Humira for Crohn's Disease User Reviews

• Anonymous
• July 5, 2018

"My husband was in Humira for just over a year. It helped with the Crohn's symptoms, but he was constantly in hospital with infections, the most serious being pneumonia. While being treated for pneumonia, they discovered his blood counts weren't right, and two months later, he was diagnosed with leukemia. We later found out this is one of the side effects. On taking Humira, my husband signed his death warrant. After fighting the leukemia for 18 months, my husband lost the battle. Following our experience, I would say stay away from Humira."

• Anonymous
• December 20, 2010

"I have been on Humira for over 1 year. I was originally on Entocort and Pentasa, and it wasn't helping. My doctor suggested moving to Humira rather than more pills. I started feeling better just a few days after the initial dose. The injections do hurt, but for only about 10 seconds. Way better than being in constant pain! I was a little concerned about all the warnings, but I figure I am going to die someday so I might as well feel good. I have not had any side effects. I am so grateful for Humira!"

• Gru...
• August 21, 2010

"Have Crohn's for over 20 years, been on every drug available including Infliximab. Infliximab helped but affected the nerves in my legs and feet. Now on Humira for a year, at first the dose was one injection every two weeks which helped a bit. Now on 2 pens every 2 weeks with fantastic results. No signs of Crohn's now, only side effects are sneezing and runny nose. For me a wonderful drug."

• Keg...
• June 25, 2013

"I have been on many medications but have felt indifferent about them, as I never really saw my symptoms improving or worsening. I just always felt horrible and accepted that this was my life with chronic illness! I feel so strongly about how wonderful Humira is that I had to write my first review. Humira changed my life in less than two months. I am an active student athlete and have never felt healthier than I do now! I recommend it to anyone and everyone who suffers. I know people respond differently to medications, but as much as it has helped me, I think it is more than worth a try. I ended up on Humira because my insurance would not cover Remicade or Cimzia. I am SO glad it worked out the way it did."

• Anonymous
• October 14, 2011

"I have been on Humira for 3 years. The injection is painful, but the results are excellent. I do not even feel that I have a disease any longer. Lots of energy and feeling normal is so worth any of the possible side effects. Just be careful and stay away when possible from any ill persons or highly populated areas."

• Suf...
• Taken for 2 to 5 years
• January 23, 2019

"I was diagnosed with Crohn's Disease 3 years ago. The doctor put me on Humira injections every 2 weeks. The first year went smoothly. My Crohn's was in remission and I was able to work again. After the first year, I experienced mood changes, tiredness, developed heartburn, esophageal spasms, and back pain that put me in the hospital twice. Within the last 6 months, every time I take the Humira injection, within 48 hours I am experiencing severe diarrhea, throwing up with stomach pains, hot flashes, and severe depression that lasts a few days. I had also had a sinus infection for 4 weeks. I went off the Humira for a month now and am back to normal. My husband swears Humira is evil. I will never go back on any biologic."

• Jul...
• Taken for 2 to 5 years
• August 2, 2013

"Since beginning Humira, my Crohn's disease has been in remission (since 2010). Humira also helps my rheumatoid arthritis. I have been able to eat a normal diet with some exceptions (spicy and greasy foods). At first, it was hard to get used to giving myself a shot every 2 weeks, but being in remission is well worth it. I recommend it wholeheartedly."

• Dou...
• Taken for 2 to 5 years
• September 30, 2014

"Been on Humira over two years. This medicine brought my Crohn's under control. I am on one pen every two weeks. Brought it into remission. Well worth the painful shot. That pain is gone in seconds. Beats chronic pain."

• Do...
• Taken for 1 to 6 months
• March 8, 2018

"I have been diagnosed with Crohn's since 2012 but had the symptoms from childhood, just never looked into it until it was affecting my job and daily life. I tried many drugs just to get side effects and no relief, but Humira was by far the worst ever. I developed HPV and had to have my cervix cauterized, and psoriasis so bad my hair was falling out in clumps and pustules on my feet and hands that itched and hurt so bad, and my tattoos were just red globs. My appearance was so bad, and I felt so horrible I seriously considered suicide. I stopped the Humira ASAP and took oregano oil, and it cleared up the psoriasis immediately, and I detoxed with charcoal and bentonite clay. I haven't taken any prescription drugs since. My doctor is pushing another biologic, Stelara, I fear for my life. My doctor is trying to kill me. I have far worse side effects than any pain my Crohn's gives me. Apple cider vinegar does wonders for me also, mixed with honey and hot water and lemon."

• Lor...
• November 6, 2014

"I had to take a year and a half off from college because I felt so ill all the time and it wasn't completely confirmed that I had Crohn's. I was basically bedridden and didn't work. Then finally, my doctors confirmed it and I had the option to be put on Remicade or Humira. After much consideration, I chose Humira and am so glad I did. It's convenient, and I am back in college and working! I feel so great most of the time. It's a lifesaver for me. I hope to go into remission soon!"

• The...
• Taken for 1 to 6 months
• January 23, 2015

"I've had no major side effects! I'm a little more prone to mild infection as with other immunosuppressants. The only side effect I have is a strong burning sensation while injecting. This is remedied by icing the area beforehand and allowing the pen to warm to room temperature immediately before injection."

• mja...
• March 30, 2021

"I used Humira for Crohn's for 6 months. I quit taking it after I started having involuntary muscle movements in my right arm, which came out of nowhere. Shortly thereafter, I had a stroke, leaving me with no peripheral vision to the left from both eyes. I have neuropathy to where I am numb (as if you'd sat on the floor on your foot and it fell asleep). I would go to point at something, and my arm would not let me point at what I wanted to and would move on its own, almost in a 'palsy' like movement. Since then, I now encounter psoriasis that I never had before. I also have skin growths on my legs similar to tags, but flat, and they're increasing in number over the years. I tried to file a complaint with poison control and the FDA, and they'll take no action against big pharma... follow the money, of which I have none. I would avoid this medication at all costs."

• Uzu...
• March 15, 2013

"Been on Humira for 5 months in combination with Azathioprine, and there is no change in my condition. Started with 1 40 mg injection every 14 days, and after 3-4 months, 1 40 mg injection every week. My side effects are flu symptoms a day or two after the injections. It has all the characteristics of a feverish flu (muscle pain, tiredness, chills, and so on), except it only lasts for 6-12 hours, and I never get over 37 C (98 F). As far as I can tell, no other side effects, good or bad."

• Sli...
• Taken for less than 1 month
• November 20, 2014

"I had been on 5-ASAs (4 g per os + 4 g enema) for a while and could not improve my symptoms. Humira induced clinical remission almost immediately after the first loading dose (160 mg). I hope it stays this way!"

• Abb...
• April 27, 2017

"I've had Crohn's for about 6 years (age 25) and only 1 surgery so far. I started Humira about 7 months ago and was so happy with how well it worked and how affordable! I went from probably my worst flare-up ever to feeling 100% every day. However, I have been experiencing the most random side effects from it. I'm seeing multiple different doctors right now for many different things and still don't know if anything is actually wrong, but it sure feels like something isn't right. Some of the side effects I've experienced: severe skin rash on chest and back, sudden urge to urinate all the time, fatigue, headaches, muscle soreness, arms and legs easily going numb, and sweating a lot. There's more, but I'll spare you."

• smo...
• September 5, 2017

"I was diagnosed with Crohn's in 2016. I had shown no symptoms, but it showed in a routine colonoscopy. Humira was the first medication I tried. It suppresses your immune system, and within a few months, I had developed a melanoma. Then another. Time to try another med ..."

• Moo...
• February 1, 2016

"I've had Crohn's for years and was diagnosed with arthritis. My doctors said Humira would be the answer. After 6 months of taking the 40 mg pen, I can't say I'm feeling any better. The biggest problem is I'm in more pain than ever, just in different places, and I have gained 25 lbs since starting Humira. My nurse ambassador says pain and weight gain are not one of the side effects, so I'm still taking the Humira. I'd like to know if anyone else has had these two problems while taking Humira? More pain and weight gain, please let me know. Thank you."

• DBP...
• August 18, 2013

"I was diagnosed with Crohn's disease in 1971, and besides evolving medicine treatments, I have had two major bowel resections. My experience with Humira was not positive. For me, the injections caused intense, acute pain, and I finally decided it was not worth the severe pain. My doctor switched me to Remicade, which has the same function, and I find very easy to tolerate. I gave Imuran 8 stars because I know it's effective, and not all patients experience the pain at the injection site that I did. It was not for me, however."

• Bri...
• Taken for 1 to 6 months
• October 10, 2018

"I was diagnosed with Crohn's disease about four years ago now. I was started on Humira about 5 months ago following a bowel obstruction. Although my Crohn's symptoms have greatly diminished, I have been noticing a lot of side effects, such as fatigue, hair loss, sore and swollen joints, and a lot of nausea. With the Crohn's, I was in pain, but felt like myself. On the Humira, I’m in significantly less pain, but don’t feel like myself. I guess it’s a bit of a give and take."

• caz...
• Taken for 1 to 6 months
• June 29, 2017

"Although this medication does work for my minor Crohn's symptoms, the side effects are concerning. Diagnosed last year during a routine ultrasound for an unrelated issue. Never sick a day in my life before then. Never had taken any prescription medication in the prior 53 years. Since taking this drug, 3 bad colds, 2 bladder infections, 1 prostate infection, and now a Candida yeast infection (major rash) and signs of psoriasis. Glad it does help some people, but I think suppressing the immune system is very risky. Now looking for a 'milder' drug or alternative treatments."

• Hol...
• Taken for 6 months to 1 year
• September 11, 2016

"Went on this medication. Significantly helped my Crohn's, but now I am sick all the time with strep throat, whooping cough, or whatever else the wind blows in. This plus Crohn's... my weight is falling like a stone. Registered myself DNR."

• Anonymous
• Taken for 1 to 2 years
• May 28, 2017

"I have severe Crohn's disease, and after 15 months of taking Humira, I developed night sweats, and my abdomen was swollen so much it displaced some of my organs, causing pain. I headed to the emergency room, and after a PET scan, I was diagnosed with Hodgkin's lymphoma cancer."

• Joh...
• July 5, 2019

"I have ulcerative colitis and Crohn's and have an ileostomy bag. Humira saved my life. I was so skeptical at first from the possible side effects. I only had some red patches and swelling after that shot, but it cured my abscess after a few weeks. I used Humira for a year or so and asked my doctor if I could stop since I felt good. I have not been on Humira for a year and have had no abscess or symptoms."

• pa2...
• Taken for 1 to 6 months
• January 12, 2017

"This drug not only did not help reduce any symptoms of my Crohn's disease, but it also caused severe issues. Though I maintained a healthy diet and stayed moderately active, I gained 15 pounds in a short amount of time on this drug. I also experienced hair loss. The most serious issue, however, is that I contracted multiple infections while on this drug. The first was a sinus infection that lasted more than two weeks. After this was over, my doctor advised me to resume the Humira, and shortly afterwards, I ended up with severe sepsis that, according to several of the doctors in the hospital, probably would not have happened had I not been on Humira. I would never recommend this drug to anyone. It's not worth risking your life."

• emi...
• Taken for 1 to 2 years
• February 15, 2015

"Well, I have been on Humira for 15 months now. At first, it was my only maintenance med for what was a Crohn's disease diagnosis. About 9 months in, I had a flare that spread to virtually every system in my body: joints, bladder and kidney, skin, liver, blood, brain-you get the picture. The doctor bumped my dose to once a week, added prednisone and methotrexate. I'm well on my way to better. Humira injections do cause discomfort. I let mine warm up to room temperature and plan an ice pack for after the injection. Helps a whole lot."