Faslodex and Bone Pain: What Users Say

• Ano...
• January 18, 2012

For Breast Cancer, Metastatic "I was diagnosed with Metastatic Breast Cancer five years ago and have been on Faslodex for four years, which has made my cancer stable. The side effects I experience are: sweating, hot flashes, severe bone pain, nausea, fatigue big time, constipation, etc. It is worth it to me because it is all tolerable, and the other alternative is my cancer would start growing again. I call this my chemo because it is stopping my cancer. I am also losing all my teeth because of dry mouth and don't know if that is from the Faslodex or the harsh chemo I was on before."

• Tou...
• Taken for 1 to 6 months
• October 9, 2021

For Breast Cancer, Metastatic "I was relatively stable despite mets in bone. I was able to walk and function reasonably well. After the first fulvestrant, I had digestive problems and tiredness. After the second, I had bone pain (new mets) and generalized muscle pain, especially shoulders. Trigeminal neuralgia, possibly from brain mets and new breast lesions. I feel as if this medication has finished me off. Doctors do not take these bad outcomes seriously, the attitude is that it was going to happen anyway."

• Sun...
• Taken for 1 to 6 months
• October 16, 2019

For Breast Cancer, Metastatic "I was diagnosed with stage 4 breast cancer, mets to bone, this past April. I have been on Faslodex (5 months), Xgeva (4 months), and Ibrance (2+ months). My Dr. has weaned me off everything because of side effects of EXTREME fatigue, weakness, nausea, shortness of breath, bone pain, dizziness, low white blood cells (WBC), which is from the Ibrance. I can tell the Xgeva was responsible for the majority of my weakness, but the Faslodex still has me so weak that I want to buy a walker. I can also tell you that my nurse warmed my shot for 20 to 30 minutes and gave me my injections high on my butt, with no weight on the corresponding leg, and that I had no pain whatsoever. I also used Biotin mouthwash per dentist. I have two weeks until Faslodex is entirely out of my system. It did work in healing my lesions per my CT scans, it's just the side effects were too debilitating."

• Swe...
• Taken for 1 to 2 years
• December 19, 2020

For Breast Cancer, Metastatic "I've been on Faslodex for 2 years. Diagnosed with pleural mets. Yes, there are side effects; moody, bone pain, flu-like syndrome for a few days...BUT all are managed well. I also take Verzenio. My liver functions are fine, and my disease has not progressed at all. It's tough at times, but worth it."