Dilantin for Seizures User Reviews (Page 2)

• Che...
• Taken for less than 1 month
• May 26, 2018

"I had my first seizure at the beginning of April. I was in the hospital for weeks as I had kidney failure as well. Only two weeks after I got out, I was in my car when the second seizure struck, causing me to crash. I wrote off my car and have my license suspended. I was put on Tegretol CR, but the side effects were terrible, so now I'm on 300 mg of Dilantin and haven't had a seizure since. Unfortunately, since my first one, my sleep has been terrible."

• men...
• June 7, 2008

"I have tried several anti-convulsant medicines, even had combinations before. Dilantin provides better results for me among all. There were a few false side effects like rashes, constipation, nausea, and dizziness, but it really depends on what you have eaten. Just make sure that you get a regular Dilantin assay for your safety. I think it really depends on what kind of seizure and how your body reacts to medicines."

• 55b...
• Taken for 10 years or more
• May 1, 2021

"On Dilantin extended plus phenobarbital for 47 years for seizures. Not an episode for 38 years. Requires regular check of blood level with adjustment when elevated. Excellent dental hygiene is important. Bone loss after long-term use with moderate anemia. These effects are worth it for total control of episodes. Specialist prescribes brand only due to efficacy."

• Anonymous
• March 14, 2010

"I have been taking Dilantin for a few months now for both petit mal and grand mal seizures. I have experienced all of the side effects from the medication. My lymph nodes are swollen and very painful. It is making it difficult to talk. My whole face and neck are swollen as well. I have had painful headaches since two weeks after I started taking the medication. I have also had a fever for the past month, around 99 degrees to 100 degrees. This medication works for other members of my family, but it does not work for me."

• Joh...
• Taken for 10 years or more
• April 19, 2021

"In 1992 (I was 26), I had my 1st seizure while I was asleep, and after a couple more, I was put on Dilantin, 300 mg at bedtime. About 10 years later, I started having what are called déjà vus and now take oxcarbazepine, 600 mg in the morning and 600 mg with the Dilantin at night. Dilantin has helped me have a great life (last seizure about 10 years ago). Has anyone else had these issues?"

• San...
• October 13, 2009

"This medication was prescribed to me as a 37-year-old cancer patient due to having suffered 3 seizures over the summer, all of them grand mal seizures. Presently taking this medication without side effects (aside from being a bit slow in action)."

• Anonymous
• Taken for 10 years or more
• August 28, 2024

"Dilantin has been the medication that all of my doctors have fallen back on when nothing else helped me with tonic-clonic seizures. No side effects for 48 years, 400-500 mg daily, no negative side effects, and no contraindications."

• kat...
• March 9, 2008

"I have been on Dilantin since I was about 17. It has been working a lot better than the Depakene I was taking before. When I was pregnant and started to gain a lot of weight, my doctor had to increase the dose. I am 31 now and my seizures are very well controlled while on Dilantin."

• rig...
• August 30, 2007

"I have been using Dilantin since I was 15 years old and have had no side effects. I am 42 years old now. I thank God because I have grown out of most of my seizures."

• SAN...
• Taken for 1 to 2 years
• July 9, 2012

"I am on 300 mg of Dilantin one day and 400 mg the next day. Unfortunately, the day I take 400 mg, I do not get a full sound sleep at night. What are the experiences of others?"

• ZHM...
• Taken for 1 to 6 months
• November 12, 2023

"This medication caused extreme fatty liver disease and cognitive impairment. Both conditions were quickly reversed once I stopped taking Dilantin."

• Anonymous
• April 5, 2008

"I'm 52 years old and had a grand mal seizure 4 years ago and have been taking Dilantin since without incident. No side effects. The medicine is effective and relatively affordable."

• Anonymous
• October 17, 2009

"I think I might be allergic to this medicine, as I had the hives in the evening from my scalp down."

• alm...
• May 13, 2010

"I experienced Stevens-Johnson syndrome when I first started taking this drug. It took three months of high doses of prednisone to recover."

• Ara...
• September 25, 2013

"I have been taking Dilantin for about two weeks, and so far, no problems. Hopefully, I won't have any."

• no ...
• Taken for 2 to 5 years
• December 29, 2014

"Side effects: over 5 years, losing hair, but I take it 3 times a day with other medication for multiple sclerosis."