Eslicarbazepine and Headaches: What Users Say

• Luk...
• October 14, 2015

For Seizures "This medicine works well. I think it works better as an add-on, though, than by itself. I took it by itself, 600 mg, and it completely got rid of my seizures. I had some bad side effects, though, which included terrible headaches and lots of sweating. It was unbearable. I went down to 200 mg with another seizure medication (Lamictal) and am currently seizure-free and doing much better. The side effects from Aptiom have completely gone away. If this drug gives you side effects at a high dose, try it as an add-on therapy with a low dose of another medication. Being on two medications, both at low doses, will probably give you fewer side effects. Also, it is very expensive. You can get a little help from the company, though, if you call them."

• TJs...
• Taken for 1 to 6 months
• March 26, 2016

For Seizures "I have been taking Aptiom 800 mg once daily for 2 months. So far, I experience headaches and dizziness, but I know it's the medicine, so I live with it for now, hoping that will all go away. I also take Vimpat 150 mg twice daily, with other problems that may or may not be associated with that medicine. Aptiom is great so far. It controls my Grand Mal seizures better than anything has in 35 years. My family tells me I have turned into Mr. Nice Guy overnight. I'm having a good experience so far."

• Anonymous
• Taken for 1 to 6 months
• February 21, 2020

For Epilepsy "I have been on Dilantin for nearly 15 years. Currently, I have been seizure-free for 10. My neurologist put me on Aptiom as he planned to take me off medication altogether. It was fine until I had to double the dosage. The headaches are extreme. There is some random numbness in my extremities. I also have random tremors. The side effects have been scarier than the seizures. I came off of it for weeks and still have the side effects. I think this med is great in a small dosage, but that’s it."

• Epi...
• Taken for less than 1 month
• July 18, 2018

For Seizures "It's been 5 years since I've had a seizure. I was on Aptiom before, and it made me feel wonderful, but I'm not feeling like myself now. I feel constantly nauseous and have a constant headache. However, I did find this grant that will help with the payment of Aptiom if you meet the financial requirements. Check it out online."

• mb1...
• Taken for 1 to 6 months
• August 17, 2019

For Seizures "I’ve been on Aptiom 800 mg for around 2 months now. Previously, I was on lamotrigine, which caused daily headaches, weekly migraines, skin irritation, haziness, and trouble sleeping. Switching to Aptiom has definitely helped with the decrease of side effects, which have been around weekly headaches and trouble sleeping. I also should note that I do not get my period anymore. I am a 21-year-old who has never missed a period before taking this drug. I have confirmed through urine tests at my GP and on my own that I am not pregnant. So, I am currently waiting to see my neurologist to talk about these issues. Just figured I should put this out there in case others were thinking of taking this drug. It is also SUPER expensive, costing me around $350 a month in Canada, luckily, I have private insurance through work, so they cover 80%. I have been seizure-free since going on any anti-seizure medication, so I can’t really compare the drugs I’ve tried to that."