User Reviews for Gabapentin
Also known as: Fanatrex, Gabarone, Gralise, Neurontin
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care. Learn more about Gabapentin.
Reviews for Gabapentin to treat Trigeminal Neuralgia
"First prescribed gabapentin for trigeminal neuralia 25-30 yrs ago. It was great! Since then I have used it anytime Tylenol couldn't control any pain. Usually extreme stiff - sore muscles. I always worried I would build up a tolerance for it - consequently having to continually increase the dosage. To prevent this I never take it constantly and always get off it asap! Tremors are getting worse & I have never tried it for this condition. Just never occurred to me to try it. I will start tomorrow if it helps I'll not take a second dose until the tremors return. Treating as needed - not constantly. Hoping to ward off the tolerance factor. If the tremors are just an occasional nuisance - I can live with that."
Raef (taken for 10 years or more) September 11, 2017
1 users found this comment helpful.
"Diagnosed with TN one week ago. Pain so bad while on vacation in August, I could not function. Searing hot pin pricks on the entire left side of my face. ER doctor suggested TN or a sinus infection. After a week, the symptoms all but disappeared. After several weeks I started to get twinges of pain around my left upper lip area which progressed to include the whole left side of my face. Thinking this was all about my teeth I saw my dentist. He took x-rays and did an examination and told me he thought I had TN. My NP too suggested TN and will be referring me to a Neurologist. In the meantime I am taking Neurontin 300mg 3x each day. The pain did not stop but has gradually lessened over the 1st week. Looking forward to pain free days!"
Downeast (taken for less than 1 month) October 6, 2016
23 users found this comment helpful.
"I was given this med for TN pain, after I went to my dentist and he found nothing wrong with my teeth. That same day, my dentist called my GP. GP got me in right away. I was sent for facial x-rays to check for sinus infection, nothing. So my GP made several calls and got me into a neurologist, in the mean time, he asked her what he could give me for pain since at this point I had lost 10 lbs and was missing work. They put me on Gabapentin and Amitriptyline. It took a couple of days, but wow, when it started to work it was AMAZING for pain relief. They have upped me to 600mg 3 x a day and now at about three everyday I am a little high. But, the best side effect ever has to be that a my pain, anxiety, period cramp pain and insomnia are gone!"
Miss Emme (taken for 1 to 6 months) March 24, 2016
38 users found this comment helpful.
"I am a nurse, never thought it would help, I had to retire. I awoke the second day with out a crippling head ache and facial pain. I really am able to do more and hurt so much less. I love it."
TMJ and TN , Fibromialgia, October 23, 2015
33 users found this comment helpful.
"I have suffered from intermittent Trigeminal neuralgia for 30 years, undiagnosed until 10 years ago. Mostly I've been treated with trileptal, but with the last two bouts I suffered from low sodium as a side effect as well as edema. The trileptal was not controlling the symptoms well. My doctor added gabapentin which immediately helped and allowed me to ease off the trileptal."
jlup July 18, 2015
27 users found this comment helpful.
"I was diagnosed with Trigeminal Neuralgia around my left ear and neck and prescribed Neruda which is Turkish pills including Gabapentin. I started taking 300mg first day, 600mg on 2nd day than 900mg on 3rd and following days. After 3rd day it cut off my pain immediately. But after 1 month pain started again but this time at the right side of my head around my ear. I started using this medicine again and this time it diminished the pain level a bit but didn't really cut it off. Hoping to get well again."
AWACSMAN (taken for less than 1 month) April 30, 2015
19 users found this comment helpful.
"I have had TN since 1997, and remember only needing 100 mg tid for years...but had to gradually increase that as the pain got more frequent and stronger. I am now taking 800 tid, and if the flare is bad, my neurologist says to take it 4 times a day. It is still helping control the pain, and I have been able to work and live normally. My dentist lets me cancel & reschedule if I'm having a flare. I even have some Emla cream to put carefully on the facial area that is most sensitive. There is also something called Warm Skin that a person can use in the winter, if you live in a cold region. That helps, too. I went to one national mtg and a woman was selling scarves with small pockets in them, to put handwarmer packets in! I'm glad I bought one."
Les J. (taken for 10 years or more) February 20, 2015
26 users found this comment helpful.
"I have had trigeminal neuralgia for about six years, I am 32. Luckily for me the pain has been bearable and I felt I had not needed medication until this year (2014) when the pain became really agonizing. I have been pain free since starting the med. Every now and then I will get a little twitch or pinch from the trigeminal nerve, but nothing like the shooting pain I was having before. I take 300mg every night before bed. Recently, there was a mix up with the prescription refill and my insurance, and due to these circumstances I went about a week without taking the medication. The trigeminal pain slowly came back and became more and more intense during the time I had run out. This medicine is great, pain went away soon after taking it again."
Hello415 June 4, 2014
80 users found this comment helpful.
"I began experiencing trigeminal neuralgia a few years after chemo. I had 5 courses of bleomycin, Velban and Cisplatin (1980s) When I first took Neurontin to control the pain I was taking 900 to 1200 mgs per day. As the symptoms decreased in frequency I weaned off and now take it only when needed. I can feel the changes in my skin when its going to start. I don't wait for the shooting pain, I now take 300 mgs gabapentin at the slightest tingling of my scalp. It helps tremendously. The only problem is saying whatever comes to mind , especially when taking prednisone at the same time."
petey from NJ January 30, 2014
51 users found this comment helpful.
"All branches of the Trigeminal firing with chewing, talking, brushing teeth, etc. Neurontin works wonders. I'm taking 400 mg every 3 to 4 hrs...with relief after 3 doses. HAVE TO TAKE IT REGULARLY. Have taken even higher dose when I had very painful bouts (for 10 yrs) and also had glossopharngeal (9th nerve) neuralgia. Breathe and exercise to keep centered and balanced. No bad side effects like many other medicines I've tried. "
Tyroli January 8, 2014
67 users found this comment helpful.
"Diagnosed with Trigeminal Neuralgia 12 yrs ago and put on Neurontin(Gabapentin). This worked well for me and I rarely had an incident of Trigeminal N. pain. I've backed down from my 3x day 600mg dosage over the yrs to a 2x 300 mg. with good affect. Recently at age 72 I had a stroke which left me with aphasia and apraxia. My body was relatively unaffected, but my speech is a big problem. Neurologist suggested slowly coming off Gabapentin. I gradually skipped a dose now and again to get to the point of no Gabapentin. Shooting hot pain returned in my temple and down the right side of my face. Back on Gabapentin. This was a good reminder to me as to how much misery Gabapentin was protecting me from. Love Gabapentin!"
REO1923 October 2, 2013
80 users found this comment helpful.
"I found that Gabapentin & Topamax reduced my Trigeminal Neuralgia pain by far but I couldn't think straight. So I stopped taking them and now I am in daily pain."
Trish /-: (taken for 2 to 5 years) April 24, 2013
51 users found this comment helpful.
"I am now 79, but had trigeminal neuralgia attacks for at least 35 years. I would get an unprictable jabbing pain on either the right or the left side of my face about once or twice a year. For years I did not know what caused it and simply toughed it out. It was usually gone after about a week or so. About ten years ago I mentioned it to my family doc who sent me to a nerve specialist. He diagnosed it right away and prescribed Neurontin. Now, when I feel the first jab coming on, I take one or 2 pills and follow it up with additional pills until the pain goes away, usually in 2 or 3 days. "
Rosentrekker (taken for 5 to 10 years) August 19, 2012
76 users found this comment helpful.
"I was prescribed Gabapentin 300MG two to three times daily in conjunction with Percocet for pain related to Trigeminal Neuralgia. Taken together the pain was reduced by two thirds and became more of a dull pain as compared with the constant, sharp, burning red hot poker pain I had been experiencing. I noticed no ill effects from this combination. I was able to function, multitask, strategize and work as a purchaser without problem. I felt a little more carefree than is usual but this did not seem to transfer over into any decision making. The only drawback was that together this combination was only effective for four hours at a time."
Anonymous December 11, 2011
63 users found this comment helpful.
Neurontin (gabapentin): "I have been on Gabapentin for a few years now and I have found it helping control the Trigeminal Neuralgia pain with 800mg 3x daily. However, also have found that if I forget to take it consistently, the pain returns immediately. I am hoping that it will continue to work for as long as needed. Research I have done indicates that one usually can come off the medicines after 1 yr and that the pain does not return, but have not been so lucky. I have not had any other side effects so far with it nor any other medication I have been prescribed for conditions. One word of note, this medication did help but only after being on it for at least 2 weeks, so my recommendation would be - give it a chance to work when starting this medicine."
DeeDeeT April 21, 2011
119 users found this comment helpful.
"This medicine does not help me at all with Trigeminal Neuralgia. "
Anonymous March 14, 2011
35 users found this comment helpful.
Neurontin (gabapentin): "I was diagnosed with Trigeminal Neuralgia if Feb. 2005. The pain associated with this is excruciating, to say the least. I have never had such pain in all my life. Just two nights ago I was in the ER with another episode. The doctor prescribed me Neurontin. I slept so good last night! The first good night's sleep I have had since I can remember. My episodes happen unexpectedly and it could happen at the drop of a hat. Then I might go a year before another "attack". I just never know when this will occur. But I do know one thing, I would not wish this on my worst enemy. I am praying that the Neurontin will help subside the "attacks" and the horrible pain associated with Trigeminal Neuralgia."
itsmel65 January 5, 2011
100 users found this comment helpful.
Neurontin (gabapentin): "I have had trigeminal neuralgia since early 2009. I initially tried Tegratol but was unfortunately allergic to it (anticonvulsant hypersensitivity syndrome). Thankfully I was eventually given Neurontin. I am currently on 1200mg three times daily and it is working in conjunction with paracetamol. It has given me respite from the pain and hopefully will continue to do so until I have my operation in late May 2010."
Anonymous May 5, 2010
56 users found this comment helpful.
Neurontin (gabapentin): "Had post herpectic trigeminal neuralgia (one of the worst cases in history according to my doctors). Began treatment with medications available in 1995, which almost destroyed my endocrine system. I tried Neurontin when it came out and today find I can control what used to be chronic burning pain down the side of my face from my scalp to my upper teeth across my right eye with 600 mg of Neurontin taken before bed."
gdk October 3, 2009
95 users found this comment helpful.
"I've had pins and needles in both hands from a pinched nerve in my neck. Muscle relaxers, stretching, new pillow, heat, nothing was working. This works really well."
Anonymous April 18, 2009
36 users found this comment helpful.
"Once my doctor prescribed this medication my pain was relieved within days. I have not had any problems since."
Anonymous April 17, 2009
31 users found this comment helpful.
"400mg life saver for normal flare ups but not strong enough for bad attacks. Good when used in conjunction with Topamax"
Anonymous March 13, 2009
28 users found this comment helpful.
Neurontin (gabapentin): "Only taken this for a little over a week but the severe, intense pain is gone, and I'm really hoping it works for my migranes as well."
Anonymous September 18, 2008
92 users found this comment helpful.
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