Aubagio and Nerve Pain: What Users Say

• Dob...
• Taken for 1 to 6 months
• January 26, 2018

For Multiple Sclerosis "Diagnosed 3 years ago - now know that I've had MS for 30 years. Stopped Copaxone due to awful injection site reactions, then after playing the insurance game, started Aubagio 3 months ago. The side effects of these medications are worse than the disease!! I stopped taking it a week ago due to horrific muscle/joint pain, daily pounding headaches, blurry vision, diarrhea, ear congestion, neuropathy in hands/feet, and extreme fatigue. I'm supposed to call my Dr in 2 weeks to discuss how I feel after 3 weeks off. Seriously, these meds that are designed to help are poison! I'm going to stay off the 'preventives' and continue my clean eating and aquatic exercise."

• Squ...
• Taken for less than 1 month
• November 1, 2017

For Multiple Sclerosis "I started Aubagio 2 weeks ago. I've been on Copaxone (horrible site reactions days after injection), Avonex (serious gastric issues and no progress in regression), Gilenya (horrible headaches for the time on it and also showed not to be working), Tecfidera (found I have tested positive for JCV with high risk for PML). Which brings me to Aubagio. I take it at night with some Tylenol every other day and have had NO side effects. It may be too early to tell about the thinning hair, but I do drink, 3 times a week, protein shake 'Muscle Milk', 25mg protein and take biotin. I have felt great. Also, the damage to my hands (nerve pain and stiffness) seems to be letting up. If it still feels this good by the end of Nov, I will let Aubagio know."

• KGa...
• Taken for 1 to 2 years
• March 14, 2020

For Multiple Sclerosis "Aubagio is like a miracle drug to me. I spent years in a brain fog. After taking it for a couple of weeks, the fog started lifting. I have been on it for over a year, and I am a high-functioning member of society again. It has caused me to have neuropathy, but the benefit is worth it."

• SMR...
• Taken for 1 to 6 months
• September 28, 2021

For Multiple Sclerosis "Started on Aubagio 6 months ago and seems to be working for me, but then the neuropathy in my feet and hands felt like burning pins, and my toes felt like they wanted to explode. I'm going to get off this as soon as my neurologist responds to me. Was diagnosed in 2005 on Copaxone till I couldn't take hot injection areas on my body anymore. Then Tecfidera caused burning pins in my head, so I couldn't take the med. Was doing nothing to help my MS. Back on Copaxone 3 times a week injection. Started getting seizure-like shaking, so I stopped that, and now Aubagio neuropathy. You have to come to grips with these meds that are out there for us and their terrible side effects or just pray that your MS doesn't worsen. I hope now that I'm on SSDI and it works. Was very stressful for me, I can be somewhat okay with no meds. Good luck to all with MS and any drugs you decide on."

• Que...
• Taken for 5 to 10 years
• December 22, 2022

For Multiple Sclerosis "I have been taking Aubagio 14 mg since 2016, when I was diagnosed. This year, in 2022, I started having heart palpitations. The first time it happened was in April 2022. I thought I was having a heart attack because my heart kept racing; very scary. I had been taking Aubagio for so long. I couldn't imagine this was happening. So, my doctor and I tried me taking a half a pill (7 mg half) because I just didn't want to change. My heart started racing again. In short, I have never had any problems with Aubagio. I've taken this drug for 6 years without any problems. So now I have to work on selecting a new drug. It's so hard to decide on another medication. They all have terrible side effects. The new drugs are scary; most have this PML (brain infection that you could develop). I have noticed some issues developing neuropathy in my left hand and left leg. I can walk fine, but something feels weird."