Clobazam User Reviews & Ratings (Page 2)

• Jen...
• Taken for 6 months to 1 year
• November 24, 2024

For Epilepsy "I started out taking Clobazam as a breakthrough seizure medication. When I started, I realized that I was getting a rash, and I appeared to be allergic to it. I started taking an allergy medication because my seizures were under great control when I started this, for at least a month. It was kind of like a miracle drug for me, as it also treats anxiety. I started to notice that I was having problems swallowing, and I did eventually choke several times, one of which was very serious, and I ended up in the ER, where they had to take out the obstruction in my throat. I later found out once I really looked into the effects of this medication. When I started this medication, the doctor just kind of said the basic things to look out for and to read the warnings. That was about it. I tried to continue taking it, but then I started having a lot more seizures, and it was just not working, it seemed to be causing more issues than it was to be beneficial for the seizures."

• Nic...
• Taken for 6 months to 1 year
• March 21, 2019

For Epilepsy "Clobazam (10 mg nightly) just made me easily confrontational and agitated, but mainly, as someone mentioned, they felt 'opiatey' plus contributed to feeling even weaker, lethargic, with terrible constipation. Hoping to come off them ASAP because, as a recovering addict with 'opiate-induced epilepsy,' I have to be careful and avoid benzodiazepines or anything related, etc. 1000 mg of Keppra will be hopefully all I need without Frisium/Clobazam."

• Mum...
• November 26, 2019

"We started my 2 and a half-year-old on Clobazam (low dose) around a month ago to help with his dystonia, (along with other medications). He has lissencephaly, a set of rare brain disorders. Almost immediately, he was extremely drowsy, floppy, and producing massive amounts of drool and mucus. This has made it very hard for him to eat, drink, and sleep as he finds it hard to breathe. Couple this with a common cold and we ended up in the hospital. We had worked very hard at physio for six months to get him sitting up, were very close until we started Clobazam. He is now very weak, all our hard work undone. The dystonia is also coming back. Of all the seizure meds we have tried, this one does not suit our little one at all! Hope we can get off it soon."

• Anonymous
• Taken for less than 1 month
• May 11, 2023

Clobazam "I was prescribed Onfi after a grand mal and a series of clonic-tonic seizures, where I ended up hospitalized. I woke up feeling very loopy and euphoric. I was given a 10 mg dose once per day, and my seizures stopped. However, once I was released, I realized my mood was unmanageable. I was crying and laughing uncontrollably. I could not get a handle on my emotions from one minute to the next. I had to stop taking it immediately! I switched to another medication, and the side effects completely left."

• Bub...
• Taken for less than 1 month
• March 10, 2025

For Epilepsy "My last seizure was many years ago. However, I have been having crippling weekly auras. Ativan has been the only small help over the years. It seems like this phenomenon started when I quit drinking alcohol 15 years ago. My life has been pretty unmanageable. Hard to maintain relationships and friends due to my unpredictable psychological availability. I started clobazam 10 mg once or twice weekly recently, and it has helped a great deal. I am now more confident and can make plans for future dates knowing I will be available. I understand the dangers of benzos. For now, the benefits of the drug outweigh the potential harm. I know tapering off benzodiazepines is worse than other drugs, so I am being extremely cautious."

• Ano...
• Taken for less than 1 month
• April 25, 2025

For Epilepsy "I have generalized epilepsy that gives me absence seizures that have been around since 2017, and I also have had 3 tonic-clonic seizures in the past 4 years. About 2 years ago, I was put on clobazam (10 mg twice a day), and the side effects were horrible. I was crying and angry all the time, I couldn’t control my emotions at all, so I got off of it. I had a tonic-clonic seizure a bit ago and got put on clobazam again, but this time it’s 2.5 mg twice a day. It’s been a game changer, to be honest. My emotions are better (I struggle with anxiety and depression), and I sleep so much better. Ever since I started taking it again, I’ve been 100% seizure-free. My advice: if it’s not helping, ask your doctor to split the dose in half and take it twice a day. It’s a lot easier on the body and it helps the drowsiness while also allowing you to sleep. Hope this helps for somebody."

• Bel...
• Taken for less than 1 month
• May 23, 2024

For Epilepsy "Since taking this drug, my balance has been so bad. I have to use a cane. I am very sleepy and groggy and cannot function. It has helped with seizures. I am taking it with Xcopri. I just feel like a zombie."

• Tom...
• February 14, 2019

For Epilepsy "Onfi, in combination with Vimpat, has stopped my son’s seizures for almost 5 years now. He has gone from 10-20 seizures a year to none in 5 years."

• STe...
• April 20, 2016

Clobazam for Lennox-Gastaut Syndrome "The worst of 32 tried over the past 41 years."

• Mim...
• January 18, 2014

Clobazam for Lennox-Gastaut Syndrome "Worked really well for several months, then breakthroughs. Adding Banzel now."

• lou...
• February 11, 2020

For Epilepsy "Using the brand name Onfi works very well controlling my seizures. It's upsetting my insurance company took it off their formulary for 2020."

• Jan...
• Taken for 1 to 6 months
• April 25, 2019

For Epilepsy "I was thinking too much. But I did love the way it felt."

• Jos...
• Taken for 1 to 6 months
• March 18, 2021

Clobazam for Lennox-Gastaut Syndrome "It works really well and causes fewer seizures and makes me happier and relieves stress."

• Med...
• Taken for 6 months to 1 year
• May 14, 2018

For Epilepsy "It does not work as well as others I tried. Maybe 20 mg a day is too small a dose."

• Dha...
• Taken for 2 to 5 years
• May 7, 2017

For Lennox-Gastaut Syndrome "I had this for my epilepsy, it got rid of 3/4 of my complex partials. Gave me real bad constipation for a few months."

• Jam...
• Taken for 6 months to 1 year
• August 5, 2022

Clobazam for Lennox-Gastaut Syndrome "I've been on Onfi for 6 months and no change. I'm having more warnings and massive seizures, so it is not a good drug for epilepsy. The side effects are sedation and fatigue. I'm on 5 mg."

• Ina...
• Taken for 1 to 2 years
• March 12, 2024

For Seizures "Seizures and localized headaches subsided initially on lower dosages."

• Anonymous
• Taken for 1 to 6 months
• July 29, 2017

For Lennox-Gastaut Syndrome "Works well for my seizures."