Dilantin User Reviews & Ratings (Page 3)

• Joh...
• Taken for 10 years or more
• April 19, 2021

For Seizures "In 1992 (I was 26), I had my 1st seizure while I was asleep, and after a couple more, I was put on Dilantin, 300 mg at bedtime. About 10 years later, I started having what are called déjà vus and now take oxcarbazepine, 600 mg in the morning and 600 mg with the Dilantin at night. Dilantin has helped me have a great life (last seizure about 10 years ago). Has anyone else had these issues?"

• Gro...
• Taken for 10 years or more
• July 12, 2021

For Epilepsy "I was diagnosed with epilepsy in 1971. I have taken Dilantin for 50 years and have been seizure-free for the last 17. However, my doctor is weaning me off the Dilantin and onto Keppra because I am starting Harvoni for Hepatitis C, and Dilantin is contraindicated. I am quite scared that I will experience breakthrough seizures, but my doctor will not allow me to take life-saving Harvoni without starting the Keppra. :("

• Anonymous
• Taken for 1 to 2 years
• August 15, 2012

For Epilepsy "I have been on Dilantin and phenobarbital, both taken at night. I haven't had any grand mal seizures in two years. I've noticed some type of rash on my side that doesn't seem to ever go away, and I feel a lot more stress and some weight gain, but with the two mixed together, it works great. I sleep well and have a lot of energy."

• San...
• October 13, 2009

For Seizures "This medication was prescribed to me as a 37-year-old cancer patient due to having suffered 3 seizures over the summer, all of them grand mal seizures. Presently taking this medication without side effects (aside from being a bit slow in action)."

• Wen...
• Taken for 5 to 10 years
• December 3, 2019

For Epilepsy "Dilantin worked for my epilepsy, and the side effects are not bad, they go away. If you have a high metabolism, you will have high Dilantin levels even when you take it the right way. You just need to find your dose."

• Anonymous
• Taken for 10 years or more
• August 28, 2024

For Seizures "Dilantin has been the medication that all of my doctors have fallen back on when nothing else helped me with tonic-clonic seizures. No side effects for 48 years, 400-500 mg daily, no negative side effects, and no contraindications."

• kat...
• March 9, 2008

For Seizures "I have been on Dilantin since I was about 17. It has been working a lot better than the Depakene I was taking before. When I was pregnant and started to gain a lot of weight, my doctor had to increase the dose. I am 31 now and my seizures are very well controlled while on Dilantin."

• Anonymous
• August 10, 2008

For Anxiety "I use 100 mg once a day to control anxiety. It works well. People at work have noticed I am much calmer at work."

• rig...
• August 30, 2007

For Seizures "I have been using Dilantin since I was 15 years old and have had no side effects. I am 42 years old now. I thank God because I have grown out of most of my seizures."

• SAN...
• Taken for 1 to 2 years
• July 9, 2012

For Seizures "I am on 300 mg of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg, I do not get a full sound sleep at night. What are the experiences of others?"

• Anonymous
• May 31, 2010

For Trigeminal Neuralgia "Very effective for trigeminal neuralgia for past 2 years at 500 mg daily. Not so great now, so I must have built tolerance to it, as I'm having daily bouts of pain again."

• msb...
• October 16, 2009

For Trigeminal Neuralgia "Stops the pain, but makes me too dizzy to function. My doctor also doesn't like the long-term effects on the cerebellum."

• Joe...
• February 8, 2009

For Epilepsy "I've been on Dilantin since 1979 and have not had any issues or seizures."

• ZHM...
• Taken for 1 to 6 months
• November 12, 2023

For Seizures "This medication caused extreme fatty liver disease and cognitive impairment. Both conditions were quickly reversed once I stopped taking Dilantin."

• Anonymous
• April 5, 2008

For Seizures "I'm 52 years old and had a grand mal seizure 4 years ago and have been taking Dilantin since without incident. No side effects. The medicine is effective and relatively affordable."

• Anonymous
• October 17, 2009

For Seizures "I think I might be allergic to this medicine, as I had the hives in the evening from my scalp down."

• alm...
• May 13, 2010

For Seizures "I experienced Stevens-Johnson syndrome when I first started taking this drug. It took three months of high doses of prednisone to recover."

• Ara...
• September 25, 2013

For Seizures "I have been taking Dilantin for about two weeks, and so far, no problems. Hopefully, I won't have any."

• chr...
• November 10, 2008

For Epilepsy "It is a miracle drug, and it works fantastically."

• Anonymous
• Taken for 10 years or more
• January 19, 2019

For Epilepsy "I have been on it for 18 years. I now have pins and needle feelings everywhere. It is really hard for me to sleep. I am wondering if I should mention this to my doctor?"

• Fav...
• July 23, 2020

For Epilepsy "I took Dilantin for 40 years. I am now 75 years old, and my blood pressure reading was 110/60 with a pulse of 55 last week at my annual physical. I have been off the medication for 25 years."

• Anonymous
• November 8, 2009

For Epilepsy "I've been on Dilantin for about 20 years, and it works for me."

• no ...
• Taken for 2 to 5 years
• December 29, 2014

For Seizures "Side effects: over 5 years, losing hair, but I take it 3 times a day with other medication for multiple sclerosis."

• Che...
• Taken for 6 months to 1 year
• December 7, 2012

For Epilepsy "The first 3-4 days made me a bit groggy immediately after taking it. I couldn't drive. Within a week, I adjusted quickly."

• Liz...
• Taken for less than 1 month
• July 6, 2012

For Epilepsy "It made me very sick. It caused a reaction of large hives and made me throw up."