Humira for Crohn's Disease User Reviews (Page 2)

• Vee...
• Taken for 1 to 2 years
• September 3, 2020

"I was diagnosed with colitis in December 2018 and was put on steroids in March. They did an MRI and found I had Crohn's in both intestines. I had lost 30 pounds, which was good for me, and the only real problem was the diarrhea, no real pain. I started the Humira, which has been improved, they call it citrate-free, which means the injection went from feeling like a wasp sting to a 'is there a needle in this'? I feel great as if I didn't have Crohn's disease. I have diarrhea maybe once or twice a month, but usually from what I ate. I had my colonoscopy in June 2020, and the doctor said things were better, but he feels I need something stronger and wants me to do Entyvio, which is a 1/2 hour infusion treatment. I feel great and have not had any adverse issue except for an infected toe. The Entyvio is more expensive, and there seem to be a lot of issues that people have from it that I never had with the Humira. Need more data."

• pa2...
• Taken for 1 to 6 months
• January 12, 2017

"This drug not only did not help reduce any symptoms of my Crohn's disease, but it also caused severe issues. Though I maintained a healthy diet and stayed moderately active, I gained 15 pounds in a short amount of time on this drug. I also experienced hair loss. The most serious issue, however, is that I contracted multiple infections while on this drug. The first was a sinus infection that lasted more than two weeks. After this was over, my doctor advised me to resume the Humira, and shortly afterwards, I ended up with severe sepsis that, according to several of the doctors in the hospital, probably would not have happened had I not been on Humira. I would never recommend this drug to anyone. It's not worth risking your life."

• Moo...
• February 1, 2016

"I've had Crohn's for years and was diagnosed with arthritis. My doctors said Humira would be the answer. After 6 months of taking the 40 mg pen, I can't say I'm feeling any better. The biggest problem is I'm in more pain than ever, just in different places, and I have gained 25 lbs since starting Humira. My nurse ambassador says pain and weight gain are not one of the side effects, so I'm still taking the Humira. I'd like to know if anyone else has had these two problems while taking Humira? More pain and weight gain, please let me know. Thank you."

• Mik...
• Taken for 1 to 2 years
• September 18, 2020

"Used Humira for about a year and a half before I stopped. It had a good effect on the Crohn's disease, but the side effects were terrible. Severe headaches, muscle and joint pain, skin rash, and fatigue were some of the worst. Although it was very easy to take, just using an autoinjector every second week."

• Alm...
• February 5, 2022

"My mother has been taking this long term and has suffered serious side effects. These include lesions, fungal infections, and muscle weakness in her arms and legs, which I attribute to nerve damage. Her specialist witnesses these conditions and refuses to acknowledge them and continues to push the advantages of this drug. This is total incompetence and proof that doctors care more about their kickbacks from pharmaceutical companies than caring for their patients. This drug should be for short term to control flare-ups and not be seen as a long term solution."

• Ang...
• Taken for less than 1 month
• December 25, 2015

"I suffered for many years with Crohn's, having had a resection, fistulas, perforation, strictures, you name it. Having had antibodies after not using infliximab for a year, I started Humira 13 days ago. So far, so good, no side effects as yet, didn't even hurt to administer, and for the first time in years, I can hear my stomach actually making a noise!! I seem to be much more energetic as the days go by. Fingers crossed it continues. Had no pain whatsoever in 6 days."

• Dtf...
• January 18, 2020

"I started taking Humira for Crohn's. It never did help, I continued losing weight and ended up losing my large intestine. My feet started getting cold from the very beginning, and it turned out it was neuropathy. So, Humira did not help me and gave me pain and numbness for the rest of my life!"

• Tin...
• Taken for 1 to 6 months
• December 1, 2019

"I have Crohn's, and my doctor gave me Humira 160 mg first shot and after 2 weeks 80 mg, then 2 weeks another 80 mg. This medicine caused me so many problems: swelling, weight gain quickly, and heart problem. My upper body during that treatment was on fire. Finally, my doctor said to stop this med, and I want you to see a cardiologist. Worst medicine."

• Pau...
• Taken for 1 to 6 months
• December 18, 2019

"I started Humira in October of 2019 for Crohn's disease. By December 15th, 2019, I had to stop using it because of the side effects. I had swollen, red legs with a rash, restless legs syndrome, the feeling of ants under my skin throughout my entire body, rashes that became raw and very sore, a very strong, foul body odor that would not go away with showers or deodorants, gums started to bleed and teeth became sensitive, my hair started falling out in big clumps, food had a nasty taste, constantly tired, and my vision started getting blurry. My family said I was turning into a monster."

• Flo...
• Taken for 1 to 6 months
• November 22, 2020

"I have been on Humira for 8 weeks. The first 2 injections 160 mg left me in total agony for 9 straight days. Hip joints, knees, ankles, and Achilles in both legs were extremely painful with every step I took. I have a job where I work 12-15 hours a day on my feet, putting in 10-15 miles a day. I couldn't work. Called my doctors relentlessly. They told me to keep taking it. On day 10, no pain at all. On day 14, took 80 mg. Started sneezing and haven't stopped. Been tested for flu, strep, bronchitis, pneumonia, and COVID. All negative. Took 40 mg. Still sneezing. Been sneezing now everywhere I go all day and all night. Went to ENT doc, going to an allergist. All tie back to Humira. Bowels no different 8 weeks in. Hope to be off Humira by Christmas. Awful med."

• Jay...
• October 13, 2020

"Terrible drug, made everything worse, and the injections were painful and left lumps. Felt like injecting straight lava under your skin. They do not mix the drug well and charge $5,000 a month for it, lmao. Went off, and now they keep saying I owe money, yet it’s covered by Trillium. For a drug this expensive, it didn’t help at all."

• The...
• Taken for 1 to 6 months
• February 20, 2017

"I was diagnosed with Ulcerative Colitis about two years ago. All other medication failed, so this was my last chance before an operation. The Humira has so far worked wonders, although I have only been on it for about 6 weeks. The injection was so easy to administer, and for me the company delivers the pre-loaded pen to my home. Please don't be put off by the thought of injecting yourself, it couldn't be easier."

• Tyt...
• Taken for 1 to 6 months
• May 30, 2018

"This med is bad, just sleeping all the time (over 12 hours a night plus 3-7 hour naps). When I take the med, symptoms are worse, body heat goes from hypothermia to fever and the other way around in a few hours every day."

• LAg...
• Taken for 2 to 5 years
• November 22, 2024

"I was on Humira for years, then my PBM decided to exclude it. It worked wonderfully to control my disease. The Humira pen is very easy to use, nearly painless, and is hands-down much better than any of the biosimilar pens (I've tried a few). Humira also has a wonderful support program with nurse calls and a great app for tracking injections & symptoms."

• Jhr...
• July 18, 2017

"Have had Crohn's all of my adult life (+35 years). Taken everything from prednisone, methotrexate, 6mp, asulfidine, endocort, to Remicade. Remicade was the first medicine to get me to a 5-year remission, however, it didn't last. After playing with a cocktail of drugs, including compound meds that landed me in the hospital with drug-induced hepatitis, my doctor prescribed Humira. After getting used to the injections, I found it worked the best. I've been in remission for 5 years and recently had a clear colonoscopy. I'm so happy. It was a miracle!"

• Kel...
• Taken for 6 months to 1 year
• August 20, 2017

"It took doctors years to diagnose me with moderate to severe Crohn's. I've been on Humira for 8 months now, and I feel the best that I have ever felt. I rarely get sick, and I have more energy to keep up with my active lifestyle. The only side effect was that I got two very small marks of psoriasis, which were gone within a couple of days. So far, so good for me."

• Tor...
• Taken for 1 to 6 months
• June 26, 2022

"I had 4 infusions. The last was the 8-week dose. Next day into two weeks in bed. It has been 5 weeks since the last infusion. Crohn's disease is better but not worth any of the horrid side effects. Horrid. Not belly pain as warned, but pain like high-level labor pain day or night. The nausea is the scariest part. I was 165 lb when I began. 6 months after starting Remicade, I am now 135. It doesn't look good on me, almost 70. And I am so weak. These last 5 weeks, I have been a shell of myself. Don't plan a trip, wedding, cruise, anything. This stuff is barbaric from my viewpoint. The side effects are worse than my Crohn's disease. I will ask my GI for a pill that gets directly to the small section of inflammation I have. This med is going way overboard. It is awful. It was a chemo drug at one time."

• Roa...
• February 24, 2017

"I've been on 4 different medications since I was diagnosed with Crohn's 2 years ago. I've been on Humira for 6 months, and it's the only medication that has helped and made a difference. Side effects: I do break out in small dime-sized hives around the injection site that go away within 24 hours. The doctor says this is okay."

• Anonymous
• Taken for 1 to 2 years
• December 9, 2021

"I did not have a positive experience at all with Humira. I started Humira when I was 20 years old due to my Crohn’s. Humira suppressed my immune system significantly. I would get sick so easily. I also believe I have permanent nerve damage to my arms because of the Humira. When I was on Humira, my joints and bones were so stiff, I felt like a 90-year-old woman in a 19-year-old body. I am now 27 and have been off Humira for 6 years and feel significantly better. I am now on Entyvio and my immune system is not as suppressed. I personally will never use Humira again."

• KJL...
• December 28, 2016

"Horrible. Absolutely horrible. I do 40 mg weekly using the prefilled syringe, and oh my God. It's the most horrifying pain I've ever felt. I would tell anyone considering going on Humira to strongly reconsider and rethink your options. It may only be 10-30 seconds, but it will make you cry, no matter how tough you are. It's also not helping with my Crohn's disease at all, 0 change in inflammation. Do not use this."

• Anonymous
• Taken for 5 to 10 years
• March 25, 2024

"I was diagnosed with Crohn's in 2018 and have been on Humira for 6 years. I am now in remission and have had no side effects. Unfortunately, my insurance will stop covering it in June of 2024 and I will have to go on another medication. I hope this will not affect my current remission."

• ayn...
• Taken for 1 to 2 years
• August 12, 2022

"I've been on Humira for 2 years. It's helped a little. I have gained weight. Less than a year on Humira, I developed a urinary tract infection (I'm male), and it lasted for over a year. Now, I don't know for sure if Humira caused it, but I suspect it did because I've never had that before. They put me on long-term antibiotics just recently. They seem to think it was an infection of the prostate. I know antibiotics are very bad for you, but they said I had to take them. Again, I don't know if Humira caused it, but I think it probably did."

• Anonymous
• Taken for 10 years or more
• November 24, 2021

"AVOID HUMIRA IF AT ALL POSSIBLE. Your doctor won't tell you this, but if you have any issues with Humira, your doctor, your pharmacy, and the manufacturer will not assist you. For example, if the pen becomes damaged or it's accidentally left out of the refrigerator and becomes ineffective, the manufacturer will not send you a replacement. Your doctor will tell you that it's expensive and that they don't have any samples. Things happen in life, and your pen could become affected. There is no safety net. You will have to tough it out until the next shipment arrives, which could be two weeks later. It happened to me."

• Cec...
• Taken for 5 to 10 years
• November 27, 2020

"I was diagnosed with Crohn's in 2013 and was prescribed Humira. I had been taking it for 7 1/2 years and had to change because Humira was not working as well as needed. I was taking a weekly dose for 6 months with no improvement. I never had a problem while taking Humira. My GI doc prescribed Entyvio. A total disaster!!!! I would never recommend this so-called medication. Entyvio should be taken off the market!!!!! I am now on another medication and am hoping for better results for many years."

• JD2...
• May 7, 2016

"Started my Humira on Thursday and was suicidal by Sunday. I only took 4 injections, and this medication destroyed me mentally and physically."