Dalfampridine User Reviews & Ratings (Page 2)

• Lhalvor
• Taken for 2 to 5 years
• June 9, 2012

Ampyra (dalfampridine) for Multiple Sclerosis "I still use a scooter. But, I've had MS almost 40 years. Able to do physical therapy, stand. Much greater energy, significant lessening of my horrible fatigue, improved bowel. Effect leaves soon after the end of the dosage period. My husband loves how it's improved the quality of both our lives."

• Anonymous
• September 23, 2011

Ampyra (dalfampridine) for Multiple Sclerosis "It is an amazing medicine. My right foot drop has improved tremendously. I can wash dishes without having to sit halfway through. I am glad to read others are experiencing wonderful effects too. It is my miracle."

• mspolly
• October 7, 2010

Ampyra (dalfampridine) for Multiple Sclerosis "After 3 weeks on Ampyra I have recovered feeling and function in my left hand, after ten years. I have resumed seating, after decades. And a permanent brain fog has listed. My walking and balance are better, though I still use a walker. I consider it a miracle and feel mentally reborn. "

• Stella...
• May 4, 2016

Ampyra (dalfampridine) for Multiple Sclerosis "Worked for me within 10 days. I was using a leg brace and cane, and once it started working I've never used them since. Most annoying side effect is frequent bladder infections, but work with a urologist to control them. This drug saved my life."

• Anonymous
• September 28, 2010

Ampyra (dalfampridine) for Multiple Sclerosis "My husband has secondary progressive MS and has been using Ampyra for 1 month. He didn't see any changes at first, but we now notice that he has an easier time swallowing (he used to cough a lot while eating/drinking), he hasn't fallen at all and he thinks his balance is better. Since the changes have been subtle he is now keeping a diary of how he feels each day."

• TheTu...
• Taken for less than 1 month
• December 15, 2019

Ampyra (dalfampridine) for Multiple Sclerosis "THIS. DRUG. WORKS! Originally diagnosed with RRMS in 2016, then PPMS in 2019 my walking and balance had degraded to requiring a cane at all times. Further, my stamina became non-existent. During a drive to see family after my first two doses, I had to pull over to, ahem, answer the call of nature. I walked unaided down into and back out of a ditch. I thought only about watching my step. I didn't fall or falter. Later that evening, I walked nearly half a mile with out stumbling or bracing myself once. I carried my cane, but did not use it. I do not know if my improvement will continue or if this is as far as I can go. Either way, I tremendously happy with the efficacy of the drug and will keep taking it for as long as I can."

• SS4JC
• June 9, 2011

Ampyra (dalfampridine) for Multiple Sclerosis "I have been taking Ampyra for 3 months and have noticed my weak leg is stronger and faster. My son noticed I was taking the stairs faster as well. I can put my leg in my pants while standing without using my hand to help it. I had insomnia at first but changed the times to 5 am and 5 pm with two ibuprofen at 5 am since I noticed some back pain in the mornings. That's gone."

• mike...
• August 17, 2010

Ampyra (dalfampridine) for Multiple Sclerosis "I took my first dose today. The first thing I noticed was tingling in my legs and hands. As the day progressed my legs have felt less heavy, my left leg has dragged much less, I'm not shaking as bad and I have a lot more energy. I can't wait to see how I feel by the weekend."

• Allie...
• October 4, 2015

Ampyra (dalfampridine) for Multiple Sclerosis "Ampyrya is amazing! I've only been taking this for a week and a half and love it! After 4 days of taking it I noticed substantial improvement! I am able to walk unassisted and stand for longer periods of time, feel like I have more energy and am looking forward to doing more things with my kids! AFO is still needed, but I feel so much better!"

• mommy...
• August 12, 2014

Ampyra (dalfampridine) for Multiple Sclerosis "It has definitely helped majorly with my arm function, my husband can tell and I can too, if I have no pills left or haven't taken them, my arms go around a little like gummy then. When I did a lot of walking, didn't care how fast I was, just happy to even be able to do it."

• Ken...
• Taken for less than 1 month
• March 22, 2016

Ampyra (dalfampridine) for Multiple Sclerosis "Recently diagnosed with MS (December, 2015 - 3 months ago) The MS specialist at UTHSC San Antonio prescribed Ampyra. I had extreme weakness in my right leg and some weakness in my right ankle, causing some problems walking and forcing me to cut way back on my biking and to go to traditional flat pedals as I could no longer work my foot well enough to use single entry clip in road bike pedals. Started Ampyra March 8, 2016 and within 48 hours I noticed a HUGE difference in leg function. It's now been two weeks and I'm back to using clip in pedals (MTB dual entry alas) on my bike and up to 30 miles per ride @ 15 mph, up from 20 miles @ 10 mph. That's a true quantitative measurement of improved function. Don't wait to try this stuff."

• KMcK
• Taken for 1 to 6 months
• May 27, 2018

Ampyra (dalfampridine) for Multiple Sclerosis "I am a 58 year old female. My primary progressive multiple sclerosis (PPMS) began 11 1/2 years ago. I was finally diagnosed about 2 3/4 years ago. I use a walker around the house and for short distances. For longer distances, I need a wheelchair. I tried Ampyra for 6 weeks and decided to go off it today. It did not help walking or anything else. Further, I had gotten rid of the tingling and L'hermitte's Syndrome through a change in diet after I was diagnosed. Once I started Ampyra, both of those came back as well as my menopausal hot flashes which had subsided. In addition with the Ampyra, it takes 1 1/2 hours to fall asleep even with prescription sleeping pills and I also have back pain. I know 3 men who have been taking Ampyra for 7 years and they swear by it, but it was a total bust for me. Even just a little improvement in walking would have been worth the side effects, but I didn't have that. :-("

• Ditch...
• Taken for 5 to 10 years
• August 29, 2016

Ampyra (dalfampridine) for Multiple Sclerosis "20+ years of RR without awareness/disability. When it changed to SD with dizziness, poor balance, many falls, intense fatigue, foot drop, diminished walking, muscle spasms, bladder & bowel issues, MRIs confirmed without argument. I participated in Canadian study of "Fampyra" with measurements of ability before and after administration. Improvements were marked and I certainly couldn't deny the disease. Progression is manageable. When "Fampyra" was approved for use by Health Canada I continued on it. My insurer does not cover. I'm so grateful to be able to continue. Neurologist remains satisfied and so am I. It's not a cure. Comments of other users encourage physiotherapy to "keep and improve the ability I have". Thanks, I needed that!"

• Diana
• May 16, 2015

Ampyra (dalfampridine) for Multiple Sclerosis "2 days on Ampyra and already noting difference. As I get close to the end of the 12 hours, I do see a lessening of benefits, and I have also experienced the vertigo while lying down. But overall, I am looking forward to seeing how much my walking and standing improve."

• Anonymous
• May 25, 2011

Ampyra (dalfampridine) for Multiple Sclerosis "I have SP Multiple Sclerosis and when I first tried Ampyra I thought it was a miracle medicine. I have now been on it for over 1 year and the positive effects have unfortunately diminished. I have had shoulder pains for some time and I am going off Ampyra for 1 week to see about any changes."

• Diana
• Taken for 1 to 6 months
• June 16, 2015

Ampyra (dalfampridine) for Multiple Sclerosis "It has been a month now, vertigo gone after a few days, a couple of nights pain in my upper arms but not every night. Overall I seem to be able to do more, but not as much as I want. Hopefully this will continue to get better."

• KT-NC
• January 31, 2018

Ampyra (dalfampridine) for Multiple Sclerosis "Like many other MS patients, I find Ampyra to be a miracle drug. It's corrected my drop-foot and improved my energy levels and cognitive functioning. However, Acorda Pharmaceuticals has DISCONTINUED its zero pay and $40 co-pay assistance programs (it does NOT say this on their website). When I attempted to get my Ampyra refilled earlier this month, my specialty pharmacy told me the co-pay is now a whopping $500/month. I contacted Acorda and they confirmed - Acorda will only cover up to $1,000/month of the $1,500 they charge for Ampyra. Acorda does not have the patient's best interests at heart; this company is only concerned with its bottom line. Now thousands or even millions whose lives are dramatically improved through the use of this drug may no longer be able to afford it. While I rate the drug itself a 10, I have to rate Acorda a big fat ZERO, hence my overall rating of 7."

• kkotts
• February 23, 2018

Ampyra (dalfampridine) for Multiple Sclerosis "I've had a decent experience with ampyra. I improved a little enough to make it a little easier to care for myself. Recently I received no more help with ampyra price I have Medicare Part D but my copay is $2,700. Ampyra has offered no other help to get me this medicine. I was told I'm off the assistance program because they are coming out with the generic. The problem with that is why kick your people off your systems program before you even have the generic version out. I'm very upset with having to stop take this medicine I saw a minimal Improvement but I am so desperate for any help I'm willing to take the medicine and now I can't afford it. The world we live in today is very sad when a medicine that actually shows any benefit for a person is so incredibly costly you can't afford to take it. I have to correct myself they told me to try other resources for help with the co-pay but I am not eligible for any of those. So I have taken a downward spiral and no way to get this medicine"

• Jenny
• Taken for less than 1 month
• November 27, 2018

Ampyra (dalfampridine) for Multiple Sclerosis "I started Ampyra 2xday, for 3 days the jittery feeling, insomnia and loss of balance were too much. They suggested I take it once a day for a week or so to allow my body to get used to it. Tonight is the first night I took it twice after a week of once a day. I’m completely jittery it’s 11 and I feel my night of non sleep ahead of me. I’m not sure this drug is for me. Feeling frustrated."

• K-man
• Taken for 2 to 5 years
• June 8, 2014

Ampyra (dalfampridine) for Multiple Sclerosis "Started taking 3-4 yrs ago in early 50's while transitioning from RR into SP. Early on saw subtle improvement with only mild constipation, but was unable to go without AFO. Past year in SP, balance and gait worsened where use AFO & cane fulltime. Decided a month ago to stop taking. Balance much better. Gait seems unaffected. Living with SP is definitely different from RR."

• Raerae
• September 14, 2019

Ampyra (dalfampridine) for Multiple Sclerosis "I've has MS for 5 years now. I was diagnosed with RRMS but think I'm much worse. I know I had something going on as far back as 2010 ( 9 years ago) but unable to get a diagnosis till 2014. Because of this, I have many lesions. I started taking Amprya 2 years ago. I felt if it helps me a little bit it would be worth it. Well it helped me a little bit. Enough that 2 years later I had to go without for 2 weeks. Insurance reasons. When I came off of it I noticed the difference. So now I have to start taking the generic now because of my Insurance. (Dalfampridine) is the name. So it is the same actual drug dalfampridine but made by a different company which makes is at a cheaper price. My generic brand is made in India. "

• Buckeye...
• January 28, 2018

Ampyra (dalfampridine) for Multiple Sclerosis "I began taking Ampyra last Monday. By Thursday I noticed I had more strength in my legs and was able to be on my feet much longer with out having to find a chair before my leg gives out. My walking is not what it used to be, but improved. I hope it keeps improving. I don’t think I have any side effects directly related to the Ampyra. Go for it!"

• Jarl
• Taken for 2 to 5 years
• May 11, 2017

Ampyra (dalfampridine) for Multiple Sclerosis "**This is a missing side effect that should've been noted in the prescription information! *** For the first two years this medication came out I continue to use it along with my disease management drug. I was taking tecfidera. These two medications combined drastically slow down your lower intestinal. Ampyra lists constipation as a minor, less common side effect. After some research with my doctor he researched the medications in medical journals and the chemical compounds and he thought two should not be taken together for this particular reason."

• Ducky
• Taken for 10 years or more
• March 15, 2020

Ampyra (dalfampridine) for Multiple Sclerosis "I started with RRMS and have progressed to SPMS. when I started to slowly get worse I was introduced to Ampyra and noticed a difference, not a lot but it still helped. I’ve been on Ampyra for 17 years and still have been losing mobility to the point of having to use a wheelchair for most of the day. So I decided to ask my doctor to slowly take me off the Ampyra because I didn’t think it was working anymore. I noticed the very first day I was having adverse affects. On the second day I couldn’t stand up without help. I decided that night to go back on the full dose of my Ampyra and the very next morning I was much better and able to move like I use to. I still don’t move well but much better with the full dose than without it. Ampyra is a necessity for me. I would be wheelchair bound without it. Ducky"

• Maver...
• Taken for 1 to 2 years
• February 11, 2019

Ampyra (dalfampridine) for Multiple Sclerosis "I'm 53 and started on Ampyra 20 months ago and about 4 months I switched to the generic (Ascent) - seams to be no difference except that the time release my be a little different. As far Performance, the benefits peak for me at hour 8, with the medicine the using a treadmill it takes me 10 minute and without the same incline and distance is 12 minutes - starting out at the same be slowing faster without. Side affect are minimal but I do skip when I can as this to lessen the likely hood of serious side affect like seizures - I take 12 a week and I have a full time job. Also beyond the medication rest, stress reduction and diet - try the Wahls - improve symptoms - Best Always -hope this helps"