Doxycycline for Lyme Disease User Reviews (Page 3)

• Vir...
• Taken for 1 to 6 months
• August 27, 2017

"Never saw the tick, but saw a quarter-sized rash with a distinct edge on my leg, so went to my doc immediately. Was put on a 2-wk course (100 mg twice daily). Dr. told me I could take it with food. Then had 2 wks off it (on vacation, and lab took forever to turn around my blood work). Tested positive for Lyme; Dr. put me on a 2nd 2-wk course. Since it's absorbed better on an empty stomach, started taking it that way. No ill effects, no nausea. However, blood tests still positive. Did a 3rd round; still have Lyme disease. Am now on my 4th 2-week round and am seeing a specialist in a few days. Worried that it's not working, but hopefully I just need a longer course. No side effects other than exhaustion."

• wei...
• Taken for less than 1 month
• October 6, 2015

Doxycycline "Having contracted Lyme disease, I was given a 2-week regimen of Doxycycline, only a day before I traveled to Cyprus on vacation. Being told by my physician that I should be careful with sunning, I stayed inside during the day, coming out in the evening. However, the heat alone made me, within two days, break out with large, but not painful blisters on my hands, fingers, and toes. Sandals were then used as I could not get into my shoes. Calling my doctor, I was told to stop the treatment immediately, which I did. It took me three weeks to get rid of the blisters, but obviously, I cannot rate the effectiveness of the medicine as I cut the use of the pills within the first week."

• RIL...
• October 25, 2017

"I began to feel ill in mid-June 2017. Muscle aches, mild fever, severe headaches, imbalance, and just out of it. I could feel the veins in my head throbbing. It felt heavy. I saw my primary care who said I was coming down with something. Sent me for some blood work and referred me to a neurologist for the severe headaches. I saw the neurologist at the end of July (earliest appointment due to a cancellation). I was sent for an MRI, normal. Sent to an ENT, normal. Sent to my eye doctor, normal. In October, I finally had a West blot and other tests done and came up positive for Anaplasmosis. Began doxycycline for 12 days. Headaches have seemed to go away but still having some issues. Next visit is with the Lyme specialist."

• Fin...
• Taken for less than 1 month
• May 3, 2021

"I was prescribed a 3-week course. Within a couple of days, I had feelings of dissociation, suicidal thoughts, and felt my family has been replaced by other people. Personality change, impulsiveness, episodes of lots of energy, hearing voices. Mostly all resolved after stopping it."

• Sop...
• Taken for less than 1 month
• August 2, 2022

"I’ve only taken this for a couple of days, and I’m so glad I read the reviews on here. Having severe depression since starting this. It is so scary to feel this way that I can’t risk taking another dose. Contacting my doctor to find a different treatment. Please be careful with this drug."

• Car...
• Taken for 6 months to 1 year
• September 19, 2021

"In 2017, I was first prescribed Doxycycline 100 mg for an acute Lyme infection. I had a positive western blot. I struggle with CRPS, fibromyalgia, spinal stenosis, scoliosis, disc herniations, arthritis, and much more. It is very hard to decipher when I would have a Lyme flare but picked up on it this year. If I take 2 doxycycline, I feel a lot better, just once a day doesn't do much. I cannot take the IV medication they offered me at the hospital as I'm allergic. Lyme is a lifelong sentence if you do not have an obvious tick bite. Please do your due diligence and especially keep kids safe!"

• Luc...
• Taken for less than 1 month
• March 8, 2023

"It's probably helping the spot on my leg, but it's making me feel worse in every other aspect. Vague headaches, brain fog, an uptick in the volatility of past mental health issues, diarrhea, cramps, nausea, vomiting, I've got it all. This is making me so miserable I'd rather they just cut off my leg than make me keep taking this. 100 mg twice a day for 10 days, it's been a week. When I feel good, I feel great, but when I don't, I'm in hell. I wake up gagging. Vile, foul stuff."

• car...
• Taken for less than 1 month
• May 8, 2017

"Spent 11 days in the hospital as a 10-year-old kid with joint pain, rash, intermittent fever, high white blood cell count, and a week later my hands and feet shed skin: 48 years ago, tested positive for Lyme antibodies of both active and passive type and received 14 days of oxytetracycline therapy, which appeared to cause severe fatigue but also cured left hand carpal tunnel syndrome (doctor diagnosed). Antibodies of only the passive type showed up 35 years after a precautionary test. Was bitten by an unknown critter who left a bull's-eye ring 10 days ago, and doctor prescribed 14 days 100 mg 2X day doxycycline. Hands and feet turned red today. I did have severe pain in my hip just today, perhaps exertion. Will see."

• Anonymous
• Taken for less than 1 month
• October 19, 2017

"Third day taking this medicine. Extreme nausea to the point where I can't eat or drink without feeling like I’m gonna be sick/actually throwing up. Really hope this works because honestly don't know how I’m gonna stand three weeks of it."

• ind...
• Taken for less than 1 month
• October 31, 2016

"100 mg x2 daily. Was bit by a deer tick in MN on anniversary. My back was really itchy, and my husband found I had a tick attached. I went to the doctor the next day with the tick to have it tested. Was put on this RX. First dose was very tired, but the rest is fine. No side effects. Fingers crossed negative on Lyme."

• Tir...
• Taken for 1 to 6 months
• September 27, 2020

"I was on doxy three times within 8 weeks. Each time, I was prescribed 100 mg 2x a day. The first time was 21 days for Lyme disease and shingles at the same time, things were okay, just a little dizzy. After being off it a week, the second time was 7 days for a cellulitis infection, I felt queasy and dizzy with it that time. The third time was about a week later after a small hand surgery. After 1 1/2 days, I was so sick, I had nausea, dizziness, and vomiting. I threw the doxy away. I believe my body was done with taking so much of it in a close time frame."

• Anonymous
• September 3, 2017

"I am a landscaper and had a deer tick latch on my upper thigh, just under my ass. One day later, I noticed an irritable itching on that spot and didn't give it much thought, thinking it was just a bad ant bite. For days later, while lying in bed, I decided to take a look to see what the hell was biting me down there and came to see I had a deer tick latched on. I took the tick out, killed it, and saved it on some tape. Five days later, after getting bitten, my doctor didn't want to wait for a blood test and prescribed 100 mg of doxycycline. To be honest with you, I felt like my insides were slowly being eaten out with this drug. Highly recommend taking it with milk or 1 hour after eating food. I still currently feel EXTREMELY lethargic! It really sucks."

• Joh...
• December 3, 2016

"I had proper Lyme disease (not 'chronic' Lyme, quack quack), took doxy for a month after a tick bite a year ago. Most symptoms went after a couple of days, still suffering from some minor POTS and memory loss but improving each day. My best recommendation to people with post-Lyme syndrome: exercise consistently (within your limits). This has really improved heart and cognition problems for me. They do get better, it just takes time. Be patient. Taking doxy after 4 weeks for Lyme is not necessary unless you have serious neuro complications. (You will need to have had Lyme for 10+ years for this to be necessary, and still 2 months is enough. Look at the evidence, please. Taking copious amounts of abx is not good for you."

• Cja...
• Taken for less than 1 month
• April 27, 2020

"Avoid doxycycline like the plague! I was prescribed this drug as a precaution after being bitten by a tick, which left an increasingly red ring surrounding the bite. After the first 3 doses, my upper body and face were covered in an intensely itchy, bright red rash. I was not out in the sun while taking this, like many people who have a reaction to it. I have had a sun allergy since the 1990s, and my body may have been a lot more sensitive to this drug's side effects. I started the drug on Thursday and only took one on Friday before calling my doctor. My prescription has been changed, but I am suffering terribly from this still late Sunday night. Back to the doctor again tomorrow to see if I can put an end to this ungodly, torturous rash."

• lis...
• December 5, 2016

"Took 200 mg daily for 30 days after testing positive for Lyme. Cleared up symptoms within a few days but made me very tired and had trouble sleeping at night. To be honest, I felt worse on the antibiotic than when I did with Lyme as it made me very anxious and restless at nighttime. Some people, why are taking this for more than a month, lol? I just read a lady on here taking it for 5 years... felt worse as soon as she stopped (deep sigh) this is called a placebo response, look it up and save your gut biome. Lyme can't live outside your white blood cells as it's a spirochete, meaning cyst Lyme doesn't exist. Please don't believe this chronic Lyme crap. Go and read some evidence-based journals for God's sake."

• Ani...
• Taken for 6 months to 1 year
• February 13, 2020

"Doxycycline saved my life. I don't understand why Canadian doctors are brainwashed into thinking Lyme disease is imaginary."

• Anonymous
• Taken for less than 1 month
• August 12, 2019

"I took doxycycline for Lyme disease for 4 weeks, but I am still going numb in the legs."

• Rey...
• Taken for less than 1 month
• April 9, 2022

"Caused suicidal depression. A rare side effect of this drug is psychiatric effects, including suicidal thoughts and severe depression."

• Sta...
• Taken for less than 1 month
• September 10, 2016

"I was diagnosed with Lyme, put on doxy 200 mg a day, and my toes are numb and bright red, as are my hands. Anyone else?"

• Jan...
• Taken for less than 1 month
• September 4, 2021

"Made me physically sick. Took for Lyme and had to stop and take amoxicillin instead. Three years later, I’m still suffering from this disease."

• zta...
• December 19, 2017

"It doesn't kill Lyme. I had remissions, but never true wellness. 20 years a Lyme sufferer. As more research is now available, this should never be used for Lyme and co-infections."