sepsis. I nearly died due to complications and spent a few weeks in intensive care."

• Iro...
• Taken for 6 months to 1 year
• August 14, 2018

Secukinumab "It worked well a year into taking the drug. I experienced erectile dysfunction (ED) issues while taking this medication. Hence, the 5/10 rating for this medication."

• and...
• Taken for 6 months to 1 year
• December 8, 2018

Secukinumab "This is simply horrible... diarrhea, fatigue, more pain. Novartis, change this drug."

• Div...
• Taken for 6 months to 1 year
• April 28, 2019

Secukinumab "Cosentyx did not work at all, and as it has been one of the most expensive biologics out there - you think it is going to work."

• Cos...
• Taken for 6 months to 1 year
• January 22, 2025

Secukinumab "Seemed to have worked for about 6 months, but now it is not. Not sure if it’s the medication or the disease, but I know I have liver disease and chronic inflammation to gallbladder and thyroid."

• Had...
• Taken for 1 to 6 months
• April 7, 2023

Secukinumab "Well, I’ve had this drug now for 16 weeks without any improvements. I had cold-like symptoms with it, mainly a runny nose. Very easy to use, didn't feel a thing."