Clonazepam for Seizure Prevention User Reviews (Page 2)

• Tra...
• April 17, 2016

"I've been taking 0.5 mg before sleep for almost 3 months now, and no epileptic seizures, and I sleep well also, but sometimes I feel I would have a seizure, so I take 1 mg instead of 0.5 because I only have seizures when I'm sleeping. I wish it stays working, and I have no seizures till the end of my life because they are the most terrifying thing for me."

• rua...
• February 11, 2020

Clonazepam "I was on clonazepam for several years to treat tremors and have been suffering withdrawal for over a year now. Was dizzy for a year, felt like rubbish, and got high anxiety from it. Still have anxiety caused by stopping this drug. Dr. say it may take years before symptoms are gone. I was a zombie while taking this drug. I say stay away from it."

• jan...
• July 15, 2019

"I suffered for several years with what doctors called RLS (restless leg syndrome). None of the traditional RLS meds worked for me, and my symptoms only worsened. Finally, I ditched my old doctor and went to a new doctor. I explained what was happening to me in detail, and she quickly said, 'That's not RLS, those are myoclonic seizures' related to a right temporal lobe brain tumor I had several years ago. She called a neurologist, and he said to try me on clonazepam or valproic acid. I started on clonazepam, and it was like a miracle. I haven't had any more myoclonic seizures since starting on clonazepam 1 mg daily."

• Tan...
• Taken for 5 to 10 years
• October 24, 2019

"I was prescribed the 0.5 mg clonazepam disintegrating tablets as my rescue med on an as-needed basis after I had a grand mal on a plane about 6 years ago. It has given me freedom as I carry it everywhere and have it by my bed and in my bathroom in case I have an aura - I usually have time to grab this medicine and it will help me relax and stop a seizure before coming on. I use it about 5 times a year at this time - no addiction issues."

• bel...
• Taken for 10 years or more
• June 29, 2015

Clonazepam "During the time I have been on Klonopin, I was asked by my insurance to try the generic but was never able to tolerate it. Last October 2014, the brand was unavailable, 'Not in Stock,' and I had to go on the generic. I was on it totally for several months and had some severe side effects. I became aware that the brand was available in early June and was able to get back on the brand. Having difficulty getting the exact same dosage I've been on for about 18 months to regulate. I'm having a problem sleeping through the night and feeling anxious when I wake up. It doesn't feel like the same drug. I don't know why it was stopped. I wonder if anyone else has had the same experience with taking the 'new brand' since it is available again."

• Anonymous
• September 6, 2015

"I highly recommend this. Whenever I feel something coming on, if I take this in time, it will take all symptoms away. Besides leaving me a little tired, it is totally worth it. Gives a sense of ease and reliability."

• Sca...
• October 29, 2019

Clonazepam "Klonopin was great for my seizures until it wasn’t. I have seizures in my sleep. I started with 1.5 mgs, then went up to 4 mgs. I have been on Klonopin, Clonazepam for 32 years! I noticed it stopped working, but I had to take it or no sleep at all. I finally went to a specialist for sleep. I got off of it, but too fast - 4 weeks went through withdrawals and went back on. I was getting used to Gabapentin. I decided to trick my body into not missing it. I tapered down, but I take 5-7 weeks in between dropping the dose. It has taken me 6 months to get below the halfway mark, but I made a mistake this drop and 6 weeks later I'm still feeling it. I only took 35 days....and I now know I should have lowered the amount I am dropping. I was dropping .5. Klonopin has a long half-life, it takes about 3-4 days before the body registers it and about 2 weeks to adjust depending on dosage and time. I might feel this for up to 2 years after the last dose. I am hoping a slow taper will help lessen that."

• Gui...
• Taken for 1 to 2 years
• March 3, 2013

"I am on 4 different seizure medications (now 5 with this) and suffer from startle seizures, which come on from any frights (horns, bangs, example: music), and anxiety is a big trigger of this, as to be as calm as possible really helps. Since being put on clonazepam, my anxiety is so much better, therefore, so are my seizures. I can also vary small amounts when needed, for example, if traveling. Now aiming to drop slowly some of the other."

• Tar...
• September 2, 2016

"Amazing. That's all that needs to be said. I take one at night, which makes me tired, and I have a great night's sleep and wake up feeling brilliant. I feel as though I'm 'cured.' Recommend to anyone, especially for myoclonic and absence seizures."

• Hea...
• Taken for 2 to 5 years
• January 5, 2020

"I have been suffering from uncontrollable hypnotic jerks at the point of falling asleep, triggered by the use of antibiotics. The first time this happened in 2012, I went through a few inappropriate psychoactive drugs before hitting on clonazepam, which worked straight away. I started at close to 2 mg, and used it for 3 years before coming off it completely. A month ago, my GP gave me a different class of antibiotics for tonsillitis, and the same thing happened, to my dismay. I used my leftover clonazepam to stop the sleep jerks, which is a kind of seizure. This time around, I started at 0.5 mg and over a week had to increase to 1 mg. It’s just about working, but I may have to increase to 1.5 mg. I take it once a day half an hour before bedtime. It’s not a drug doctors like to prescribe, but for me, what works, WORKS. And, with time, planning, and determination, you can slowly come off it."

• Yoh...
• October 3, 2010

"Excellent. Haven't had one seizure since I was switched to Klonopin (clonazepam). It helps with my car accident injuries, which I did not expect, and not only with the broken bones but almost as an antidepressant, better than Paxil, which I was given and didn't make me feel more relaxed. I sleep well again because I don't take pain medicines, even though the doctors prescribed it. Highly worked for me. Start out at a low and comfortable dose if you can't afford to be drowsy at work, etc. Tell your doctor, and slowly he will bump your dosage up until you are comfortable."

• chi...
• November 20, 2009

"I have used Clonazepam for about a year now. I am more relaxed and can concentrate better, with better sleep patterns. The only side effect I have had has been waking up in the morning feeling 'stiff' (as if I slept too soundly). This disappears once I get up and move around. Note: I am a multitasker and find it hard to lay down at night and 'shut everything OFF.' I hope this helps someone."

• Sei...
• Taken for 10 years or more
• June 9, 2022

"I have been taking clonazepam for 23 years for misfiring in my brain stem. I spent two years trying to get help, and finally, Mayo in Arizona put me on clonazepam, and everything became normal, no seizures from my misfires. Three years ago, a doctor decided that it was bad to take benzodiazepines. He cut my dose down to 2 mg, and I had a misfire and seizure and went down. I crushed my elbow and broke two bones in my arm. I hit my head and had a lump on it, a black eye, and bruising on my neck. I spent a week in the hospital and had major surgery on my elbow and arm and now have a plate in my arm. I was put back on clonazepam. Everything was fine, and then in January this different neurologist decided to take me off of clonazepam again. I have tried so many different seizure medications, and they are horrible. The side effects won't stop, and I am so awful and confused. I have been on several seizure meds, and they screw up my brain. Why do they get to take what has been working and mess me up when I was fine?"

• Loo...
• Taken for 5 to 10 years
• May 7, 2019

"I am from the UK, and I was prescribed clonazepam 2 mg X 2 daily for approximately 7-8 years but was quickly taken off them when I changed doctors (GP). I am now on Lamotrigine 125 mg twice daily. I haven't been fully diagnosed, but I believe I have 'Temporal Lobe Epilepsy' and tonic-clonic (grand mal) seizures due to what I have read on different types of epilepsy. My neurologist says I have some kind of discharge leaking from the left side of my brain, and he is yet to fully know why and what it is. Unfortunately, I missed my appointment for an EEG with a neurologist specializing in epilepsy. I am now on Lamotrigine only, but I found that clonazepam and Lamotrigine work better if taken together (that's my personal opinion as I cannot speak for anybody else). It was/I found it extremely helpful on muscle spasms from epilepsy and helps sleep patterns."

• Bec...
• June 18, 2016

"I have been taking clonazepam for nearly 30 years. Started at 15 years of age and went from approximately 300 mild absent spells (I call them mind blanks) to 5. Huge impact on my life. I am on the original dose of 1 mg, but on my tired days, I take an extra 1 mg in the afternoon or evening. In the last 6 years or so, I've suffered terrible insomnia, which has me some nights not sleeping at all. So, not sure if that's related, especially given this drug is used for insomnia and anxiety. I may have side effects, but have been taking it so long I don't really notice. Also took this through 3 pregnancies and have 3 healthy children. Wish I could come off, but too busy with work and kids."

• jlh...
• Taken for 5 to 10 years
• June 14, 2018

"This is the only med that helps with my stomach aura. I have left temporal lobe seizures, and when the aura kicks in, I am done for. I am still confused if these auras are a type of seizure or leading to a seizure. My Dr. has cut back on the number of pills he will prescribe (20/month). I take only as needed and often will cut in half. I have a script for 0.1 mg. Since this is now considered a 'controlled drug,' I have to request a script monthly. Appreciate other thoughts on this. The Depakote ER has been effective in that I have had no seizures for over two years now. Any other combination or mixture of meds knocks me out, and I cannot function or stay awake."

• Rx2...
• October 27, 2009

"Clonazepam (1-3 mg daily, mainly at bedtime) benefits me in many ways. Since it was added to my daily medicines 5 years ago, it has helped to completely eliminate my nocturnal grand mal seizures, anxiety and panic disorders, bipolar, and ADHD (with an emphasis on the hyper). I have not developed a tolerance (although I can see how that could happen) and have no withdrawal symptoms when I miss doses. It provides subtle yet effective relief with no noticeable side effects. Thanks to clonazepam, I fall asleep without fear of seizures."

• Ves...
• Taken for 5 to 10 years
• June 22, 2016

Clonazepam "This medicine made me confused, slur my words, exhausted. I was basically living in a fog for over five years. No amount of sleep helped, I needed to take a nap every day and would still be tired when I woke up. I had difficulty thinking, repeated sentences, had anxiety attacks. This medication is only supposed to be given for a maximum of 2 weeks. It's highly addictive, and the user develops a high tolerance. Long-term usage can result in brain damage, and benzos are the most overly prescribed drug in the world. Withdrawal was horrible, but worth it! I got my life back after getting off of it, and I don't have anxiety or seizures, changed my lifestyle, diet, and exercise."

• Anonymous
• July 24, 2015

"My daughter was diagnosed years ago before Hurricane Katrina. We tried Depakote, Dilantin, etc. Nothing worked. My husband and I were worried, she was having 20 seizures a day and more. Her grandfather had epilepsy, and I have it as well. I have had grand mal seizures. Recently, the LSU doctors, Dr. Ryan Smith, cut us both off Klonopin, and my daughter may not make it, she is seizing night and day. God forgive their souls."

• Gho...
• Taken for 10 years or more
• September 11, 2022

Clonazepam "This medicine is for short-term use, not long-term. Around 2016, a black box label was placed on this medication. In the past, I went through withdrawals because I did not have the proper doctor. I live with protracted withdrawals, a.k.a. PAWS. I went through depersonalization. It was and still is a living nightmare. Want the truth about Klonopin? I would suggest that before anyone starts taking this medication, read the Ashton Manual. You can find it online and can read all about how this medication has negative side effects. I wish I would have known what I know now years ago. People don't have any idea what this medication can do. I had a seizure and came close to death. Having a doctor is very important, one that will work with you. Let me make this clear: all of my medicine was written by a professional doctor. PAWS effects can last forever, depending on how long you have been on this medication. Research is the key word."

• JJM...
• July 15, 2016

"I've been taking this drug since June 11, 2016. Started .5 a day because of lack of supply. Now I take 3 to 4 .5 mg a day and still have seizures, blackouts, mass confusion. The other day I blacked out, hit my head, and have no memory of the 'fall,' just the goose egg on my head to prove it. Definitely helps with my anxiety, but I'm still in pain every day. Seeing the doctor on Tuesday, July 19, 2016, hoping for better answers. The type of seizures I am having are abdominal based but spread to full-blown seizures. Is the abdominal pain my aura telling me, 'Hey, seizure?'"

• Gho...
• Taken for 10 years or more
• September 11, 2022

Clonazepam "This medicine is for short-term use, not long-term. Around 2016, a black box label was placed on this medication. In the past, I went through withdrawals because I did not have the proper doctor. I live with protracted withdrawals, aka PAWS. I went through depersonalization, and it was and still is a living nightmare. Want the truth about Klonopin? I would suggest that before anyone starts taking this medication, read the Ashton Manual. You can find it online and can read all about how this medication has negative side effects. I wish I would have known what I know now years ago. People don't have any idea what this medication can do to you. I had a seizure and came close to death. Having a doctor is very important, one that will work with you. Let me make this clear: all of my medicine was written by a professional doctor. PAWS effects can last forever, depending on how long you have been on this medication. Research is the key word."

• sam...
• Taken for 10 years or more
• June 15, 2019

"Klonopin will destroy your lives if you take it too long. You will increase the dosage, and dependence comes on rapidly. This is one heck of a serious drug that will ruin your lives, jobs, and family. I have been on it for 22 years, and getting off of it is horrific. Started at .5 and am at 3. I am scared to death... just Google 'America’s Most Dangerous Pill? Klonopin.'"

• Mis...
• September 6, 2015

"I started out taking 1/2 mg 1 time a day. Within about 2 years, I was taking 2 mg 3 times a day. It didn't work for me. I had been misdiagnosed by county mental health. I had PTSD, not bipolar anxiety or borderline personality. I became severely addicted and was from about 2009 to 2014. I became very violent and often got in legal trouble. I blacked out often. If I could go back and redo, I would never take it. I would have done counseling first. So many behaviors can be corrected with intense therapy. Medication only masked the real issue for me. It cost me many relationships, many nights in jail, and much money I could have spent on my son. I pray for anyone who takes this drug..."

• Sei...
• Taken for 10 years or more
• August 4, 2019

Clonazepam "Good seizure prevention/rescue drug, and the only benzodiazepine whose primary indication is an anticonvulsant. I've been at 2 mg three times a day for over 10 years with no problems whatsoever."