Mercaptopurine and Pain: What Users Say

• Jo2...
• February 17, 2017

For Crohn's Disease, Maintenance "This medicine will make you feel like you've been hit by a car every day, exhausted, plus your liver and pancreas take a massive hit. I had constant pain and all my Crohn's complaints returned. I was fine on prednisone and Entocort, but my doctor wanted to make it even better. Please pay EXTREME CAUTION using this medicine before ending up in the hospital. I'm not saying this medicine is bad, but for one person, it seems extremely well or extremely bad, in my case, the worst time I've ever been through. Pay attention!"

• Anonymous
• February 14, 2017

For Crohn's Disease, Maintenance "I've been on this medicine for 2 months. I feel, most days, like I've been in a car accident. The pain is very difficult to handle. I ache like I have the flu. Thinking about not taking it and taking my chances. What could be worse?"

• des...
• Taken for 1 to 6 months
• January 1, 2019

For Crohn's Disease, Active "This medication attacked my joints. It would go from my neck one day and to my elbow the next day and to my wrists and fingers another day. It was so painful, and it took about 18 months for the pain I was experiencing to subside, but it left me with arthritis in my wrist and thumb. I did call my GI doctor and told him I was experiencing excruciating pain. He told me to keep taking the medication. I took it for over a month and decided the doctor didn't care about me, so I stopped taking it. Worst experience with a doctor and drug reaction I've ever had in my 70 years on earth. This was in September of 2010."