Dalfampridine and Dizziness: What Users Say

• Dit...
• Taken for 5 to 10 years
• August 29, 2016

Dalfampridine for Multiple Sclerosis "20+ years of RR without awareness/disability. When it changed to SD with dizziness, poor balance, many falls, intense fatigue, foot drop, diminished walking, muscle spasms, bladder & bowel issues, MRIs confirmed without argument. I participated in a Canadian study of 'Fampyra' with measurements of ability before and after administration. Improvements were marked, and I certainly couldn't deny the disease. Progression is manageable. When 'Fampyra' was approved for use by Health Canada, I continued on it. My insurer does not cover it. I'm so grateful to be able to continue. The neurologist remains satisfied, and so am I. It's not a cure. Comments from other users encourage physiotherapy to 'keep and improve the ability I have'. Thanks, I needed that!"

• Dit...
• Taken for 5 to 10 years
• August 29, 2016

Dalfampridine for Multiple Sclerosis "20+ years of RR without awareness/disability. When it changed to SD with dizziness, poor balance, many falls, intense fatigue, foot drop, diminished walking, muscle spasms, bladder & bowel issues, MRIs confirmed without argument. I participated in a Canadian study of 'Fampyra' with measurements of ability before and after administration. Improvements were marked, and I certainly couldn't deny the disease. Progression is manageable. When 'Fampyra' was approved for use by Health Canada, I continued on it. My insurer does not cover it. I'm so grateful to be able to continue. The neurologist remains satisfied, and so am I. It's not a cure. Comments from other users encourage physiotherapy to 'keep and improve the ability I have'. Thanks, I needed that!"

• Dia...
• May 16, 2015

Dalfampridine for Multiple Sclerosis "2 days on Ampyra and already noting difference. As I get close to the end of the 12 hours, I do see a lessening of benefits, and I have also experienced vertigo while lying down. But overall, I am looking forward to seeing how much my walking and standing improve."

• Dia...
• Taken for 1 to 6 months
• June 16, 2015

Dalfampridine for Multiple Sclerosis "It has been a month now, vertigo gone after a few days, a couple of nights pain in my upper arms, but not every night. Overall, I seem to be able to do more, but not as much as I want. Hopefully, this will continue to get better."

• Jen...
• Taken for less than 1 month
• November 27, 2018

Dalfampridine for Multiple Sclerosis "I started Ampyra 2x a day. For 3 days, the jittery feeling, insomnia, and loss of balance were too much. They suggested I take it once a day for a week or so to allow my body to get used to it. Tonight is the first night I took it twice after a week of once a day. I’m completely jittery, it’s 11, and I feel my night of non-sleep ahead of me. I’m not sure this drug is for me. Feeling frustrated."

• Dee...
• Taken for less than 1 month
• January 20, 2022

Dalfampridine for Multiple Sclerosis "I was diagnosed with MS in 2018. Fatigue, balance, and heavy legs were my major issues. Started Ampyra 2 weeks ago, and it's AMAZING the difference! I have more energy, my balance and walking distance have improved significantly. I experienced dizziness the first week, but it went away in week 2. Highly recommended!!"

• Rea...
• Taken for 2 to 5 years
• September 8, 2022

For Multiple Sclerosis "I have been taking dalfampridine for 4 years. This medication has improved my ability to walk to where I rarely use my cane. I was on the fast track to a walker, but after about a month of this medication, I noticed that I didn't have to use my cane for every step. I have to watch if I miss a dose, for it does affect my balance and back pain."

• Anonymous
• June 14, 2012

Dalfampridine for Multiple Sclerosis "This medicine leaves me feeling exceptionally dizzy and off balance. After seven months, it is doing nothing to help me walk."

• Anonymous
• June 14, 2012

Dalfampridine for Multiple Sclerosis "This medicine leaves me feeling exceptionally dizzy and off balance. After seven months, it is doing nothing to help me walk."