Reclast for Paget's Disease User Reviews

• Jen...
• January 30, 2020

"Diagnosed with Paget's disease in October 2019 after a tumor on my spine. I am a breast cancer survivor of 12 years. I had 10 radiation treatments to shrink the tumor and was eventually diagnosed with Paget's. I didn’t seem to have any side effects listed by most, but I have mild lymphedema from a mastectomy, which never bothered me much, just occasionally. Since the Reclast infusion in December, my shoulder and arm ache constantly and are staying swollen. I can only attribute it to the Reclast since I’ve not had a problem like this since my mastectomy in 2009. BE SURE TO TAKE YOUR CALCIUM AND VITAMIN D SUPPLEMENT. I failed to do so immediately following the infusion for a couple of weeks because I misunderstood my doctor, and I ached horribly and got painful ulcers in my mouth. This cleared up after I got those supplements in my body. After reading all these lingering, aching side effects, I wondered if everyone realized the importance of these supplements being taken every day."

• Pag...
• Taken for 6 months to 1 year
• August 23, 2021

"I received the Reclast at 3 pm. At midnight, I woke up freezing. It felt like I was in a tub of ice. Took 2 hours to warm up. When I coughed, I had pain all over my chest and stomach. I had THC in my system. Smoking a joint made me extremely dizzy. I’ve smoked for 50 years and never felt dizzy. It is 8 months later and it’s still happening. This drug interacts with THC. Beware!"

• Min...
• Taken for 1 to 2 years
• May 9, 2015

"Paget's disease has plagued my family. My mother was diagnosed when she was 33. She is now 58, and Reclast has destroyed her teeth and caused necrosis of her jaw."