Golimumab for Psoriatic Arthritis User Reviews

• myk...
• Taken for 2 to 5 years
• August 24, 2012

Golimumab "I was almost wheelchair-bound, every joint in my body inflamed, and lots of pain walking. Psoriasis was flaring too all over. The day I took my first shot, I could feel the joints loosening and pain lessening. Within 6 months, I was virtually pain-free and completely mobile. 2 years now, and I am riding my bike 25 miles a day, and combined with light treatment, my skin is 90% clear."

• Kar...
• May 21, 2013

Golimumab "I had been taking methotrexate for almost a year with moderate results. My skin cleared almost 80%, and my joints improved approximately 60%, however, each time I took my medication, I felt really ill for 48 hours afterwards. It was depressing. Anyway, my rheumatologist recommended Simponi. Having read the side effects, etc., I was a little apprehensive about taking Simponi, but after meeting with the Simponi nurse, I decided to go with it. After two shots (2 months), I felt a big difference, my joints were no longer stiff, and I was almost pain-free. After the fourth shot, my skin has cleared to 95%, and I have no stiffness in my joints. It really is working for me."

• Chr...
• Taken for 1 to 6 months
• January 4, 2020

Golimumab "Was doing fine for about 12 weeks. Then I broke out with a whole new form of palmoplantar pustule psoriasis, and my regular plaque psoriasis came back almost vengefully to the point where my skin feels like it is burning. I had my first infusion in August, then again the second one 4 weeks later, and by the middle of my 8-week stretch was when these rashes happened. My first three days after the infusion, I experienced vomiting and extreme tiredness, but overall I felt fine. The second infusion was pretty much the same, but then all this happened. I am so sore on my hands and feet it feels like I am walking or touching broken glass. I have to wear vinyl gloves to keep the moisture on my hands and keep my feet wrapped with non-stick gauze and taped and covered so I don’t develop a secondary type of infection from something else. I can’t take the pain, so my husband has pushed me to hire a cleaning lady to do my housework because all I am able to do is lay around. This is no way to live."

• Anonymous
• December 15, 2009

Golimumab "I've been using Simponi for psoriatic arthritis for 5 months. Before that, I was using Enbrel. I had a small amount of psoriasis on my scalp before starting Simponi, and now I have much more. I like the once-a-month injection, but believe I'll be returning to Enbrel soon, as I believe it did a better job."

• Emm...
• Taken for 1 to 6 months
• July 10, 2018

Golimumab "No pain or skin issues after 3 days, but about 2 weeks after the first injection, I got sick for the 1st time. The fatigue set in at week 3. I was well again at week 4, right in time for my next dose. Once again, by week 3, I was sick with the worst throat/adenoid infection that just wouldn't quit. The fatigue is life-changing. Dr. took me off after my second throat infection in 6 weeks."

• Ton...
• April 10, 2021

Golimumab "I'm exactly 19 days after the first Simponi Aria infusion. I'll never take it again. I've developed some type of viral infection in my inner ear/vestibular nerve that put me in the hospital for four days. Woke up at 3 a.m. on day 14 with extreme tinnitus, dizziness, vomiting, and now deaf in my left ear. I believe the Simponi caused this virus/sinus infection/labyrinthitis to go bat crazy. Today I'm still 100 percent deaf in my left ear with screaming tinnitus and very dizzy when standing. This causes infections that you may already have to go off the charts. But how would you know if you have some kind of infection starting? As far as my back pain, it has gone... but maybe because I've been laying in bed for a week. I don't know. Think very hard before taking Simponi. I know many have received relief from it. Weigh out your risk to reward with it."

• Kev...
• October 12, 2015

Golimumab "It seemed to work well for me right from the start. I had been on Remicade previously, but I had to quit due to losing my insurance. By the time I went to Simponi, I was hurting pretty bad. Unfortunately, it stopped working after a while (18 months), but that has been my personal experience with biologics. When it worked, it worked well."

• PsA...
• Taken for 6 months to 1 year
• January 30, 2020

Golimumab "I tried Simponi for 9 months for psoriatic arthritis. At first, it was like a miracle. Then the pustular psoriasis started on my legs, my hair started falling out, and my mood got very strange. Bloodwork showed super high cholesterol, which was 3 times what it ever was. Psoriasis flared worse than ever all over my body. My skin has never gone back to normal. Terrible, scary drug. Wish I'd never tried it."

• Jim...
• Taken for 1 to 2 years
• May 9, 2021

Golimumab "Started infusions of Simponi Aria about two years ago when Medicare wouldn’t cover Enbrel, which worked for me for 20 years. At first, the infusions seemed to work. Then, about 6 months ago, I came down with pneumonia, followed immediately by shingles, both caused by a lowered immune system. A month ago, I came down with pneumonia again, also caused by a lowered immune system. I believe this drug is dangerous and would rather deal with the pain than risk my life."

• Han...
• Taken for 1 to 6 months
• September 22, 2019

Golimumab "I received Simponi Aria infusions from 12/2018 to 6/2019. I’ve had 4 UTIs, the last infection on 9/2019 went to my kidneys. I was hospitalized with sepsis. Now I’ve been referred to a hematologist due to high myelocytes. I always feel sick, tired, weak... I’ve also been prescribed Lipitor for extremely high cholesterol. I’m a vegetarian and eat healthy. I’ve never had these problems prior to Simponi Aria infusions."

• Anonymous
• October 2, 2009

Golimumab "My husband took his first dose last month and is getting ready to take his second dose in a few days. While I think the drug is working, the Patient Cost Support Program is difficult to deal with, and we are still struggling to get reimbursement."

• Pip...
• Taken for 1 to 6 months
• July 8, 2015

Golimumab "I have now just taken my 4th injection. I'm as bad as I was, if not worse than when I was first diagnosed. I can barely walk, have swelling in my toes, feet, and ankles, as well as my left knee. Also in my elbows, wrists, hands, and fingers... I have bad psoriasis on my scalp. I don't think this medication is very good at all and have shown no response to the previous 3 doses, and this dose I have been nauseous ever since taking it. I was on Humira previously for about 5 years, but I stopped responding, and Enbrel I had really bad reactions to... Hoping for something new when I go back to the specialist at the end of the month."

• Ben...
• Taken for 1 to 6 months
• June 9, 2023

Golimumab "I’m currently in the hospital suffering with intractable hip pain and a UTI. I received my 2nd infusion of Simponi Aria last week. I got deathly ill a few days later and couldn’t even walk from the pain. I’m going to have to go to rehab because after 5 days in the hospital I still can’t put any weight on my left hip. I will never take another infusion of this medication. Pain has been worse than childbirth!!!"

• Tho...
• Taken for 1 to 6 months
• January 27, 2021

Golimumab "An absolute life changer. From living in excruciating pain each day and struggling to get out of bed - to being absolutely pain-free in a matter of only 3 months. No limitations as to what I can do physically, and the psoriasis on my scalp has cleared significantly. I have slight hand tremors, but that causes me no trouble and may be due to other causes (23 years old, dosage once every 4 weeks)."

• rrs...
• December 5, 2017

Golimumab "I was on Remicade infusion for 7 years, I had wonderful results for 6 years, with PSA flares slowly creeping back in the 7th, but not unmanageable. Rheumy switched me to Simponi. After 2 injections, while my skin is still clear, the PSA is raging. I am in terrible pain. I spoke to my Rheumy once, and she said to give it a chance. Calling her again this morning. The pain and exhaustion are debilitating and affecting every aspect of my life. I asked her about Taltz and Cosentyx, but she wanted to keep me on a TNF blocker. I'm ready for change."

• jen...
• February 7, 2014

Golimumab "I took Simponi for 8 months before stopping to get pregnant with my son. All of my symptoms had disappeared, and I was 100% flare-up free. However, after having my little guy and starting the Simponi injections again, I have not had any relief from my psoriasis and have experienced 2 flare-ups even after upping my dose to every 3 weeks. How can it have worked so well and now not well at all? I have requested an appointment with my rheumatologist to discuss other biologic medicines."

• Han...
• Taken for 6 months to 1 year
• August 19, 2019

Golimumab "I’ve been on Simponi Aria infusions. They have helped with pain and stiffness for approx. 4 weeks. I take prednisone for breakthrough pain. Sometimes I sleep for 72 hrs because of fatigue. Have had to add another HBP Rx! Praying for strength to discontinue."

• Bar...
• February 9, 2023

Golimumab "I have been taking Osimponi since November 2022 for psoriatic arthritis spondylitis. I have been experiencing chronic fatigue, shortness of breath, infections, low hemoglobin, dizzy spells, and high cholesterol. It has also made me sick every day to the point I can hardly eat due to chronic nausea. Will not be taking next month's injection. Horrendous experience."

• non...
• Taken for 1 to 6 months
• January 16, 2022

Golimumab "I tried the injection once before after coming off of another biologic that made my symptoms worse. I did not really give it a chance as I did not seem to get any better. I was frustrated with my symptoms and took myself off of everything for 3 months. I had terrible joint pain, could not open anything up, and severe rash flare-up, so I tried it again with better results. So far, I will be on my second consecutive dose shortly. The only thing I have found odd and maybe unrelated is heart flutters and an upset stomach."

• ian...
• Taken for 5 to 10 years
• November 23, 2023

Golimumab "This medication has been a life changer. After years of medications that seemed to have no major effect on my condition, there was a very noticeable improvement in my affected joints from the very first dose. I have suffered no side effects and have found both types of injections easier to administer than I imagined."

• can...
• Taken for 10 years or more
• December 16, 2022

Golimumab "After taking sulfasalazine and Celebrex for years (also worked quite well)... Started my first biological, Simponi, 13 years ago, and it was a life changer. I have lived pain-free and clear skin since the day after I took my first shot. I know for me it gave me a quality of life I had only dreamed about for years. Wouldn't change it for anything. Sometimes the risk brings rewards. This was the case."

• Kel...
• Taken for less than 1 month
• December 24, 2019

"I started on Simponi 16 months ago and got the Simponi infusion every 2 months. Mid-summer I suddenly got underarm itching and now, 6 months later, I have severe itching on my back, neck, shoulders, and abdomen. I bleed from scratching and then scab all over those areas. But there is no rash or hives. Unfortunately, last week I had another infusion and wish I hadn’t. Needless to say, I’m miserable, to say the least. I’m scratching incessantly and have been to 5 different medical specialists who are not sure what is causing it. Has anyone else had this problem? Thanks!"

• Anonymous
• Taken for 1 to 6 months
• December 10, 2021

Golimumab "I have gotten worse while taking this drug. My skin is far worse, and I’m incredibly itchy. I’ve suffered 2 severe middle ear infections and pustule psoriasis that I never had before in places I never had problems. I took 4 doses altogether. The side effects are not worth it for me. I’m happy it works for some people, unfortunately, I am not one of them."

• wor...
• Taken for 1 to 6 months
• July 6, 2013

Golimumab "No pain after the second injection. 98% clear. Only side effect so far is nausea at times. Love this so far. Humira and Enbrel caused bad site reactions."

• Cat...
• Taken for 1 to 6 months
• July 19, 2017

Golimumab "Worked okay on aches and pains, but really messed with me mentally. Made me very depressed and socially withdrawn. I feel more fatigue and a lot of headaches."