Eslicarbazepine User Reviews & Ratings (Page 2)

• Dar...
• Taken for 1 to 6 months
• April 10, 2019

Eslicarbazepine for Epilepsy "The seizure control is great. One big problem with this drug is that it can cause hypothyroidism. My son was hypothyroid before going on this medication, and now it has dropped his levels drastically even when he is on thyroid medication. If this doesn't improve with more thyroid medication, he will have to stop the Aptiom. I hope this doesn't happen because it's the only one he can take."

• Atl...
• Taken for 1 to 6 months
• March 1, 2018

Eslicarbazepine for Seizures "I was using 800 mg Aptiom samples for about two months, and they worked great. Pros: no seizures or auras, fewer side effects, and once-a-day tablets. Cons: way too expensive!! ($500 a month) and nausea... but only lasted a month. Wish my neurologist had told me the cost before getting off Keppra and getting my hopes up with Aptiom. Doesn’t make sense. Next, oxcarbazepine."

• Bec...
• Taken for 2 to 5 years
• March 27, 2023

Eslicarbazepine for Epilepsy "I have been on Aptiom for over two years for temporal and frontal lobe seizures. I was taking 800 mg once daily, but I have changed to 600 mg twice daily. I also take lamotrigine 100 mg twice daily. I have fewer seizures, but I do have migraines at least once a month, and I do experience stomach tremors. Twice I had to go to the ER because of the tremors being so severe, but still, less than I would have had to go for the seizures."

• Unh...
• Taken for 6 months to 1 year
• November 25, 2021

Eslicarbazepine for Epilepsy "My experience with Aptiom has not been good. For one thing, it does not control my seizures. I would say maybe worse. I am on 400 mg a day. I know this is a low dose, but if I take more, it makes me angry and nuts. An hour after I take it, I change personality. I go way back into my memory and, of course, not the good memories. It is really hard to function when this happens. My anxiety is also worse on this. I was told that a person who suffers from mental illness like anxiety and depression and others should be leery of taking Aptiom. I don't know if this is true, but for what it does to me, I wonder. Hopefully, my doctor can find another anticonvulsant that works. I am running out of ones to try. My next step after all my options are up is to go to natural remedies."

• Apt...
• Taken for 2 to 5 years
• November 23, 2021

Eslicarbazepine for Seizures "I have medication-resistant epilepsy, and Aptiom was the medication that worked for the longest time. It was expensive, but insurance was willing to cover it. It made me tired, which was rough since I had to take it twice daily. It was also the medication I was on the longest before the resistance kicked in."

• Gre...
• Taken for 1 to 2 years
• November 7, 2021

Eslicarbazepine for Epilepsy "I was started on this because nothing else would work, and yes, there are side effects I have to deal with. I was always weak in the stomach, but now when my stomach trembles, I projectile vomit. So being dizzy and having my stomach trembling scare me. The migraines come about two times a month, and they are debilitating, to say the least. I'm not sure which is worse: the seizures or the side effects. I take 400 mg twice a day to keep my levels steady, but I've begun to feel uneasy in my emotions as well. I cry a lot or get angry for no reason. Not sure if I'll continue on this. Also, I had to fight my insurance to pay for it, or it would cost me $2,000.00 a month. Who can afford that? Now I pay $200 for a three-month supply."

• mb1...
• Taken for 1 to 6 months
• August 17, 2019

Eslicarbazepine for Seizures "I’ve been on Aptiom 800 mg for around 2 months now. Previously, I was on lamotrigine, which caused daily headaches, weekly migraines, skin irritation, haziness, and trouble sleeping. Switching to Aptiom has definitely helped with the decrease of side effects, which have been around weekly headaches and trouble sleeping. I also should note that I do not get my period anymore. I am a 21-year-old who has never missed a period before taking this drug. I have confirmed through urine tests at my GP and on my own that I am not pregnant. So, I am currently waiting to see my neurologist to talk about these issues. Just figured I should put this out there in case others were thinking of taking this drug. It is also SUPER expensive, costing me around $350 a month in Canada, luckily, I have private insurance through work, so they cover 80%. I have been seizure-free since going on any anti-seizure medication, so I can’t really compare the drugs I’ve tried to that."

• Pau...
• Taken for 1 to 6 months
• September 11, 2022

For Seizures "For the first 3 weeks, this seemed to be helping with zero side effects. However, by week 4, when I was on 1200 mg once a day about an hour before going to bed, I started to get severe daytime fatigue, anxiety that was causing balance problems that stopped me from exercising, and also had swelling and discoloration around my eyes, swelling in my mouth which was causing occasional difficulty breathing, although I already had this a bit due to Eustachian tube dysfunction. A neurologist and seizure specialist nurse agreed that I should decrease my dose to 800 mg. Unfortunately, the side effects didn't subside, and there were some mix-ups between my doctors and pharmacy that kept leaving me with no medication, so I decided to start titrating my dose down by 200 mg a week, and the side effects started to reduce when I was taking 400 mg. I stopped taking it completely for about a month, but I'm now trying it again from 400 mg, and after the first few days, I'm more positive that this could be the medication for me."

• Anonymous
• Taken for less than 1 month
• March 7, 2022

For Epilepsy "On eslicarbazepine 400 mg since one week. The side effects (dizziness) are not too bad. It is much better than Keppra or Vimpat. Let's see how it goes when my dose increases to 600 mg. My seizures have reduced, and I feel better. I have been on Tegretol for 20 years, but it finally affected my liver, so I had to change."

• Gee...
• Taken for 1 to 2 years
• October 15, 2017

Eslicarbazepine for Seizures "Taking Aptiom, Dilantin, and Quetiapine. Nocturnal seizures due to Tuberous Sclerosis Complex (TSC). Difficult to control seizures with any meds. I think Aptiom helps most of the time, but may have several seizures suddenly for 5+ days in a stretch... then nothing for a couple of weeks. Feel very on edge and am severely thirsty, especially after bathing. Doctor doesn't respond to my concerns as he seems challenged by my situation. Hope to get a referral to a Tuberous Sclerosis Complex (TSC) clinic close to home, hoping to find other meds."

• xhu...
• Taken for 1 to 6 months
• June 20, 2024

"I've been taking Zebinix (eslicarbazepine) for only one month and a half and I'm feeling SO satisfied with this medication. Docs couldn't diagnose me with neuralgia and didn't take my pain seriously until it was too late. Going to school was so challenging and with the extreme pain, I wasn't feeling myself, I wasn't able to do daily activities such as going out, brushing my teeth, and drinking water without pain. And when I was diagnosed by my neurologist (I have MS btw), she prescribed to me Lyrica (pregabalin) and carbamazepine (A HUGE FAIL, NO EFFECTS), after that, I went to the ER and a random neurologist gave me corticosteroids (1g for five days) which was the WORST DECISION ever. Why? The effects were instant and fantastic but SUPER addictive, the symptoms had worsened SO BADLY if not taking them every ~24 hours. After decreasing the dosage every day, 3 weeks ago, I finally took the last dosage of corticosteroids while taking in the same time Zebinix. And I FEEL OKAY AND HAPPY!!!"

• Ken...
• May 17, 2016

Eslicarbazepine for Seizures "1200 mg at night has helped my nocturnal seizures greatly from happening."

• Joe...
• July 3, 2019

Eslicarbazepine for Epilepsy "Side effects experienced: rash. Waking up in the middle of the night. Low NaCl. Very expensive. Tegretol less side effects, same drug, less expensive!"

• Ale...
• November 14, 2018

Eslicarbazepine for Epilepsy "Seizure control okay so far. Mild skin rash from 1200 mg once a day. Will ask doctor about either reducing dosage or taking 600 mg twice a day."

• big...
• Taken for 1 to 2 years
• July 28, 2020

Eslicarbazepine for Seizures "Been on Aptiom for about a year at a dose of 800 mg. I had 2 seizures in a year on a dose of 800 mg a day. It is very expensive, doc bumped up to 1000 mg a day now. New doc and will be leaving Aptiom."

• Dha...
• Taken for 1 to 2 years
• May 7, 2017

Eslicarbazepine for Seizures "Taking 1200 mg once a day makes me feel much more peppy."

• Anonymous
• Taken for 1 to 6 months
• November 15, 2022

"Help control pain from trigeminal neuralgia very well for 6 months, then I think my body got used to the drug, and pain gradually came back. Waiting to review with the consultant."

• Anonymous
• Taken for 1 to 2 years
• November 26, 2024

Eslicarbazepine for Epilepsy "I started Aptiom at a low dose... but at a higher dosage with Dilantin helped a lot. Only problem is the cost... So now I am looking for another med."

• Ver...
• Taken for less than 1 month
• February 21, 2018

Eslicarbazepine for Seizures "I’m about to start taking Aptiom 200 mg! I read so many reviews on this medication and hope it will help with my seizures!"