Liothyronine for Underactive Thyroid User Reviews (Page 3)
Brand names: Cytomel, Triostat
Reviews for Liothyronine
- Sol...
- May 15, 2021
Liothyronine "Started Cytomel 5 mg about 8 days ago. As my T3 was low. And just did not feel well. I had hair loss, weight gain, major constipation, and very irritable, dry skin. I am hoping to feel better and be more regulated in many ways. I am curious what everyone’s T3 numbers were before starting. Cytomel may be too soon for me to notice any change yet? Thank you."
- Rea...
- December 12, 2020
"I have Hashimoto's. I had been medicated on Synthroid and wanted to change after reading all the thyroid books about T3. I took NDT for a couple of years, and when I had labs done for a hysterectomy, they were so bad I had to put surgery off for a year. I then went on Tirosint and begged my endo for T3 because everyone said my numbers weren't optimal. She put me on 5 mcg, and I have taken that with 88 mcg Tirosint for over a year. I have had cycling depression the whole time and slowly put on weight no matter what I do. Recently, I had a bad flare, and my doctor said maybe it's the T3. Stop taking it. I did, and a lot of my pain and fatigue lifted. I tried re-dosing several times, and everyone in my support group is shunning me because I want to quit. I am withdrawing now and hope that is over soon. I am absolutely glad that it works for some people, but I have had all the cortisol, anemia, and other testing, and it's definitely the med causing this! It isn't for everyone!"
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- Ree...
- May 29, 2020
"I have Hashimoto's disease and have been on Synthroid and Cytomel brand name only for years. Felt great. All of a sudden, Cytomel needed prior auth, doc gave me generic. Having major bloating and constipation. Anyone else experience with Cytomel generic?"
- MEa...
- Taken for 1 to 6 months
- March 21, 2021
Liothyronine "This medication is horrible! I have had severe adverse reactions on both the brand name and generic form. Painful limp knees, tachycardia, palpitations, and all of my hair fell out! Never again will I take this medication. It’s not worth my life."
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Your review helps others make informed decisions.- Jou...
- Taken for 5 to 10 years
- April 23, 2022
Liothyronine "Taking Synthroid for Hashimoto’s and continued to have fatigue, muscle aches, and cramps. Adding Doctor generic Liothyronine was like taking nothing. Switching to brand name Cytomel 5 mcg 2x daily, I felt normal for the first time in 10 years. Muscle aches/cramping gone, good energy and mental focus returned. I have my heart under control, and I’m still on Cytomel. Hair loss I've also had, and you need to have your selenium levels tested. I had some doctor-prescribed supplements I had to stop because they contained selenium and it built up. Right now the biggest problem is that I can’t get my Cytomel Rx filled because Pfizer has some backorder that’s gone on for two months with no explanation. I have to take generic liothyronine for now; fatigue and muscle cramps are back."
- Anonymous
- Taken for 1 to 6 months
- September 9, 2012
"I have gained 20 pounds in the last 2 months, feel really hungry all the time, am having a hard time breathing for about a month now. I do not know if the breathing is from the medication, air, or allergies. My thyroid is under control, though."
- Fee...
- Taken for 6 months to 1 year
- May 11, 2019
"Diagnosed with Hashimoto's June 2018. Since I can't convert T4 to T3, I was put on Cytomel, increasing by 5 mcg every 6 weeks until my TSH was in optimal range, which took 6 months. I felt better than I did in years. Then, I became hyperthyroid but was having symptoms of both hypo and hyper. So, my dose was decreased and was told I didn't have to be seen for a year. Last month, I pleaded to have my TSH tested again. My TSH was 45.0! Thinking it was a lab error, I got retested five days later, and it was 80.1! My endo DOUBLED my dose of Cytomel (and my TSH went down to 25.0). However, I felt like I was on steroids and begged him to lower the dose. He did, but now I am gaining weight, bloating (post-menopausal, so it's not related to menstruation). I feel horrible again."
- Ela...
- Taken for less than 1 month
- May 15, 2016
"When I was first diagnosed, the doctor gave me levothyroxine, which uses lactose as a binder for the chemicals. I had a huge reaction to the pill. I felt like I wanted to get out of my skin. Bad stuff. So I started taking the desiccated thyroid, which was much better, and I have been on it for many years. Recently, one doctor changed to liothyronine. I got huge headaches that would not go away no matter what I took. In two days of taking the pills, I stopped taking it on my own and switched back to the one that I had been on for so long. The dosage now has to be increased, but at least I will not get the headaches."
- SBD...
- Taken for 5 to 10 years
- March 14, 2020
"I was put on Cytomel for drug-resistant depression by my psych. It worked great for several years, then the pharma company started buying from Canada, who bought it from India. I went downhill like a sack of rocks. Then I couldn’t get Cytomel at all and was put on generic liothyronine. It got bad enough with energy, jitters, and cognition that I now have home healthcare. Finally, after two months of not having any, I felt better. Not great by a long shot. I got a new bottle that I had hidden and started taking it again. Just like when switched to generic, I stay freezing cold for several hours, then start sweating. I think I’m going off."
- Roc...
- Taken for 1 to 2 years
- January 1, 2022
Liothyronine "Palpitations even at a small 5 mcg dose. I would use Taurine to offset palps.. Itchy pin-like sensations on arms after 1 year of use! Like needles coming out of skin! It took about 3 weeks off use to get rid of it. I use natural desiccated NP hormone during the Cytomel."
- 2Ho...
- Taken for less than 1 month
- May 18, 2022
"1st time user. Hashimoto's diagnosis. Dr. prescribed 10 mcg per day. Having a bad feeling about the dose, I took only half of the dose, and I am glad I did because the side effects were immediate and strong. My heart was racing, I couldn't concentrate at all, as if I had ADHD. I've been extremely thirsty despite appropriate hydration. Day 2, and now I have a rash on my legs and torso. I am quitting this treatment right now."
- Esp...
- Taken for less than 1 month
- February 11, 2023
"I have had hypothyroidism for 20 years, and it caused my hair to fall out in clumps and caused swelling, especially my face, which made me feel self-conscious. I am now taking liothyronine (T3) along with levothyroxine. It made a huge difference within a week of taking it. My face is back to normal, and I couldn't be happier just with that alone. My hair stopped falling out from the first day of taking it. If anyone is struggling, just don't give up and keep asking different doctors that are willing to help. It is very expensive even with my insurance, but well worth it in my opinion."
- Chr...
- Taken for less than 1 month
- June 12, 2016
"I started taking Sigmapharm brand liothyronine. Almost immediately, I got terrible tremors that last for hours. I was taking a very low dose, 25 mcg. After a week, I also got a hypoglycemia attack, and I am not diabetic. Discontinuing and going to try Perrigo brand liothyronine."
- me2...
- Taken for 1 to 6 months
- November 15, 2012
Liothyronine "This medication has been a lifesaver for me. I don't know if it works really well for depression or if I was hypothyroid, but it has saved my life, and I am so very thankful for it."
- 69m...
- Taken for less than 1 month
- June 5, 2013
Liothyronine "I have been on this for a day and my aches and pains have subsided. I will not give it a 10 because I am not 'perfect' yet."
- nas...
- June 4, 2015
"As a supplement to levothyroxine, it has been a night and day difference. I no longer sleep all the time and can think clearly. I actually want to do things now."
- Anonymous
- Taken for less than 1 month
- February 6, 2015
Liothyronine "Can't take it because my heart rate won't go below 90."
- JET...
- Taken for 1 to 6 months
- October 23, 2012
"I added 0.5 mcg to my Tirosint in August. Nothing much changed until last week when I started taking this 1 hour after my Tirosint. I have lost 5 lbs in one week! I have changed nothing else."
- Sum...
- Taken for less than 1 month
- November 26, 2019
Liothyronine "I started taking this today, due to a low T3 test result, very low dose. It made me feel absolutely insane, crazy. I couldn’t concentrate, I felt awful. I don’t think I’ll take it again."
- abb...
- November 14, 2010
"The first day I took it, my constipation and heart flutters disappeared, and my energy came back. I believe I'll need a larger dose soon, but so far no complaints at all."
- Sho...
- March 25, 2018
"Has anyone taken this for depression? I've been on it for four days, so far, no results, only feel tired. How long does it take to work?"
- Tus...
- Taken for 1 to 2 years
- August 6, 2015
"Side effects were a rash in the legs, abdomen... discontinued medication, and so did the symptoms."
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Your review helps others make informed decisions.Learn more about Underactive Thyroid
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- Acquired Hypothyroidism in Children
- Congenital Hypothyroidism in Children
- Hypothyroidism
- Hypothyroidism in Pregnancy
- Induced Thyroid Disorders
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"This hormone can be really amazing, but you have to be very disciplined with your diet because it won't absorb properly — or, your thyroid disease will progress, then you'll need more T3, and it may not get into your cells properly if you don't have good iron levels, cortisol, etc. I caution you to take this seriously, as I wish I did. You can feel far worse on a hormone if it's not absorbing properly, that is because your own T3 is suppressed while on T3, so you need to make sure your cells are receiving this hormone. I found that I could eat a lot more and still stay relatively slim, but that didn't last past the 6-month mark. I began having issues with the hormone. Also, different brands affected me differently, so that's also important to note. I always recommend eating very well: no grains, soy, dairy, egg (if you have issues with eggs), remove allergens, no legumes, no nightshades, basically AIP/clean Paleo, keto/carnivore. I highly recommend Paul Robinson & STTM."