User Reviews for Humira to treat Crohn's Disease
Humira has an average rating of 4.9 out of 10 from a total of 50 ratings for the treatment of Crohn's Disease. 38% of users who reviewed this medication reported a positive effect, while 46% reported a negative effect.
“hello, I've had Crohn's disease for along time. My Doctor suggested I take Humira. I developed an allergic reaction & ended up in the ICU for 3 days. I will never take this medication again”
“I used Humira for Crohn's for 6 months... I quit taking it after I started having involuntary muscle movements in my right arm, came out of nowhere. Shortly thereafter I had a stroke leaving me with no peripheral vision to the left from both eyes. I have neuropathy to where I am numb (as if you'd sat on the floor on your foot and it fell asleep) I would go to point at something and my arm would not let met point at what I wanted to and would move on it's own almost in a 'palsy' like movement. Since then I now encounter psoriasis that I never had before. I also have skin growths on my legs similar to tags but flat and they're increasing in number over the years. I tried to file a complaint with poison control and the fda and they'll take not action against big pharma... follow the money of which I have none. Iwould avoid this medication at all costs...”
“I was diagnosed with Crohns in 2013 and was prescribed Humira. I had been taking it for 7 1/2 yrs and had to change because Humira was not working as well as needed. I was taking a weekly dose for 6 months with no improvement. I never had a problem while taking Humira. My GI Doc prescribed Entyvio. A total Disaster!!!! I would never recommend this so-called medication. Entyvio should be taken off the market !!!!! I am now on another med and am hoping for better results for a many years.”
“I have been on Humira for over 1 year. I was originally on Entocort and Pentasa and it wasn't helping. My doctor suggested moving to Humira rather than more pills. I started feeling better just a few days after the initial dose. The injections do hurt, but for only about 10 seconds. Way better then being in constant pain! I was a little concerned about all the warnings, but I figure I am going to die someday so I might as well feel good. I have not had any side effects. I am so grateful for Humira!”
“Have Crohn's for over 20 years, been on every drug available including Infliximab. Infliximab helped but affected the nerves in my legs and feet. Now on Humira for a year, at first the dose was one injection every two weeks which helped a bit. Now on 2 pens every 2 weeks with fantastic results. No signs of Crohn's now, only side effects are sneezing and runny nose. For me a wonderful drug.”
“My husband was in humira for just over a year. It helped with the crohns symptoms but he was constantly in hospital with infections the most serious being pneumonia. While being treated for pneumonia they discovered his blood counts weren't right and 2 months later he was diagnosed with leukaemia. We later found out this is one of the side effects. On taking humira my husband signed his death warrant. After fighting the leukaemia for 18 months my husband lost the battle. FOLLOWING OUR EXPERIENCE I WOULD SAY STAY AWAY FROM HUMIRA”
“I have been on Humira for 3 years. The injection is painful but the results are excellent. I do not even feel that I have a disease any longer. Lots of energy and feeling normal is so worth any of the possible side effects. Just be careful and stay away when possible from any ill persons or high populated areas.”
Frequently asked questions
- Does Humira cause weight gain or weight loss?
- What happens when you stop taking Humira?
- How long does it take for Humira to work?
- How long can you stay on Humira?
“I have been on many medications but have felt indifferent about them as I never really saw my symptoms improving or worsening. I just always felt horrible and accepted that this was my life with chronic illness! I feel so strongly about how wonderful Humira is that I had to write my first review. Humira changed my life in less than two months. I am an active student athlete and have never felt healthier than I do now! I recommend it to anyone and everyone who suffers. I know people respond differently to meds but as much as it has helped me, I think it is more than worth a try. I ended up on Humira because my insurance would not cover Remicaid or Cimzia. I am SO glad it worked out the way it did.”
“I was diagnosed with Crohn's Disease 3 years ago. Doctor put me on Humira Injections every 2 weeks. The first year went smooth. My Crohn's was in remission and I was able to work again. After the first year I experienced mood changes, tiredness, developed heart burn, esophageal spasms and back pain that put me in the hospital twice. Within the last 6 months every time I take the Humira injection within 48 hours I am experiencing severe diarrhea, throwing up with stomach pains, hot flashes and severe depression that lasts a few days. I had also had a Sinus infection for 4 weeks. Went off the Humira for a month now and am back to normal. My husband swears Humira is evil. I will never go back on any Biologic.”
“Since beginning Humira, my Crohn's Disease has been in remission. (since 2010) Humira also helps my Rheumatoid Arthritis. I have been able to eat a normal diet with some exceptions (spicy and greasy foods). At first it was hard to get used to giving myself a shot every 2 weeks, but being in remission is well worth it. I recommend it wholeheartedly.”
“Been on Humira over two years. This medicine brought my Crohn's under control. I am on one pen every two weeks. Brought it into remission. Well worth the painful shot. That pain is gone in seconds. Beats chronic pain.”
“I had to take a year and half off from college because I felt so ill all the time and it wasn't completely confirmed that I had Crohn's. I was basically bedridden and didn't work. Then finally my doctors confirmed it and I had the option to be put on Remicade or Humira. After much consideration, I chose Humira and am so glad I did. It's convenient and I am back in college and working! I feel so great most of the time. It's a life saver for me. I hope to go into remission soon!”
“I was diagnosed with Colitis in December 2018 and was put on steroids in March they did an MRI and found I had Crohns in both intestines. I had lost 30 pounds, which was good for me and the only real problem was the diarrhea, no real pain. I started the Humira which has been improved they call it citrate free which means the injection went from feeling like a wasp sting to a 'is there a needle in this'? I feel great as if I didn't have Crohn's Disease. I have diarrhea maybe once or twice a month but usually from what I ate. I had my colonoscopy June 2020 and the doctor said things were better but he feels I need something stronger and wants me to to Entyvio which is a 1/2 hour infusion treatment. I feel great and have not had any adverse issue except for an infected toe. The Entyvio is more expensive and there seem to be a lot of issues that people have from it that I never had with with the Humira. Need more data”
“I've have no major side effects! I'm a little more prone to mild infection as with other immunosuppressants. The only side effect I have, is a strong burning sensation while injecting. This is remedied by icing the area before hand and allowing the pen to warm to room temperature immediately before injection.”
“I have been diagnosed with Crohn's from 2012 but had the symptoms from childhood just never looked into it until it was effecting my job and daily life. I tried many drugs just to get side effects and no relief but humira was by far the worst ever. I developed HPV and had to have my cervix cauterized. And psiriosis so bad my hair was falling out in clumps and pustules on my feet and hands that itched n hurt so bad and my tattoos were just red globs ..my appearance was so bad and I felt so horribleI seriously considered suicide . I stopped the humaira ASAP and took oregano oil and it cleared up the psoriasis immediately and I detoxed with charcoal and bentonite clay .. I haven't taken any prescription drugs since. My doctor is pushing another biologic stelara I fear for my life. My Dr is trying to kill me. I have far worse side effects than any pain my Crohn's gives me . Apple cider vinegar dose wonders for me also .. mixed with honey n hot water n lemon”
“I was diagnosed with Crohn's disease about four years ago now. I was started on humira about 5 months ago following a bowel obstruction. Although my Crohn's symptoms have greatly diminished, I have been noticing a lot of side effects, such as fatigue, hair loss, sore and swollen joints and a lot of nausea. With the Crohn's I was in pain, but felt like myself. On the humira I’m in significantly less pain, but don’t feel like myself. I guess it’s a bit of a give and take.”
“Been on Humira for 5 months in combination with Azatioprin and there is no change in my condition. Started with 1 40mg injection every 14 days and after 3-4 months 1 40mg injection every week. My side affects is flu symptoms a day or two after the injections. It has all the characteristics of a feverish flu (muscle pain, tiredness, chills and so on) except it only lasts for 6-12 hours and I never get over 37 C (98 F). As far as I can tell no other side affects good or bad.”
- How much does Humira cost without insurance?
- How long can Humira be out of the fridge?
- Can you drink alcohol while taking Humira?
- What are the new drugs for the treatment of rheumatoid arthritis (RA)?
“I had been on 5-ASAs (4g per os + 4g enema) for a while and could not improve my symptoms. Humira induced clinical remission almost immediately after the first loading dose (160 mg). I hope it stays this way!”
“I have ulcerative colitis and Crohns and have an ileostomy bag. Humira saved my life. I was so skeptical at first from the possible side effects. I only had some red patches and swelling after that shot but it cured my abscess after a few weeks. I used Humira for a year or so and asked my doctor if I could stop since I felt good. I have not been on Humira for a year and have had no abscess or symptoms.”
“I was diagnosed with Crohn's disease in 1971, and besides evolving medicine treatments, I have had two major bowel resections. My experience with Humira was not positive. For me, the injections caused intense, acute pain, and I finally decided it was not worth the severe pain. My doctor switched me to Remicade which has the same function and I find very easy to tolerate. I gave Imuran 8 stars because I know it's effective and not all patients experience the pain at the injection site that I did. It was not for me, however.”
“I've had crohn's for about 6 years (age 25) and only 1 surgery so far. I started Humira about 7 months ago and was so happy with how well it worked & how affordable! I went from probably my worst flare up ever to feeling 100% every day. However, I have been experiencing the most random side effects from it. I'm seeing multiple different doctors right now for many different things and still don't know if anything is actually wrong, but it sure feels like something isn't right. Some of the side effects I've experienced: severe skin rash on chest and back, sudden urge to urinate all the time, fatigue, headaches, muscle soreness, arms and legs easily going numb, and sweating A LOT..there's more but I'll spare you.”
“I've had Crohn's for years and diagnosed with arthritis my doctors said Humira would be the answer. After 6mo's of taking the 40mg pen, I can't say I'm feeling any better. The biggest problem is I'm in more pain than ever just in different places, and I have gained 25lbs since starting Humira. My nurse ambassador says pain and weight gain are not one of the side effects so I'm still taking the Humira. I'd like to know if anyone else has had these two problems while taking Humira? More pain and weight gain, please let me know. Thank you”
“I was diagnosed with Crohn's in 2016. I had shown no symptoms, but it showed in a routine colonoscopy. Humira was the first medication I tried. It suppresses your immune system and within a few months I had developed a melanoma. Then another. Time to try another med ...”
“Although this medication does work for my minor crohn's symptoms the side effects are concerning . Diagnosed last year during a routine ultrasound for an unrelated issue . Never sick a day in my life before then . Never had taken any prescription medication in the prior 53 years . Since taking this drug 3 bad colds , 2 bladder infections , 1 prostate infection and now a candida yeast infection ( major rash ) and signs of psoriasis . Glad it does help some people but I think suppressing the immune system is very risky . Now looking for a " milder "drug or alternative treatments .”
“Went on this medication. Significantly helped my Crohn's but now I am sick all the time with strep throat, whooping cough or what ever else the wind blows in. This plus Crohn's ... my weight is falling like a stone. Registered myself DNR”
“Complete remission within first month, for about six years. Then, developed a bacterial infection (lymph nodes) that couldn't be controlled, so discontinued Humira. Infection subsided about six months after discontinuing Humira.”
“Well, I have been on Humira for 15 months now. At first, it was my only maintenance med for what was a Crohn's Disease diagnosis. About 9 months in, I had a flare that spread to virtually every system in my body. Joints, bladder and kidney, skin, liver, blood, brain, you get the picture. The dr bumped my dose to once a week, added prednisone and methotrexate. I'm well on my way to better. Humira injections do cause discomfort. I let mine warm up to room temperature and plan an ice pack for after the injection. Helps a whole lot.”
“Hi there, I suffered for many year with Crohn's having has a resection, fistulas, perforation, strictures you name it, having had antibodies after not using infiximab for a year I started Humira 13 days ago, so far so good, no side effects as yet, didn't even hurt to administer and for the first time in years I can hear my stomach actually making a noise !! I seem to be very more energetic as the days go by, fingers crossed it continues. Had no pain whatsoever in 6 days.”
This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.
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