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Colchicine for Behcet's Disease User Reviews

Brand names: Colcrys, Mitigare, Gloperba, Lodoco, Colcigel Gel

Rating: 4.0

Colchicine has an average rating of 4.0 out of 10 from a total of 5 reviews for the off-label treatment of behcet's disease. 20% of reviewers reported a positive experience, while 60% reported a negative experience.

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40%
  • Anonymous
  • June 26, 2009

"Been using colchicine for over 20 years. No noticeable side effects, but do get my bloods checked annually. Only problem was when returned to using it after a two-year break. Some diarrhea at first, but this stopped after a few weeks once body built up tolerance to the drug."

6 / 10
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13 Report
  • Ase...
  • Taken for less than 1 month
  • January 24, 2022

"I started colchicine for the first time, and it gave me severe diarrhea, and after the third day, my hair started to fall out a lot. Then I discontinued this awful drug. I'm lost now, I don't know what else to take to reduce my Behçet's symptoms. My ears are blocked now, and I have difficulty breathing, especially at night, plus hair fall and joint pain, mouth ulcers. I've been going to doctors all the time, didn't know what I had in the beginning. Five years later, I was diagnosed with Behçet's disease. I always feel depressed, nothing is helping my symptoms. I feel so tired all the time and can't cook for my children."

2 / 10
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5 Report
  • bin...
  • Taken for 1 to 6 months
  • June 22, 2018

"After my diagnosis of Behçet's disease, my doctor started me on colchicine for treatment. We continued to increase the dosage while trying to find the 'sweet spot' for me to obtain maximum benefit. However, the medicine did not provide any relief for me. It also did not have any side effects. My physician changed to another treatment plan to attempt to control my symptoms. Unfortunately, not every medication reacts the same for everyone due to our biological makeup. I have read about many that have results with this medication. I have also read about some that have negative side effects that cause them to change treatment."

1 / 10
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7 Report

Frequently asked questions

  • TWR...
  • Taken for 1 to 6 months
  • October 12, 2017

"I was having severe outbreaks of rashes and canker sores for the last couple of years. After 4 months on it, I've only had two minor episodes, both never erupted, went away in 24 hours!"

10 / 10
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10 Report
  • Sam...
  • July 18, 2015

"Made all my hair fall out, like all of it!"

1 / 10
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8 Report

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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.

Learn more about Behcet's Disease

Symptoms and treatments